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 1 
 on: Today at 01:21:38 PM 
Started by sully - Last post by csm101
Hey Sully

Use as directed, I had Verp injections and they didn't seem to help much. It did seem to calm nerves and pain a bit but after 12 injections nothing... Cream might be different hope it works.

CSM101

 2 
 on: Today at 12:17:32 PM 
Started by Toronto34 - Last post by NeoV
Thank you for your concern everyone, that means a lot to me.

JayGould, that's so interesting, and awful of course. I have moved so many times that it's hard to imagine it's mold, but who knows? My panic attacks actually began during my masters thesis. I was extremely stressed out and eating a high carb diet, even if it was whole grains. My joint and nerve pain began when my Peyronie's did 6 years ago, all at once. The numbness did not come until several years later. How are your symptoms now?

Tychy, I had comprehensive blood work and brain scans at a neurology center (they looked for immune diseases too) along with basic nerve tests which all found nothing. The doctor DID say my blood sugar was a tiny bit high. And you know that when a doctor says that, the truth is probably that it's much higher than it should be. I've heard a lot of forums and people experienced with diabetes say that in truth, even mildly raised blood sugar levels is enough to cause nerve damage. I am of course always worrying about lyme's disease and the less diagnosed illnesses..

I'm still ketogenic, and while my nerves hurt, I have to say that my hands feel more "real" and responsive. It's odd. I have read that nerves are painful as they regrow, so perhaps this will work given enough time. Also, my Peyronie's is the best it's been in two years. It may be the new CoQ10 (veggie caps), but my penis feels a bit better now on this diet as well. I can't say anything for sure, but I will not give up on this.

 3 
 on: Today at 11:56:35 AM 
Started by Philby - Last post by NeoV
I agree with everything Tychy said! Definitely get on CoQ10 or Ubiquinol instead if you can afford it. I personally would start traction as soon as possible with gentle care.

 4 
 on: Today at 10:50:23 AM 
Started by newhere1875 - Last post by newhere1875
Hi folks, just started looking at this forum yesterday after having some unusual symptoms over the last week or so. My grandfather had dupuytren's contracture, I have been taking beta-blockers for the last 2 years and I recently caused swelling to my penis by masturbating lots of times, therefore I appear to be somewhat at risk from this condition. I am 25.

Basically, I noted a tiny lump on the underside of my penis, just below my circumcision scar line. It was tender to touch immediately and has been sore occasionally since. The bump feels about 1cm long, when examined carefully it feels almost like a piece of string or chord. It is quite firm to touch and feels like it is connected to other, softer tissue. However, this bump/string thing can be moved, I can get it between my finger and thumb and pull it away from the main body of my penis. I can do this easily when flaccid and I can do it with a little difficulty when erect as well. Is the peyronie's plaque fixed to the penis? Or is it possible to have some degree of movement of it, at least the top of it?

Thanks for reading guys. Wish you all strength and good luck.

 5 
 on: Today at 10:13:28 AM 
Started by sully - Last post by sully
I was recently diagnosed with Peyronies Disease, and symptoms so far are top/bottom hourglass just behind the glans.  The urologist prescribed topical Verapamil cream 8%, which I just received and started using yesterday.  I received no instructions from the uro, the compounding pharmacy, or the script documentation... except to "apply to affected area twice daily." 

Where/how exactly should this cream go, and how much should I use?  Seems like it should be concentrated at/near the plaque areas, but something else I read says apply to the entire shaft.  The cream comes in a pump-style container, 60mg which could supposedly last up to 2 months.  But I have no idea how much (weight wise) is in a given pump.  Of course I want to use enough to maybe be effective, but not waste the stuff... it wasn't cheap.

Any info is appreciated!

 6 
 on: Today at 08:51:17 AM 
Started by phatcat - Last post by JayGould
If you want to do this, check for insulin syringes. They have a short and thin needle. Also, pinch away your skin at site of injection and sanitize with alcohol wipes.
There should be youtube videos on heparin and insulin injections.

Thanks. Yes I am experienced with both sub-Q and intramuscular injections so no worries.

 7 
 on: Today at 06:15:20 AM 
Started by phatcat - Last post by Tychy
If you want to do this, check for insulin syringes. They have a short and thin needle. Also, pinch away your skin at site of injection and sanitize with alcohol wipes.
There should be youtube videos on heparin and insulin injections.

 8 
 on: Today at 02:30:36 AM 
Started by Philby - Last post by Tychy
Hey Philby,

welcome to the forum!

It's a good approach to wait with traction until you have a diagnosis. Six weeks should be tolerable in terms of waiting without traction (I started after acute phase).
Cialis should be dosed 2.5 to 5mg daily, instead of 20 before intercourse, to have a steady bioavailability. As you have ED, dose at 5mg.
You can start supplements now (CoQ10, Bromelain, VitaminK and ALCAR) without diagnosis. They won't do bad to a healthy person. Research their side effects with Wikipedia / google.
You may start heat treatment now, using a washcloth, IR lamp or hand warmers.

Abstain from sex if you have pain afterwards or see dramatic worsening of curvature. Be gentle (general good consideration). If you masturbate, concentrate more on the glans and be also gentle. It may not work at first due to being used to more vigorous action, but will do soon. Always sexual activities with full erection only! No 2 hour edging!
Otherwise erections and sex are supposed to be healthy, as they stretch the tissue and promote blood flow to it. Especially nighttime erections, so get a solid 8 hours of sleep without alcohol to promote REM sleep.

Pentox seems to be a good idea, if you can get it through the primary care doc.

Get well soon!

 9 
 on: Yesterday at 09:09:12 PM 
Started by Philby - Last post by Philby
Hi All,

Firstly, thank you to the founders and members of this forum. What a great resource for information and support.

I have read the excellent Survival Guide and I am looking for urgent, specific advice about whether I should abstain from sex or not. Avoid erections or promote, through VED or. Assuming I am about 6 months into what I assume to be the acute phase.

I am 53 years old and have curvature (not yet properly measured) but about 20 deg upward curvature, 30-40 deg pointing to the left and shortening of about 2cm. I can feel the area of firm plaque along the whole length of the top of the shaft. About 6 months ago I noticed some lumpiness, assumed I had just over-worked things and although I got a referral from my doctor to a urologist, some life events got in the way and I let it slide. But on resuming relations in the last couple of months it has really become obvious. I have made an appointment with my regular doctor but I am not yet formally diagnosed and will need a referral to a urologist, probably about a 6 week wait. I have Dupyteren's contracture in both hands so I think it is very likely to be Peyronie's Disease.

I will follow the advice in the Survival Guide, but given the fact I won't be able to see a urologist immediately. I want to take every possible precaution as early as I can and since I am likely in the acute phase, I wonder if any of the Survival Guide advise differs from when in the stable phase? I have seen mention of abstinence on here to avoid further trauma, but also advice to use VEDs and ED meds. They seem to be in conflict.

Some specific questions, assuming I am in acute phase:
  • Should I abstain from sex or not?
    Should I seek to have more erections through using ED meds and/or VED or not?
    I'm inclined to wait until seeing urologist before considering traction. Does that make sense?

Dietary supplements, I will do. I don't know if I will be able to get a Pentox prescription but plan to ask my doctor. BTW, I have no pain. I do have somewhat diminished sensation though, due to a spinal injury. I already use EDs, Cialis and/or Levitra

Any advice is very much appreciated.

 10 
 on: Yesterday at 04:32:25 PM 
Started by TEHX - Last post by james1947
Thank you for the post TEHX :)
I was always a big fun of Pentox, it helped me even started taking it years after the Peyronies onset.
Unfortunately had to stop after 18 months as it weakened my immune system.
Proposing you to post on the subject at:
Improvement - Accounts of improvements in deformity or erection. - PDS - Peyronies Society Forums

James

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