Quote from: curvedcarnivore on February 11, 2024, 12:55:21 AMI haven't been coping mentally with Peyronie's Disease at all lately - and I would love some help.

I think a few things have caused my thinking to hit rock bottom. One is that at the beginning, I had a lot of hope that RestoreX, diet, supplements, and Cialis would be able to straighten out my bend – at least a little. Yet, after 73 days with no improvement, I've now lost that hope, and I'm worried I'm a lost cause.

The second issue was that I made the mistake of going to Reddit and a few other places that were full of absolute despair, which rubbed off on me. I felt just as horrible and hopeless as the men doom posting – yet I couldn't stop scrolling.

Anyway, I'm really hoping you guys may be able to share some more hopeful resources, studies, stories or anything regarding successful healing from this disease.

I desperately need to get some hope back that recovery is possible and it's not "all over" living with this disease, so even if you have a more positive way of looking at this situation, I'd love to hear it.

I have your age, but I've this disease since I was 27 years. You are not so unlucky after all (don't be angry, but you can't imagine what this disease is at 27y old).
The only thing I can tell you is that the acute stage lasts much more than 6-12 months. Don't expect too much improvement for the first 2-3 years.

In my case:
2011-2015: HELL
2016-2022: situation improved
2023- now: relapse of the disease with more pain than the first stage. Mentally I very close to suicide, but I'm not desperate with the same intesity of the first years. I've no illusions any more, life sucks and I'm a man now.

Every case is different, you could improve next month or never, nobody knows.

I think one of the experienced doctors that we are aware of might have a discussion with you about it. There is a risk with anything, and a 30-degree curve is considered mild. So the discussion would be along the lines of is it worth taking any kind of risk for minimal improvement?

Quote from: LWillisjr on November 14, 2022, 09:28:03 AMSome doctors might have a minimum curve requirement before they will even offer the injection.

Super old post but, do you know why some doctors do this? I've seen this to be quite common, but, wouldn't a mild curve be an even better candidate?

I find it a bit ironic that doctors will say we can never get our original penis back, and yet when someone with a mild curve who could see complete straightening from xiaflex or even surgery comes forward, they wont take them in due to the curvature being mild. I understand risk vs reward but, still...

I have a mild curve myself, if I had no indentation I would've just gotten xiapex and forgotten about this all and moved on. Maybe even plication without degloving. Mild enough curve to straighten, but xiapex will make the indent worse if anything, and surgery wont fix it.

Hello gents! 

I had some fairly significant hematomas after just about every series of Xiaflex shots I had, including one a month after a shot (this hematoma wasn't near my injection sites mid-low shaft area, but up closer to the glans end during a slightly toothy BJ.  Ow).

Anyway, that all happened close to 5 months ago now,  but I still have some discoloration from the bruising in the skin below the glans, and under my penis, running down into my scrotum.   Like a drainage path for the blood that leaked in there. 

Have any of you experienced long term bruising discoloration like this?  My doc didn't have much to say about how long it will take to clear (or if it will). But I'm hoping it's going to, at some point.

Updating:  the bump I had has vanished, though it took over 5 months.

To be honest if you have had the disease for 9 years it is very unlikely the traction will help to the extent that you want it to. Most likely the plaques have already calcified and it is too late but you can always ask a doctor, or make a thread in the Dr Trost section on this forum and I am sure he would answer.

He's also the creator of the RestoreX device.

Anything applied to the penis is not going to penetrate deep enough into the lower layers. You would be better at trying other forms of treatment. Heat, traction and VED are a few to mention. Also Ibuprofen would be better internally than anything topically.

Well it is good you have an appointment with a Dr. You need to study the survival guide and educate yourself regarding peyronies and have a list of questions to ask your Dr. You may very well be healing from an injury either with peyronies being involved or not. Pain and curvatures are a sign that something is going on. Hopefully you can ask your Dr for an erect ultrasound to get a clear picture of what is happening.

Topical pain relievers will no do much for your penis. You should look into traction therapy and VED therapy. Educate yourself on these two things and be ready to bring it up with your Dr. Both of these can help in the prevention/healing of peyronies symptoms.

Cialis and other ED drugs are also usually prescribed because of their reducing inflammation and promoting erections. You should also try heat therapy as it does help with pain and swelling reduction. Also adopt the mindset that this battle is a marathon and not a sprint. Worry and anxiety needs to be kept at bay. If you adopt a strategy and you see some improvement keep with it.   
Mikel7

Wow.. that is encouraging news. Trying not to obsess about this one change I have experienced and hoping for the best. Thank s for that positive piece of infdrmation

Quote from: Kindafamous on April 21, 2024, 10:19:03 AMMy question is.. once even a small area of scar tissue has been found ,like with my case, does it ALWAYS progress into a much worse situation? Am I living on borrowed time?

TH

No it does not ALWAYS get worse. It may stay the same and never progress any further.