Peyronies Society Forums

Erectile Dysfunction Forum - for all men with ED => General Discussion About Erectile Dysfunction => Topic started by: Tbones on May 16, 2016, 04:27:14 PM

Title: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Tbones on May 16, 2016, 04:27:14 PM
I've been doing a lot of research on venous leakage and understand what it is and how it happens.  I find much less info on if anyone has ever been cured from it?, if it will go away on it's on?, if sex or use of VED hurts or helps?  how long it normally lasts?  effective non-surgical treatment options?  I would love to hear from anyone who has had this problem and is now cured!

My background: I've had a curved penis/Peyronies before and it eventually went away away after 4-5 years in my 20's after months and years of gently stretching it in warm bath water.  Now in my late 40's I got it again after a careless sex injury.  Neither time with Peyronies did I have venous leakage or any problem keeping or getting an erection.  However about 6 mths ago, I was over-streching things trying to work the curve out and pretty sure I broke a vein or something near the base of my penis.  There was a sharp pain and soft erections started almost immediately. The sharp pain eventually turned into a dull constant pain with painful erections which lasted several months.  My penis also began to shrink which it had not done before.  Over time and with heat therapy the constant pain has gone away and the erections are now slightly uncomfortable and not possible without Stendra or Viagra.  My erections are so soft without a pill that I could barely have intercourse, but I can easily have an orgasm with oral sex and a soft erection.  My Stendra resolved the erection/intercourse problem, but obviously that's a patch and not a cure.  My questions above are ones that I've been unable to find answers to, so any advice or help is much appreciated!  I'm sure hoping this is not a live long condition!
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Pfract on May 16, 2016, 11:57:42 PM
By your symptoms, you fractured your penis. There is nothing you can do that will cure you, except for possibly a revascularization surgery which is done by a doctor in California.

Also, orgasms and erections are separate processes. Do you want to know more about penile fractures? I can help you. I fracture my penis too.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Tbones on May 17, 2016, 03:06:22 PM
Hi,  yes I wanted to know more about the fracture part.  I was just making an observation that it has not effected my ability to have an orgasm,  but has made it difficult to have normal intercourse without pills.  Basically it's a soft erection that never gets hard enough for penetration.  Why don't they tell you about this stuff in SEX ED class?  It's pretty big news to tell someone,  hey this thing could break and can't be fixed so you should be careful with it!  So, can you tell me more about what you have tried and if anything has been effective? 
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Pfract on May 17, 2016, 08:41:13 PM
There is not much we can do. The penis won't improve as time goes by. More likely it will get worse. You have micro arteries that run inside your penis, besides the veins, and those almost always get blocked or crimped when you fracture your penis.  There is a surgery that cures it, by that doctor I told you about. In some very select cases. So, either that or prepare for a life of pills, or injections, or an implant.

Look for San Diego sexual medicine, doctor Irwin Goldstein, and ''penile revascularization surgery''. Google it, and check the videos that I posted on this board.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on October 27, 2016, 10:31:50 AM
https://www.ncbi.nlm.nih.gov/pubmed/16420241  - Dramatic improvement of penile venous leakage upon testosterone administration. A case report and review of literature.

Abstract

The main effect of testosterone was long-time assumed to be on sexual interest and, indirectly, on erectile function. Newer insights demonstrate that testosterone deficiency impairs the anatomical, ultrastructural, biological and physiological/functional substrate of penile erection, which can be, at least in part, restored by normalization of plasma testosterone levels. This is a report on a 56-year-old man suffering from diabetes mellitus type II and metabolic syndrome, who had complaints of a severe erectile dysfunction because of venous leakage, confirmed by pharmaco-cavernosography. He was also testosterone deficient (1.8 ng ml(-1)). Upon testosterone administration his erectile function improved dramatically. Repeated cavernosography no longer showed venous leakage.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on October 28, 2016, 01:29:18 AM
I am with  pfract on this one.
QuoteThere is not much we can do.
I have venous leakage and my testosterone is very high for my age so the study is not working in my case

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on October 28, 2016, 02:38:14 AM
Depends. Have you had your testosterone levels checked?

Surprised that case study isn't getting a bit more interest. A case of venous leakage, confirmed by pharmaco-cavernosography, reversed with the administration of testosterone.

In other words, what we all assume to be a purely mechanical issue, reversed by chemical intervention.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on October 28, 2016, 03:29:58 AM
Checking periodically. 3 months ago was 693, I am 69

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on October 28, 2016, 09:08:38 AM
693, you beast! If that is ng/dl, men 1/3 of your age would be very happy with that.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Old Man on October 28, 2016, 11:40:12 AM
I have had venous leakage since 1995 after my prostate surgery. Had a slight leakage as early as age 55, prostate surgery in 1995.

As far as I have been able to find any answers about the question: Is Venous leakage able to be fixed? There are some surgeons claim success in fixing venous leakage, but there seems to be very few, if any, reports of success published.

My own personal URO who is current member of the AUA, states none articles have been published stating that a fix for venous leakage has been successful. Some reports a reduction in leakage, but not a total fix.

Bottom line for is that there is NO CURE at present for venous leakage.

Old Man

Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on November 01, 2016, 07:18:18 AM
Yes Skunkworks, is ng/dl 8)
But it not helped me not to get Peyronies and ED
It just make me an old constantly horny goat 8)

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: scorpion22 on March 06, 2017, 10:39:20 AM
Skunworks, interesting study. I did some further research and I found another one (more recent) that supports the same findings. Here: http://onlinelibrary.wiley.com/store/10.2164/jandrol.108.005264/asset/jandrol.108.005264.pdf;jsessionid=4A5E8CA5047FB8159C1A3685161582C9.f02t04?v=1&t=izy9tlwl&s=1d301a0128329298f553afc9dc1a0705f070bdf0
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on March 06, 2017, 07:00:54 PM
That link was having issues so here is another - Testosterone Improves Erectile Function in Hypogonadal Patients With Venous Leakage - Kurbatov - 2008 - Journal of Andrology - Wiley Online Library (http://onlinelibrary.wiley.com/doi/10.2164/jandrol.108.005264/full)

Great find by the way. So we can add another treatment option for venous leakage that has shown quite a good success rate.

TRT
Venous embolisation
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Realvinni2000 on March 07, 2017, 06:28:01 PM
Consider that, if you having peyronie, the inflammatory condition lead a massive release of elastase toward the whole tunica albuginea, ruining the elastic fibers forever.
At the onset of the disease Paulis and the others do prescribe Silmarin ( with trental and the others drugs) because the substance can contrast the effect of elastase, reducing or slowing down the damage.
Venous leakage is likely the  result of the degeneration of the elastic fibers , over time.
I got too but it take over 10 years for a severe E.D ( got Peyronies Disease at 30, 17 years ago).
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Paolo on March 09, 2017, 03:26:45 AM
Quote from: Realvinni2000 on March 07, 2017, 06:28:01 PMa massive release of elastase toward the whole tunica albuginea, ruining the elastic fibers forever.
( got Peyronies Disease at 30, 17 years ago).
An insightful if rather depressing thought  :(
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Realvinni2000 on March 10, 2017, 05:02:58 PM
White tea counteracts elastase too, so could give a little benefit.
A serious, honest andrologist may find a therapy that may help a little, anyway.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: lessor on March 22, 2017, 06:22:43 AM
I´ve read doctor Darius Paduch from New York have a new technique for venous leak
It is based in a new approach with cavernosography
I know one person was cured with this
Does anyone know anything about this?
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on March 22, 2017, 08:08:45 AM
Tried to find by the internet something regarding Dr. Darius Paduch techniques but fount nothing :(

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: lessor on March 22, 2017, 08:16:26 AM
Watch his twitter:

Darius A Paduch‏ @drPaduch  19 feb.
fascinating & humbling times in our research: doing something nobody did before: in science there is no room 4 alternative facts aka lies
Darius A Paduch‏ @drPaduch  27 feb.

Pts gfriend: I've never seen your penis so hard and big till Dr Paduch performed his new vascular procedure for ED. He saw 10 docs before me

And I know one person who was cured for him. He said me if everything is well the doctor will create a web page
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on March 22, 2017, 08:48:56 AM
Papers he is involved with:

https://www.ncbi.nlm.nih.gov/pubmed/?term=Paduch%20DA%5BAuthor%5D&cauthor=true&cauthor_uid=27196029
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: lessor on March 22, 2017, 09:00:13 AM
For what i know this technique which he is using is very very new due to it wont be in documents and in any paper. The doctor told something about it in the last days of february in his twitter
And according to what that person (who had the procces done) said to me he is using a new approach with cavernosography that catch veins which were not seen by normal cavernosografia or doppler or something similar.

But if in the next months or maybe year nothing appears all this will be the same as always, false hopes
That probably will end in this way I do not want to do any illusion, it's better that way
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on March 22, 2017, 05:36:18 PM
Lessor

Sorry, not using Twitter. :(
I am an old conservative, etc' man ;)
Regarding:
QuoteBut if in the next months or maybe year nothing appears all this will be the same as always, false hopes
Hope will be different with this one.
If you will follow the subject, give us an update in the future

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: lessor on March 22, 2017, 06:02:04 PM
Quote
Lessor
If you will follow the subject, give us an update in the future

James

I will do it
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on April 09, 2017, 03:13:34 AM
For venous leak, I recommend try -
Testosterone/hGH injections
Shockwave therapy
Do not masturbate for 90 days.
-
You need to remodel the tissues.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on April 09, 2017, 05:52:49 AM
Christopher

Do you know the dangers of Testosterone injections?
How high level testosterone will help with venous leak? Can you give us a link to a study in the subject? I will like to learn about. I am 69, Testosterone 693, strong venous leak.
Do you know that no forum member except you that have venous leak had improvement from Shock-wave therapy?

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on April 09, 2017, 07:56:58 AM
There are two studies on that exact topic (testosterone and venous leak) in this very thread.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on April 09, 2017, 11:21:52 AM
Thanks for the studies skunkworks
Unfortunately I can't get Testosterone therapy as my level is very high from the beginning

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on April 09, 2017, 01:12:25 PM
The dangers of T are exaggerated.

If you fear some of the side effects, some injectable hCG and an anastrozole supplement can prevent any side effects.

There is some evidence that T can make prostate cancer worse IF you have prostate cancer. T will, however, not increase the incidence of GETTING prostate cancer.

Hope that helps.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on April 09, 2017, 07:28:06 PM
Christopher

QuoteThe dangers of T are exaggerated.
In your opinion, some specialists think different.
By the way, you are a physician?

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on April 10, 2017, 02:08:36 AM
Believe it or not - I am a resident physician (internal medicine).
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: james1947 on April 10, 2017, 02:38:57 AM
Happy we have a physician on the forum :)
You are the only active one.

James
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on April 10, 2017, 02:42:11 AM
Sure thing.

I am in the same boat. ED and Peyronies Disease caused by Trimix.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Paolo on April 10, 2017, 03:38:27 AM
christopher1, liking your posts, if you are a resident physician then please keep posting and welcome  :)
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on April 10, 2017, 03:39:42 AM
Sure thing.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on April 10, 2017, 09:13:32 PM
The main worry I have with exogenous testosterone is that it can shut down natural testosterone production, sometimes permanently. Is that a misplaced fear?
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on April 10, 2017, 11:19:02 PM
Sort of.

There is a possibility of that happening if you take anabolic steroids, which are chemicals similar in structure to testosterone - but not really testosterone. The body has a hard time breaking them down, which is why you can get so muscular on them. It is constantly activating the T receptors, telling your body to grow.

With testosterone itself, that should not be a problem. You take an injection of hCG to maintain the size of your testicles. With that being said, testosterone should not be an on/off thing. If you want on, you should stay on. Also, if you go off, you will come down to the same crappy levels you were at before. Testosterone could potentially remodel your tissues, and studies show that it aids a great deal in wound healing. For example, oxandrolone is given to HIV waisting patients and burn victims.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: lessor on May 11, 2017, 09:19:21 PM
I talked about dr paduch and i sent a message he didnt answer
Now he wrote in his twitter this:
My MRA guided vascular surgery for men with erectile problems; is highly successful, microsurgical procedure takes 4h, just 3 weeks after
Anyone know what is MRA?
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Jonbinspain on May 12, 2017, 01:28:53 AM
Lessor;

Magnetic Resonance Angiography. It's used for examining major blood vessels throughout the body.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: skunkworks on August 03, 2017, 09:43:39 AM
Quote from: james1947 on October 28, 2016, 03:29:58 AM
Checking periodically. 3 months ago was 693, I am 69

James

So almost a year later I get my testosterone checked, 24.8 which converts to 714.

Double my age and James' has basically as high T levels as me.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Tychy on August 03, 2017, 10:05:29 AM
Mine were like 320ish at 30. I have normal hair growth and normal sized testicles. My urologist told me once that's normal, since the receptors may be more sensitive in me vs other people. Maybe Christopher can clear that up.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on August 06, 2017, 02:42:21 PM
If you have symptoms of low T and/or a venous leak diagnosed by a physician, it is worth a try.

Viagra and pentox also help with venous leakage. See the post in my signature for more info.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: TonySa on August 06, 2017, 07:08:13 PM
I'm curious about the hcg to counter the side effects of T of testicle shrinkage.  Can you say how much and how often?
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: JohnWright on August 06, 2017, 09:44:38 PM
My T has tested around 300 over the last year that we've been testing. I've been working with a naturopath, hoping to avoid the whole testicle issue as a consequence of taking the T steroid.

In addition to testicle shrinkage as a concern, an equal concern is that in some circumstances where one sets about toying with T inducing protocols -- the male body will take testosterone and turn it into estrogen. And, while every male has normal amounts of estrogen as a routine, higher levels of estrogen don't produce the results most men are looking for, ahem. Hear ye, hear ye.

Some guys respond to the non-drug alternatives and produce T, but my body has not opted to cooperate so far. This week we're reviewing the possibility of taking Clomid which is affordable and has an off-label use for tricking the male body into boosting T. There's a second pill that will block the mechanism that takes T and turns it into estrogen.

Here's an example narrative on Clomid   Clomid for Men with Low Testosterone Part One by Jeffrey Dach MD (http://jeffreydachmd.com/clomid-for-low-testosterone-part-one/)

Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on August 08, 2017, 03:24:22 PM
Just do the testosterone injections with an MD or DO. Forget the naturopath.

There are no alternatives. Tribulus does not work.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: pey ron on May 07, 2018, 10:50:16 PM
Quote from: Realvinni2000 on March 07, 2017, 06:28:01 PM
At the onset of the disease Paulis and the others do prescribe Silmarin ( with trental and the others drugs) because the substance can contrast the effect of elastase, reducing or slowing down the damage.

(http://media.springernature.com/full/springer-static/image/art%3A10.1186%2F1472-6882-9-27/MediaObjects/12906_2009_Article_252_Fig1_HTML.jpg)

It seems like burdock root would be a much better choice than silmarin (milk thistle)... it suppresses elastase down while not affecting collagenase.
Title: Re: Venous Leakage - Will it go away on it's own? What is the cure?
Post by: Christopher1 on May 15, 2018, 06:28:58 PM
What is your source for that chart?

Very interesting.