Quote from: tsp on April 04, 2024, 01:05:52 PMThe two bends may or may not be caused by the same piece of scar tissue. You could have separate scarring at the two locations, or one big scar that wraps around your shaft.

If I understand you correctly, you have a dent while partially erect that fills up when fully erect. This is not unusual, and partially erect dents shouldn't matter as long as your erect penis is fine.

You're correct. The bend upwards is much more problematic than the curve when I'm erect.

When I use Restorex to bend opposite the dent, I can easily get to 120 degrees. When I bend downward I can barely get to 90 degrees.  Is it possible that this lack of flexibility compared to the side bend is the result of more rigid scar tissue, or something mechanical with the Restorex device?

Can using a compression ring with a vacuum pump cause damage with Peroni

Is it safe to use a ring with a vacuum pump machine with Peroni disease?
Can cause more damage because of the restriction

I send a Restorex if you want, I live in France

Hey RBD87 - hope you're doing well.

Seems like we're in pretty similar boats as 36 year olds in NYC with symptoms that started around the same time (I was August 2022). I had a 2 rounds of measurements and an ultrasound by Dr. Najari, but ended up getting a third opinion and going with Dr. Mulhall at MSK for my treamtment. That said, Dr. Najari was so thorough and really took his time with me. He definitely spent more time than Mulhall ever has, but here I am - having just had my first Xiaflex injection yesterday from Mulhall.

I'm really keen to here how you're progressing, any improvements you're seeing since you're a bit further along with Xiaflex, and what the traction protocol looks like.

Are you using RestoreX? How many times a day and for how long? And when did you start with molding and traction after your injections?

For context, I had injection #1 yesterday and my second will be next week (7 days later). I'm instructed to begin traction 7 days from that second injection, but this seems to be different from your timeline and definitely different from the aggresive methods of Dr. Trost in Utah.

Anyway, it would be amazing if you continue keeping us posted. I'm going to share an introductory thread of my own to chronicle my journey as well.


Wishing you all the best of luck - we got this, man.

Hi, I'm selling a Restorex, I've only used it for 5 months, it's like new because I used it with compresses on it.

I sell it with new make-up pads , used for comfort
And also with a spare bag of screws

I would prefer to sell it to a person in Europe, to whom it is impossible to import a Restorex from their site (I live in France )

Thanks

You should not blame yourself.  You have already done the right thing by pursuing treatment.

Welcome Leftbanana to the forum. If you have not done so please download and study our survival guide -->Survival Guide . This will give you a better understanding about peyronies and it's treatments.

Peyronies is a very unpredictable disease as how it affects each man differently. Injury from sex is common but some men get it from nothing related at all. Yes it is very upsetting and can cause a lot of anxiety and worrying, but you need to get control over this early on.

Congenital curves are normal but pain and bends are not. How are your erections? Any pain? Cialis can help with healing the inflammation and keep things stretched out somewhat. The supplements may help with reducing body inflammation but will not heal peyronies. There have not been any clinical studies with them as I am aware.

You need to educate yourself first regarding peyronies and get a list of questions for your upcoming Dr's appointment. Now realize that peyronies Dr's are few and far between. If you can find a urologist who will work with you that is better than one who is uneducated.

You should look into traction and VED therapy.  The PMP and Restorex are what a lot of men use for traction. The PMP has a lighter pulling force and the Restorex is stronger with the added benefit of counter bending. It just depends on your time investment with each one. VED therapy will also help you in the healing process. Read up on these and educate yourself. Also decreasing sexual activity when you are in pain can help. Using a lot of lube and being gentle also helps too.

You must also get the mindset that peyronies is a marathon and not a sprint. A lot of men want this healed now and that is not how this disease is approached. The acute stage is very different for each man in how long it lasts and is unpredictable. With time and a game plan though you can make it through this! You have rached the best forum regarding peyronies on the net and these guys here all understand your pain.

Mikel7

It is normal for one of your testicles to hang a little higher/lower than the other one.
Are your testicles drawn up tightly against the base of your penis?  Also size differences are normal too. Is your pain while flaccid or with an erection?

When I was in a great deal of pain I started using a heating pad. Look into heat therapy and give it a try. You can use it multiple times a day just so you are not burning yourself. I used a heating pad on low with a towel in between. It did wonders for me.