I'm really sorry to hear about what you're going through. It sounds incredibly challenging, both physically and emotionally. It's understandable that you're feeling hopeless and worried about disappointing your partner.

Seeking out a knowledgeable specialist like the high-volume surgeon/Peyronies doctor you mentioned seems like a proactive step. Getting proper diagnostic tests done by someone who understands your condition can provide clarity on the root causes of your symptoms and guide your treatment options.

Regarding the possibility of getting an implant, it's a decision that should be carefully considered with the guidance of medical professionals. It's encouraging that you're noticing some potential for improvement in your erections, especially if the pain can be managed effectively. Exploring non-invasive or less invasive treatments first, if suitable, might be worth considering before opting for more invasive procedures like implants.

It's not uncommon for symptoms to evolve over time, and the progression of Peyronie's disease can vary from person to person. Your experiences are valid, and it's important to advocate for yourself and seek the support and treatment that you need. Keep pushing for answers and exploring all available options with your healthcare provider. You're not alone in this journey, and I hope you find relief and improvement soon.

Quote from: trytostayhopeful on December 14, 2023, 08:38:00 AMI'm 34, have had Peyronies Disease for 2 years. My curve is straight up about 65 degrees. I am concerned that my nighttime erections are getting weaker and my erections going away more quickly. About 1 year ago I did a series six of P shots and that really helped my erection quality stay at a 5/5. I also take a vitamin formula called Cardio Miracle that is full of L Arginine and nitric acid for good blood flow. I just started to take gingko/ginseng, horny goat weed, and yohimbe to try and improve the erections. My wife and I went almost a year without having sex at the beginning of this journey and have recently started to enjoy intercourse again. And now that the erections seem to be weakening it has me very anxious. Even more so because she is still in her mid twenties. I have not taken any prescription pills for this because I do not want them to be a necessity for the rest of my life. I am not sure what to do.

Your approach with supplements like gingko/ginseng, horny goat weed, and yohimbe is worth exploring, as they are often touted for their potential benefits in improving erectile function and blood flow. However, it's essential to proceed with caution and consult with a healthcare professional before introducing new supplements, especially considering your specific medical condition and any potential interactions with other medications or treatments you may be using.

Regarding your concerns about prescription pills, it's important to remember that they can be a viable option for many individuals with erectile dysfunction or related issues. While you're hesitant about them becoming a long-term necessity, they can sometimes offer significant benefits, especially when used as part of a comprehensive treatment plan tailored to your needs. Discussing your concerns and preferences with a healthcare provider can help you explore all available options and make informed decisions about your care.

Ultimately, finding the right approach to managing Peyronie's Disease and maintaining satisfactory sexual function is a highly individualized process. Open communication with your healthcare provider and your partner, along with patience and perseverance, can be key in navigating this journey.

Quote from: DaneS89 on December 29, 2023, 05:04:48 AMAn open question to anyone reading this and comfortable enough to answer - do any of you here agonise and obsess about the (possible) sexual side effects of antidepressant medications, especially within the context of peyronies disease? That is if you take them of course, and if so, I'd be curious to know, were you on them already or did they enter the scene post-peyronies to help manage the emotional toll of the condition? Do you deem them as a 'necessary evil' of sorts? Or if you don't take them but could benefit from them, is the refusal based on an unwillingness to take any risks when it comes to sexual function?

For me personally, I am plagued by these questions and doubts. Stop them, switch them, leave them unchanged?  I have become fascinated with 'researching' the pharmacological profiles and actions of all the different antidepessant meds and how they might affect sexual functioning. There doesn't seem to be a perfectly 'pro-sexual' antidepressant drug out there except for maybe Trazadone which isn't available here. The two that I have settled on are known to be fairly 'safe' options with regards to preserving male sexual function, and one of them is even reported to enhance it. I'm probably alone in having this particular interest, but if on the rare chance I'm not it'd be cool to discuss this more in depth.

Researching the pharmacological profiles of antidepressants is a proactive approach, and it's commendable that you're taking an active role in your healthcare decisions. While there may not be a perfect "pro-sexual" antidepressant, finding one that is known to have fewer sexual side effects or even potentially enhance sexual function, like the options you've mentioned, can be a step in the right direction.

Ultimately, the decision to start, stop, or switch antidepressant medications should be made in consultation with a healthcare professional who can weigh the potential benefits and risks based on your individual circumstances and needs. You're definitely not alone in grappling with these questions, and seeking support and information is a positive step towards finding the best solution for you.

It sounds like you're experiencing difficulty with your VED (Vacuum Erectile Device). While it's disappointing that it's not working out as expected, there may be a few things you could try before deciding to send it back. Have you adjusted the pressure settings or tried using a different size of the vacuum erection hole? Sometimes, small adjustments can make a big difference. If you're still having trouble, it might be worth reaching out to the manufacturer or your healthcare provider for further guidance. They may have some additional suggestions or alternatives to consider.

Quote from: SDP on December 29, 2023, 11:53:39 PMI've had peyronie's for about 10 years. The curvature is not significant and there's no problems with sex or erections (except in the morning...see below), however, ever since then the main problems have been loss of sensation during ejaculation (no contractions) and significantly less sperm volume. Starting 4 years prior to that I was taking warafin (a blood thinner) and atenolol (a beta blocker) due to heart disease but during a check-up, my cardiologist said I could stop taking them, but since then there's been no increase in sensation It's possible the beta blocker contributed to it, but I doubt it because I never had an issue with loss of sensation before the peyronie's. I had my testosterone checked a few years ago and the result was that it was in the low end of normal. I asked my doctor for a prescription to increase it but she refused because she said it was normal.

From a google search, I have a condition called ejaculatory anhedonia, and one of the causes has something to do with the nerves between my brain and my penis, which I don't understand why because I'm not depressed about the peyronie's (or anything else), so I think the cause is the peyronie's, however, I don't want surgery for fear of making it worse and from posts I've read, I'm not convinced the other treatments work.

The treatments for ejaculatory ahendonia include prescription drugs and one (there may be more) supplement called Yohimbine, therefore, I'll at least try a supplement. From a case study I read, Yohimbine was very successful for treating it but only when used with other drugs, but I couldn't find in the article which ones.

Has anyone on this forum experienced loss of sensation/no contractions during ejaculation, and if so, what, if any, drugs/supplements did you try for treatment and what were the results?

Also, before the peyronie's, I frequently had morning erections, but no more. I have a box with numerous supplements I've tried, but nothing works...any suggestions for natural supplements?

It sounds like you've been dealing with some challenging issues related to Peyronie's disease and its effects on your sexual health. While I'm not a doctor, I can offer some insights based on what you've shared.

Firstly, it's understandable that you're cautious about surgical options, especially given the potential risks involved. Exploring alternative treatments like supplements is a reasonable approach.

Yohimbine is indeed one of the supplements that has been explored for ejaculatory anhedonia. It's derived from the bark of the yohimbe tree and has been used traditionally as an aphrodisiac and to treat erectile dysfunction. Some studies suggest it may help improve sexual function, although its effectiveness can vary from person to person.

However, it's important to note that while supplements like yohimbine may offer some benefits, they may not work for everyone, and their efficacy is not universally supported by scientific evidence. Additionally, they can have side effects and interactions with other medications, so it's essential to consult with a healthcare professional before starting any new supplement regimen, especially considering your medical history and the medications you were previously taking.

As for natural supplements to consider, there's a range of options that some individuals find helpful for sexual health, including L-arginine, ginseng, and maca root. Again, it's crucial to approach these with caution and discuss them with your doctor to ensure they're safe for you and won't interact negatively with any other medications or conditions you have.

In terms of your morning erections, the fact that you've experienced a change in this pattern could be related to various factors, including Peyronie's disease, hormonal changes, or other underlying health issues. It might be worth discussing this with your doctor to explore potential causes and solutions.

Quote from: SDP on April 10, 2024, 10:33:41 AMThe amount of my ejaculate has decreased significantly since my Peyronie's was diagnosed. I've tried various supplements over the years but none have worked.

Any suggestions for supplements that have worked?

I'm sorry to hear about your struggle. It's understandable that you're seeking solutions. While I'm not a doctor, I've come across discussions about certain supplements that some individuals have found helpful in similar situations. One option often mentioned is L-arginine, as it's believed to support blood flow, which could potentially enhance ejaculate volume. Another one worth considering is zinc, as it plays a role in reproductive health. However, it's crucial to consult with a healthcare professional before trying any new supplement, especially considering your specific condition. They can provide personalized guidance and ensure compatibility with any existing treatments or conditions you have.

I would never recommend this. I understand your dilemma but erections are necessary and normal to keep your penis healthy and stretched out. Would you want to loose size? How about waking up one morning and your penis is an inch shorter? Blood flow into the penis
is a healthy normal function. Have you tried some heat therapy to help out with the pain?

It sounds like a good start. I would stay away from the Dr's recommendations for these injections. Traction therapy and tadalafil should help you out. Also I think you could get tadalafil from the HIMs online teledoctor. They can provide tadalafil and other meds at lower cost from what I hear. In the USA I use to get mine form Costco which was cheap $$.

This is the heating pad I have -->Heating Pad . It is very soft and comfortable. The low setting is very mild.

Yes from what you describe it sounds like pelvic issues. Getting a stretching/strengthening routine in place is what you need. You will find the balance of what works for you over time. You just need to be consistent with the exercises. There are a couple of great videos on youtube from 2 separate guys who have gone through it. One guy goes into great detail of how he cam to his diagnosis.