Hi guys
My disease 5 years.
I am 27 years old .
I had a penis 17-18 cm after a disease of 15-16 cm + diminished diameter.
The curvature is insignificant, a little down.
But the big problem is that there is no erogenous sensitivity.
I can cum and things like that but I do not feel anything when I get into a girl.
Feeling like an ordinary friction, as if I shove a hand.
No erogenous sensitivity .
Sex during disease was only once.
I'm not sure if I can make sex often.
Because there is no libido.
I almost do not feel my a dick.
I have an erection when I watch porn.
Morning erections resumed.
I do not have pain and the like.
If I have an erection, erection always hard.
But there is no certainty how often I can make sex if I live with a girl.
As everyone knows, girls need regular sex.
Doctors of course tell me that everything is fine,they always say so when they do not know how to solve the problem.
Maybe someone has come across a loss of sensitivity and can tell me which prospects?
All my family knows about my problem.
Even my friend knows.
He also has problems but not related to the penis, so he visits a female psychologist to solve his problems and he decided to ask a psychologist about me.
She said that my problem is supposedly in my head but not in the penis.
But I almost do not feel anything!
The problem is not in the head.
I must visit France next year.
The girl is waiting for me but I'm not sure if I will visit because of my not normal penis.
I even show my penis to girl from France through Skype lol She said I think everything is fine.
I lost 5 years of life and still am afraid to try to start living .
The uncertainty in my penis just kills me like many other guys here .
I'm just hanging like a computer.
and I do not know what to do
I still can not believe that I'm in a similar situation.
Almost all 5 years of life I almost always stay at home.
I did not finish my studies.
I did not start working.
And I'm afraid of losing a good girl.
I did almost everything.
I even turned to religion and was in the church.
Another misfortune and a sad story.
"Girls need regular sex" seems like a strange assumption to me. Yeah, if you're a weak man who is unable to talk to her about sex in a positive way, yeah she'll leave you. Sex shouldn't be so serious, and please, stop watching porn man.. if you have any erection issues, numbness, or bending, stay off the damn porn. Let your girl know about your problems and try to make it fun, MAKE SEX ABOUT HER, not you! You can't lose a girl from having Peyronie's, you lose a girl by letting yourself be weakened by Peyronie's. I know it's brutal man, but you have to persist. You can still find peace.
Moreover, what is a "normal" sex life? Society makes us think we find one partner and have a "good sex life" with them without any ups or downs. Sex is not meant to be done over and over on the same schedule with the same partner. Read about the Coolidge effect. Stop giving yourself such a hard time, you're only human and sex is not meant to be something that is sustained. It is a transitional act, evolutionary speaking. Sure, we can enjoy it like a hobby almost, but that can have limits. Have sex when you feel like it, and if your partner can't work with that, find a new one. There are so many girls with different sexual and emotional needs, never force yourself to be with one. And please, tell her about your worries, no reason to hide it. Share it with her, let her know you can't have sex that often.
Have you visited a pelvic floor physical therapist? Perhaps you have CPPS.
I think the problem is in damage to nerve fibers in the penis.
No a pelvic floor .
I asked the andrologist doctor about this, in your hospital have a doctor who heals the nerve fibers?
He said that there is no sense now to do anything.
Because too much time has passed.
They even denied me a study of blood vessels in the penis because it can cause side effects .
All that I have this ultrasound penis.
On ultrasound seen a couple objects, the size of a couple of millimeters.
I think you can restore size using VED and traction.
As for feeling, i have same problem. It could be that nerve is pinched by muscles or something.
Do you have full erections? Maybe you would have feeling if erections were 100%
Yes, I have a full hard erection .
At the beginning of the disease, I feel it is almost as if this is not my penis.
But in 5 years is a little better.
But still not normal.
And why I wanted to do a vascular study.
Because the penis in a calm state is sometimes hard, as if I'm in cold water.
Do you have a regular sex life?
I know that some guys do not even have a normal erection.
But that does not make me calm.
I do not know how my life will be with a girl.
How often can I make sex?
Will I have the desire to have sex? if I almost do not feel anything.
Or I'll be like a simulator ,honey i want you ...ok ok i'm coming.... or not now : (
Sometimes when a girl just hugs me, I have an erection but still almost no libido . You walk down the street and not feel penis .
I still remember the sensations when I was healthy ...sometimes I just look at the girls as a food and know that in bed they will be in my power and there will be no problems.
Now everything is different.
I'm like a wounded puppy.
My advice, and only my advice, is that you look for a solution to the problem before entering into a relationship, otherwise, if the girl you like a lot you may end up desperate and believe me that is worse.
If you're not sure how your penis works, try first with a girl you do not like very much, so if something goes wrong it will not be so hard. But hey this is just my advice
Yes, I also thought about it.
There was only once sex.
What can I say.
At the first attempt the erection disappeared, maybe because of the excitement I do not know.
But after a couple of minutes the erection was restored and there was sex until the morning, the erection was until the morning despite the fact that the girl does not do anything .
But I must start living with a girl to understand how often I can etc .
Maybe I'll find a girl for the experiment, I do not know .
Sergey
QuoteMaybe I'll find a girl for the experiment, I do not know
In my opinion, you should do that. No other way to get an answer to your questions.
And sooner that letter. You are still very young, but don't waste time!
James
Yes, I will try but I'm sure that I will have problems . Any changes in the genitals not good.
I now use alternative medicine.
I am certainly skeptical but in our case all means are good.
It is a pity that medicine in the reproductive system at the level of the Middle Ages in any country.
Sergey
Quote...I'm sure that I will have problems
I am much older than you, so I will give you an advice.
You should change the sentence in your mind to:
...I'm sure that I will not have any problems :)
It works! From my experience
James
this will not work in my case
I'm tired of imagining that everything will be alright.
Suicide is a matter of time.
I do not know how long I can exist like this.
Medicine of the 21st century burn in hell.
Quote from: SergeyAnael on October 23, 2017, 10:55:12 AM
this will not work in my case
I'm tired of imagining that everything will be alright.
Do whatever you can to fix it, make it your life mission to get back your dick, i'm sure it can be done, in one way or another, but you have to try and work on it. I think it can be done. There are many positive expiriences with different treatements, and there is a reconstructive and implant surgeries that can be done if everything else fails. Don't lose hope, look it as something you have to do. If nothing else, untill you fix it, you still can make women cum and have sex without dick, eunuchs were the most popular lovers in times past. Don't lose hope.
All this is nonsense.
I can not regain my sensitivity in the penis.
Penis is not a toy.
I broke it and I fixed it.
I'm not a magician.
[Full quote removed, read the forum rules on quoting - ADMIN]
Look, if i had my before injury dick back and didn't regain my sensitivity, i would be very happy man. You are just afraid, you can get erections, you f'^+'ed "till the morning", your dick works, it doesn't hurt, you are not unsatisfied with your size and not trying to regain it back. I think it's mostly mental, try to F^@% with your dick, if it doesn't work, make her cum with your fingers or tongue. Use cialis or viagra if you get problems and that's it, don't be afraid of sex
It all does not matter.
I do not feel the penis and the desire to have sex.
Regardless of whether I have an erection or not.
I do not feel my erection.
an erection hard but I do not feel it !
If he cums he will fall asleep for the whole day and will look like dead.
How was your injury? Do you feel nothing in your penis when you make masturbation?
I fell to the floor in the dark
of the penis to have a morning erection.
I do not have a fracture but have microtrauma.
I feel the usual friction.
Try to masturbate your arm.
The same effect.
I feel only a little.
As if a weak electrical discharge in the penis.
As if the nerve fibers are damaged like wires.
orgasm weak and then the penis is dead after cum.
the penis will decrease as if I am in cold water.
[Full quote removed, read the forum rules on quoting - ADMIN]
I have same problem, maybe it's your pelvic muscles injury or something
I think injured nerve fibers or a problem with blood flow.
If the problem with blood flow.
I think Xiaflex would have solved my problem.
Because my objects (I do not remember how to call it in English) in the penis too small and Xiaflex could completely dissolve objects.
And then maybe I start to feel .
If you think your problem is due to bad bloodflow or something similar get a MRI or at least a doppler ultrasound with injection
doctors do not want to do this for me ,doppler ultrasound with injection.
I tried to do this in two clinics and get refused.
They are afraid to do this because of possible complications.
If doctors are afraid .... I'm afraid even more.
I'll think about it.
Maybe I'll talk to a doctor.
I dont believe a doppler with injection is so dangerous, I would push for it if you want to try to know what is wrong with you
Sergey
Don't have reason to be afraid from injection to get an erection and ultrasound.
Done it in the past.
It is the only way to check for venous leak.
But it should be done with a doctor that knows what he is doing, not with one that he is afraid :)
James
I read in the article about dopplerography of the vessels of the penis :If injections into the cavernous bodies of the patient's penis can cause complications, stimulation of erection with the help of Viagra in a dosage of 50 g is applied.
Maybe I will do without injections.
If you can get an erection with Viagra when doctors/nurses watching you, don't inject to the penis :)
And the article is right! An inexperienced doctor will cause complications!
James
if there is a woman among the staff I can.
I had experience of physiotherapy.
longidase through electrophoresis and massage, all this was done by a woman.
I had an erection because of a woman even if she did not touch the penis.
So you should be happy ;D
And you have to use the erection :)
Just start to be active sexually, you will find you are OK :)
James
thanks for the support James .
I decided to end my life with today.
6 years of torture too much for me.
all for now and a quiet night to me.
peace to all.
Maybe next life I will be healthy if it exists.
Bye guys.
Sergey, if you see this, contact any of us and talk to us please. I'm sure that you can still do something about your problem, if it's a nerve problem nerves can regrow with time. It seems like it's a pelvic issue to me. Please contact any of us
Sergey, please reach out to someone here or someone you trust to discuss feeling suicidal. There is hope, but I know that's hard to trust right now.
Mods, PM me his email, I'll try to contact with him
Alex
Whom email you want?
James
It's sergeyanael who above said he was going to end his life. Hope he comes back to the forum for support instead.
Quote from: james1947 on November 07, 2017, 09:08:09 AM
Whom email you want?
I mean email of SergeyAnael
I'll try to speak with him, at least, if he didn't done what he was talked about
I have reached out to him by PM and email but have heard nothing back.
Stabler67
I wrote him an email also
Hope he didn't done something stupid :(
James
I'm alive, just cut the veins but my sister came home and called an ambulance.
Hi Sergey, I'm very glad to hear you're fine. I really hope you won't be doing anything stupid again! First of all, I think that you should exhaust all your options and try to find out exactly what you have. Althought as far as I understand you say that you have a plaque, your symptoms don't really match the normal symptoms of Peyronie's, so maybe you have something else that is treatable. For example, you say that you don't have libido, and that is not likely caused by a physical issue like peyronie's, but because of a mental issue, and those can be overcomed. I don't know where are you from, but if the doctors in your country are of no help, I would travel to other places (USA is a great place to find good urologists) until I found out what is exactly happening. I really hope you will be able to find out what is causing this and strike back with the right methods ;)
Also, seek psychological help! This is vital. A lot of people around here don't do it (maybe because they feel ashamed) and thats a very bad decision. An expert could help you A LOT in overcoming this unhapinnes, I'm sure of that ;)
Sergey, I'm sure you will thank you Sister one day, please, please seek help or keep posting, we need your input, positive or negative, it doesn't matter Bud
Take care :)
Psychological help will not help me.
About help in other countries.
Only Xiaflex have a chance to help me.
But I must to find out if I'm a candidate for Xiaflex .
Don't say that, Sergey, I'm sure psychological help could help you. You are able to get erection, thus you're able to make love, the only thing is that it seems you feel less sensation down there. If I were you, I would at least try that option, I hope you will at least try :)
And I'm afraid that I could get a re-injury.
underwear may be injure the penis again, I do not see bruises or swelling but feel uncomfortable.
It's like a curse.
Sergey, everyone who has a penis is subject to injury his penis, so you have as much possibilities of injuring your penis as anyone else, so I would not worry too much about that. If you have lost sensation, I think it's vital that you seek good professional help. I don't know if it's true, but I recall having heard about a test that shows how are your penis nerves, I would take that direction if I were you. Keep us informed ;)
It's true there is a similar test.
But they can not cure nerve fibers, no one can.
I asked a urologist on the site about Xiaflex if I'm a candidate,still waiting for a response.
If I'm a candidate, Maybe I'll do a test for exactly know.
Sergey, that's a VERY good idea. I know that no one can cure nerve fibers, but it's a known fact that this fibers can re-grow with time. I've heard that users like NeoV, after having numbness and having made dicrease the plaque gained a good amount of sensation back. Also, with this test you could actually know if the nerves are really affected by the plaque or if the problem is caused by something else. Anyhow, keep us informed!
Sergey
Happy you are here with us :)
Have many possibilities and hope for a real cure.
Just patience please! Things are happening, researches are going forward.
James
Maybe when I'm 40 years old...
I, as an unlucky person, know for certain.
There will be no miracle and luck in this matter.
I sometimes think that we all should have been born in 100 years.
Maybe now our illness was like a flu and we were all happy.
Just take the pill and get rid of Peyronie's disease.
and f'^+'ed psychological help.
certainly the psychological help with these problems doesnt help much, its just condescension
Psychological help can help, if who you're working with isn't helping fire them and find someone else. This disease can be hella stress on us and if we need support we shouldn't feel guilty getting it. Believing nothing can help us cope is just part of the depression...hopelessness...IMHO 😎
I feel for the OP's situation, having lived in Ukraine for several years, and experienced the 'quality' of medical care. Hard enough to find a competent Urologist in the United States thats well read on the disease. I imagine finding a Russian doctor, who will still tell you that you're gonna die if you sit on a cold surface, is next to impossible.
MedStudent86,what do you mean?
That doctors in Rus&Ukr are little better than Veterinarians and still subscribe to superstitions and tell you to drink F^@$!ng Vodka w/pepper for the flu, or to drink Somagon. Meaning, if you have to travel in the USA to find a qualified Urologist, I cannot imagine you can find even 1 physician in Russia who cares about this disease or is knowledgeable about it considering how Russia treats its mentally ill and drug addicted.
Quote from: SergeyAnael on December 13, 2017, 07:46:09 AM
MedStudent86,what do you mean?
I think this is everywhere if we talk about peyronie .
In the US, I do not solve my problems with peyronie as well as any other country.
In the US there is a Xiaflex.
In Russia appeared kollalizin but they still apply only for the contour of Dupuytren.
Kollalizin is an analogue Xiaflex the principle of operation is the same.
If they approve this for the treatment of peyronie disease I think it will be cheaper than Xiaflex.
But Xiaflex and kollalizin are not 100% the way of treatment.
So I do not see the difference.
Treatment is the same everywhere.
What do you think about surgery?
Surgery is mockery of the penis.
You are entitled to your opinion regarding surgery.
I for one had surgery and VERY happy with the outcome....... and so is my wife.