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 1 
 on: Today at 10:03:17 PM 
Started by Hawk - Last post by Alibaba
SW01, I agree 100% with you firing your doctors. Unless a doctor does due diligence examinations, discusses things in a manner you feel confident and comfortable with, fire his a$$. There are compassionate and reasonable urologists despite (this may pi$$ somebody off) urologists as a whole being an odd lot. For those who disagree, I had a conversation a few years ago with a hospital administrator about a urologist who I thought was an a$$. He also say urologists were his most numerous complaints and biggest headache.  I went through 15 myself. Keep trying, don't give up.  There are good ones. Give a general location where you are and maybe someone knows a good or great one in your area if this doc does not help. Cheers man

 2 
 on: Today at 08:59:30 PM 
Started by Monty - Last post by Hawk
A board that is under another board is called a "Child Board" by the forum software.  It is in the program code of the forum software.  There is no way to change it.

 3 
 on: Today at 08:56:25 PM 
Started by Hawk - Last post by Hawk
This topic has been moved to Penile Implants.

http://www.peyroniesforum.net/index.php?topic=10637.0

 4 
 on: Today at 08:21:15 PM 
Started by hope794 - Last post by Alibaba
I am familiar with HIV clinical trials having 2 friends that are researchers. 1 runs and entire research team.  Safety is always the first phase and a very narrow set of parameters to make sure nothing interferes with the trial. Very likely the safety phase will be be on individuals with no issues after animal phases have passed.  Each phase requires approval and in this case military review. That can add months between each phase. There is a review of the design of each phase and that can take months to write. Any issue can halt the program or trigger a complete redesign or rewrite of the project design. Both government, private party, and university financed trials are subject to financing. Someone cuts off the cash, it's over. Great strides are often made in medical science but it is a slow slow process.  Some program designs work excellent in animals or humanized animals but fall flat on their face in human trials, something I do not yet understand why and I have spent hours at a time discussing and bouncing theories back and forth with friends trying to figure out why. In the mean time, my suggestion is to to follow the trials wherever they go so you can share hope and ideas with others and if it is ultimately successful, share some more, but for those with issues here and now, go with the best currently available treatment you have at hand. Trials can often take 10 years or more. What shape will you be in 10 years of wait? What stress will you put yourself into to wait? Are you capable of keeping things in check without further deterioration to await the outcome of a trial?  I do not say these things to distress anyone but as being a person with a disease who has seen trial after trial start, fail, succeed, and promises of a cure never materialize in 30 years. Support every trial you can. Encourage the researchers. I know my researcher friends get very weary of the long hours they put into their projects and letting them know you appreciate what they do helps, but be realistic with yourself comparing the timetable of a trial and the timetable of your life. Cheers to men who strive to become boys again.

 5 
 on: Today at 08:11:33 PM 
Started by Hawk - Last post by Hawk
SW, I cannot imagine your new doctor is not going to recommend an implant.  There really is little else that resolves ED with or without Peyronies.  Hopefully, you will transfer any records of test to whoever ends up doing the surgery.  I suspect these "Centers of Excellence" are Coloplast's marketing ploy to promote surgeons that use their product.  It probably does represent some level of volume and success but probably not the level you or I would necessarily demand.

In case you missed it, these two reports/studies clearly indicate that high volume penile implant surgeons have a significantly lower incidence which seems to be largely driven by what is possibly the most feared outcome which is an infection.

The first study is a NY state only study so the rates are probably lower since some men would go out of state for a salvage operation.  I just add here that Dr. Eid has significantly less than a 1% infection rate and uses the "No-Touch" system that he developed for IPP surgery.  Always insist on a surgeon giving their own documented infection rates and do not let them just quote averages or industry-wide probability.

1.  https://www.issm.info/news/sex-health-headlines/surgeon-experience-associated-with-penile-implant-infection-rates/

2.  https://www.garber-online.com/pdf/Higher%20volume-lower%20infections.pdf

 6 
 on: Today at 07:53:36 PM 
Started by Hawk - Last post by SW01
I just want to say that what is posted here is so important. I am on my 4th urologist surgeon and it has been an experience. My history does not go back to far. A little over 2 years ago I fell straight down on a 2 by 8 while working on my deck. Immediately saw my regular dr. Who forwarded me to s urologist. Looked at me but did not do any tests on me. Said I was bruised and should be fine. Yea right. A couple months later had no energy and would wake up and move to the couch. Back to urologist. Testosterone tests showed a level 20. I think low normal is 300. So started on androgel. Started feeling better but no erections. Back to urologist. Still no tests mind you. Said oh you have ed. Put me on sildenafil. Got soft erections. Said to take more pills. About year after fall I noticed a hard deposit on my shaft about one inch from my belly and my dick stared curving up. 1st urologist said looks like peyronies, never touched me mind you. Said to take vitamin e. So thought I would go Off to new urologist. Still no tests on my dick even after falling three feet straight down and being black and blue from my knees to my stomache for about 2 months. This one ticked me off after one appt.

 Off to 3rd urologist. This one actually has a PA inject me with trimix. After 3 injections I get an erection pointing straight up at the ceiling when I am standing. Tells me yep you have peyronies. Two options, excise and grafting along with trimix after to get an erection. Or get a titan implanted. Either way I probably will need the implant in a year or so anyway. When do I want to schedule surgery. I said I would let them know.

For personal reasons I have delineated elsewhere I would love a local surgeon. Went to coloplast website and found a center of excellence site. Not sure what that is  but it was a 2.5 hour drive there. Made appt to see 4th urologist surgeon. This one listened to me. Told me no way he was doing anything to me until he checks me for damage from fall. At the very least he is doing ultrasound and blood flow tests. He will not discuss an implant till then. At least he is doing due diligence. I will be honest if the tests show I need an implant I plan on traveling to one of the top implant surgeons to have it done. It may go to s### but the odds are on my side using one of them versus someone who does a few a month.

Just my opinion mind you but most of the local docs I saw left me with a bad feeling so I moved on. This is my body and I am feeling comfortable with my surgeon.

 7 
 on: Today at 06:22:14 PM 
Started by hope794 - Last post by hope794
I totally agree with Werther! In the past, i've done many posts about "doing something" but no one cares.

Guys, seriously, some days it seems that you don't have Peyronie's.

And please don't tell me that no one does nothing because of the "shame". I think that it's way more humiliating to have Peyronie's and, if the society needs some signature or donation to keep its activity, i would do it and i won't care to leave my real name on those papers, if it can help.

Why i don't do this on my own then? Simple: i'm only 24 years old, i come from Italy and i have a sh!^^y english; furthermore, i have no financial resources since i don't work and not enough knowledge about this disease since i discovered it only some months ago.

Good luck to everyone and please let me know if you're going to do something concrete - i'm always on, brothers.

 8 
 on: Today at 03:16:10 PM 
Started by Data1 - Last post by Tsanchez12369
Flesh light great idea to see how it might impact intercourse.

 9 
 on: Today at 03:14:54 PM 
Started by Deepal22 - Last post by Tsanchez12369
Deepall 22, def get started as hawk recommends w treatment.  Consider pentox, low dose daily PDE5 inhibitor, l-arginine or l-citrulline and VED or traction.

 10 
 on: Today at 01:59:29 PM 
Started by Asian Eagle - Last post by suicidecomingsoon
I doubt that

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