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 1 
 on: Today at 03:41:44 PM 
Started by Mindseye - Last post by Joe19403
Xiaflex is the best injectable available today, but it's not a first line treatment.  I will use traction for a few years before I consider Xiaflex. 

Once you remodel a scar with traction, it's more or less permanent.  The collagen changes when you apply traction.  There is a scientific term that describes a process that occurs when you pull on a scar, how the body grows more tissue.  Maybe someone with no knowledge can step in and explain.

Scars have the tendency to contract, so after doing RestoreX, its a good idea to go into maintenance mode with 1-2 stretches per week for X years?  Depends on what you see.

Obviously, scars contracting and traction remodeling the scar could look like it's contradictory but in the end, there will always be some part of the scar that remains even if you have stretched to a satisfactory outcome.  You need to keep that in check.

Even if you do Xiaflex, there will be part of the scar still there.... you will need to monitor that as well. 

There are no magic bullets for Peyronies Disease

If you are taking Vitamin E, you need to do research about how to take it... taking CVS bought Vitamin E does not compare to taking high quality Tocopherols in the morning and Tocotrienols in the evening.

I'm not defensive, I'm a fighter...I don't like people making statements without doing their homework in the place like this..it's also why I have been able to deal so successfully with my Peyronies Disease.


I did the complete series of xiaflex injections and no improvement. The last injection was 9/17. Since then the curve has increased and sure I am in the chronic phase.  Decided to try the restorex and in the second week of treatment.  Once weekly I take pictures to monitor the progress. Will post pictures if I see a meaningful improvement.  Medicare pay for the xiaflex injections and my gap insurance paid the balance. Total cost around 40k and won't pay for a 500.00 device.

 2 
 on: Today at 02:47:09 PM 
Started by Sambaji - Last post by jakeM
This is incredible, I'm happy for you man.

 3 
 on: Today at 02:45:12 PM 
Started by tomas1 - Last post by tomas1
Well, it's on for tomorrow morning.
I really don't like spending a night in a hospital, but I'll handle it.
I assume I'll take my pain, antibiotic, stool softener and some Tylenol along.

Also taking a robe, PJs and slippers.

Don't know how long my wife will hang out, but I guess she can go home for lunch.

 4 
 on: Today at 01:55:38 PM 
Started by Tony52 - Last post by Guga
Hi Neo!

Thanks for your reply. What drives your dislike to supplements these days?

I personally started to challenge the idea of supplements as well. I would see them as a "medicine" alike behaviour in our body. It would represent one variable more to follow up, as well that it will change (in the case of nattokinase) the blood viscosity to a new state, which is not the normal one, therefore challenging a more sustainable recovery process, that being natural to the body. Of course for some, a help the body may need.

Guga

 5 
 on: Today at 01:53:43 PM 
Started by Christopher1 - Last post by Hontas
Yes, instead of finding a solution to a autoimmune process involving high degree of inflammation and scarring by finding its CAUSES, just apply more shockwave and destroy what is left of a healthy penis and CAUSE more inflammation. Humanity really deserves a slap, i wish the worst on the doctors recommending this bullcrap just to earn more money...

 6 
 on: Today at 01:43:32 PM 
Started by 20759 - Last post by Junior
Glad to hear someone has both Dupuytren's Contracture & Peyronies Disease. CD first started in my right hand & went away. Now it's in my left hand & I've had it for almost 4 years. Thickening of the cord from the pinky to an indent in the palm of my hand, sometimes it gives my a throbbing pain. The orthopedic will not treat until it is over 30 degrees.

I noticed my Peyronies Disease around July 2018, but I think I realized that my length was changing prior. My brother has Dupuytren's Contracture in the left hand also, I don't know if he has Peyronies Disease. I haven't shared my problem with anyone but the group & wife. My brother is a diabetic, not sure if that will happen to me.

Thanks

John

 7 
 on: Today at 12:46:21 PM 
Started by Mindseye - Last post by TonySa
Whatever device one is using: traction, VED or specific model...stop and back-off some if uncomfortable/painful for you.  Everyone is different and best rule is to listen to your own body.

 8 
 on: Today at 12:42:25 PM 
Started by JohnnyDoe - Last post by TonySa
Hi Johnyfoe, I’d start by reading the peyronies survival guide for a great overview of treatment.  It can get to be info overload when everyone speaks to what helped them (although great to hear).  A great strategy is to start w pentox (if u can get it), low dose daily PDE5 inhibitor at bedtime, and traction (doesn’t hurt to add VED).  Lots of options but def read over the guide and bring your questions here. Peyronies Survival Guide - Information for New Members - Peyronies Society Forums

 9 
 on: Today at 12:34:02 PM 
Started by TonySa - Last post by TonySa
It’s less w engorgement and doesn’t really bother me.  Just curious if it’s common, I suspect for me the wider Titan cylinders would have been brought me closer to my original size as I was always pretty girthy.

 10 
 on: Today at 09:00:59 AM 
Started by Crooked_Stick - Last post by Jack1909
Sounds good and very real

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