Hi all been a while since I logged on...

Honestly getting away from anything to do with Peyronies was necessary for me to carry on with my life without it ruining my day to day.

Good news is I believe I'm on the waiting list to get an implant. Will make a full journey post about it.



Today when I was seeing a consultant they pulled my flacid penis out and said this would be the implant size but I've always been a grower not a shower and this didn't really show as much.

The "erection" that I can barely create now is bigger than stretched out flacid.



Curious if others experienced something like this and was able to cycle there way bigger?

Thanks




PS. if anyone has tips to gain as much length as possible in chronic phase (I think) that'd be handy

Sebtp1973:

Thank you for sharing this with us. Dr Trost goes above and beyond in his craft. And if he sticks with his normal course of action, a study on this when later be published that hopefully other healthcare providers will read and see the value in.

The only forums talking about this E4 peptide are penis related    only other one i saw was a reddit for Long Covid sufferers. you'd think there would be more talk about it on forums for people with deadly fibrotic conditions like pulmonary fibrosis

If you choose to go down the Xiaflex route then having Dr Trost perform the procedure is what I would highly recommend. If I owned a Porsche and it needed a special engine overhaul I would take it to the dealer who specializes in repairing it.

Quote from: Sebtp1973 on April 05, 2024, 06:08:34 PMHe said the median curve improvement in the study is 99%. So, pretty much full eradication of curves for at least half the men.

Those are absurd results. Incredible

Well its been 2 months and I haven't been using RestoreX.  I went to a urologist for an unrelated reason and at the end of the appointment he asked "Is there anything else I can help you with?".  I decided to go ahead and talk to him about my current condition.  I told explained that I am pretty confident that I have Peyronies disease and described the downward and slight leftward curve of my penis.  He asked me if it was affect my ability to have sex and I told him that I don't know because I have been avoiding it for the past few years.  He got very serious with me and told me that I should try to do something to improve it.  He was really encouraging with me and made me feel like my situation can be improved.  He felt for plaque in my penis and said he felt some on the left side near the urethra.  Due to the location he said that he wanted to reccomend me to someone who specializes in stuff like this and referred me to someone nearby.  He told me that he recommends Xiaflex.  I have read plenty about it on this forum and was immediately overcome with anxiety.  The shots seem pretty painful and there are the obvious risks of further damage, fracture etc.  I think I want to go ahead and try the Xiaflex because people do seem to show improvements, but I want to make sure I am doing it with someone who REALLY REALLY knows what they are doing.  My thought is to travel out to Utah and have it done by Dr. Trost.  I'm not sure how I would be able to make that happen with work, and especially if I will need to continue to go out there for follow up shots.  But  it doesn't seem worth the risk to have it done anywhere else.  I will eventually provide an update here with whatever I decided to do.  I still plan to document my journey and will definitely be posting before pics as well as any progress once I move forward with whatever I decide.  If anyone has advice or any thoughts please let me know.  No one besides myself and my urologist knows that this is even going on and its a lot to take on mentally

Quote from: curvedcarnivore on February 11, 2024, 12:55:21 AMI haven't been coping mentally with Peyronie's Disease at all lately - and I would love some help.

I think a few things have caused my thinking to hit rock bottom. One is that at the beginning, I had a lot of hope that RestoreX, diet, supplements, and Cialis would be able to straighten out my bend – at least a little. Yet, after 73 days with no improvement, I've now lost that hope, and I'm worried I'm a lost cause.

The second issue was that I made the mistake of going to Reddit and a few other places that were full of absolute despair, which rubbed off on me. I felt just as horrible and hopeless as the men doom posting – yet I couldn't stop scrolling.

Anyway, I'm really hoping you guys may be able to share some more hopeful resources, studies, stories or anything regarding successful healing from this disease.

I desperately need to get some hope back that recovery is possible and it's not "all over" living with this disease, so even if you have a more positive way of looking at this situation, I'd love to hear it.

I have your age, but I've this disease since I was 27 years. You are not so unlucky after all (don't be angry, but you can't imagine what this disease is at 27y old).
The only thing I can tell you is that the acute stage lasts much more than 6-12 months. Don't expect too much improvement for the first 2-3 years.

In my case:
2011-2015: HELL
2016-2022: situation improved
2023- now: relapse of the disease with more pain than the first stage. Mentally I very close to suicide, but I'm not desperate with the same intesity of the first years. I've no illusions any more, life sucks and I'm a man now.

Every case is different, you could improve next month or never, nobody knows.

I think one of the experienced doctors that we are aware of might have a discussion with you about it. There is a risk with anything, and a 30-degree curve is considered mild. So the discussion would be along the lines of is it worth taking any kind of risk for minimal improvement?

Quote from: LWillisjr on November 14, 2022, 09:28:03 AMSome doctors might have a minimum curve requirement before they will even offer the injection.

Super old post but, do you know why some doctors do this? I've seen this to be quite common, but, wouldn't a mild curve be an even better candidate?

I find it a bit ironic that doctors will say we can never get our original penis back, and yet when someone with a mild curve who could see complete straightening from xiaflex or even surgery comes forward, they wont take them in due to the curvature being mild. I understand risk vs reward but, still...

I have a mild curve myself, if I had no indentation I would've just gotten xiapex and forgotten about this all and moved on. Maybe even plication without degloving. Mild enough curve to straighten, but xiapex will make the indent worse if anything, and surgery wont fix it.

Hello gents! 

I had some fairly significant hematomas after just about every series of Xiaflex shots I had, including one a month after a shot (this hematoma wasn't near my injection sites mid-low shaft area, but up closer to the glans end during a slightly toothy BJ.  Ow).

Anyway, that all happened close to 5 months ago now,  but I still have some discoloration from the bruising in the skin below the glans, and under my penis, running down into my scrotum.   Like a drainage path for the blood that leaked in there. 

Have any of you experienced long term bruising discoloration like this?  My doc didn't have much to say about how long it will take to clear (or if it will). But I'm hoping it's going to, at some point.