OTHER IDEAS & SUGESTIONS – causes of Peyronie’s

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George999

Traction and VED are effective through gentle stretching, not unlike when you carefully exercise damaged tissues in a rehab setting.  Some have claimed that heat and massage are effective, but there is no objective evidence for that, so there are theories but no real demonstrated pathways.  - George

jasonp

Hi, this is my first post on these forums.  I have been developing Peyronie's for about 5 months now.  It began with just pain (both while flaccid and erect) and then progressed into a bend and an hourglass shape.  I believe that my Peyronie's may have been caused by the Nuvaring my ex-girlfriend started using.  I first noticed the pain after sex with the Nuvaring in place.  We tried a couple more times with the Nuvaring and I had the same pain after sex.  Then she took it out and no pain after sex.  We were having sex before the Nuvaring without any pain at all.  My hypothesis is that in certain positions the flexible yet hard plastic of the Nuvaring was rubbing forcefully against my penis.

Now I'm not exactly sure what to do.  I just recently found this forum and am eager to try some treatments.  I did go to a urologist and he told me to take ibuprofen and that once the peyronie's stabilizes there is a surgery option but he would only recommend that if I was unable to have sex.  He didn't offer any other treatment options.  At this moment erections are difficult and somewhat painful, the bending and hourglass shapes are very pronounced.  Should I go back to my urologist and get him to prescribe Pentox?  Should I start with a VED?  I would consider my condition to be possibly worsening or in progress since the pain has STILL not gone away.  Any help is very appreciated.  I'm pretty distraught.

Thank you!

peyrosucks

You might be on to something.  I never thought about this being the cause.  My ex-wife wore the Nuvaring.  I never really experienced pain while she wore it, but it is possible that the friction could cause injury and one wouldn't know because of the wetness.  We used it prior to her getting pregnant and then resumed using it probably 6 months or so after.  My Peyronies came about 4 months after that.  I can't pinpoint a specific cause, but this sounds interesting.

Skjaldborg

Jasonp:

1. Get on pentox. If current uro won't prescribe, find one who will. There are case studies available for download in PDF format here: https://www.peyroniesforum.net/index.php/topic,772.0.html

Print them out and show them to your uro if he's dodgy about prescribing.

2. Go see a male sexual health specialist urologist such as Dr. Levine in Chicago or Dr. Lue in San Francisco. Your uro saying "ibuprofen and wait and if it gets worse, surgery" just shows how shockingly uninformed he is about this disease. My first uro said the same thing, I ditched him and went to Dr. Lue. Best decision I ever made.

3. As for causes of this disease, don't beat yourself up trying to find a cause. I imagine that it's within the realm of possibility that the nuvaring contributed somehow but it's more likely the disease was started from a small injury, maybe even without you knowing about it.

4. The psychological aspects of this disease will eat you up, spit you out, kick you in the balls and then take your lunch money. Really. Start taking better care of your overall health. A healthy body will do a better job of healing itself. Exercise will also help get rid of depression.

5. If pain isn't an issue, keep having sex and being close with your wife. Use lots of lubrication and no girl on top.

6. Your wife is part of the team. Bring her along on your uro visits. Have her read the women's section of this forum. You are in this together.

7. Ask questions. Members of this forum are more than happy to answer your questions and talk about their experiences.

Best,

Skjald

ComeBacKid

I think there are levels of hardness of peyronies to.  I've noticed with my own penis as my condition worsens my penis gets harder and less flexible.  Stretching in theory should be easier when the penis isn't so "hard."  I'm a big believer in the VED by the way, I used it and saw moderate results, its not a hoax. My peyronies tended to act like a "cast" around my penis and the VED helped stretch it out, i clearly gained girth and my penis looked pretty damn thick and huge after several months of working out.

Comebackid

Tristen

Hello everyone, I'm new to this board and have done a preliminary scan of the forum to see if you have covered my question.  Sorry if I have missed it somewhere.  
Since I can rule out trauma, I am looking at particular medications as possible cause of my Peyronies.  It appears that no one knows the cause for certain, but I would surely appreciate everyone's input on this question:  Have you guys heard of Peyronies onset following Interferon Tx?  In my research on drugs that "might" cause Peyronies, the only drug that came up that I had been on was Interferon.  My Peyronies disease had stopped progressing about 4 years ago, and with a good urologists help, I was able to minimize the permanent damage.....but I don't want to reactivate the disease, and since I have to decide about more Interferon Tx, any advice is appreciated.  Have you guys heard of Interferon as a cause?  Also, have you heard of Peyronies being reactivated into progressive disease if a person repeats the offending agent?  Thanks everyone.

pvpey

I learned that Atenolol and some other beta blockers used to treat high blood pressure might be a cause of Peyronies or aid in it's progression. But nobody knows for sure. I have since had my dosage cut in half.

crashbandit

Hi Tristen,

Would you mind giving alittle bit of history of your Peyronies disease and how you managed to stop it's progression. Sorry I can't help you with your question so much but I'm curious about what your Urologist had done about your Peyronies 4 years ago.

Thanks
Cheers

Tristen

Thanks for the reply's.

I don't know that I really did anything to stop the Peyronies progression.  It seems to me that it just progressed to the point it was going to, and then stopped.  The interventions I did may have resolved some of that damage that had occurred to that point, but I doubt it had much to do with stopping the progression.

For me, Peyronies seemed to come on quite quickly reaching about a 45 degree bend mid shaft within one week.  I didn't see a Urologist for about 6 months because I thought it was just some kind of temporary problem that would just resolve itself.  The Urologist had me do the message techniques and Vitamin E.  After a few months and without any obvious change (good or bad), he gave me Potaba.  I took that stuff for about 6-9 months....something like that.  The condition didn't improve, nor did it worsen.  He said Peyronies often does that....it will progress to a certain point and stop.  So, who knows if those things stopped progression.  They certainly had nothing to do with any immediate improvements in the condition because there were no immediate improvements.  But now, several years out, I don't have that 45 degree bend.  What I am left with is like a telescoping of the shaft.  It's my old normal diameter at the base, but then like 2 inches up from the base, it telescopes down by about a third and is that size the rest of the length.  The length is about an inch shorter too.  So, no bend, but significantly smaller in diameter and length.  And being 5 years out, it sure seems like this is the most it will heal.    

I have never used any of those penile suction devices or extenders, etc.  But maybe it would be good for my current condition.  Any thoughts on this?

As far as Interferon causing this.....I can't find any more on this, but would appreciate any feedback.  The other thing I did during that time that I see pop up as a possible cause on these sites, is colonscopy.  Did one of those immediately prior to Peyronies onset.

GS

Tristen,

Welcome to the forum.  It sounds like you are a very lucky man to have your curvature decrease to almost nothing.


I've had Peyronies for over 3 years now; I started with a 45 degree bend which has decreased to 35 degrees.   I have been using a VED for about 2 years and I believe it has been a very important part of my therapy.  There is a whole section on it in our forum.  It takes a little getting used to, but I think it's well worth the effort.

GS

MikeSmith0

I had bad migraines in the past...not so much these days - but back then I used to take a prescription  drug called Ansaid which looked like this:



Then one day I was looking in my dad's closet for something (I was probably 25) and stumbled on a bottle of viagra.  There were maybe 10 or 15 in there but I was incredibly curious about what it would do...and so I took one out - and I put it in my bottle of Ansaid.  I probably shoulnd't have done this but I was 25 and stupid and viagra was on TV and the butt of every late night talk show joke around.  So, I was curious...and as most of you know, viagra looks like this:



I knew I had exactly 4 Ansaid pills in the bottle at the time + 1 viagra.   Months later, I got a migraine headache and went to the bottle of Ansaid and took one. The next time I had a headache, I noticed there were STILL 4 Ansaid in there.  I had taken the viagra last time.

I don't remember exactly what happened... but I think it's pretty obvious I accidentally took the viagra.  I may have even had a priaprism - it's just not healthy to take viagra at 25 when everything is working normally - and I read somewhere that there are a few people wondering if Viagra might actually cause Peyronies Disease in susceptible people (and then other doctors want you to take it daily as a therapy).   My sexual issues started shortly after this and Peyronies Disease developed a few years later... but my erection quality declined already that year.  This all happened extremely slowly - but it was happening - and I had some blood tests over the years to figure out what was happening (testosterone, CBCs, etc).  Everything was normal and people said it was all in my head / anxiety.

Anyway, I don't think this is "the cause" of my Peyronies Disease - but it is the one odd sexual thing I ever did.  I never had any injury...and I don't have any family history of Peyronies Disease or its related disorders and I got this very very young - subsequent to an extremely slow loss of erection quality and penile size.   So, I just wanted to put it out there.

goodluck

I have recently read that 90% of those who are hypothyroid have an autoimmune condition called Hashimotos disease.  It is where the body attacks the thyroid peroxidaise (TPO) enzyme that is used in the thryroid gland to make thryoid hormones.
This eventually distroys your thyroid gland making your hypothyroid.  Many doc's do not test for Hahsimotos.  It gets complicated.... but the insurance companies don't like to pay for the tests because they say it does not alter or effect treatment of hypothyroidism.

Another note about hypothyroidism is that it is very often missed.  Many labs use a  TSH upper limit that goes as high has 5.0 or 5.5 while most endocrinologists will consider someone Hypo if their TSH is > 3.0.  Some functional medecine docs think the top limit should be even lower. A good doctor will consider symptoms along with TSH, Free T3 and Free T4 hormone levels to make a good diagnosis. Unfortunately many still only look at the TSH is alone and use an old lab limit.

The bottom line is that many people are hypothyroid and don't know it.  Even worse, most of these people have an autoimmune condition and don't know it.  Once you have one autoimmune condition it is easier to get another.

If you think you may have a thyroid issue insist that your doctor tests for the hashimotos antibodies. The main one is the TPO antibody but another one is the Tg antibody.

I know about this is because I have Hashimotos.

Some here have suggested Peyronies may be related to an autoimmune condition.  I find this interesting and I am open hear other's thoughts on this.



Luciano

Well just my 2 cents..

Doctors prescribe viagra for Peyronies Disease at low dose, i.e. 25 mg, the one you have been taking was 100mg

but i personally do not think that a 1 time 100mg viagra would cause Peyronies Disease

My doc told me taking viagra could cause Peyronies Disease but for a completely different reason.
If you have no erectile disfunction and take viagra , you will be having more , lets say "active sex" , more violent, (with violent I mean you will be going on much longer and harder). Sooner or later you will get "micro injuries" sometimes you will not even notice them. Those could cause Peyronies Disease, not the viagra itself.
(thats what my doc said... don't know if its true)

so as long as you did not have a memorably long and hard sex session after taking that pill, I personally doubt it has caused your Peyronies Disease.
(thats just a thought.. of course i do NOT know for sure)

Luc

lamb

I tried to post something on this stupid website and can not seem to figure out how BUT

my question or suspicion is that a cystoscopy can cause peyronie's disease.  Have you ever heard anything about this connection?
Every urologist I ever consulted said no but then they are the ones that do cystoscopies.

ANy comments? Also if you would be so kind as to give me a hint on how to originate a new topic or post something so all can see.

Thank you very much

code name lamb

fubar

Lamb

This is a awesome site easy to navigate.I was going to tell you how easy it is.I will just give you a clue its a blue click button and it is labled new topic!

Fubar! Thanks guys for creating a great forum for treatment and healing!

jasonp

I just want to update.  I got my urologist to prescribe Pentox (400mg twice a day) and Cialis (2.5mg once a day) and have been on them for about a month.  I am noticing a little improvement.  Obviously I can't say for sure whether it is due to the drugs or if it's improving on its own.  But it's the first improvement since my condition started over 8 months ago!  I'll be keeping up with this treatment for a full 6 months and I'll report back in another month or so.  Thanks for the support guys.

Tristen

Ok, another theory to toss around.  I would like to know if anyone has heard of a connection between Peyronies disease and CPPD (calcium pyrophosphate deposition disease) aka pseudo gout?

CPPD is Calcium Crystal deposits and can cause plaques in joints and other areas.  I believe that Gout is Uric Acid deposits.  Both seem likely candidates for causing Peyronies, and I may have one of them.  Working on getting that diagnosed now.

Input appreciated,

Tristen
 

fubar

Tristen

I have many markers of those  that get Peyronie's. I have not had a gout attack in a long time.My Peyronie's did appear  during that time.

Fubar

Tristen

I thought, well surely they would know if this were the cause because both Gout and CPPD are very easy to diagnose by needle aspiration to determine type of crystals found.  But then, maybe no one has looked at this.  Or maybe this is only true for some (subtype).  But it sure fits with my history.

I would also think that if these were cause, the Peyronies would be progressive, rather than a single onset episode never to flare up again (which I understand is the rule).  

It is important to know if this might be the cause because much can be done to prevent onset and progression of both these diseases.

pey ron

Quote from: slowandsteady on December 12, 2009, 01:38:38 AMthat there could be some involvement with E. coli bacteria and Peyronies Disease

anal without a condom anyone?
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