Xiaflex opinions wanted

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JohnR

Should I do Xiaflex or not? 40-45* left bend only.  Non-calcified plaque.

50 year old, onset in Feb. '18, diagnosed in Mar '18, 4 rounds of Xiaflex completed, little improvement, mentally overwhelmed...ED issues, major anxiety issues now.

TonySa

If you have an experienced doc, it should help diminish you're curve.  Much better results if pair it with traction.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

QuackAttack

John,

Move forward with Xiaflex. I had 8 cycles and went from 50-55 degrees to around 25 degrees. Now I have had 4 cycles of Verapamil. Xiaflex, if done by a competent URO should reduce your curve. My URO has seen people go from 50 degrees to zero and he has seen others not improve at all. The average in clinical trials is roughly 30 degrees. Just make sure no sex for the first two weeks.

JohnR

Thanks. I've been approved for them but still very hesitant...
50 year old, onset in Feb. '18, diagnosed in Mar '18, 4 rounds of Xiaflex completed, little improvement, mentally overwhelmed...ED issues, major anxiety issues now.

TonySa

Any improvement w the curve with verapramil after the Xiaflex?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

alec

How many injections should my uro have done before calling
Him experienced?
30yrs, diagnosed in feb. 2018 after possible injury (not sure), 4 plaques, 4 dents, S-surve, 30° right/45° up curve, tingle in the legs, sometimes penile pain an depressed.

WhatNext81

John R

It's been 3 months? Hold off unless your uro has explained things well enough for you to make an informed decision. Check your PM's
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

QuackAttack

Tsan,

If I have improved any more than another 3-5 degrees I would be surprised. I have two more cycles. I'll do whatever it takes even if I am not getting major results in the hope that something breaks through.