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Augusta Med System info for Australians
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Author Topic: Xiaflex approved  (Read 328 times)

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JohnR

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Xiaflex approved
« on: May 04, 2018, 03:53:37 PM »

It took 2 weeks but Xiaflex injections approved by my insurance. Still haven't made up my mind though...
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Stabler67

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Re: Xiaflex approved
« Reply #1 on: May 04, 2018, 06:08:27 PM »

JohnR

that is great news. your doctor must know their business to have gotten it approved.

Stbaler67
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Tsanchez12369

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Re: Xiaflex approved
« Reply #2 on: May 05, 2018, 11:06:01 AM »

What concerns do you have re xiaflex?
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JohnR

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Re: Xiaflex approved
« Reply #3 on: May 05, 2018, 10:06:30 PM »

Many things... the side effects mostly, the pain of the injections (I have violent panic attacks), the possible injuries post-injection... Questions of is my problem severe enough to warrant putting my self through this? Is it worth it for the possible outcome and limited improvement? 

I read that 60% see a decrease in curve of about 32% and I guess that would be better but the mental anxiety of the procedure is almost a deal breaker... This all just started 3 mo ago and I'm going here already? It just seems so fast and I can't wrap my head around it yet...
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Tsanchez12369

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Re: Xiaflex approved
« Reply #4 on: May 05, 2018, 11:14:49 PM »

If you’re curve is mangeable I can certainly see holding off. Maybe just pentoxVED or traction, and low dose cialis to prevent it from worsening and too hopefully reverse the damage.  If needed, you can always do the Xiaflex.
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WhatNext81

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Re: Xiaflex approved
« Reply #5 on: May 06, 2018, 06:51:04 PM »

Solid advice from Tsanchez.

It started 3 months ago? Diagnosed or peyronie's in general? Doesn't xiaflex require a longer period of time of having peyronie's to be covered by insurance?

That being said, I'm unaware of your diagnosis. But, find some peace of mind for the fact that you have a urologist willing to take action. I spent 3 months with the same uro between visits that just ended up being a second consultation. No appointments(there were more than two) had any testing done either. It took me 3 urologists before I found the fourth that I went through treatments with. Best of luck to you.

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betterbend

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Re: Xiaflex approve
« Reply #6 on: May 06, 2018, 08:55:15 PM »

Its all moving too fast, then slow down on the  Xiaflex.  If you have no calcification, you can wait.  Calcification takes time.  Try traction and some of the oral meds mentioned.  If you want to avoid the injection, be diligent in your daily traction, and see if you get results.  I would talk to your doc about it.  You should be able to wait 3-6 months to see what kind of result you are getting without Xiaflex.   You will have time to do more research, and if you are getting good results maybe you stay the course, if not, then maybe you go for Xiaflex.  Don't get rushed into it.  It's not as bad as you might think, but it's an aggressive treatment and should not be rushed into. 
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JohnR

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Re: Xiaflex approved
« Reply #7 on: May 07, 2018, 04:16:41 PM »

That's exactly what I feel is happening.

Pain during erections in Feb. Diagnosed in March. Recommended to do Xiaflex in late April. Approved for Xiaflex in first week of May... I haven't even called them back yet...
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betterbend

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Re: Xiaflex approved
« Reply #8 on: May 08, 2018, 10:11:00 PM »

It's too soon for Xiaflex.  If symptoms started in February of this year, you might still be in active phase.  XIaflex is supposed to be used when you are stable.  you need a few months of self monitoring to make sure you are not still active....
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JohnR

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Re: Xiaflex approved WARNING! Explicit pic!
« Reply #9 on: May 14, 2018, 10:06:33 PM »

After a couple of long conversations with my Uro, I've decided to go ahead with them. June 8/June 11 for first round.  Barring something unusual, he thinks he can reduce it to 15-20*. I'm going to document this all for others.

Starting point pic and praying for positive results.
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Paolo

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Re: Xiaflex approved
« Reply #10 on: May 15, 2018, 02:29:04 AM »

John, may I wish you all the best with this treatment, your curve is distressing, try and control the anxiety.
Paul.
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JohnR

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Re: Xiaflex approved
« Reply #11 on: May 15, 2018, 07:36:55 AM »

Thanks Paolo. Yes, it is. The anxiety and psychological effects have been terrible. I would give anything just return to normal life before Feb and not dread waking up every day. I have gone through some very dark days in the last month or two and have found myself wondering if all of this is worth it.  It's destroyed our very active sex life after 28 years of marriage and I'm scared of the treatments and what could happen but I feel that to do nothing would be worse. It makes it hard to see that life's worth living like this. I turned 50 yesterday and instead of being a good day, I sat here and read about Peyronies Disease... It sucks.
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WhatNext81

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Re: Xiaflex approved
« Reply #12 on: May 15, 2018, 10:52:23 PM »

This place is a double edged sword. You're on the right track. Once you've made an informed decision, and start whatever treatment you choose, that should start to bring some mental relief. It's the sitting and doing nothing  that can be mentally taxing. Best of luck to you.
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