Is this really peyronie's?

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vegahoma

So the longer this goes, the more skeptical I'm becoming of my peyronie's diagnosis. I first noticed a hard lump in early March, midway up the shaft of my penis and deep inside. After researching penile anatomy, I'm now pretty confident that the lump is in the septum. It's palpable from the top side and the bottom side (I can put a thumb on top and a finger on bottom and feel how large it is). I have never had real pain associated with it, just some mild discomfort. No curvature or any other deformity, just a small indentation on the top side. Both my physician and my urologist felt my lump only briefly before calling it peyronie's. Urologist said an ultrasound was unnecessary. You can see why I'm hesitant to take their word for it.

I've been taking low-dose Cialis for just over a month, and the lump definitely seems to be decreasing in size. The indentation is almost completely gone, and discomfort in the area is only fleeting at this point. Does this sound like peyronie's, and the Cialis is just doing a quick and efficient job of treating it? Or could it be something else? Has anyone else had a similar experience?

NeoV

An indentation of any kind is penile damage, or pre-peyronie's if you ask me. Of course, some men may recover and many have recovered from these pre-ronies symptoms, but you better consider yourself prone to the disease and more of it. Be very careful with your sexual habits and diet.

TonySa

I'd insist on an ultrasound from a peyronies expert.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

AussieDude

My Peyronies started as an indent and I and my GP struggled to find any palpable lump. Then the indent subsided, replaced by mild, often intermittent discomfort in that area. This was soon followed by curvature that eventually (over a year or so) stabilised to a significant dorsal bend with slight leftward bend.

So it may be you are still in the active phase and the process is still fluid. Or you may be one of the lucky ones who experience spontaneous resolution of the disease. On.y time (and a heck of a lot of patience) will tell.

vegahoma

Thanks, guys. I'm cautiously optimistic and terrified of worsening at the same time. Neo, can you give me more insight into what you mean by watching my diet? I'm an ovo-vegetarian, watch my sodium intake, and try to limit sugar as much as possible. I also don't drink, smoke, or do drugs. I take vitamin E, B12, and CoQ10. Any other dietary suggestions?

NeoV

Being ovo-vegan makes things slighltly harder to keep your insulin lower, but you can still do it. Stay away from rice, pasta, and bread, or anything that raises insulin. You will want to eat a lot of fats, from coconut or olive oil etc, and certainly those eggs, so that your mitochondria can begin to use lipids for fuel in place of glucose which produce ROS and cause the mitochondrial mutations that cause Peyronie's. High insulin is the main culprit behind Peyronie's, along with mitochondrial function and some genetic predisposition. I got all my insulin issues and Peyronie's while eating a lot of brown rice and veggies, and almost zero animal products. Now I eat only fat, veggies, and a bit of protein, and my issues are pretty much gone, and Peyronie's scars soft and nearly unnoticeable.

That's great you keep sugar low. Keep in mind that even whole grains are essentially doing extreme damage to anyone who is susceptible for mitochondrial/metabolic issues, that is, hyperinsulinemia, a state that takes place before high blood glucose levels

vegahoma

Thanks for the pointers, Neo! My wife is a vegetarian on a keto diet, so she can help me out with avoiding carbs. I'm used to restricting myself, so every new dietary change is sort of a fun challenge. ha Hopefully I can keep this thing from progressing any further!

NeoV

That's great vegahoma! I hope it helps too but I think the evidence is far in our favor when it comes to Peyronie's and glucose dysregulation / mitochondrial mutations. Let me know how it goes. :)

JasperTJ

Hi Neo

Thanks for your videos.
I saw you described dealing with this a very long time.
You seem to have opted for manual traction instead of a device. Was that cost based?
Your talk about VED's scare me to try it. but seems promising
Have you not done any injections or shockwave?

NeoV

Sorry for the late reply. Initially it was cost based, and then I just found traction by hand to be so useful that I stuck with it and never wanted a device!
VED is safe if careful! It's only not safe if you are doing it too much, same as traction.

quagmire333

Neo - I think your  onto the only practical approach in overcoming
Peyronies...how long did your manual traction take to remedy the condition...how much time
a day?

NeoV

It only took 30 minutes a day or so, and the benefits became very obvious after several months. Years later I have no real symptoms anymore.
It's really up to you how often you do it. Some days I don't do it at all, or even just several minutes in the shower. Other days I will do it for an hour.