Peyronies caused by Ureteroscopy?

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Quark

Hi, I'm new here. First, an intro:

Age? I'm about to be 64

What did your medical doctor conclude? Diagnosed with Peyronies

How long have you had symptoms? Approximately 1 year.

What are your symptoms? Erect penis curved upwards about 30-40 degrees? Erection now approximately 1 inch shorter than it used to be. Flaccid penis now hangs slightly to the right when it used to hang straight down. "Turtling" effect--the head of my flaccid penis retracts a little into the surrounding skin when I sit, making it look like I have a foreskin, even though I'm circumcised and it never used to do this. Also, flaccid penis won't stretch out as much as it used to when I pull it.

What treatments have you tried and what were the results? No treatments so far really. My urologist is trying to get my insurance to approve Xiaflex.

Do you have insurance or means to get medical treatment? Yes.

Where are you in dealing with the psychological aspects of Peyronies Disease? Better than I was originally, but I'm still not happy about it.

Are you in a relationship? Married 40 years.

So that's my intro. My question is as follows. (If this forum is not the appropriate place for this type question, please re-direct me)

About a year ago, I had a series of 3 or 4 Ureteroscopies to get rid of several kidney stones. The doctor would insert a scope and a tiny laser and blast the stones into much more a passable "dust".  I've had problems with stones for nearly 40 years.
In each case, I was put under general anesthesia while the procedure was being performed. This all took place over a 6-8 week period. During this process, the doctor left a catheter inside me each time to help the pieces of stone pass. So during all this time, I avoided sex, masturbation, I didn't even get an erection during this time.

Two weeks after the final procedure, my wife and I were going to have sex for the first time. I got my first erection and was immediately aware my penis now had a curve. I didn't really have much in the way of pain, as some guys report. It felt a little tight, but not really painful. We were able to have sex. I thought maybe it was a temporary side effect of the surgery, so I didn't get too upset at first.

But then I realized that my penis seemed to be shorter as well. THAT was when I got worried.

Anyway, to cut to the chase, I told the doctor about all this. He ran the tests, gave me the injection that produced a raging hard on so he could look at it himself. Said, yes, I had Peyronies.

Now I NEVER had any of this before the procedures. So of course, I believe that is what caused it. But the doctor says there is no way they could have caused it.

I KNOW correlation does not equal causation, but....come on. What are the chances?

So my question is twofold:

(1) Has anyone else ever experienced this exact or a similar scenario?

(2) Anyone have an opinion on whether I have a legal case to sue the doctor. Or has anyone here ever brought legal action against a doctor for causing Peyronies? Obviously, I'm not expecting an attorney to give me legal advice. Just wondering if anyone has ever had a similar experience?

Thanks
Quark

Monty

Hi, what you doing to correct your penis?
71 UK, ED from 2011, unable to get full erection, Peyronies Disease from  2015 acute bend to left, VED & hand traction + 20mg of Tadalafil twice a week, or when i'm feeling lucky, forum member November 2017. Fav Film&Song, TheGoodTheBadThe Ugly. A Day in the Life

Quark

To be honest, I haven't done anything about it. At first, I was waiting for the doctor to get my insurance company to approve Xiaflex, but now I'm having second thoughts about that.

I can still get erections, masturbate, have sex, etc. I think I'm maybe dealing with this better than some of the other folks on this forum. It's annoying, I don't like it, I wish it hadn't happened...but I don't have any pain with it and I continue to function.

Frankly, I could live with the curve if I hadn't lost some length (and I think a little girth).

Of course, part of my placidity about all this may be due to the fact that I have so many other things I'm trying to deal with right now. I don't have a lot of time to contemplate everything.

Quark

So no other comments? No one else developed Peyronies Disease in a similar manner?

TonySa

I didn't, but there are reports of catheters causing peyronies...that and the scope procedure it most likely is the cause.  All medical procedures have risks do I don't know about a lawsuit, was there any informed consent around possible risks?  That said, I'd consider traction or VED To regain length and girth along w xiaflex and low dose cialis to remodel the plaque.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

james1947

Quark

I know cases that inserting catheter can cause Peyronies as the procedure is traumatic.

Regarding suing the doctor? Maybe, if you can find an other doctor that will state clearly that the catheter insert caused your Peyronies and the lawyer will agree to work on the basis that he will be paid % from what the court will give you (it means he believe in the case).
And then, what the doctor that blowup your stones may say? I had no any other choice except surgery that is much more traumatic.
This is my opinion in any case.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Monty

Hi Quark, think if i was you i would try some Traction and VED work, sure you will gets some great improvements.
71 UK, ED from 2011, unable to get full erection, Peyronies Disease from  2015 acute bend to left, VED & hand traction + 20mg of Tadalafil twice a week, or when i'm feeling lucky, forum member November 2017. Fav Film&Song, TheGoodTheBadThe Ugly. A Day in the Life

wallansaini

Quark

I will relate to you what happened to me.

On February 2013, I underwent Cervical Spine fusion.
I woke up with a catheter in my penis.
At ICU the next day, the ward nurse told me she was going to remove the catheter.
Before I could even reply, she had already yanked it out.
It was done in a quick way much like when one pulls the starter cord on a lawnmower.
The pain for the next 5 mins was close to 10 (on a scale of 0-10) even though I was on a morphine drip.
I has severe pain for the next two weeks whenever I passed urine.
I had my first erection about four months later.
It was a very painful erection and it had a 60 degrees bend.
I have been diagnosed with Peyronies Disease.
I have checked my medical file (paid for it) and there is no where it is noted that I had consented to a catheter.
I have not been able to have sex ever since.
I have seen two urologists.
Both do not agree that a catheter can cause this condition.
I have spoken to my lawyers.
I was told that if urologists are not able to make a causal link with a catheter, I got no chance to bring up a medical negligence case against the hospital.
Catheters is causing a lot of harm but the doctors want to remain in denial.
In the meantime, more and more men will keep suffering the same fate because of this attitude by the doctors.