PEYRONIE’S Symptoms & Confirmation

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

crashbandit

Thanks newguy,

I've had this soreness for many years, probably at least 6-7 years. I believe what caused the soreness is sleeping on my stomach during the night and squishing my erection into my bed. That's why I'm not sure if I have Peyronies Disease or a sprained ligament or something else? I no longer sleep on my stomach ever but I hope this soreness I get from time to time dosen't effect me in the long run.

Is there other things you can get besides Peyronies Disease? that resembles Peyronies Disease?
Cheers

newguy

6-7 years is a long time. It doesn't fit with the typical (if there is such a thing) development of peyronie's disease as far as I know, but it still isn't an ideal situation. A minority of peyronie's sufferers on the site do suffer from very long term pain. It could be that you had a bout of peyronie's years ago which led to this long term pain. That's just an idea I'm throwing out there though really, as I can't be sure. Other members will be able to comment on whether another condition might match your symptoms.

I would certainly see someone about this and follow some of the strategies as listed on this forum. Better to be safe than sorry.

crashbandit

Thanks again newguy. Can you recommend a treatment for me? Something that can promote healing for my situation? I'm thinking some vit E and a VED unit. I don't know if pentox could help me?  
Cheers

chiguy

Pentox can't hurt. You can always try it. It takes the pain away, not sure if you have significant pain though. It is best to get treated earlier rather than later. A lot of people including myself take 1000-2000mg of l-arginine everyday. The l-arginine increases blood flow. There are far more people on this forum than me who are educated about the VED. I myself used and am winding down my use of fastsize. If you can still secure a fastsize, I can tell you all about, as I have experienced pretty good success with it.

Mike_O

Visit the VED forum, plenty of info to keep you reading for days. Many are getting good results.

crashbandit

Thanks guys, that's good to hear pentox can't hurt, maybe I will give it a try, as long as there's no sides... Getting some l-arginine for blood flow sounds awesome too, but does this extra blood flow help with healing or just erections? Alittle VED and supplements will hopefully put some good healing back into my achy penis.  
Cheers

bdozer

I need some reassurance that we are on the right track.  Is this really Peyronie's?  Urologist says yes but I am not super impressed with doctors on this issue so far.

So the relevant bits:

1) he's always curved a bit to the left.  Now he has an abrupt BEND, less hardness and size, and I can feel an indented band around his penis at the bend.  Classic symptoms, right?

2) it started with a trauma (bending during sex resulting in pain), but it didn't not come gradually after that...it happened overnight pretty much, and has been about the same since then, 15 months ago. (Only change is really that it was sore at first and eventually pain mostly went away) I would have expected to see some progression or change if Peyronie's, right?  Not an overnight change like this.

3) Where's the plaque?  I'm supposed to be able to feel something, right?  A nodule or hard spot?  I don't.  The doc says she can feel it, and has tried to show him, but he can't feel it either.  She only checked him when soft.  (In fact, so far, no doc has seen him WITH an erection nor any photos...how can they diagnose this without seeing an erection?)  I've checked when both hard and soft and I feel a bend and an indentation when hard but no nodule.  When soft you can't tell a thing is different at all.

(Part of our problem here is we've been through three docs, and only the first doc really did much testing, and we haven't been privy to seeing or being told about the test results to my enormous frustration.)

(Holy cow this is personal stuff!  I can't believe I'm talking about my boyfriend's erections on a public forum!  Could this be any MORE humiliating?  :( )





LWillisjr


Yes you are stating what some consider the more classic symptoms. In short.....   the penis will look normal when flacid. My doctor uses the analogy of a long deflated balloon (the kind you make balloon animals out of). And while deflated place a small piece of tape on the side somewhere. Looks normal at this point. Then you inflate it. The balloon doesn't stretch where the tape is and in fact will curve into it. The tape represents the Peyronies scarring.

Yes it does happen literally overnight. The amount of curvature can progress some, but the initial impact/curve can happen in a very short period of time. Most of us can't relate to a particular trauma event, but the text books state that this is what causes Peyronies Disease. Others on the forum have other reasons for cause.

So yes it does sound like Peyronies Disease. The scar is probably the band you are feeling. Some men have nodules but not in all cases. The band of scar tissue is what is causing the curvature.

We have all experience frustration with uros who don't really specialize in this. There are only a handful of doctors on this site the are recommended or acknowledged to be experienced with dealing with Peyronies.

Hope this helps.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

18yearold

I'm 18 (as the name says) and since I can remember my penis has always curved to the left, I can remember being on holiday where I must have been around 15-16 and it curving slightly to left but never really payed attention to it.

Now my erect penis reaches 7 1/4 inches (if measuring the curve) yet has a sharp curve to the left, I notice that my penis does have visible scarring on the left hand side of it yet has a lump under the skin on the right hand side at almost exact same point as the curve. Shouldn't a right handside lump cause it to curve to the right? I'm seen pictures online and I'm still undecided, most likely I do have it, I've masterbated since I was about 8, even before I realised what it was and was fairly vigorous (I remember using my legs to do it in school as stealth, lol) and used to always wear tight underwear.

Anyone got any thoughts on that? Also the head of my penis is twisted so it almost faces the left anyway!

18yearold

One more thing to follow up, Never EVER had any pain during erections and since I'm sure I had it as young as 16 for definate, that brings up my question.

LWillisjr

Many come on the forum questioning whether they have Peyronies or not. And many think that if their penis/erection is anything other than "normal" then this raises the question as well. So a couple of comments for you to consider:

1. Many erections are curved, and this doesn't mean you have Peyronies. If you have had this "as long as you can remember", then it is possible you were simply born this way. This is referred to as a congenital curve. Many men have this, it isn't unusual.

2. Peyronies scarring isn't "visible". Th scarring happens on the tissue that lies under the skin that covers your penis. That isn't to say that some men have a severe enough scar that some deformity referred to as waisting or hourglassing can occur. And yes this deformity is visible. But it is the deformity you are seeing, not the scarring itself.

3. While certain lumps can be associated with Peyronies, a lump by itself again does not necessarily mean you have Peyronies. Lumps/bumps can be caused by other means.

So the bottom line......   you can explain your symptoms in detail. And you can ask what people here think, and you will get some good and varied opinions. If you had obvious symptoms it would be easier to give an opinion. But what you have stated so far is not enough to offer a high probability of diagnosis. But the only way to know for sure is to consult with a doctor who specializes in diagnosing and treating Peyronies.

Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

18yearold

Quote from: lwillisjr on October 01, 2010, 09:40:47 PM
Many come on the forum questioning whether they have Peyronies or not. And many think that if their penis/erection is anything other than "normal" then this raises the question as well. So a couple of comments for you to consider:

1. Many erections are curved, and this doesn't mean you have Peyronies. If you have had this "as long as you can remember", then it is possible you were simply born this way. This is referred to as a congenital curve. Many men have this, it isn't unusual.

2. Peyronies scarring isn't "visible". Th scarring happens on the tissue that lies under the skin that covers your penis. That isn't to say that some men have a severe enough scar that some deformity referred to as waisting or hourglassing can occur. And yes this deformity is visible. But it is the deformity you are seeing, not the scarring itself.

3. While certain lumps can be associated with Peyronies, a lump by itself again does not necessarily mean you have Peyronies. Lumps/bumps can be caused by other means.

So the bottom line......   you can explain your symptoms in detail. And you can ask what people here think, and you will get some good and varied opinions. If you had obvious symptoms it would be easier to give an opinion. But what you have stated so far is not enough to offer a high probability of diagnosis. But the only way to know for sure is to consult with a doctor who specializes in diagnosing and treating Peyronies.



Thank you.

And here's a message for others.

Hi guys, I've decided not to be worried about it anymore, from seeing pics online left penis curves are very common indeed and the size of my dick is good enough for me to not moan about it. It may very well be peyronie's but it's not something I'll dwell on anymore, the only thing which still bothers me is the lump under the skin which could range from plaque to a tumor or anything.

I hope some of you feel the same, you only get one life so may aswell try to be happy and content with your physical features.  

fubar

18 year old

You know your body if this is something new not something you have been living with for years. Maybe has shown its self in the last couple of months then  yes it maybe something you should look into .I would ask a qualified  urologist about it and what is this lump and what kind of treatment or surgery there is to remove it..

In the future if not soon or later even a lump may cause some kind of trauma to your penis so be investagative
and Enquirer to a professional into what is going on with you.

Fubar

clarkk

Hve any of you guys noticed a hard flaccid penis that turtle heads in when you sit? I cant tell if it is in my head as I am extrememly nervous about it, but my penis feels harder I think when flaccid now and it doesnt hang like it used to. This is all very distressing. -Clark

chiguy

I suppose it is possible that it might be an early onset of Peyronie's. But there are a ton of other possibilities. There could be a broken blood vessel that is repairing, or lack of blood flow period. Best to go to a urologist and give yourself piece of mind.

Normally if your flaccid penis is hard, but when you are erect, it feels normal, it is not peyronies.

18yearold

I got something which moved under the skin during erection but is on opposite side of curve?

help me out?

LWillisjr

First off.... don't panic. And don't assume you have Peyronies Disease, and don't assume you have anything that needs fixed.

Second,
you might try giving some more details. Just saying you have "something that moved" is too vague.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

golfi

Hi, I have had pain in my penis and perineum for 3 years now.
It kind of started with tension and soreness in my perineum, but it have gotten worse and worse.
Now I can feel a "string" or bulb (I think it is my corpus spongiosum not the corpus Cavernosum that has swollen) which starts
in the area around my anus and goes through the perineum and up to the tip/head of my penis.
It feels like the corpus spongiosum pulls on my penis, making it smaller/shorter.

When I get an erection, it kind of easy the pain a bit, but it often get worse some hours later.
The main problem is the pain that I'm having. It is the first thing I notice when I wake up and
the last thing when I go to bed. It is a very constant pain consentrated in my perineum and behind my testis (not inside the scrotum).
As I said it started very gentle, but have gotten worse and worse and it feels like it will never stop "growing".
It is a little better standing or laying down, but often worse when I am sitting. It feels like I am sitting on something when I am actually not.
There is also this sense of feeling; (you get when you sit down in an awkward position with your legs and your legs feels sleepy/lazy, because off the blood stream is stopped).That same feeling but in my perineum and penis instead of my legs/feet.

I had problems with my back before these symptoms occured, due to much golfing. But that got better, after getting treatment for it, before the symptoms started. Resently my backproblems have come back.

I am just 23 years old and have difficulities with the thought of living with this thing the rest of my life. I have rencently been a bit depressed.
All the doctors and urologists that have examined me, say that this is not a serious disease (cancer etc.), but something I just have to live with.

I don't feel my condition fits to the Peyronies disease, but wanted to hear what's your thoughts.


Please help me.

jackp

Golf

I am not a doctor but form some of the prostate problems I have had it sounds more like prostate problems than peyronies.

It could also be nerve pain.

Find a good Male Sexual Function Specialist for a complete work up.

Jackp

LWillisjr

I agree with Jackp. This does not sound Peyronies related to me, especially with the pain being in your perinium area. This could be one of a number of non-Peyronies related issues. I wouldn't stress out over it at this point, but would definitely suggest you find a speciailst for an exam/workup.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

newguy

I can understand your worry about the pain you're experiencing. Do yo simply feel that your penis is smaller (due to concentrating on the pain and that area of your body) or is it significantly smaller? It would seem that multiple urologists you've seen do not think that it's peyronie's, so it's difficult for people here to say that it is. It's hard to rule anything out, but I do very much agree withothers there this could be nerve related. I believe that certain drugs can help to reduce nerve pain.

jackp

Neurontin is a great prescription drug for pelvic nerve pain. It also helps with anxiety.

Jackp

golfi

Hey again,

It's kind of good news that it's probably not Peyronies, but
I do want to find out what's wrong.
The main problem is the pain, and it could perhaps have to do with nerve pain, but I have another question.
Why is there swelling to? (startes around my anus and goes all the way through my perineum and penis and ends up at the tip/head of my penis)  
The swelling/bulb/(or string as I call it) started out small, but have grown larger and larger.
Is the nerve pain so bad that it provides swelling in my perineum and penis?
Or could it have to do with the muscles down there getting tighter?

I have booked another apointment with my doctor and hope he can send me to a sexual function spesialist or someone else who might
have an ide of what this is.

I appreciate your thoughts and answers.


VL


Skjaldborg

VL,

Go to a urologist immediately. Then get a referral to a male sexual health specialist urologist. This is something that cannot be resolved via an internet forum. You must go to a doctor.

Best of luck,

Skjald

LWillisjr

You don't necessarily have to be referred to a male sexual specialist. In many cases they are urologists who have focused their practice on male sexual dysfunction. I'm simply trying to say that you don't always need to go to a general urologist first. In my case I made an appointment directly with Dr. Levine. I did not have or need a referral.

And Vince... I agree you need to get to one right away to get a proper diagnosis.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

jackp

Vince

A lot of Male Sexual Function Specialist will see you without a referral. I know Dr. Milam at Vanderbilt will also.

You only need a referral if your insurance requires it.

JackP

VL


kingofsat

My penis feels 'firm flaccid' alot of the time, it gets worst when im in a hot bath, standing, running, exersising, or sitting for long periods and after masturbation.
I have no pain whatsoever.
Sometimes when it's 'firm flaccid' if i try to get an erection it will try and go into a semi erection but ends up bending in half, basically. Wheras other times when im more relaxed, it will fill up normally.

When i go to urinate (which takes a while go get going) it relaxes completely, and then urination proceeds. Shortly after, it will begin to get 'hard' again.
Sometimes, I can feel a very hard wire-like thing, on the underside of my penis and it runs up towards the head and then disappears.

90% of the time i find it hard to get an erection on my own, unless i am watching porn and maintaining constant stimulation. If constant stimulation stops, or i stand up, it goes straight down. So i've tried to quit porn now for 2 months, and masturbation. Which has helped my spontaneous erections abit. Cialis also helps.

Sometimes my dick feels completely relaxed, soft, and i can't feel ANY hardness whatsoever. ( just like before this all started )
Then at times; it will retract, get extremely hard, and lose nearly all sensation.

If there is scar tissue, would it constantly be in a hard flaccid state ? Do you think my main issue is pelvic floor / muscular contractions ... as it disappears when i 'relax' and urinate and that i have delayed urination in that i have to focus on relaxing everything to allow it to flow. ?

LWillisjr

kingofsat,

I firmly believe you have some problems with penis/erections/etc.  But what you describe doesn't clearly indicate Peyronies. So I would not assume you have Peyronies, but definitely have some problem going on. The best advice I can give has been stated many times on this forum. For any type of penile/erection issues.......   GET TO A MALE SEXUAL SPECIALIST. No one here can diagnose your symptoms over the internet.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

crashbandit

If possible, I'd say, just start having as much sex as possible. Do you have a girl you can get with? If so, just start having as much sex as you possibly can. I find a penis just needs a good workout to break out of its funk. Both mind and body can benefit greatly.  
Cheers

kingofsat

Quote from: lwillisjr on January 06, 2011, 10:27:32 PM
kingofsat,

I firmly believe you have some problems with penis/erections/etc.  But what you describe doesn't clearly indicate Peyronies. So I would not assume you have Peyronies, but definitely have some problem going on. The best advice I can give has been stated many times on this forum. For any type of penile/erection issues.......   GET TO A MALE SEXUAL SPECIALIST. No one here can diagnose your symptoms over the internet.

Thanks for your replies guys, it really helps and im trying to stay positive.
I have approached a doctor about my urinary hesitancy as sometimes it takes a while to get flowing, which could indicate a contraction of some sort ?, and i believe the two things are firmly linked. As maybe i have some fibrous/scar tissue around the urethra area ?, if i pretend im going to urinate ( or actually go and urinate ) and relax the necessary muscles ( kinda hard to explain ). Then it relaxes my penis and it doesn't feel 'hard-flaccid'. Anyway the first step he said, is to have a urinalysis test to rule out any infections - so i'm going to get that done today.

The problem isn't really getting an erection, it's maintaining one. If i get an erection and a girl starts doing something with it, it starts losing sensitivity and thus my erection goes down. This could just be because it was very cold outside, although im not sure (it's happened twice now)

I've been taking cialis one day before i meet my girl, and when im with her i'll get a really hard erection but as soon as i start doing anything with it, it dies down. Really strange.

Also, because of all these problems i was fearing venous leak. But then like one week after i stopped masturbating, i got an extremely full, sensitive, and hard erection with no stimulation, and it stayed there even when i stood up, and sat back down, this has happened twice in the past 2 months. I will occasionally get these erections but very rarely, and it's never when i actually want them either - which is the frustrating thing, it's like my dick has a mind of it's own sometimes.

I only ever seem to be able to get a sensitive erection when im sitting in my pc chair, watching porn and keeping constant stimulation. Which is why i have completely cut this out now for 2 months, because i thought my dick could be getting accustomed to this, rather than the stimulation of a girl.

crashbandit

Wow, that's sounds strikingly similar to to fred22 urinary troubles. Do a search for his threads on this forum.

Also, check out this thread, it's got some great info on hard flaccid penis problems.

http://www.medhelp.org/posts/Mens-Health/Continuation-of-Penis-hard-when-flaccid-thread/show/1122440

The reason why I recommended some good sex for a hard flaccid penis, is because it helped me with this problem. Something I take to really rev up my sex drive, which works really amazing, is a strong, natural, prostate formulae that comes in liquid pill form. This is the one I use that I find very effective:

http://blog.londondrugs.com/2010/11/london-naturals-super-prostate-formula.html

I couldn't find the product ingredient breakdown of that product so if you want it I can send that info to you.

It could also help your urinary problems aswell.

Cheers

Ben

I seem to have a strange condition in comparison to a lot of men here.
The initial trauma triggering peyronie was a hit while playing soccer.

The shock immediatly gaver a huge pain, but localised like a "string" in the dorsal side of the penis.
At home I checked my penis and it seems ok BUT the ending 1/3 was lifeless, as I grab py penis lying on my bed, the head falls, and almost no sensation in the ending 1/3.

After a while this weird feeling spreaded in the whole dorsal side of the penis.

Now it stay like that, I only can have a erection if really aroused, but rubbing my unit is useless. I was 25 at the beginning with no erection problem at all, now 30.

It seems that it's more than a lost of sensation, but of overall strengh.


I really think that dorsal nerve is dead (or hardly compressed by plaque) but the worring thing is that immediatly after the initial trauma, the "sleeping nerve" was here ?

any advice ?
thank you in advance :)

jackp

Ben

Find a good neurologist and have a nerve test done. Also see a Male Sexual Function Specialist, not a general practice urologist.

Jackp

Ben

well that's an idea. I've already seen a male function specialist, the n°1 implant surgeon in France to discuss about 3 component implant. But he said nothing about this, I forgot to ask him.
I wonder what can be done about my condition.

Thank you for your answer Jack

thissucks

Hi everyone,

I'm a 20 year old male, recently started having problems that have got me started researching Peyronies Disease in the past two days. I woke up this morning with a curve in my penis that was very clearly centered at a tender spot on my penis, which started feeling tender about a week ago after some slight physical trauma from sex. It doesn't really hurt per se, but I can feel some slight pain on the left side. The curve was pretty sever considering I've never had this happen before, I'd say about 20 degrees of it. However, I just had an erection and it was perfectly straight looking. Granted, I did push my penis back into a straight line this morning. Is that a bad idea?

I have some questions: What advantages are there to this being in its early stages? I feel no plaque right now, but I don't doubt that it will develop given this morning's erection. Does having an hourglass shape sometimes appear in my flaccid penis have anything to do with this? If so, I've had that happening for maybe the past year (on occasion, not all the time, but maybe a couple times a week and particularly after masturbation). Can I take two Vitamin E pills a day and expect any results? Are erections good for preventing plaque build-up, or will they further this condition? Should I be massaging my penis?

I really don't know what to do about this, but particularly I'd like to know about how erections affect Peyronies Disease and what I can do to get rid of this while it's still early. Thanks so much!!!!

BillyJ

javascript:void(0);

, sudden loss of erection and a feeling of something sliding away.  
.  
"the total erection size does seem slightly reduced."

"describe as fascia or sheath disconnect from my glans and begin to slide downward"  

"it appears that the fascia disconnected and slid down"

Rovert
[/quote]

Rovert & Forum Members,

Any updates Rovert?

I had a similar experience and don't know what to do about it. Began with a slight injury, pain at tip, pain if penis was pulled away from body "downward" so I had to be careful. Pain subsided in a few days...then a month later noticed narrowing in distal third of penis and general reduction in length and girth.

1 Year has passed.  Tried DMSO and serrapeptidase, Osteopathy and Urologist wants to try Veripramil injections.

Is this a mechanical injury involving sheath AND scarring/nodules as well?

Thoughts anyone?

Thank you kindly,

BillyJ

raz

I thought this was a thrombosed vein but I'm not exactly sure. I had an erection and I "flexed" too hard and I felt a sharp pain on the left side of my penis. a few days later I had this hard cord that was kinda painful. It runs from the very botton of the base in the middle a little to the left, travels up, goes on the side of the shaft, and goes all the way just under the head. when I have an erection I can clearly see it bulging out the skin and it pulsates which makes me think it's a vein...the pain stopped after a month, but the cord is still there and has been there for about 3 months. It hasn't caused more curvature or changed my erections.

chefcasey

Your symptoms don't really sound like peyronies.  I assume that when you say "flexed" you mean you contracted your pelvic floor muscle that aids in ejaculatory and urinary function.  I too used to feel like I flexed my pc muscle too hard when ejaculating before, although a lot of times it's hard to control.   It very well could be a thrombosed vein, but most people I've talked to that have that have pain and the vein is VERY apparent.  I'ts good that the pain has stopped, but I would still check with a urologist.

chefcasey

thissucks,

I agree by your name that yes this does suck, but don't panic.  It sounds like you did cause some sort of physical trauma to your penis.  After only a week or so, I think it's too early to tell whether or not you have Peyronies Disease.  injuries from sexual trauma can be a one time thing, where after you injure it, it gets inflamed and does heal on it's own quickly.  It is unusual to develop it at such a young age, but there are others in their 20's such as myself who have gotten it.  You did the right thing by coming here first though.

I suggest that you skip your primary care doctor and go straight to a urologist, particulary someone who specializes in sexual function.  Don't be nervous to go see one as they see guys like us all the time.  See if you can get scheduled for a penile sonogram through them, so you can see just what exactly is damaged and where.  You may or may not have Peyronies Disease, but you can at least start some oral treatments that won't hurt.  

You should be taking things that are anti-inflammatory and anti fibrotic, like fish oils, or asprin or ibuprofen if theres still pain from the initial injury.  In a addition you can pick up some L-arginine at 2grams per day, Acetyl-L-carnitine at 2grams a day, and perhaps some coenzyme q10 at 300mgs a day.  Take vitamin E if you want, although there's no evidence that it actually works, keep it at 400iu a day if you do.

The advantages to being in an early stage is that if you have scar tissue, it's still soft and maleable, so you have a better chance at preventing it from getting worse, and also making it better.  I don't think that the occasional flaccid hourglass means too much.  Way before I ever had Peyronies Disease, I used to get it after masturbation or after sex sometimes.  It's only if it's happening constantly that it's an indication of scar tissue, at least in my case.  

Finally, erections are CRUCIAL if you want to stop and reverse this.  DO NOT stop getting erections. Erections stretch the penile tissue so it stays stretched and the plaque doesn't advance, as well as carrying nutrients through the incresed bloodflow to the damaged tissue that needs it. The more erections, the better, and I think just about everyone on here will agree, just go easy on sex and masturbation, keep it gentile for the time being.  Massaging it probably won't do anything.

-chefcasey

rd

I have peyronies with no curve, what I have is a lump on the right side of the shaft just under the head. Which is cause the thinning of the shaft above the lump when errect. Even when flacid the part above the lump seems like something is missing because its thin as well. My question is that I see all the alternative treatments and Oral treatments but most seem to be relating to fixing the curve, are they also intended to fix thinning? I keep reading up on Xiaflex but again it refers to fixing the curve, is it also for thinning? If not what treatments should one use to try to correct the thinning? I've attached a paintbrush drawing to show the issue my peyronies is causing with a arrow pointing to where the plaque is located (I couldn't figure out how to insert the picture in the post).

After doing some research when first being diagnosed, I am confused as to why I don't have a curve either? I thought that plaque not being flexible cause a curve because one side inflates as normal while the other side can't expand around the plaque causing it to bend towards the plaque, so why do some get thining?

newguy

Would this perhaps be better to describe as an indentation? I would think that a regimen or oral and mehanical treatments would have some chance of improving this, if you stick with them for the long term. What do others think?

cowboyfood

Indentation, or dent, may be the way to describe it in my opinion.

I had a right side dent with no curve, then the dent went away after VED and pentox usage for a little over a year.

Then, after I took a break from the VED for a couple of months, a left side dent appeared, and no curve.

(I could always feel a slight dent on the left side since I first noticed my right side dent; it just seemed to become more enlarged after I stopped using the VED for a couple of months).

I started back with daily ved usage last September, and subsequently left side dent seemed to stabilize last October/November.  Now, I can see the left side dent has reduced in size slightly.

I never have had much of a curve with either dent.  I did have a slight upward curve of about 30 or so degrees when I first noticed the condition over two years ago, but that went away after a several months of VED and pentox usage.

CF
Currently:  L-Arginine (2g), Vit D3)

qowpel

Hey guys.

Well, I have been, for the last few months, noticing that my flaccid would severely sometimes curve to the right if either entirely flaccid with the least amount of blood, or if I had a more engorged flaccid. I would also notice that sometimes if I was 70% or so erect, I would have a 30 degree or so bend to the right. BUT, usually in time this will go away for weeks at a time, as long as I keep ejaculationg or even stroking my erect penis to at the most once a week. If I do it twice in one week, I generally see these bad symptoms. So I don't know. I don't know if this is just a very mild case of scar tissue that when I do too much sexual activity, acts up and causes these symptoms..... what do you guys think? If I abstain totally a week from this day on, and then get an erection THEN, I generally will have NO curve. But If Im too rough on it, it is like the scar tissue (that I SUPPOSE is there), will "activate" and cause symptoms...... what do you all think?

qowpel

Hey guys.

Well, I have been, for the last few months, noticing that my flaccid would severely sometimes curve to the right if either entirely flaccid with the least amount of blood, or if I had a more engorged flaccid. I would also notice that sometimes if I was 70% or so erect, I would have a 30 degree or so bend to the right. BUT, usually in time this will go away for weeks at a time, as long as I keep ejaculationg or even stroking my erect penis to at the most once a week. If I do it twice in one week, I generally see these bad symptoms. So I don't know. I don't know if this is just a very mild case of scar tissue that when I do too much sexual activity, acts up and causes these symptoms..... what do you guys think? If I abstain totally a week from this day on, and then get an erection THEN, I generally will have NO curve. But If Im too rough on it, it is like the scar tissue (that I SUPPOSE is there), will "activate" and cause symptoms...... what do you all think?

newguy

It's very difficult to say if this is something to be concerned about or not.It wouldn't be a bad idea to be less rough for a while, seeing as this seems to result in less of the symptoms that you're been seeing. Also, looking to see a urologist to get their take on it could be a positive step. You're very well positioned to get on top of it early with effective treatments like pentoxifylline, should it be decided that you do have peyronie's disease.

qowpel

Hey guys. Well, I have noticed that my penis now bends an extra 5 to ten degrees to the right when flaccid. Sometimes if a bit more blood gets into the blood for a more engorged flaccid, the curve can get as bad as 25 or maybe even 30 degrees. Before this my penis was basically entirely straight. I have also noticed my urine stream is way more to the right.

The thing is that this curve stays prevalent to the largest extent about a week or more after ejaculationg. It will just linger for that many days. I have checked my penis and so has the urologist on the outside for plaque or scar tissue. but they found nothing. I also got a doppler to look at the bloodflow and it came back normal. Isnt there a better test to assess the scar tissue I KNOW I have (and I KNOW I must have even a little because sometimes as my erections fill out I have a right curve about 10 degrees but then it goes away after I become fully erect. Also, I have noticed for so long years, that I have not been able to get full potential erections. Missing almost half an inch in length and .25 inches in circumference. However two weeks ago, I got the fullest erection I had ever gotten in years. FULL POTENTIAL. But after that, it has been 13 days and I havent touched it, but the symptoms still stay, which makes me think the full potential erection caused alot of inflamation.....

Anyway, I got a doppler that showed nothing. But there HAS to be something there... Is there any other test I can get such as an ultrasound (like the one they use to look inside of a pregnant mother) that actually LOOKS inside of the penis, to look for any plaque or scar tissue?

Is it possible that my test came back normal because the scar tissue isnt severe enough? thank you guys and please answer this all so that I dont have to make a post that will ause me to take up more memory on this site. Love to all

LWillisjr

qowpel,
The doppler ultrasound is about the most accurate method I know of for problems and/or plaque detection. I'm confused about some of your symptoms. I believe Peyronies Disease is most detected once you are erect. But you state you are straight when erect.

You mention some possible ED issues. Peyronies and ED are not directly related. So just because you are not getting fully erect is not an indication of Peyronies.

So I am curios as to why you are convinced you have some scarring. I'm not necessarily disagreeing, just trying to understand your thought process.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

newguy

Well it sounds like you've done the right thing and got checked out. The results suggest that there is little to worry about, so again that's positive. It is useful that you've found this community though. In your shoes I would keep a very close eye on things, and if my fully erect penis alters in terms of degrees, act at that time. If you are suffering from very mild ED, that is something that can be addressed with viagra/cialis or natural remedies (l-arginine and pycnogenol combo, for instance). It might be normal for your erections to be not quite as strong as they used to be. My hunch tells me that there is little to worry about here, but again, you've found this site, and you're well positioned to act if your situation changes.