PEYRONIE’S Symptoms & Confirmation

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qowpel

Quote from: lwillisjr on February 21, 2011, 07:05:43 PM
qowpel,
The doppler ultrasound is about the most accurate method I know of for problems and/or plaque detection. I'm confused about some of your symptoms. I believe Peyronies Disease is most detected once you are erect. But you state you are straight when erect.

You mention some possible ED issues. Peyronies and ED are not directly related. So just because you are not getting fully erect is not an indication of Peyronies.

So I am curios as to why you are convinced you have some scarring. I'm not necessarily disagreeing, just trying to understand your thought process.


Well the thing is, I have developed a new curve in my flaccid penis. And generally, the curve gets worse and worse as I apporach about 30-40% erect. This curve has not gone away and has been showing up on and off for around 3 months. It stays the longest/most consecutive amount of days if I ejaculate twice in one week. If I do that it will stay for so so long, like at least 10 days.

Whenever this curve is present, SOMETIMES as I get up to even 60% erect or a bit more, I can see a small small dent (extremely small) on the right side about half a centimeter below the glans and it bends to the right and will feel a pull. The curve, whenever it occurs at this amount of "erectness" will be about 5-10 degrees, but is usually 10 degrees. Either way, it is there, and is new, and I feel something there. Clearly more sexual activity in a short window of time exasperates these symptoms as if I am causing extra inflamation of the scar tissue that must be there. What do I do?And what do you all think?

18yearold

I'm actually 19 now but im pretty positive i got it, my dick twists and curves to the left a bit, i have visible scarring on the left side with a lump on the right side of my penis about mid way.

i dont feel any pain but my erections are soft although it might be down to my nervous and bad feelings towards my dick

ggilmann

Hey all. Just joined the forum and have some questions about my new condition.

About a month ago, after an unusually rigorous session of masturbating, I noticed some pain and discomfort in my penis when I was erect. The pain was mostly around the base of the penis, spreading up the center of the shaft a little too. Also, I found that I could only push my penis back to about an 80 degree angle from my body until it got tight around the base and started hurting. The best way I found to describe the pain at the time was that it felt like I had "sprained" my penis, for lack of a better term. (Incidentally, I have not noticed any unusual curvature). I figured I had just been a little too vigorous and decided to take it easy on the masturbation for a while and wait for it to heal.

After a week and a half or two weeks, I began getting a little concerned so I saw my GP. (By this point, I was also beginning to notice a strange, hardened "chord" running up the center of the shaft of my penis when I was engorged). He was clueless about what it could be, so he referred me to a urologist, whom I saw yesterday.

The urologist almost instantly diagnosed it as Peyronie's. He said there wasn't much known about the cause and there was no cure. He said there was nothing he thought surgery could do for me, nor was there really any medicine for the pain. The best he suggested was I try taking vitamin E and ibuprofen and wait to see what happened. My current plan of action is to lay off the self love for a little while and give it a shot to see what happens. I did send my urologist an email asking about Pentox once I read about it here, but haven't heard back yet.

So I guess what I'm looking for is some advice about what to do about this and what I can expect for the future. Is there anything more I can do besides the vitamin/ibuprofen regimen? How can I expect this to affect my sex life? How many of you saw the condition get better over time? Worse? The pain seems manageable for me at the moment, but I'm worried about it getting so bad I can't do anything.

I've already gotten a lot of good info by browsing this forum. Any extra advice or support you guys can offer would be super appreciated. Thanks.

LWillisjr

What makes you think you have Peyronies Disease....  just curious.

There are a number of factors. How long you have had curvature, the amount of curvature, other symptoms, etc. It is important to get a proper diagnosis as this will determine the best approach for therapy.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

LWillisjr

Well,
Unfortunately you got the old textbook response. Don't forget that urologists are trained on bladder and urinary conditions. Of which this disease is neither. Many urologists don't know any more about Peyronies Disease than GP's do.

Urology - noun
the scientific, clinical, and especially surgical aspects of the study of the urine and the genitourinary tract in health and disease.

If you read much here you will quickly see references suggesting you find a specialist in male sexual function. This is a narrow field in the area of general urology. Many of us here went to several uro's before finding someone who would treat Peyronies Disease and not say there is nothing that can be done. There are several doctors this forum recommends depending on where you live.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

ggilmann

Thanks for the suggestion. Is there a specific place on this site where I can find suggestions for a specialist in my area?

George999

The Urologists and Other Doctors area is a good place to start.  If you don't find someone in your area there, its also a good section to post in "looking for a doctor".  - George

wockawocka

Hello everyone,

I have had peyronies since november of 2010, I was officially diagnosed in January 2011.  I'm 22 yrs old.  I've had some mild curvature, and lots of pain in the beginning.  I was told to take vitamin e and aleve. My urologist said he had peyronies as well.  It's been 4 months and the pain has improved a lot.  I no longer take aleve everyday, just every now and then.  I can live with the small curve I have, it actually straightens out for the most part when I have an erection or after gently massaging the scar tissue area.  I still don't have the same erection strength as I once did before peyronies.  I would say that right now I'm 85% if pre-peyronies I was at 100%.  I must also mention that I have struggled with severe anxiety and xanax withdrawals for the last yr and a half; depression as well for 8 yrs it turns out.  Things are getting better emotionally and withdrawal-wise, I got off the xanax in the last week and my erections are getting stronger this week as well.  My libido is getting back to normal.  With that being said, should I go back for a checkup soon about the erections not being 100%, or could it be my emotional state that's holding me back.  My urologist said that if i had any problems come in.  Do you think I should go back ASAP or wait for a few weeks to see what happens?

jackp

IMHO

I would give myself time to get over the withdrawal from xanax and any other antidepressant.

Antidepressants cause sexual disfunction.

Jackp

justbob

I think I've noticed the same.  If I masturbate frequently the curve in the flacid or semi-erect state gets worse, suggesting increased inflammation; I notice this especially during penile detumescence.  If I abstiene for a week there is more arousal and the erection is stronger, I probably have chronic prostatitis issues confusing the picture.  Long term abstinence is not a good idea as frequent erections help maintain erectile function - use it or loose it as they say.  In general think it is probably a good idea to make sure you are highly aroused before starting to masturbate, be kind to your penis.

chefcasey

I've noticed something similar too.  However I'm not sure if this is due to making the scar tissue inflamed, but rather tissue fatigue.  The scar tissue doesn't have the same elastic properties as healthy tissue, so after too much use, it gets "worn out" for lack of a better term, and tends to tighten up more and contract.

Kpaul

Hey guys,

I'm new to this board and have a relatively clueless Urologist. By reading some info on this site, I think I may be exhibiting some symptoms related to Peyronies Disease. I'm fairly young (26) and have been dealing with a bit of ED during the past several  months. Its onset was rather rapid and I can't pinpoint it to an event.

One thing that I've noticed recently is that during the process of gaining an erection, the head of my penis will fill with blood, the 1/3 near the base will also as well, but the small part of the shaft that connects the head to the rest of the penis will kind of lag in its response and remain thin. I believe this is referred to an "hour-glass" shape. Eventually, with enough stimulation, it will respond like the rest of the penis and I can gain a real erection. My penis looks normal when flaccid and erect.

This 'lag-response" is not always the case. Sometimes it happens, and other times it doesn't.

Do these symptoms match an early case of Peyronies Disease? So far, I have no palpable scarring and no noticeable curvature.

I'd appreciate any guidance in this matter, as I'm trying to atleast get a sense of what may be going on.

restore

kpaul212, has your urologist ruled out Peyronie's for now?  You said he/she was clueless, I'm thinking that means no definitive diagnosis.  You may want to seek a second opinion.  I did, after my first urologist misdiagnosed me, my third urologist has me on Pentox and low dose daily Cialis.  In addition, I'm taking Ubiquinol, ALC, L-arginine and Vitamin E and feel that it has helped me at least retard progression of this condition.

Being so young, your body may be trying to heal itself and not go into full Peyronies.  You could begin taking anti-inflammatory meds such as Ibuprofen at least until you know for sure.

Kpaul

Thanks for your reply.

The doctor gave me a complete exam but didn't feel any scar tissue and disregarded that potential diagnosis. So to answer your question, yes, I am currently undiagnosed.

I guess my real question is: Can you have Peyronies Disease, and experience the symptoms sometimes, and other times not?  

George999

Actually hourglassing is quite common when progressing from flaccid to erect states and if everything is fine once erect, I really wouldn't worry about it too much at this point.  The first presentation of Peyronie's *usually* involves palpable plaques or nodules *or* streaks of hardened scar tissue that can be palpated or felt in the flaccid penis.  If these types of anomalies are not detectable then the likelihood that this is Peyronie's is very small.  - George

kthjkvnv

Hello everybody. I want to ask if my condition looks like Peyronie's disease or it is something else.

I am 25 years old. My penis is bent about 50 degrees downwards during erection. Penis is not curved all along the length of the penis. It starts straight relative to the body and it is bent in an inch from the body and the rest part of the penis is totally straight. That is two straight parts of the penis connect at an angle.

When I don't have erection, it is not curved. When I have erection but the erection is not full, penis starts to bend but it is flexible enough so it is possible to straighten it by hand. When I have full erection, it is not possible to straighten it. I also have a small amount of pain during full erection. I don't have any other abnormalities with my penis (except circumcision). I can masturbate but I have never tried to have sex.

I don't really remember if my penis was already bent when I had my first erections in childhood. When I was 15 years old it was definitely already bent. I don't remember any changes in it, so it may never have been straight. Nor do I remember any injuries to it. I had circumcision when I was about 10 years old.

I've read that if you have Peyronie's you can palpate the scar near the place of curvature but I tried really hard and couldn't feel anything special around the place of curvature. May be I just don't know how it feels.

What cause may such a curvature have? Does it look like Peyronie's? Is there a better way to make a diagnosis?

Sorry for my English, I am not a native speaker.

LWillisjr

Your English is definitely fine enough for us to understand.

What you have described as your erection starting straight, then a curve, and then straight again is described as an acute curve or angle. And yes this is symptomatic of Peyronies disease. And it seems that you have had this for a long time. This would mean that if you do have Peyronies Disease that it would have stabilized by now. This means it shouldn't get any worse at this point.

It can be difficult to feel the scar tissue. I was not able to do this until my urologist showed me how, and now I know what to feel for.

50 degrees is a pretty good curve, and could definitely interfere with intercourse.

The only way to know for sure is to get a proper examination by a specialist and confirm the diagnosis. There is a lot of information on this forum on how to treat Peyronies. But you need to confirm this by a specialist.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History


yojim


Hello all,

I am greatful I found this forum.  I want to describe my symptoms and will welcome all input.
If I have Peyronie's disease I have just aquired it.  
My stats:
54yo married
always in good/exceptional health

A while back, difficult to say how long now but I think a month or two is a fair guess, I noticed pain on the top of my penis just below the head only when fully erect.  I could make it hurt more by mentally flexing while erect. I did not give this a great deal of thought at the time.  This happened maybe 2 or 3 times during relations with my wife. The pain was no severe, it more of an aggravation/distraction.  

The other morning, when I awoke with an erection (maybe 90% fully erect), I reached down and felt it and noticed (or believe I noticed, a bend upward). This bend is in the top 1/3 or so of the penis. Well, I kind of freaked out a bit but did not think a great deal of it until I got online and discovered Peyronies disease.  Part of my problem now, is that because I am disturbed by this, even when I attempt to arouse myself, my mind is so fixated on this issue, I get 60-80% erect, lose my concentration and begin to concentrate on the shape of my penis. Well at 60-80% erect I see no sign of a bend.  If there is one it is relatively subtle.  If I awake with an erection (again being 54 I seldom if ever awake with a full erection anymore) I will reach down to feel it but again, because of the panic, it instantly goes away.  

I guess what I am trying to say is, my anxiety has me at a state where I cannot even fully evaluate my own situation at this time.  

My questions would be:


  • Has anybody else here had an onset such as mine?  Pain on only a few consecutive occasions, followed by a perception of a bend?

    Where the pain is now gone (I believe) and was relatively brief (few occasions), does this suggest anything about my prognosis?

    Typically (if there is a typical) does the "bend" display itself in less then 100% arousal?  Again, if I have a bend it is only bent when fully (or near fully) aroused.
I am not sure if I feel anything under the skin or not.  I have never had need to examine in this manner of course.  I have read of BBs like lumps etc.  I have no sign of a lump. I possibly notice a hardness under the skin just below the head but I be imagining it.  If it is scare tissue or plaque of some kind it is perfect flat and non-bumpy in any way.  Again what I am feeling may have always been there, I cannot be sure.

I wish I were 18 and could just command an erection  but my anxiety is preventing me from attain a full one.  

I am and always was an alarmist type person.  I have a tendency to think the worst.  

Any input welcome and thanks in advance.

LWillisjr

You are describing what I refer to as "classic Peyronies". I, like you, simply woke up one morning and there was the bend. I did not have any pain. Started off with a 40 degree bend that progressed over a few months to a 70 degree bend.

I also did not have any lumps or bumps. The scar is a hardened spot on the Tunica (under the skin). My urologist described this as placing a piece of tape on a deflated balloon. Then when you inflate the balloon, the balloon curves into the direction of the tape as this area no longer stretches as the rest of the tunica tissue around it.

You've come to the right place for information.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

yojim

Thank you for responding to my post. I'd like to describe my issue in a bit more detail and get your input.

When I originally had the pain it was right where the head meets the shaft (the neck if you will).  Perhaps even a bit into the head itself.

My "bend" is actually difficult to calculate in terms of degrees.  This may be because of the location of the bend. Most pictures of a dorsal (or top) view of Peyronie are usually centered midshaft which would exasperate the problems associated with the bend.  In other words (for example, to take a couple of exptremes ) if you began at 6" and had a 45 degree bend at midshaft, you'd have 3" striaght and 3" upward (perhaps making intercourse difficult).   If you began at 6" and had a bend near endshaft (or head area) , you'd be 5" straight and 1" upward. Assuming a 1.5" diameter, with the same 45 degree angle, the picture seems less severe (seems intercource might be less of a problem).  

An analogy would be, picture a person laying on his back on the floor (perfectly straight), then he lifted his head to take a look at his feet. Due to mechanics you can only lift your head so far in this case.  I am thinking I may be a bit fortunate in that my bend is more on the last 1/4 to 1/3 near the tip.  It's as if the head turned upward.  

The problem would be, if this is a progressive thing and the plaque or scar tissue progressed more towards the root of the shaft, things would get dramatically worse.

Therefore this is almost like rotating an oblong ball at the end of a stick.
Approximately the top 1/4 is bent. Given this I would guess at a 10-20 degree bend.  

I am now pain free.  Had a good test for pain this morning when I awoke.  Was near 100% and no pain.

BTW anybody else think the picture in wikipedia does not look like too severe a case?  It almost looks like a congenital bend only pronounced.  That picture is more of a half circle. rather then a dramatic bend.


LWillisjr

I understand what you are describing. Your curve is near the top of the shaft near the glans (head). Even so it should be possible to estimate a degree of curvature. So if you 10-20 degree estimate is correct, this degree of curvature isn't too bad. Given the fact the some here have had curvatures of 45, 70, and in rare cases exceeds 90 degrees (yes starting to point back on itself).

But... in any event the treatment suggestions remain the same. Typically Peyronies is considered to be in what is called an "acute" phase for the first 12 months or so. After which it stabilizes. So you want to do what you can to keep the curve from getting any worse. The recommendation here is to try a combination of things. It is always suggested that you find a specialist. Many urologist claim to diagnose and treat Peyronies. But most will give you the text book answer to "wait and see" or "there is nothing you can do". Doctors who treat Peyronies tend to be male sexual specialists. Outside the U.S. the term is Andrologist. There are several doctors recommended here on the forum.

A prescription drug called Pentox is highly recommended. It helps some with the pain. Even though you don't have any pain, Pentox helps with blood flow to the penis. Which is also recommended for the healing process.

Also, use of a traction device or exercising your penis with a VED is also recommended. There are boards here on both with lots of information on how to use them, protocols, etc.

If you have no pain, and no problem with intercourse.... consider yourself on the fortunate side of this disease (if there is a fortunate side). I would focus on trying to prevent any worsening at this point.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

yojim


Thank you again Les, for the reply.  
Do we know of any specialists in the Boston area?  

Perhaps I should begin a thread asking this question?

LWillisjr

Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

kthjkvnv

lwillisjr and others on this forum wrote that an acute curve is the evidence for Peyronie's and a gradual "banana-shaped" curve is the evidence for a congenital disorder. Thus, there is some evidence for Peyronie's in my case.

However, I have also found a following statement by somebody on this forum that also matches description of Peyonie's which I found in other sources:

"...you state that your curve has existed as long as you can remember.  That is a very strong indicator that is is not Peyronies Disease.  You currently have no palpable plaque, pain, no history of trauma, no history of a rapidly developing deformity or loss of size.  You have no ED.  In conclusion, you have no symptom of Peyronies Disease." (topic Other Peyronies Disease Discussion Boards > Open Questions or General Comments (that won't fit under any other topics) > Open Questions on Peyronies Disease (That won't fit under any of our current topics)).

That perfectly describes me as well. It seems that it's hard to conclude anything and I will have to seek a consultancy and undergo ultrasound or another inspection to understand the situation better.

LWillisjr

That is correct. That is why it is difficult when someone posts here and asks "Do I have Peyronies". You have to consider history, symptoms, changes, etc. And there are many other penis related injuries and problems besides Peyronies Disease. So just having pain, of just having lumps, or just having a deformity doesn't mean Peyronies.

That is why I always caution to NOT assume someone has Peyronies just because think so. I think it is equally important to have a proper diagnosis so you know exactly what you are dealing with. Whether it is Peyronies, or any number of similar related issues.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Luciano

I have a 45°curve to the left plus hourglas. My Urologist told me the first time I saw him, that if my bend was downwards there were good chances it was congenital. Because IPP (Thats what they call peyronies here in europe - Induratio Penis Plastica) usually goes sideways or Up. But he also told me that there can be exceptions. Only Ultrasound can tell.
Luc

Cougar

I was diagnosed with Peyronies about a month ago. I discovered two lumps about 1/3 and 1/2 the way down the shaft (starting at the tip). I also have pain when erect and pain during sex. I don't have any curvature, but an indention at the place of the lump that is 1/3 the way down. The pain seems to be getting a little better, but I am greatly concerned about the curvature problem that may occur. I went to a urologist and got the "come back in several months" routine. I seem to want to go back and see him again, but I am just not sure what he can do for me.

So, has anyone else found more than one lump? Is that common? Are there any other symptoms people are having? I seem to have an irritated urethra also. I sort of feel like that is due to the constant "feeling of the lumps" I am doing.

Thanks for this forum. I genuinely feel for anyone that is in this same situation.  

LWillisjr

Unfortunately you are among many here who share similar symptoms.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Worried Guy

Cougar, I have two lumps either side at the moment.  I don't have much of a curvature and a dent above the left lump.  I'm hoping VED will get rid of the little curvature I have 10-15 degrees.  I'm still in pain whilst flaccid and have been for over 4 months.  I will be starting VED in 2 weeks.

quickguide90012

Hey guys. I'm extremely worried right now. Im in my mid 20s and 6 years ago i had a severe injury to my penis. The urologist i saw back 6 years ago said i had no problems and conducted no real tests. But one urologist saw me and said i had peyronie's disease. The thing was i then quickly googled it back then and though i had because i had 1-2 symptoms of it like smaller flaccid penis and that hard flaccid feeling. I injured my penis by masturbating. Well he gave me vitamin E to take but after i saw him 2 months later on, he told me i didn't have peyronies. Then i went to a few other urologists who did actual tests on me, like nocturnal erection test, ultrasound etc and they confirmed i don't have peyronies.

The thing that has me worried right now was 2 weeks ago i masturbated. The entire 2 weeks, my penis has been very small flaccid. Okay, that;s not a big deal because my penis could be sore. However, the thing that got me very scared was a few days ago, i masturbated to try to get an erection and it was very hard because of how small my penis when flaccid was. My normal size is very small for flaccid. It's around 2' normally flaccid. When hard, it is 3.75-4 inches so i have a small penis.

But when i masturbated to get an erection, i noticed that my penis was very small when erect. It was no more than 2.25 inches.  The thing that scared me more was it had this curve like looked a lot like peyronie's disease. Imagine you are jerking your penis to get it erect and then noticed that this was as big as it would go. I got very freaked out. However, i then tried to masturbate more to try to make it longer like my normal size. I finally got it close to my normal size but this took a lot of work. It also felt like 2 different phases of a full erection.  Have anyone ever heard of this?  What i mean by this is you know how you masturbate and your penis is semi hard and your size you masturbated to right now is only say 30 percent erect? Well it felt 100 percent erect already when it was 2.25 inches. Then i had to do something else to pull it to the right in order to get it to my normal size. It wasn't like i was scared when i couldn't get it fully erect when it was 2.25 inches, but it feels like it was erect already at that state 100 percent and if i try to get it more longer, it couldn't that way.

I read peyronies disease has symptoms of shorter penis. Is what i'm describing right now peyronie's? I'm very worried right now because when i had that full erection, it was that short. I called it a full erection because that was a full erection even though i got it to near my normal size because you could tell that was already the longest it would go. It also has that bent where penis curves up which is why i think i have it.

At first i thought this happened because i took 50,000IU of Vitamin D given by my doctor because i have vitamin D deficiency and read it causes urinary tract infection last week but doctor told me that has 0 chance of affecting the penis and i read online that as well.

To anyone who has or had peyronie's disease or knows a lot about it, is this what i'm describing peyronie's? And can a urologist confirm if i have peyronies or not just by examining by penis or does he have to do those tests? I done plenty of those tests already back then 5-6 years ago when i had a previous serious injury when i thought i had peyronies but i didn't have it because i never had this condition.  The thing that scares me a lot is its been very small flaccid for 2 weeks and that it hurts on the bottom right of the penis even when i don't touch it.  My penis is not stretchable at all.  Its not just turtled, its turtled to the point where you see no gap in that area of the penis where you see two lines horizontally.  Does anyone here get the picture of what i'm saying here?

I know there is surgery for this but i read it would shorten the penis aka nesbit procedure which i would not do but there is also another procedure that works. And is there anyone here that actually took Vitamin E and had it cure peyronie's disease? I took it 5 years ago for 2 months but the doctor made a mistake that i had peyronies so taking it was useless.

I'm going to see my urologist soon but really wanted to know what you guys say about this. I never been this worried ever.  Someone else on a forum said there is no way that is peyronies because it takes time to develop and that most likely i have hard flaccid penis.  Also, it hurts on my penis right now especially in the right side of it.

Is there a chance i just have urinary tract infection?  When i had the penis injury 6 years ago, i was told i had this and took some pills.


quickguide90012


quickguide90012


tobasco

Is the hourglass shape that I see mentioned in threads when flaccid or erect?  My penis appears normal when flaccid but when semi-erect it has a very distinct hour glass shape, thin at the point where my penis bends.  However, when fully erect the hourglass shape isn't very apparent.  

Is this the hourglass shape people are talking about?  If not, is what I'm observing typical of Peyronie's?  Thanks so much for this forum.

torn

Yes it is. My hourglassing is like that too, most noticeable when semi erect. Has your peyronies caused erectile dysfunction like it has me? My ed is rather severe..

0x5555

A while back I noticed some pain and suddenly a large dent on the underside near the head.  When flaccid I can feel a pretty hard lump and so this brought me to peyronies.

I have not yet gone to a doctor but it certainly sounds like I have it.  During the day things are a little/moderately sore.  Things are more sore right after sexual activity.

I'm curious to know if anyone had similar symptoms and how it progressed?  Did the dent slowly turn into a curve, did the dent eventually go away, did it get worse?  Any advice would be appreciated.

Luciano

Well it is hard to tell you online if you have peyronies or not.
See that you can get to an uro as soon as possible.
50,000IU of E is really a lot, and I doubt it could cure anything. Here people are taking like 400UI/per day.
It does not cure anything, but it is good to take it if you have a deficiency.
And of course it would be important to have your blood checked and get ALL your levels up to date and fixed.
Most Peyronies Disease patients have E deficiency at the moment the get Peyronies Disease. but just giving E, does NOT cure it. it only cures the E deficiency.
(I was given this example: If you leave you bicycle outside for a year, it is bound to get rusty. You put it in your garage, it will stop getting rusty, but that will not remove the rust)

Only a urologist could tell you what you have exactly.

The penis shortening in Peyronies comes from the scar tissue. there where it is, your penis cannot expand.
so if you have some at the left, you will get a bend to the left, if you have it on the top, it will bend to the top.. etc..
imagine a ballon. if you stick some scotch tape on a non inflated balloon (on one side), the place where you stuck it will not expand when you inflate the balloon, causing a curvature. Thats what happens in peyronies.

Of course you can also have peyronies, but your condition can also come from a nerve damage, or something completely different.
So get to your urologist ASAP.

Luc

GS

Regardless of the reason, if you are experiencing pain after sex, get to a urologist as soon as possible and don't engage in any sexual activity until the pain is gone.  You may or may not have Peyronies, but pain is not normal and it is telling you that something is wrong.

I experienced pain after sex when I first got Peyronies.  Looking back on my experience, I should have stopped having sex and seen my urologist sooner rather than later.  By the time I saw the doctor, the curve was already there and I had Peyronies.  I started taking ibuprofen per my doctor's instruction; the pain went away, but the curve remained.  I have always thought that had I stopped sex sooner and started the ibuprofen sooner, my curve might not have gotten so bad.

IMO, it always better to be safe than sorry.

GS

quickguide90012

i saw my urologist.  I also have pain on the right side of my penis just below the head area.  Its on the right side and the bottom right.

He checked me and examined me and said he sees nothing wrong.  I asked him does that mean there is 0 percent i have peyronies.  He said its 99.9 percent i don't have it just by looking and examining it but not 100 percent unless some test is done.

quickguide90012

I masturbated few weeks ago and the last 2 weeks, i have most of the symptoms of peyronies.

I read on a website

In Peyronie's disease, inflammation and scar tissue form along the shaft of the penis. No one is certain why this problem occurs, but it may be triggered by repeated mild trauma during sexual intercourse. You may feel the inflammation and scar tissue as a painful lump or area of unusual firmness. In many men, the scar tissue causes the penis to bend or shorten because it prevents the penis from expanding normally. Men with Peyronie's often have difficulty achieving a firm erection, but it is unclear whether this occurs first or is caused by the scar tissue.

I posted a thread asking if i have peyronies or not here

https://www.peyroniesforum.net/index.php/topic,1738.0.html


But to summarize it real quick, this is what i noticed the last 2 weeks

-Penis flaccid has been turtled
-Penis hurts
-My penis when flaccid, it looks narrowed.  Like the area right below the head looks much different like a DENT
- There is some like DENT on my penis that is located RIGHT BELOW THE HEAD in the right side.
- My erection does not expand normally.  I masturbated to get erection and it is very short.  My penis is around 3.75-4 inches erect only so i have a small penis but the last 2 weeks, it only goes 2.25 inches max.  However, i can get it to its full size but it feels like another phase of an erection.


Does this sound like peyronies to you?  I went to urologist already and he examined me and said i don't have it.  I said is that 100 percent, he said 99.9 percent i don't have it unless he does some test but he don't want to do it.  However, someone said to see a sexual dysfunction doctor b/c urologist can be wrong and peyronies is not their study of work.

Do you think i have peyronies from what i describe?  I don't have extreme pain though but i read that you don't need to have any pain to have peyronies.  I do have some pain though.

newguy

I agree with GS. There are many unknowns where each persons situation is concerned. There is little sense in waiting to see if the condition changes, when you could be taking treatments that actively reduce the chances of negative change and increase the chance of improvement.

Get diagnosed, then ask to be prescribed pentoxifylline. Evidence for its effective is in the resources section of this site. If you find that your condition is still changing at that time, you might want to throw a mechanical treatment like VED or traction into the mix. Don't hesitate!  

love

I've got spider veins on my penis. As in, the bluish ones that older women get. Does anyone know what this could mean?

Old Man

Hey:

There is nothing to be concerned too much about with spider veins on ones penis. This simply means that at one time or another they were overextended with blood flow. There appears to be no rhyme or reason for this occurrence. It usually occurs in older people, but can be manifested in the young as well.

So, if it concerns you enough, consult with either your PCP or a specialist about them.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Lennyman

 Two reasons-  The scar tissue has forced "superficial veins" to surface.  This is the same reason older people get them because they have hardened tissue in their muscles. The normal veins are blocked beneath the skin and superficial veins surface to provide blood. 2.  The penis been abused when it needed rest and the tissue was over stretched.  Lenny
Lenny was here  :)

love

i never know when i should rest it, because it contradicts the 'bloodflow is good' rule. i just want to do whatever is least likely to do permanent damage.  

pvpey

Why not just go and see a urologist familiar with Peyronies Disease and get a qualified diagnosis rather than guessing and self-diagnosing.

LWillisjr

Quote from: pvpey on June 03, 2011, 01:57:59 AM
Why not just go and see a urologist familiar with Peyronies Disease and get a qualified diagnosis rather than guessing and self-diagnosing.

This is more difficult that you think. It IS NOT easy to find a urologist that is familiar with Peyronies. Many thing they can diagnose it.... very few know how to proactively treat it.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Noway

When I first noticed something wrong with my penis is. I had like a little pimple on my penis then after that everything went wrong.  

Noway

I have one of these problems my penis gets semy hard and feels hard but its barely erected. Its the feeling of getting an erection but its not even erected it just feels hard.

Sasha

Hello, I am a newbie to this site and I have had Peyronies Disease (I think, as my urologist told me to wait a year and see if it gets worse or better) for a year now. I have never had any pain and I have no erection problems. What I do have is a "dent" on the underside of my penis about halfway down. I cannot feel any lumps, bumps or hardening. My penis curves downward as a result and it has not gotten any worse nor any better. Is there anyone who has similar symptoms and, if so, what are you doing to try and correct it? Is my case a less severe one? Thank you.