Organizing my shopping list

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

thinkpositive

Hi Everyone,

Just back from my 2nd doctor, who was much more progressive in this mind and thinking that doctor 1.  He also had a much more gentle hand, the first doctor really hurt me, this guy had a better technique.  

He also recommended that next time I am back in the USA, that I should try to see Doctor Lue.  He also ordered an ultra sound, as I am in my first week of showing symptoms, this will be a good baseline for the future.  Ultrasound is tomorrow, follow up on Monday.  I'm so grateful I am in Thailand right now and I can go get care on demand.

We agreed about taking 400mg of Trental, 3x daily.  I have that on order, will be here tomorrow.  
He recommended Vitamin E 400mg 2x daily? Have only heard about 1x daily
Said that I shouldn't go with daily Cialis yet, that he wants to see what happens in the next 30-60 days, if it's growing or not.  I already got a box of 5mg, maybe take 1 every 2-3 days?  They have a half life of 7 days.  
Ubiquinol 100 2x daily, is this the right dosage?

He didn't say anything but he said if I want, i can take it..
Acetyl L-Carnitine 1.5 - 3 grams per day divided into 2 or 3 dose
L-citrulline 1500 mg daily (L-Citrulline powder from Doctor's Best brand)

I'm 47, healthy, 180LBS, 5'10", not on any other meds

Comments Please - Thank you in advance

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

pey ron

Quote from: thinkpositive on March 24, 2018, 03:46:42 AM
I'm 47, healthy, 180LBS, 5'10", not on any other meds

I think you could perhaps take slightly a bit more of pentox: given you are overweight the standard daily dosage might yield a lower concentration - but I am not a doctor. Also, you'll soon find out that as a pleasant side effect from Pentox, you'll be shedding quite some fat. I lost 20 pounds in a very short amount of time, while I was still on a mere 1200 mg/day dose.
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

TonySa

Peyron, was that due to nausea/Loss of appetite on pentox?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

pey ron

Quote from: Tsanchez12369 on March 24, 2018, 03:54:19 PM
Peyron, was that due to nausea/Loss of appetite on pentox?

feeling tired / exhausted, having non-restful nights of sleep - those are the issues I have on pentox
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

TonySa

Yea, I try to take all dies before 5pm so I can sleep
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

betterbend

THat is a really high dose of vitamin e.  Too high in fact.  I don't know if they meant 400 IU or 400 mg., there is a difference.  There is research that shows increased risk of death due to cardiac events from too much vitamin e.  In excess of 400 IU and increased risks of certain cancers. I would dial that one back.  Cialis every 2-3 days probably won't give the same effect as a daily dose,  I think if you are going to go off it from daily use then just take it for sex if you need, 10mg.  If in a month or two he decides to put you on it then you take daily, and save a decent amount of coin in the process.  I don't remember the coq10 study from the Iranian doctor if the range was 200-400 per day or was at 300-400 per day.  Also check the formulation on that, mine has Vitamin e  in it, if,your does,then subtract that from the vitamin e dose
55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

thinkpositive

Quote from: pey ron on March 24, 2018, 03:01:29 PM
I think you could perhaps take slightly a bit more of pentox: given you are overweight
I'm not overweight, those are LBS not KG, I work out a lot, very fit..

thinkpositive

Quote from: betterbend on March 24, 2018, 06:58:58 PM
THat is a really high dose of vitamin e.  Too high in fact.
I agree, I don't feel comfortable taking that much E.  I'm going to stick with 400IU of Natural Per day.

Quote from: betterbend on March 24, 2018, 06:58:58 PM
Cialis every 2-3 days probably won't give the same effect as a daily dose,  I think if you are going to go off it from daily use then just take it for sex if you need, 10mg.  If in a month or two he decides to put you on it then you take daily, and save a decent amount of coin in the process.  
I am going to take the 5MG every other day.  This drug has a 7 day half life, if I'm taking it every 2-3 days, that means it's always in my system.  I am also goign to obstain from sexual activity for a while, at least this first few months that I'm presenting symptoms to see if I get any initial improvement.

Quote from: betterbend on March 24, 2018, 06:58:58 PM
I don't remember the coq10 study from the Iranian doctor if the range was 200-400 per day or was at 300-400 per day.  Also check the formulation on that, mine has Vitamin e  in it, if,your does,then subtract that from the vitamin e dose

I'm looking at 200 2x per day or 400 1x per day, depending on the supplements I can get.  I will def look out for mixes of drugs within, to make sure I'm not overdosing.  My mutl has 150IU of E, so I will take the E in the morning, and the Mutli in the afternoon, or visa versa.  I will be getting 550IU of E per day, separated by 8 hours or so.  I drink a lot of water each day, so whatever is water soluble will be flushed quite well.  

Now I need to work on getting:

Acetyl L-Carnitine 1.5 - 3 grams per day divided into 2 or 3 dose
L-citrulline 1500 mg daily (L-Citrulline powder from Doctor's Best brand)

Got my Pentox today, took my first pill at lunch and am at home, making sure I don't have any bad reaction.  I will take 2x today, and within a few days get up to 3x per day.  


pey ron

Quote from: thinkpositive on March 25, 2018, 02:11:47 AM
I'm not overweight, those are LBS not KG, I work out a lot, very fit..

you might be very muscular, but otherwise plugging your numbers in Overweight Calculator says overweight
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

thinkpositive

Overweight

Normal weight range for the height: 128.9 - 174.2 lbs.

Muscle must be damn heavy ;)  

thinkpositive

A little assistance in drilling down into the details of the following parts of my shopping list would be appreciated (these supplements are not easy to find here, Ill have to have them shipped in):

I went to iHerb and found the following:

Doctor's Best, Acetyl-L-Carnitine, 500 mg, 120 Veggie Caps  Doctor's Best, Acetyl-L-Carnitine, 500 mg, 120 Veggie Caps
Now Foods, L-Citrulline, 750 mg, 90 Veg Capsules (Regarding the L-Citrulline, I cannot ship in the powder, it will be too big.  However, I will strive to have someone bring it over for me when they are on the way.)
Healthy Origins, Ubiquinol, Kaneka QH, 100 mg, 60 Softgels

Final Oral Treatments:

Pentox 400mg 3 x day
Vitamin E 400IU 1 x day
Cialis 5MG 1 x every 2 days

Additions:
Acetyl-L-Carnitine 500MG 3 x day
L-Citrulline 750MG 2 x day
Ubiquinol 100MG 2 x day

Am I overdoing it?  Bad combo?  

Paolo

Yes, muscle is heavy, and preferable to fat lol  :D
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

thinkpositive


Paolo

As with any supplements start slowly, that's what supplements are, supplements to a healthy diet  :)

I would consider ALA (Alpha Lipoic Acid) to combine with the Acetyl L-Carnitine. Also when taking supplements consider cycling some of them after one month, for me that would be something like taking EOD (every other day)  :)

From someone who has spent a fortune on supplements don't get into the mind-set that there is ONE supplement that is going to fix you, exercise and healthy eating are more important.

You might also want to check out magnesium Chloride oil (spray) as many people are deficient in this essential mineral and have the wrong calcium to magnesium ratio.
You will know if you are deficient as it will sting like hell, I spray it on my chest after a shower and you know when your ratio is correct as it will not sting anymore.

I am on a Keto based diet and feel great doing so, taking C8 MCT (100% pure caprylic acid) as a breakfast substitute and am eating (lots) of air popped popcorn, a great L-Arginine and mineral booster  :), polyphenols, B vitamins thiamin, niacin, B6 and folate, magnesium, manganese, phosphorus, zinc, copper and iron.

Quick burning fat in the morning, like coconut oil or MCT oil, overrides the normal carnitine switch in the mitochondria that would potentially limit fat burning. So you can override the system, and if you do coconut oil or MCT oil in the morning, you are going to get a surge of energy.

Good luck  :)
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Paolo

Yeah, I know popcorn doesn't fit with Keto, it's just giving me a bit of a boost in the evening, its just plain air popped and for the mineral and amino acids in it, I tend to use it as a treat after rowing as that burns about 900-1000 calories 5 days a week. I also eat quite a lot of cheese, but that's allowed on keto diet.

I am losing a bit too much weight recently but love the muscle definition resulting from it  :)
Paul (paolo)  :)
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

pey ron

Quote from: thinkpositive on March 25, 2018, 02:42:19 AM
Muscle must be damn heavy ;)

Regardless my point was: if I am 140 pounds and took 1200mg of pentox a day (I actually take much more than that), the equivalent for a 180 pounds person would be 9/7 * 1200mg ~= 1500mg. That was the point I was trying to make. :)
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

betterbend

Quote from: thinkpositive on March 25, 2018, 02:20:21 AM
I agree, I don't feel comfortable taking that much E.  I'm going to stick with 400IU of Natural Per day.
I am going to take the 5MG every other day.  This drug has a 7 day half life, if I'm taking it every 2-3 days, that means it's always in my system.  

I'm looking at 200 2x per day or 400 1x per day, depending on the supplements I can get.  I will def look out for mixes of drugs within, to make sure I'm not overdosing.  My mutl has 150IU of E, so I will take the E in the morning, and the Mutli in the afternoon, or visa versa.  I will be getting 550IU of E per day, separated by 8 hours or so.  I drink a lot of water each day, so whatever is water soluble will be flushed quite well.  


Two quick notes on your post:

VItamin e is fat soluble, not water soluble.  It doesn't flush out with water, it stores in fat cells and in the liver.  If you have excess vitamin e your body will store it which can lead to excessive levels.  If you take 150 in a multi and 400 in a supplement, you are exceeding 400 IU daily.

Cialis has a 17 hour 1/2 life, I don't know where you got 7 days.  This is copied from the PI

QuoteExcretion — The mean oral clearance for tadalafil is 2.5 L/hr and the mean terminal half-life is 17.5 hours in healthy subjects. Tadalafil is excreted predominantly as metabolites, mainly in the feces (approximately 61% of the dose) and to a lesser extent in the urine (approximately 36% of the dose).

That is why a 10 to 20 mg tablet works for 36 hours.  After that the blood levels get too low to maintain an effect. I think take it every other day you will have uneven blood levels and uneven blood flow.  You want a consistent increase in blood flow to the area to facilitate healing.  Perhaps start with 2.5 mg daily instead of 5.  If cost is an issue you can cut the pill in half, or by the research liquid version.  However that is not the approved version and it is marked for research use, not human use.  

Hope this helps!
55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex