What device did you buy?

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

atrmio

Hi everybody,
i am thinking about buying an extender device to reduce the curve of my penis.
However, there is one thing that worries me: even if i have a good penis size, my glans is quite small, plus i am uncircumcised. Therefore i fear if i try to use an extender it would be impossibile to place it on my penis, due to foreskin and, mostly, to glans size. If the glans is small, the extender could slip away at any moment and even if it don't slip, putting a good traction on the penis would be almost impossibile nonetheless.
Is anyone on the same condition? How did you resolve this problem? What device did you buy? Any advice is welcome!

swiss

What about that new penis extender that clamps the penis. Its expensive AF...500 but seems legit...been considering it.  

Monty

Hi, i'm uncircumcised and i use a SomaCorrect VED, you get 3 sizes of cylinders so you'll get a good seal around the base of you penis to body, i have no troble at all regards my foreskin, i just pull it back over my glans and slip it into the cylinder, use plenty of gel.  
71 UK, ED from 2011, unable to get full erection, Peyronies Disease from  2015 acute bend to left, VED & hand traction + 20mg of Tadalafil twice a week, or when i'm feeling lucky, forum member November 2017. Fav Film&Song, TheGoodTheBadThe Ugly. A Day in the Life

Freemason

Hey Swiss u mean the one created at Mayo Clinic? Yea i too am considering buying one since i cant do the study which suck s...  Yea it is $500...Heck i'd Spend $20k if I could have my old penis back...easily.

skunkworks

Wait till the study is released before you spend $500 on the Mayo device... So far the only evidence it has supporting it is anecdotal. Zero studies.

If it was a traditional traction device with a better way of attaching to the penis, maybe that would not matter so much. But it's asking you to trust it will be effective with 30 minutes of use. That sort of claim requires solid evidence.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

TonySa

Actually they have early evidence of reducing curvature but not yet published and now recommending 60-90 minutes a day.

Here's what Dr Trost emailed me.  
"We're currently running a randomized controlled trial of the RestoreX device (no other traction devices have done a randomized trial - highest level of evidence), and results have already shown statistically significant improvements in length (mean 2.5 cm gain) and curvature (mean 15-20 degree improvement) with 3 months of use, 30-90 minutes daily."
He's very responsive to questions via email, and I'm not even his patient!

So, I've have the PMP, the ESL40, and the restorex.  The PMP is great but difficult to control the tension as it varies from sitting to standing.  (Same problem with very inexpensive ESL40–both gave me blisters on glans).  With folks having success with manual stretching it seems reasonable to me that the restorex could be successful at the 60-90 minutes per day they are now recommending.  That's also very close to the two hours Dr Lue is recommending during Xiaflex treatment, so I'm going to try to do 60-90" am and 60-90" pm.  

It's intelligently designed.  The tension stays exactly where you set it.  There are multiple adjustments you have to do in advance based on the length of your penis, the thickness of your glans, the direction of the curve and the distance of the curve to the tip of your penis.  But once setup you're ready to go.  You stretch sytraight out and then against the curve.  Downside is it's expensive, need to do it in private (though could wear loose sweat pants at home) and you need a break after 30 minutes.  I'll post my progress but am hoping it's effective and much more efficient-meaning less time needed.  Thxs
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

skunkworks

Then link to the evidence please.  
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

Hey skunk... Not to offend you,  but I Find it hard to believe why you are so sceptical of the device. Just because of the 30 min claim? Okay... Let's forget that for a second. Even if we need more time using it, doesn't it look like to you that it's way better built than the other devices you see? Also, and with all respect, where are the urologists backing the other traction devices online? Either on their website or YouTube channel?

Let's discuss respectfully please!  

skunkworks

I have been 100% respectful at all times so pull your head in.

I am skeptical of everything, especially when no evidence has been presented and you should be too. 'Why are you so skeptical' is a useless question.

They've already tripled the time recommended, how much more will it go up? Will their clamp head attachment device, apparently designed for 30 minutes of use, cause problems at higher time lengths?

If you think requiring evidence of a new device is disrespectful then you need to re-evaluate your thought processes.

Traditional traction devices are supported by multiple published studies, many of which are independent. If the clamp attachment can be used safely to do over 3 hours of traction per day at the levels of tension used in published studies, then I will consider the device supported by existing studies on traditional traction devices. Notice the 'if' and 'when'.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

atrmio

Thanks everybody for answering the question. Unfortunately restorex is not shipped outside the US, so i have to start with a different device, maybe a cheap one and see what happens. Any advice?

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

WhatNext81

Skunk
It was never recommended once a day for 30mins. You might be confused by the trials. I believe the groups were 30mins/60mins/90mins. The instructions, that come with the device,  call for twice a day, 30 mins each session. There is no published evidence but the email he received is straight from the creator. I'm a patient and he has shared this with me in person and more. Mayo Clinic is held in very high regards for many, many reasons. I can't wait for the studies to be published.

My guess would be the sessions will never exceed 30mins without a break. Also, I understand being skeptical, that's fine. But, at the same time, it takes people willing to give science a shot. There's a handful, or two,  of us on here. Some even sharing what the Dr has told us. By your logic, it doesn't matter what our expierences are. So, we should just wait until the studies/trial info are published.

After reading through many threads and reading so many stories on here, $500 doesn't seem like much.
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

skunkworks

FYI - Check the thread, created by me, pinned/stickied by me, at the top of the traction forum.

QuoteBy your logic, it doesn't matter what our expierences are. So, we should just wait until the studies/trial info are published.

It's not my logic, it's science. n=1 or even 2/3 is nothing. What is important is what is observed throughout a (hopefully) large number of patients studied.

Those in the study, I hope everything goes great. Those not in the study, who would have to pay $500 for an unproven device, should wait till the evidence is published or released. It is as simple as that.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

WhatNext81

Yeah, I remember when you posted it.  I linked a new video and the website for the device. You then pinned the link for the trial.

I was/am going up there every 6 weeks. At my consultation, the device wasn't out quite yet, but was explained to me along with their clinical expierence with peyronies in general and other existing devices and all options. I ordered it the first day it became available. Each visit, more info about the device and peyronies in general were discussed.  All I'm getting at is, I chose to purchase the device, just like you chose not to. I chose to based on my personal experience.  
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

BadCheetah

T Sanchez, thanks for the PM -- I'll answer it later today.

I have had measurable progress with this RestoreX device and I'll post pictures and a full account of it as soon as I have a chance.  Plus, my penis function is better than ever, although that may have a lot to do with daily dosing of Cialis.

Skunkworks, with no disrespect intended, NOTHING other than surgery and Xiaflex has been "proven" to be effective against Peyronie's.  With surgery, you have risks, and with Xiaflex, modest results on average.  (I went through an entire cycle and was not impressed.)

The $500 for a RestoreX device was the best money I ever spent.  I threw away over $1,000 worth of sleazy back-of-the-porno-magazine penis extenders -- Penimaster Pro, X4 and ESL 40.  (I guess I'm showing my age -- do they even print porno mags anymore in the video era?)

RestoreX is the only device that stretches directionally against the curve, and it seems plain common sense to me that this should be beneficial.

The criticism that 90 minutes a day (the amount I use it for, AGAINST the manufacturer's instructions) is not enough time to effect change is certainly valid.  But I am most willing to be a guinea pig to test out this new device.

What is $500?  crap... there are guys on here who are literally suicidal over this condition!

I'm fighting this thing and I will spend or do anything if there is even the slightest possibility it might be effective.

TonySa

I've been using the restorex for a couple weeks now. Personally, I'm trying for 2-4 hours a day.  As my doc recommends 2-3 hrs per day when doing xiaflex, this seems ideal. I've left it on for up to 60 minutes.  Please know this is just my approach, not what is being recommended.  My dick does get cold, but I do VED immediately after.  Also, when finished I wear hothands during the day. This all coupled with xiaflex, pentox and supplements.  Here's hoping...
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

WhatNext81

Badcheetah-
Well put. $500 is nothing. Also, very glad to hear you're expierenccig great results as well. I finished up my last cycle of xialex not too long ago. Xiaflex isn't proven to do much, if anything, for lost length. I've regained 1.6" with RestoreX. Measurements recorded by Mayo. First measurement at my consultation-end of September and that 1.6"( INCHES not centimeters) was right before my 3rd cycle in Feb. I will be going back for a final evaluation, including measurements. The main concern was my 40 degree curve to the right. With that came the lost length,girth and erections not sufficient for intercourse. I no longer have a right curvature. Much improvement in erection quality as well as girth.

Tsanchez-I hope you expierence great results! Does the dr who said to do 2-3 hrs of traction a day know you're doing it with RestoreX? Ultimately, you know your body best but RestoreX uses much more tension than other devices. Maybe run that by the Dr at Mayo? It's merely a suggestion. He might be interested in your protocol as well.  Again, best wishes to you and I hope you achieve great results!

I read a post somewhere on here about someone asking about blood sugar or insulin levels. Oats are great as they are slow release carbs. Also, it's a well balanced and nutrient dense food. Eat your oats, unless someone qualified has told you not to. Ha!

Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

TonySa

Whatnext1, yea the folks at restorex recommend 30 mins on, 30 mins off for a total of 60-90 mins a day traction.  They told me when staying within the recommend traction range (not seeing white stripes) it's 3lbs pressure.  Maybe I'll drop down to 90-120 mins/day 😎. I'm looking forward to see progress at my next xiaflex injection in 5 weeks.  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

swiss

Thanks for keeping us posted...Ugh I might pull the trigger on the restorex....this will be my 3rd device.  

WhatNext81

Yes. The further you bury the white line, you can be using 6-7lbs of tension.  
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Pfract

@skunkworks:
QuoteI have been 100% respectful at all times so pull your head in.
Indeed you have, but you've also been triggered by a few things i said back in the past, and i did not want the same thing to happen here.

Quote
I am skeptical of everything, especially when no evidence has been presented and you should be too. 'Why are you so skeptical' is a useless question.
They've already tripled the time recommended, how much more will it go up? Will their clamp head attachment device, apparently designed for 30 minutes of use, cause problems at higher time lengths? If you think requiring evidence of a new device is disrespectful then you need to re-evaluate your thought processes.

Well, you are right and we should be skeptical yes. But i am under the impression you are biased towards not liking this device, no mater what is said or shown. As for other devices, i don't see you with the same attitude. Again, this is just my perception, i may be wrong.

QuoteTraditional traction devices are supported by multiple published studies, many of which are independent. If the clamp attachment can be used safely to do over 3 hours of traction per day at the levels of tension used in published studies, then I will consider the device supported by existing studies on traditional traction devices. Notice the 'if' and 'when'

Whilst i did seen some of the studies on them, and mentions on papers from reputable and world class doctors (like the levine papers), every single time i go to these devices manufacturers website, 9/10 seems like quack claims, and a money grab scheme. Where are the photos on PMP/(and the other green one with the strap that i forgot the name right now) of gains from extender use? There should be some credible proof online, no? Considering there are guys stretching their penis with plates on youtube....

Also.... whilst there is no hard proof of the device OUT yet.... just by looking at it, doesn't the construction of the device itself doesn't seem better than all the others out there? the way you can stretch on the bend too?

Some food for thought, and again just my opinion. Would love your input here. Also.. i am non biased on this, as you know i fractured my penis during sex and have not developed peyronies per se (yet... god forbid i do), other than a very slight bend and 1 cm size loss, which has been stable for 4 years.

skunkworks

Quote from: pfract on March 20, 2018, 10:00:43 PM
Well, you are right and we should be skeptical yes. But i am under the impression you are biased towards not liking this device, no mater what is said or shown. As for other devices, i don't see you with the same attitude. Again, this is just my perception, i may be wrong.

Yes you are 100% wrong. I have been in contact with those running the study multiple times, and have actively tried to recruit participants for the study, both here and on other discussion forums I am involved in. The problem is you, and a few others here, see a very reasonable recommendation to wait until evidence is released before spending $500 on it, and for some reason think that means I am against the device. That is not a logical conclusion to make.

Quote from: pfractWhilst i did seen some of the studies on them, and mentions on papers from reputable and world class doctors (like the levine papers), every single time i go to these devices manufacturers website, 9/10 seems like quack claims, and a money grab scheme.

The studies are all that are important. Claims on websites selling devices have zero to do with anything except marketing, I do not know why they would have any impact in your decision making. If a device can maintain the tension required by the studies, for the hours required by the studies, then it will have my support at least from an effectiveness point of view. Price and quality etc, who knows.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

WhatNext81

Quote from: skunkworks on March 20, 2018, 10:35:55 PM


The studies are all that are important. Claims on websites selling devices have zero to do with anything except marketing, I do not know why they would have any impact in your decision making. If a device can maintain the tension required by the studies, for the hours required by the studies, then it will have my support at least from an effectiveness point of view. Price and quality etc, who knows.

I don't see any correlation between you supporting a device and the positive results I've experienced from it. This platform is full of personal experiences and I'm sharing mine. I too am looking forward to published trial results even though I'm already using it. Also, how many urologists have worked directly in conjunction with medical manufacturer suppliers on a product designed specifically for peyronies? Two years went into this device and both parties worked closely together. These are facts that differ from other devices. As far as advertising goes, I get what you're saying. Given how this device came to fruition, a different approach has already been taken on the website. When the trials are in, expect that kind of data on the website.
 
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

WhatNext81

Quote from: Tsanchez12369 on March 14, 2018, 09:40:01 PM


Here's what Dr Trost emailed me.  
"We're currently running a randomized controlled trial of the RestoreX device (no other traction devices have done a randomized trial - highest level of evidence), and results have already shown statistically significant improvements in length (mean 2.5 cm gain) and curvature (mean 15-20 degree improvement) with 3 months of use, 30-90 minutes daily."


This was discussed at an appointment a while back! Very promising.  
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Frank55

Tony - how many more Xiaflex treatments do you intend to have? And is Dr. Lue pleased with your results thus far?

Also, is Dr. Lue aware of the Restorex device? He seems to be a proponent of using traction in conjunction with Xiaflex treatments.
Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline ED possible but not taking drugs, shots or using VED
Now evaluating options for next step

TonySa

My plan are San many treatments as he wil do or until cured.  I just told him 2-4 hrs traction per day, and will fill human at next visit.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.