I'm all done and it worked !!!!

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blackdiamond

After 8 months..........4 rounds of Xiafllex.......over 900 hours of traction.......VED 2x's day.........Physical stretching many times a day.........
I am finished and my Doc says it was an impressive success.
I started at a 75 degree bend and today my final measurement was 15 DEGREES !!!!!!!!!
I definitely was aggressive with all the physical modeling which is contrary to some of the things this site promotes........and my Doc claims that's most of why the impressive results.  
Under his care I am now starting DHEA for ED and then might go to Shock Wave Therapy which he and his 75,000$ machine do in his office......
The Doc is Michael Werner MD. in NY and I think he's great......He changed my life.........
I hope this message gives some of you the needed encouragement to stick with it and be very careful if you push the envelope too much with the modeling......
I did all the time but figured when to back down...........Good Luck to all and stay with it...........
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

swiss

Congrats. How is the pain and inflammation? Did the flexibility increase a lot after alll this? Are you back to doing the deed??

blackdiamond

Actually never had pain.......Size ( length and girth ) both much better.  
No I haven't done the deed yet. Actually haven't done it since my wife passed  ( years )
But trust me I am ready to go with some things lined up. Whats funny is that I didn't get Peyrones until my wife died.
Anyway. good luck and all the best to you.  
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Brookfield56

Any chance you will have the time to write a detailed account of all this?  Time line, side effects, specifics, etc?    And if you don't mind your age?

swiss

Sorry to hear about your wife. Im glad that you are better! Keep us posted on how it goes in the bedroom!

Paolo

blackdiamond, congratulations.
Your post interested me as I didn't get the Peyronie's symptoms until my Mother (who I was extremely close to) passed away from Alzheimer's, I think I suffered a huge cascade of stress and BAM here I am  :(

At the time I was her power of attorney and also made funeral arrangements when I was doing a 45+ hour week job in management and I guess something just broke me.
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

blackdiamond

Brookfield
I don't have the time right now to detail everything.......My protocol for VED is much more aggressive than what is promoted here....I posted it before I believe in the VED section.
Pump to 30% erect and hold 10 sec.........Pump to 50% erect hold 10 sec then release.....Pump to 100% erection and hold for 3 minutes then release........Lastly Pump to 100% erection an old for 5 min then release......
The traction device I used was the Penimaster Pro averaging 4-6 hours per day..........The manual stretching I was told to do 30 seconds 3 times to be done 3x's a day.....I did it actually 7-8 times a day.......
Pls understand I am not promoting or advocating any of this.......It is what my Doc instructed me to do so I did it......
my age is now 61......I guess I first noticed symptoms 7 years ago but didn't have a partner so never pursued a fix.......
Hope this answers your question.........
Best of luck with battling this thing.......
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

betterbend

Thanks for the update ... I am glad to hear and I think I will get more aggressive with traction, I have been doing 2-3 hours per day.  I am just starting round 2 of Xiaflex, I am curious as to how the Xiaflex worked, were there big improvements at the begining, or more towards the end, or was it consistent throughout?  

DR Warner was high on my list of doctors, I even made an appt, but he didn't take my insurance, although he promised no more than 400 per visit with Xiaflex.  

But congratulations!
55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

blackdiamond

Betterbend,
Yes Michael Werner only takes out of network insurance.......I ended up paying cash for everything since I'm on Medicare and he doesn't take it.........
After round 1 of Xia I went from 75 to 40.....that was the biggest move. Round 2 from 40 to 35.........Round 3---35 to 30------then round 4 went from 30 to 15.......So much really
depends on how good the Doc is and where he injects........Werner knows his stuff......
Just be very careful increasing traction.....Any sign of pain or discomfort I would back off......Your Johnson is very good about letting you know....
Good Luck ....
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

TonySa

How much is xiaflex when private pay?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

betterbend

THe amount billed to the insurance company was 7700 per inj.  
55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

blackdiamond

If private paying I think if u get it from the Doc it was like 3700$ per round......But Medicare covered it for me and I paid 2700$ per round  ( 2 injections ) .
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

WhatNext81

Congrats on your improvements! That's awesome!
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

blackdiamond

Thanks WhatsNext......Trust me it took a lot of work and dedication.....Fortunately I had the time to do it.......Best of luck to you.......
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

james1947

blackdiamond

Please give us more details about your doctors that other members may go to him also

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

betterbend

He mentioned Dr. Werner in NYC.  He has a good website and and some youtube video's, one of the easier doc's to research.  I had made an appt with him, but cancelled it because he didnt take my insurance.  I liked his website and I liked the way he talked about Peyronies on his videos.  He states that if you are motivated they will get you back functioning sexually.  I ultimately found a Peyronies doc in NYC who took my insurance.  But google Maze Mens Health and his website and practice will come up

55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

blackdiamond

Yes betterbend you are correct........Michael Werner MD has 2 offices. one in NYC and the one I am going to which is in Purchase NY ( Westchester ).
And yes you just search Maze Men's Health....Like u said great website.......
After all my Xiaflex treatment I am now doing Shock Wave Therapy for ED. he has the machine in his office and speaks very highly of the results.....
Only had 4 treatments so far so haven't seen any results........From my perspective I think Dr. Werner is great. I mean 75 degrees to 15.......I think thats pretty good......
I actually went on my first date sine my wife passed many years ago.........No sex but It gave me the confidence to do it.......Once the Shock Wave cures my ED there will be no stopping me..
Look out......... ;)
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

betterbend

That's great to hear... hope the shockwave does it for you, but even at 15% that's damn near normal anyway ... best of luck!
55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

james1947

blackdiamond

Maybe I was not enough clear with my sentence
QuotePlease give us more details about your doctors that other members may go to him also
Can you give us an address? Can you give us a phone no? Or maybe a link to his website?

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

TonySa

I'd be Leary if th doc says "if you are motivated you will get functioning sexually back".  What's motivation have to do with shockwave treatments.  Sounds like an out to me for the doc if their shockwave treatment is not effective.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

blackdiamond

Michael Werner M.D
Maze Sexual Health
2975 Westchester Ave
Purchase, NY. 10577
www.mazesexualhelth.com

Also has an office in NYC
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

blackdiamond

62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

blackdiamond

I don't think he was referring to motivation for shock wave..........
I believe that was is meant is that if the patient is motivated to do what it takes with everything available to regain sexual function.......
Just my understanding but including Xiaflex, regular VED usage, the full amount of traction and hand modeling, etc.........
I was def motivated and dedicated to do the max on Everything ...........I could be wrong but knowing the Doc I'm sure if he said that then that's what he meant........
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

TonySa

I see, def takes patient motivation to keep up w the VED and traction!
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Christopher1

Congrats!!

Be sure to eat lots of fatty fish to get some omega-3s in. Those help with inflammation and ED.
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

swiss

For the record, I had also undergone a traumatic stress right before I got peyronies .

Christopher1

Please keep us up-to-date on your results with the shockwave therapy! = )
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

blackdiamond

Christopher
I had the 1st 6 treatments now on a 3 week break then finish w the last 6.
They said I will notice some change during this break I'm on now. Frankly I'm not sure if I do yet.  I think its making stronger erections when taking viagra but not sure .......
too soon yet   .................I will keep u posted. Regards
62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

Christopher1

Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.