Confusing Hourglass progression, help with Cialis

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User9999999

You can read my intro post here...New Injury - Confused about symptoms - Peyronies Society Forums

5 months post-injury,  I'm noticing some very subtle changes in my flaccid and semi erect state. Firstly,  flaccid state:  Hard flaccid occurs more regularly, especially while I'm cold and after bowel movements.  During this time, bloodflow through my penis is impacted and the shaft feels almost disconnected/numb/segmented. The hourglass "waist area" is slightly visible and weak. Now it's been a cold winter and I know these issues happen to me pre-injury, but they seem more severe now.  When I'm exercising,  warm, relaxed, hard flaccid changes to looking almost 100% normal.  There were times when the hard flaccid turns into "long" flaccid and seems to hang lower/softer/thinner.
Regarding semi-erect.  Wow, this hourglass waist is quite pronounced halfway up the shaft on both sides ONLY WHEN I'M COLD OR MY HAND IS COLD.  It's so weird. It lasts maybe 10 seconds and my erection fills in 100%, with no deformities or ED.  When I'm relaxed, warm, and calm, hourglass at semi is either difficult to see or completely non-existent. This hourglass has been present as long as I can remember,  but is more frequent recently.
Again, my penis looks pretty normal flaccid or semi erect when I'm warm or after a good workout.

I seeked medical attention 3 times and all physical examinations were performed and no plaque, abnormalities, or scarring was found.   My most recent visit was rather disappointing.   He claims to be an expert in the field and did plenty of studies, but did not want to perform an ultrasound because it would be a waist of money in my case.  I appreciated his honesty, but when I pressed him on an ultrasound and a Pentox script,  he said "even if we find plaque, I wouldn't give you a script unless you have erection issues." He knows about my severe anxiety and wants me to take anti depressants and Cialis. I felt rushed out of there.  UGH.

He did give me 5mg daily Cialis.  After the 1st day, what a difference!.  Bloodflow is great and hard flaccid is less severe.  It truly looks like my old penis at flaccid state, bit semi-erect hourglassing still occurs, but not as frequently Erections are very frequent so I'm thinking about lowering the dosage to 2.5.  

I know the psychological component is playing a huge roll in this too.   I also suffer from pelvic floor dysfunction, spasming premium,  and constipation, Hemroids, for years.  This may be making my symptoms worse.  I am getting a referral to physical therapy.

Erections, Sex, masturbation have always been painless,  but there is a very slight occasional downward curve after ejaculating.   This may not be new and mostly due to gravity

What do u guys think about possible peyronies?
Am I still over thinking this?
Should I find a new doctor?
Or should I continue my Cialis regimine and perhaps add some supplements?


Paolo

Quote from: User9999999 on February 27, 2018, 02:45:25 PM
You can read my intro post here...New Injury - Confused about symptoms - Peyronies Society Forums
I also suffer from pelvic floor dysfunction, spasming premium,  and constipation, Hemroids, for years.  This may be making my symptoms worse.  

Have you tried reverse kegels for the above, IMO they will help
Paul (paolo)  :)
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

NeoV

This sounds like it without a doubt a pre-Peyronie's, which could progress if you don't take care of it or be careful. Realize that your urologist, no matter how reputable or kind, cannot diagnose something he cannot treat with something profitable. But wait and see is not good enough for a disease like this is it.

It sounds like Raynaud's as well, since other men have reported penile blood flow issues with Raynaud's, including me. BUT, It is also connected to connective tissue disorders so you could be at some risk given your symptoms. I have Raynaud's now, at 31. There is certainly an overlap between autimmune disorders, connective tissue disorders, and vascular problems and Peyronie's but that doesn't mean you're cursed.

Any wasting is 100% penile damage, trapped blood, hypoxia, or mild fibrosis in my opinion, but I'm not a urologist, I'm just telling you my history and what some other men have found. It took years for my pre-peyronie's to turn more permanent. But even if it is a pre-peyronies situation. Any man at any time could get this disease assuming he wasn't taking care of his penile health. Be very aware of how it hangs, how often you masturbate or have sex, never clench your pelvic floor in order to ejaculate, and rest it. Actually, just NEVER clench your pelvic floor. That issue was very tied to my Peyronie's development, without a damn doubt, and MANY men here have pelvic floor issues that appears to be directly related to the disease.

That all said, stop thinking about Peyronie's as a disease, and more of an end result of poor penile health with some degree of genetic, metabolic, and autoimmune susceptibility. A lot of men have penile damage or mild fibrosis, carry on and do everything you can at home. Since you're case is mild anyway, it's not like any urologist is going to go close to you with a knife unless you seriously ruin your penis. In other words, your only treatment would be treatment at home ANYWAY, so just take it easy! You have everything you need besides pentox, and I don't even like pentox. Address any insulin resistance you have, exercise, get the mitochondria healthy this way and activate the right genes again. Consider the physical therapies, traction, VED, and heat. Heat I have been using since 17 or younger to stop the denting or flareups, which cold weather certainly may have made worse, and STILL MAKES IT WORSE TODAY. Traction when I have those symptoms helps so much, and corrects it almost completely.

User9999999

NeoV.  Thanks for your insight and I've always suspected Raynaud's.  Hands, feet, ears, nose, have always been cold and discolored and react like crazy to temperature changes.  I never made the connection that my penis could be placed into that group of extremities.   Interesting theory.

I also have swollen lymph vessels and I keep mistaking them for scarring.   Just when I think I may have found plaque,  I look down and I'm actually palpating a lymph channel.  If a vein is also in the immediate vicinity,  the area feels like a tiny grain of sand.  It s driving me nuts but I'm pretty sure I still can't feel any real plaque or scarring.   Anyway,  I'm worried about the idea of traction or VED in my case because I have MANY swollen lymph channels on my shaft, and I'm afraid if making them worse. Thoughts?  

Tychy

If it's really blocked lymph channels, warm up in the bath tub and cross massage over the lymph nodes starting nearest to your body. Carefully and while flaccid. They should open up a bit and drain. Repeat, if necessary. The first nodes may be a bit inside. Just don't do anything painful.  

hope_inspire

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