GAINSWAVE

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

argeebee

HAS ANYONE TRIED IT FOR $5.000.00? IT IS SUPPOSED TO BE GOOD FOR PEYRONIES AS WELL AS ED.

TonySa

Maybe ED...sometimes...but not for peyronies.  Lots better ways to spend your $ on effective treatment.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

popopo

But how would you know for sure? I mean.. not like any of the "effective treatments" are a cure and the theory behind these soundwaves seems legit, at least as much so as for example prp or traction, right?
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

TonySa

There are studies that show traction effective for peyronies, not gainswave as far as I know.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Juice

Gainswave and Gainswave enhancement (prp shot)
I've been through my first week of treatments and shots, it's been 2 weeks with no real difference, (so far)  I was told it will take between 2 and 3 months before it starts to work. However I will return in 4 weeks for a 2nd treatment.  I am praying it works because has seriously destroyed me!
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

Christopher1

Please report how the Gaineswave protocol worked for you, Juice!
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

Juice

So far, it's been 4 weeks.. no changes in curvature or hour glassing, (unfortunately) however  I was told that I wouldn't start to see results until the 2-3 mo th Mark after the treatments were complete. I start my second and last set of treatments (3 more plus another p shot) starting the 30th of April.  I will report back.  As far as the ED that comes along with this horrific disease the GW seemed to have helped,  I am still hopeful.    FYI. Because of the PRP shot that's involved you can submit a claim to the insurance company,(even though my Dr didn't suggest that). I received $4800 back out of a $6k investment so it was worth the investment to try.
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

TonySa

Wow, great insurance.  Do you know if they were paying for it for ED or peyronies?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Juice

My personal dr filed it under a prp code which most insurance companies will cover. It's a code and Tax number that is required to submit. Each physician has these codes. I will find out further how it was submitted and report. Ack
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

Christopher1

Interesting to see this protocol helped your ED at least.

As a physician, I might invest in a shockwave therapy device when I have enough capital. Let's see.
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

Juice

For ED (from my experience) I honestly believe GW along with PRP is the future for ED. -As far as Peyronies,(curvature) the jury is still out.  I finished my second round of treatments this past Friday. From what the Dr's tell me (and from all that I've read), I should start to see an improvement with hour glassing,(fingers crossed) and curvature within two to three months. Stretching, pumping and hand modeling is what needs to be continued to help with this.  After the first round (treatments) the hour glassing did improve slightly, so I'm hopeful for even more.
As far as the ED, I'm not as worried about erections or firmness as I was before. I will let everyone know as time goes on.  
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

Christopher1

I would add stem cells to that list, but very cool.

Keep us updated!!
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

Juice

Has anyone seen this site? https://www.pivotalhealth.info/new-peyronies-page/
Is it BS?  It talks about an Oral Cure for Peyronies with a concoction of Trebinase, Serrasolv 360, and VITAMIN D3 5,000 IU's?
I scour the internet daily for a miracle drug, or cure and came across this today..
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

hope794

Juice, i didn't hear before about this product of pivothealt.
But, doing some research, i discovered about some people who treated IPF with Serrapeptase and Nattokinase. So those supplements are not totally out of sense, IMHO.
Did you order them?
26 yo from Italy.
Peyronie's since abt 2014
Abt 20-25° bend, w/ a moderate twist to the left
ED for 4 years and getting worse
From pornstar-like to moderately depressed - still fighting for a solution.

TonySa

For that price I'd consider h-100 which has some medical research behind it.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Juice

I haven't ordered anything yet, I am trying to find out as much as possible, I understand all too well how some of these companies prey on the desperate and don't/can't throw away another $250. What have you learned about this ?
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

tcvzm

Quote deleted by moderator. Read the forum rules.
Juice, you are almost two months past your 4/18 post which I think makes it three months total. Have you had any improvement?

JasperTJ

Quote from: Juice on April 04, 2018, 02:53:10 PM
However I will return in 4 weeks for a 2nd treatment.  I am praying it works because has seriously destroyed me!

Juice...any updates?
Im new to this crappy condition and researching brought me to Dr Ron Israeli and Gainswave.
I see your posts. Hoping for something positive.

Christopher1

Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

Juice

Ok,May 4th was my last session with the Gainswave treatment and Gainswave enhancement (prp)  now, I can honestly say at this point the only difference I see, is the nighttime erections has seemed to pick up. As far as correcting curvature or hour-glassing, well disappointment is the best word that comes to mind. The deformity is there and quite honestly I'm not seeing a bit of difference (other than being out the money) now to be fair, I have until at least August to say it was a complete waste of time and money, (they said give it two to three months before you'll see results) however I can feel the strength of the lumps and they aren't softening or getting smaller or anything that I would say is encouraging that healing is on its way. I actually am starting to look into a urologist at NYU that specializes in this dreadful disease, but from everything I read, I can say that the depression and anxiety is the stage I have reached now. I really wish I had better news to report.
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

Strong

prp and gainswave, shockwave are a waste of money, they are not worth it

they are too expensive procedures for the little or no effect they have.
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc.

TonySa

I agree, not only not helpful...but could delay real treatment.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

jbbrown268

Just had my first session last Thursday and I go back on Monday (today is Saturday). The procedure is painless albeit a little weird (you get numbing cream). The place I go is charging $450 per treatment and sent me home with a vacuum pump thingy. Not sure of the efficacy, but I can post back to let others know if it helped

JS1991

You can buy the actual machine they use here for $2200:
Link to commercial sited deleted by moderator.
Please read the forum rules.
You may send the link by PM.


Better bargain than the actual price of multiple sessions, lol.

Edit: Apologies, moderators! For those interested just do a simple google search.
Do your homework before attempting a prolonged fast. JS1991 Timeline - Peyronies Society Forums (updated)

Juice

Fellas, sad to say GW and PrP is a bust! No luck with Restorex Or VED either. I've recently went to see a Dr Valenzuela in NYC and he recommends Excision and Grafting as my only hope (of course penile prosthetist as a last resort) I am going for a second opinion with Dr David Peters in Stonybrook LI. With good circulation and strong erections, I am very optimistic this may help.  Please don't waste your money with GW it's a marketing scam for Peyronies victims. May help with Erectile Dysfunction but not Peyronies Disease.   I will let you know how this all unfolds.
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

Doglegleft

Juice, I'm sorry to hear about the results and I appreciate your honesty. I had been in touch with the Florida office and they told me how successful it is with Peyronies Disease and I was going to go down in the fall. I asked if I could talk to someone that had positive results and they told me people are very reluctant to talk about it. I told them if I had great results I'd talk to anyone that inquired about it knowing how frustrating and debilitating it is. I wish you much better results in the future

Juice

Thank you, to be perfectly honest and clear, GW and prp shots (in my opinion) are a waste of money and time "as a treatment for Peyronies".  I stated in earlier posts about more nite time erections and stronger, just be careful who you speak to about results, most articles on the web I am convinced now are strictly sales pitches that prey on the desperate (like me) I literally would cut off a finger to make this go away! Truth is, I disregarded all the negative things I heard and just focused on all those stories saying "It will break up The plaques like kidney stones" fact is it can't.  Before dropping $6k speak to a Peyronies specialist. Don't waste months of real treatment.
...J
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

quagmire333

The GW Dr. I saw advised that it would have no effect
for Peyronies just ED...PRP was of no help 2 years ago
nor were the amniotic stem cell injections 2 years ago...first
Urologist I saw 4 years ago said his cure was plication
surgery but with loss of length of an inch or so...have avoided
that "cure" so far...80 degree dorsal curvature...xiaflex might lead to a
25 percent curve improvement....no real good answers for
this curse ...

Juice

I've been told that graphing surgery may be the way to go for hourglassing and some curvature? Naturally, I'm skeptical and quite frankly scared to death of this type of procedure! I have a downward curve hourglassing and a slight curve and the top. I have a Peyronies specialist appointment on aug 2 to ("inflate" for lack of a better word) and exam, measure yada yada and then we will know what true options are at hand.   I have been told however that interferon shots are the same as xiaflex and am trying to learn more.  I've been told that curvature and plaque reduction is obtainable this way but hourglassing is only corrected by surgery???  True? I am still reading. I just dropped $500 on restorex traction device. I heard this may be a true possible way to get ahead of this as well..
Any thoughts, suggestions, information would be appreciated....J
55 yrs old. Diagnosed Peyronies Disease Dec 2017 battling with it a bit longer.  Failed xiaflex, Gainswave, PRP..   underwent Excision and grafting May 10th 2019 with Dr David Peters. StonyBrook NY..

TonySa

Traction can help, try for 60-90 minutes everyday.  Add 10-20 mins of VED if you can.  Also, consider pentox and low dose daily cialis all which can help reduce the plaques causing the hourglassing.  Commit at least 6 months to see improvement.  Only after that Would I consider surgery as a last resort no improvement given the possible complications and side effects such as ED.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Doglegleft

Hi guys, a few questions? Hi Quagmire so no good results of stem cell shots either? I was hopeful that would help alleviate the symptoms, i read read positive trials on it. Is amniotic the same type some Drs. are offering now? Juice how long have you had the hour glass? I had that initially but fortunately mostly all went away but left some scaring on the left side, I hope the same for you. TSanchez would the Pentox and cialus be beneficial for someone thats had this a long as me ? 10 years? Also im not sure if its permitted but are you allowed to mention a doctors name? I spoke to one who claims to have successfully treated over 500 Peyronies Disease patients, same deal though where I dont get any further info unless I go down for a charged consultation to meet them. I have tried about every treatment advised over the years with very little succes and would be very anxious to see if anyone has heard or tried his treatment Thanks fellas  

TonySa

Sounds like you're in the stable phase, unless recent aggravation.  I'd consult w a urologist experienced in the xiapex injections.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

quagmire333

The amniotic stem cells were injected by a dr. disciple of the Fla.'s Dr. Zahalsky...one can use
stem cells extracted from one's own fat cells...but after the torture of the procedure using the amniotic stem
cells it's not something I would try.....pretty sad that so little is available....not enough $$$$ involved....anyone tried all those supplements from Herezy?....a chiro I believe...whose the dr. who cured 500 patients?

Doglegleft

I tried 4 rounds of Xiaflex with Dr Mulhall in NY a few years ago. Zero results and wasn't happy with him as a doctor. The Doctor that claims to have treated 500 patients is Dr Morganstern from
Atlanta Georgia, I spoke with their representative Raymond  who claims he had his own Peyronies cured, at this point I'm highly suspect of everything, I have also tried the supplements from pivotal health from a post above with zero results and they failed to honor their money back gaurantee. I'm about 0 for 10 at this point

TonySa

Any thoughts of trying traction and/or VED?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Doglegleft

Tried both previously but not simultaneously, didn't have any positive results. I tried the traction while taking verapsimal and xiaflex and tried the VED after taking 2 PRP shots in NY. According to an upper post they should be done together correct?

TonySa

You can do either Traction or VED or both simultaneously.  Give it a six month commitment to see hopefully significant improvement.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Doglegleft

Thanks TSanchez I will give it a try. How long would you recommend for each one daily, also cialus is helpful also? Do you think it's can still help after all these years? I never committed to it for that long, wasn't seeing results so got disgusted and stopped. Juice were you happy with Dr. Alex Shtetnshlyuger? I am from that area.  

TonySa

Traction for 60-90 min/day w restorex (expensive), 120 + min/day with penimaster pro or ESL-40 (inexpensive) and 30 min/day of VED (see protocols here).
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Doglegleft

Thanks TSanchez, do you mean Restorex OR Penmaster ? or both. Also I  can't access VED protocols. And that can be helpful for someone stable ? 10 years?

TonySa

Restorex early study shows benefits to curve 30-90 minutes a day.  All others, such as penimaster pro, ESL-40 prob 2-3 + hrs.   Restorex initially only studied with early cases I believe.  I believe traction studies have had less success w long term cases, but some do benefit still.  VED protocols:  VED THERAPY PROTOCOLS and STUDIES - Peyronies Society Forums
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Doglegleft

Thank you very much, I will most certainly look into it. It is not like I have many other available options. I tried a less expensive traction device years ago ( bio med I believe ) $300.00 range during verapsimal and xiaflex trearments with little or no change. Your help is greatly appreciated. Im always going to try for any improvement but do not want to have any surgery.  

Christopher1

'Significant' improvement for the ED at least? = (
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

quagmire333

The cosmetic surgeon I consulted confessed that the Gainswave/ PRP regimen was of no use
for Peyronies ...just for ED

Sil3nt

I have had 3 different types of shockwaves. Gainswave was the least effective of the 3. They're not real shockwaves according to my doctor. I get temporary softening of the plaque after I got shockwaves. My penis appears thicker. I have more sensation. Stretching becomes much more effective. It reverts to normal in 3 weeks to a month and I lose all results. I have been getting shockwaves once a month for a year and a half now. Thinking about getting xiaflex soon.

boomerang

Quote deleted by moderator, please read the forum rules!
Answer by click on Reply button and not the Quote button


Just keep the stretching going and if you get better erections there should not be a problem with sex providing your penis is bent less than 40 deg or so.
It will stimulate the womans G spot amazingly. Just learn anout doing loads of good foreplay, women need that for 20 mins or so then she will not care what your dick looks like.
The biggest problem is erectile dysfunction. You don't appear to have that because you get night time erections. Hence Gainswave was effective to improve Erectile Dysfunction. Which is promising.
So cheer up.  

stnlycp

Thinking about gainswave without P-shot. Have upward bend for nearly 8 years now. I'm doing traction and it has helped. The only problem I have is sensation. I have read posts the last several days just looking for unbiased opinions.