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Author Topic: Greetings, friends. Here's my story.  (Read 1233 times)

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Byre

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Greetings, friends. Here's my story.
« on: January 27, 2018, 11:05:17 AM »

In 2012, I first noticed a couple of palpable lumps near the base of my penis in the erectile tissue (but maybe they were there earlier). I panicked - I thought they were cancer, but the doctor said they were "swollen lymph nodes". Even though his diagnosis was apparently inaccurate - ignorance can be bliss! I willingly accepted his assessment as much better than cancer and forgot all about it...never imagining that this was only the beginning of Peyronies.

I see in briefly reading through this forum, I had several of the potential causes for Peyronies:  (1) I'd been taking atenolol for mild tachycardia for over a decade. (2) I was also a heavy drinker all during this time (BAD Scottish habit...no more). AND (3) I have always had hypertension (controlled by an ACE inhibitor, which unfortunately doesn't control the tachycardia like atenolol - but eliminating alcohol does!).

So 15+ years of beta-blocker, hypertension, and heavy alcohol - ("perfect storm"?) - I ended up with larger lumps that eventually spread into somewhat toughened flat areas  (after reading around, I realize I was feeling "plaques") that indent and noticeably narrow parts of my erection and shorten it overall.

Sadly, neither my doctor nor pharmacist ever warned me about Peyronies as a possible consequence of my medications. If they had, I would certainly have taken immediate steps to modify my habits and meds before I did damage to my erection! As some of you have said, if I had only been told! This brings up all sort of regretful emotions. But I didn't even know, was never even told, what Peyronies WAS. I had to research the Net before it finally became clear what was happening to me. Unfortunately, my doctor is still only "vaguely familiar" with it. >:(

I guess I should consider myself very lucky that it hasn't caused pain or serious curvature - just deformation and shrinkage (which is still depressing...). :'(

Over a month ago, I was diagnosed with a chronic prostate/UT infection (and judging from my slowly worsening symptoms, it must have been developing for many months), but I ignored the symptoms, blaming spicy or acidic food, stress, etc., for the problems. But the pelvic discomfort got worse and it ended up causing "retrograde ejaculations" or "anejaculations" that were actually more like painful spasms than the release of orgasm, with diminishing output of ejaculate until there was almost none. THEN I had to face I had a real problem.

Yesterday, my urinalysis showed my urine to be infection-free after more than a month of daily Bactrim (it knocked me on my a*** - so glad it's over), and the pelvic discomfort is gone (knocking on wood...erm...no pun intended). I only wonder if Peyronies might have played a part in all this, as in physically blocking the urethra or something like that. I'd doubtful, as my urination flows freely - but then I think, would a Peyronies-affected erection cause blockage in the urethra internally? I look forward to exploring the forum for possible answers.

Thanks, everyone. So glad this site is here!

Byre
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Plaques causing indentation rather than curvature. Loss of girth and length.

TonySa

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Re: Greetings, friends. Here's my story.
« Reply #1 on: January 27, 2018, 04:23:02 PM »

Sounds like you’re well on the road to recovery.  Now that the pain is subsiding, have you Considered VED or traction for the shrinkage?
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Krime

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Re: Greetings, friends. Here's my story.
« Reply #2 on: January 27, 2018, 07:06:40 PM »

I'd doubtful, as my urination flows freely - but then I think, would a Peyronies-affected erection cause blockage in the urethra internally? I look forward to exploring the forum for possible answers.

Welcome and good question. I've been wondering the same as my peyronies started with plaque on the top of the shaft and an upwards curve. Around the same time I started getting a constant burning ache that would come and go – Prostatis (which was just diagnosed after likely having it for 4 months or so). I'm thinking the two are correlated, and maybe peyronies did cause it. I wouldn't be surprised. Interested to hear others thoughts as well.
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Byre

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Re: Greetings, friends. Here's my story.
« Reply #3 on: January 28, 2018, 11:03:31 AM »

Sounds like you’re well on the road to recovery.  Now that the pain is subsiding, have you Considered VED or traction for the shrinkage?
Thanks, TS. Yes, I've considered these, but not done anything in that direction yet. Do you recommend certain types/brands? Or could you refer me to good recommendations?

Quote from: Krime
Welcome and good question. I've been wondering the same as my peyronies started with plaque on the top of the shaft and an upwards curve. Around the same time I started getting a constant burning ache that would come and go – Prostatis (which was just diagnosed after likely having it for 4 months or so). I'm thinking the two are correlated, and maybe peyronies did cause it. I wouldn't be surprised. Interested to hear others thoughts as well.
Hello again, Krime. Thanks for the welcome! (We've already met in your thread, where I went all berserk about Cipro - sorry...still reeling from the shock of "I almost went that route and could have damaged myself so horribly" - I also take a small dosage of benzo regularly, so I had THREE potential health disasters there.)

It seems we both have the same burning question (it's almost impossible to write something in this forum without making an unintended pun) for which we're seeking an answer: Are Peyronies and prostatitis correlated and how so? I too will be very interested in hearing others thoughts and experiences with this.

I'm sure we'll be crossing paths frequently on this forum! Thanks again.

Byre
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Plaques causing indentation rather than curvature. Loss of girth and length.

JohnWright

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Re: Greetings, friends. Here's my story.
« Reply #4 on: January 28, 2018, 12:20:30 PM »

Prostatitis: A lot of men have noted a prior encounter with prostatitis and boom...Peyronie's.

Is it coincidental correlation...or a legitimate connection? Was it damage from the inflammation? Was it the drug treatment itself to kill the infection? Was it a combination of these that caused the Peyronie's?

Not every incidence of prostatitis is followed by Peyronie's. My brother had a severe case that lasted months before some drug finally conquered it. That was 2005. Thirteen years later still no Peyronie's for him.

This appears to be one of many flight paths that can veer suddenly into Peyronie's Disease.
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TonySa

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Re: Greetings, friends. Here's my story.
« Reply #5 on: January 28, 2018, 02:16:20 PM »

For traction, the Penimaster Pro is highly regarded but not cheap.  The ESL40 is an inexpensive version of the PNP’s strap version (no rods).  RestoreX is new on the block, expensive but purportedly only requires 30-90 minutes per day.  For VED medical models are recommended.  Augusta will discount their models for you if you call the number on the banner on home page and ask for it as a peyronies forum member.  The 3 cylinder is recommended so you can choose the best fit.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Byre

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Re: Greetings, friends. Here's my story.
« Reply #6 on: January 29, 2018, 10:30:40 PM »

@John W: My prostatitis flared up after Peyronie's (I think you're correct that it's possessive in form) had already set in. BUT I was told that my prostatitis may have been chronic and sub-clinical (i.e. without overt symptoms) before Peyronie's. Hmm. ???

Significantly, I had just undergone major therapy for a surprisingly acute but persistent (and painful) bout of sciatica preceded by epididymitis before I noticed the ominous P. lumps. Again, hmm.

Considering that beta blockers, high blood pressure and frequent alcohol are often involved (and I had had all of these for years), I seem to have been a "sitting duck" for Peyronie's. So many factors here.

I need to move out of the intro thread now, but I'm thinking about setting up a poll about different scenarios pre- and post-onset of Peyronie's, which might prove be to enlightening.

@Tsanchez12369: Thank you VERY much for the ample info and advice about the traction and VED devices!! Very helpful!
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Plaques causing indentation rather than curvature. Loss of girth and length.

Jeepyjv8

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Re: Greetings, friends. Here's my story.
« Reply #7 on: June 14, 2018, 06:34:22 AM »

January of this year I was vacationing in Florida and got was I thought was a urinary tract infection. I went to a clinic and was prescribed cipro. I've always been healthy other than this. I noticed the effects of Peyronie's after the cipro. Does cipro cause Peyronie's? Unbelievable, something so stupid. I should've never took it.
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betterbend

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Re: Greetings, friends. Here's my story.
« Reply #8 on: June 14, 2018, 09:40:25 AM »

Cipro can cause tendon rupture, it is suspected that it may interfere with collagen production.  Now we are talking about numbers like 5 in 100,000 people vs 1 in 100,000 for general population.  So its not the most crazy thought, however, it could very well be a total coincidence. 

I always am cautious on trying to link results from an anecdotal report.  That is why its important to find well done studies on any treatments or causes, they eliminate coincidence and biases.
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55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

philtered

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Re: Greetings, friends. Here's my story.
« Reply #9 on: June 14, 2018, 01:49:02 PM »

   I actually do my own head in trying to work out how this happened to me and part of me thinks it's too late anyway, it's happened and i have to accept it and live in the solution rather than the problem.

   BUT i also had a really bad urine infection last feb which lead to a really high PSA reading and peyronies really kicked in later in the year. I also now realise i had pre peyronies or peyronies the year before because i had painful erections for a while and a small palpable plaque, which disapeared after a few months. I saw 2 doctors and a urologist during that time and neither mentioned peyronies. If they had a may have been able to take steps to avoid the 2nd major onset in nov 17.

    I still believe my peyronies was due to having sex or more likely masturbating with a semi flacid penis. But not everyone who damages themselves this way ends up with months of inflamation and a massive plaque and bent dick. So i think many of these other factors are important.
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james1947

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Re: Greetings, friends. Here's my story.
« Reply #10 on: June 23, 2018, 05:36:24 PM »

The topic is locked.
Please continue the conversation on specific boards


James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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