Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

See the details on a study to gather genetic and clinical information about fibrotic disorders!
Peyronie's Disease Clinical Trial - Peyronies Society Forums

Pages: [1]   Go Down

Author Topic: Peyronies disease on teenagers  (Read 547 times)

0 Members and 1 Guest are viewing this topic.

Farikgier

  • Solid Contributor
  • ***
  • Country: tr
  • Offline Offline
  • Gender: Male
  • Posts: 164
Peyronies disease on teenagers
« on: December 22, 2017, 06:35:58 PM »

https://www.ncbi.nlm.nih.gov/m/pubmed/21981606/
This article literally points out all my problems as well as the reasons why doctors cant diagnose us , the young people. Please read it a bit and i want to hear your thoughts.
Logged

JohnWright

  • Guest
Re: Peyronies disease on teenagers
« Reply #1 on: December 22, 2017, 07:00:01 PM »

If you'll take the time to read through this Forum, you'll see that it's not about you.

It's about the vast majority of urologists not accurately diagnosing Peyronie's in ANY male.

A complication is that most boys (under the age of 18) are too chicken to talk to an adult about their dick in the first place, which keeps most boys out of a doctor office. However, once in the urologist office, then youth are at the exact same disadvantage as any other male.

Teen boys are doing things to their dick that are not natural or normal. When I went for plication surgery, the surgeon was telling me about the unimaginable horrors that teens do to their dicks these days.
Logged

Farikgier

  • Solid Contributor
  • ***
  • Country: tr
  • Offline Offline
  • Gender: Male
  • Posts: 164
Re: Peyronies disease on teenagers
« Reply #2 on: December 22, 2017, 07:03:41 PM »

Dude everything is almost different compared to older subjects. The problem with us that it is so rare that docors wont believe or even try to diagnose
Logged

JohnWright

  • Guest
Re: Peyronies disease on teenagers
« Reply #3 on: December 22, 2017, 10:23:20 PM »

Dude adult males say the very same thing -- and those who have gone ahead of you (myself included) have lived the experience in spades.
Logged

Farikgier

  • Solid Contributor
  • ***
  • Country: tr
  • Offline Offline
  • Gender: Male
  • Posts: 164
Re: Peyronies disease on teenagers
« Reply #4 on: December 22, 2017, 11:42:47 PM »

For example I think that young guys have this disease because of cardiovascular problems which also shows that we are more prone to diabetes. I always realized that before scarring occured, my blood vessels pop up or just reddish color on skin occurs without any trauma at all. And thats why once when i overdosed on pentox i actually excrutiated in pain resulting in more scarring i think...
Logged

NeoV

  • Global Moderator
  • ****
  • Country: jp
  • Offline Offline
  • Gender: Male
  • Posts: 1550
    • Neoman
Re: Peyronies disease on teenagers
« Reply #5 on: December 23, 2017, 04:34:52 AM »

WOW, what a "study." It actually looked at teens and their HbA1c. Thanks for this!

I still believe that Peyronie's is a metabolic disease, and this was me, exactly.. All my pre-diabetes came with Peyronie's, joint pain, and exhaustion. Frustrating, but the food and drug companies own our hospitals and our research so what can be done..

I guess one needs a fasting "insulin" test, but nobody does it. A plain old hba1c and fasting BS doesn't accurately show whether or not you have insulin resistance. I was seriously walking dead for years with this, and I am basically cured now. I can even eat pizza now and not have the episodes I used to or the disabling nerve pain.

Tsanchez12369

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 1552
Re: Peyronies disease on teenagers
« Reply #6 on: December 23, 2017, 09:17:29 AM »

How much pentox was the overdosing?
Logged

Farikgier

  • Solid Contributor
  • ***
  • Country: tr
  • Offline Offline
  • Gender: Male
  • Posts: 164
Re: Peyronies disease on teenagers
« Reply #7 on: December 23, 2017, 10:08:11 AM »

I just had a week past with abnormal levels of scarting even though I ate almost nothing to prevent high insulin. Now i am standing here with at least 45 degree curvature, and severely shortened and thinned penis. All i can think of is why the hell do i deserve this... I am going to get a xiaflex treatment and then will go bionic. This is ridiculous my case, i didnt have a simple trauma while erect all happened in flaccid if any trauma actually did happen
Logged

NeoV

  • Global Moderator
  • ****
  • Country: jp
  • Offline Offline
  • Gender: Male
  • Posts: 1550
    • Neoman
Re: Peyronies disease on teenagers
« Reply #8 on: December 23, 2017, 10:17:43 AM »

I'm so sorry to hear this Farikgier. As far as keeping insulin down, and lowering BS, I think it takes a damn long time.. in my case it took 6 months of gabbage and carrots for every meal to get my neuropathy to go away and get my BS down from 118 to 90. Even 90 is not optimal.. and that was 6 months. That being said, there may never be any guarantee, but we can just try our best. There is nothing wrong with an implant, but don't feel in any rush. Keep up with the basic treatments and don't give up on the diet. Reversing any insulin resistance is quite a long haul.

Farikgier

  • Solid Contributor
  • ***
  • Country: tr
  • Offline Offline
  • Gender: Male
  • Posts: 164
Re: Peyronies disease on teenagers
« Reply #9 on: December 23, 2017, 10:30:10 AM »

The thing is dude, i had all those scarring for nothing. Literally nothing happened. I am going to rush for an implant right after i do xiaflex. I don't think I can accept the fact that now i might become one of the worst cases here since all my dorsal part is just scar now with no trauma. Every part is almost scarring and I havent had a soft flaccid for like two days. I take metformin for insulin resistance and stopped taking pentox because I think pentox causes this. It causes hemorraging which makes more scarring imo.  Im just 19 years old man, I am not this strong. And the way my family tries to not LEAVE ME ALONE makes me so pi$$ed and angry. Like I here am almost grieving and cant accept this fact.
Logged

Tsanchez12369

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 1552
Re: Peyronies disease on teenagers
« Reply #10 on: December 23, 2017, 01:16:40 PM »

Farikiger, that’s great you’re getting started w Xiaflex.  My doc said pentox wasn’t needed w xiaflex, but be sure to also do 2-3 hours of traction each day. BYou might ask your doc if that’s recommended given your particularly severe case.  Good luck and hang in there, like you said if it doesn’t help there’s always the implant.
Logged
Pages: [1]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
194 Replies
102791 Views
Last post March 17, 2012, 02:08:39 PM
by Hawk
4 Replies
3907 Views
Last post November 29, 2009, 05:22:44 PM
by LWillisjr
18 Replies
9985 Views
Last post November 10, 2013, 04:55:59 PM
by james1947