UK Folks - What can the NHS do for me?

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Reascot

Hi,

This question is for the people based in the UK using the NHS.
Can the NHS provide any drugs/prescriptions for peyronies?
And can they provide traction or vacuum devices?

Thanks.

PeetyPeet

After jumping through several hoops the NHS may provide you with low dose cialis. You will need a urologist to write to your GP recommending the prescription.

To the best of my knowledge the NHS will currently not fund traction devices. I believe you can get a VED if you have diabetes related ED, but I'm not sure if they will provide for peyronies. Again, your urologist will need to write to your GP.

Hope this is helpful.


TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

PeetyPeet

No urologist in the UK will write a prescript for pentox, not even a private prescription. They take a 'hard evidence' based approach, and there is currently no hard evidence that pentox works. Alas, a patients' wishes don't factor in.

Not sure about xiaflex. That feels like something you might be able to get privately but not on the NHS, but I'm unsure.



TonySa

Socialized Medicine is great for getting everyone basic medical care.  Problem is costs need to be controlled so limiting treatment to only proven treatments (not easy to do) is common.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

redbullmaster

I got a prescript for pentox in the UK, I just asked for it.

PeetyPeet

That's good to hear....but was this recently?

Reascot

Sounds like the answer to my question is "very little".
Thanks for the replies, especially Peetypeet.

lukewill

London andrology Hopsital is currently trying to get xiaflex paid for by the nhs. Apparently it's gone through and they are just waiting but that was around a year ago. Haven't heard anything since. And quite frankly I'm surprised by all the success stories around xialfex as it seems like a complete  con job to me. And that includes the london andrology unit.  

Paolo

lukewill, that's the thing with Xiaflex, it's a treatment, not a cure, for those guys with a 'severe' curve it seems it is the only hope currently till further research/ developments arise.

As I have said previously;

The variety of treatment options for Peyronie's disease is testament to the serious need that remains for an effective treatment

The fact that (probably) no two cases of Peyronie's is 'identical' in nature only F~@ks the delay in getting to the end game, so to speak!
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

PeetyPeet

That's great news. Could you details how you got it? Following a diagnosis, your urologist wrote to your GP presumably?

Paolo

Monty, please post back in weeks/ months (at your convenience) your thoughts and experience with this VED, it looks a good device  :)
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

Gutted

Quote from: Paolo on December 23, 2017, 03:44:13 AM
Monty, please post back in weeks/ months (at your convenience) your thoughts and experience with this VED, it looks a good device  :)

Paolo - the SomaCorrect is the Augusta device that this Forum have negotiated a deal on. It is probably the best and most recommended VED.

Monty has been very lucky to get one (or any VED) on the NHS as that is not the norm. I received many push-backs and was told the rules are that they are only handed out in certain cases of ED. Monty's Uro probably frigged the system in a way that allowed the GP to write the prescription. My guess is, his Uro knows a VED could help, has probably read / knows Dr Raheem's work at UCLH and therefore decided to sympathetically bend the system. She may even have written it was for ED in her note to Monty's GP. Unfortunately, there are very few NHS Doc's that will bend the rules .... luck of the draw.

I had 3 Uro's and ended up having to buy one. The UK importer and warranty support is iMedicare Ltd in Watford and they also supply the NHS. I bought direct from them.

I did have one bit of luck, I kept the pressure on for Pentox and one of the Uro's eventually did the same thing .... wrote to my GP, who wrote a prescription. It's the same with Pentox on the NHS .... it is not for Peyronies therefore you can't have it

Gutted



:D :D :D well, if you manage to get an unlimited NHS Pentox prescription AS WELL ....... then it must be true !!