Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

Augusta Medical extend thanks all forum members
Read details here

Pages: [1]   Go Down

Author Topic: UK Folks - What can the NHS do for me?  (Read 516 times)

0 Members and 1 Guest are viewing this topic.

Reascot

  • Voting Member
  • **
  • Country: kr
  • Offline Offline
  • Gender: Male
  • Posts: 32
UK Folks - What can the NHS do for me?
« on: December 12, 2017, 02:22:49 AM »

Hi,

This question is for the people based in the UK using the NHS.
Can the NHS provide any drugs/prescriptions for peyronies?
And can they provide traction or vacuum devices?

Thanks.
Logged

PeetyPeet

  • Solid Contributor
  • ***
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 266
Re: UK Folks - What can the NHS do for me?
« Reply #1 on: December 12, 2017, 03:10:46 AM »

After jumping through several hoops the NHS may provide you with low dose cialis. You will need a urologist to write to your GP recommending the prescription.

To the best of my knowledge the NHS will currently not fund traction devices. I believe you can get a VED if you have diabetes related ED, but I'm not sure if they will provide for peyronies. Again, your urologist will need to write to your GP.

Hope this is helpful.

Logged

Tsanchez12369

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 520
Re: UK Folks - What can the NHS do for me?
« Reply #2 on: December 12, 2017, 10:17:56 AM »

They don’t approve pentox or Xiaflex?
Logged

PeetyPeet

  • Solid Contributor
  • ***
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 266
Re: UK Folks - What can the NHS do for me?
« Reply #3 on: December 12, 2017, 12:29:37 PM »

No urologist in the UK will write a prescript for pentox, not even a private prescription. They take a 'hard evidence' based approach, and there is currently no hard evidence that pentox works. Alas, a patients' wishes don't factor in.

Not sure about xiaflex. That feels like something you might be able to get privately but not on the NHS, but I'm unsure.


Logged

Tsanchez12369

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 520
Re: UK Folks - What can the NHS do for me?
« Reply #4 on: December 12, 2017, 04:25:56 PM »

Socialized Medicine is great for getting everyone basic medical care.  Problem is costs need to be controlled so limiting treatment to only proven treatments (not easy to do) is common.
Logged

redbullmaster

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 84
Re: UK Folks - What can the NHS do for me?
« Reply #5 on: December 13, 2017, 02:56:22 AM »

I got a prescript for pentox in the UK, I just asked for it.
Logged

PeetyPeet

  • Solid Contributor
  • ***
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 266
Re: UK Folks - What can the NHS do for me?
« Reply #6 on: December 13, 2017, 03:21:50 AM »

That's good to hear....but was this recently?
Logged

Reascot

  • Voting Member
  • **
  • Country: kr
  • Offline Offline
  • Gender: Male
  • Posts: 32
Re: UK Folks - What can the NHS do for me?
« Reply #7 on: December 13, 2017, 06:09:12 PM »

Sounds like the answer to my question is "very little".
Thanks for the replies, especially Peetypeet.
Logged

lukewill

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 68
Re: UK Folks - What can the NHS do for me?
« Reply #8 on: December 13, 2017, 08:26:51 PM »

London andrology Hopsital is currently trying to get xiaflex paid for by the nhs. Apparently it’s gone through and they are just waiting but that was around a year ago. Haven’t heard anything since. And quite frankly I’m surprised by all the success stories around xialfex as it seems like a complete  con job to me. And that includes the london andrology unit.
Logged

Paolo

  • Major Contributor
  • ****
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 517
  • 55 Year old with stable Peyronie's
Re: UK Folks - What can the NHS do for me?
« Reply #9 on: December 14, 2017, 04:25:01 AM »

lukewill, that's the thing with Xiaflex, it's a treatment, not a cure, for those guys with a 'severe' curve it seems it is the only hope currently till further research/ developments arise.

As I have said previously;

The variety of treatment options for Peyronie's disease is testament to the serious need that remains for an effective treatment

The fact that (probably) no two cases of Peyronie's is 'identical' in nature only F'^+s the delay in getting to the end game, so to speak!
Logged
Sometimes to Win the War You’ve Got to Lose a Battle.

Monty

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 69
  • Takes me back too 1967 Mod.
Re: UK Folks - What can the NHS do for me?
« Reply #10 on: December 22, 2017, 01:04:27 PM »

Well i got top VED on NHS SomaCorrect Extra + a box of Gel, so so far happy chappy.
Logged
you've gotta ask yourself one question: "Do I feel lucky?" Well, do ya,

PeetyPeet

  • Solid Contributor
  • ***
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 266
Re: UK Folks - What can the NHS do for me?
« Reply #11 on: December 23, 2017, 03:25:33 AM »

That's great news. Could you details how you got it? Following a diagnosis, your urologist wrote to your GP presumably?
Logged

Paolo

  • Major Contributor
  • ****
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 517
  • 55 Year old with stable Peyronie's
Re: UK Folks - What can the NHS do for me?
« Reply #12 on: December 23, 2017, 03:44:13 AM »

Monty, please post back in weeks/ months (at your convenience) your thoughts and experience with this VED, it looks a good device  :)
Logged
Sometimes to Win the War You’ve Got to Lose a Battle.

Monty

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 69
  • Takes me back too 1967 Mod.
Re: UK Folks - What can the NHS do for me?
« Reply #13 on: December 23, 2017, 03:54:30 AM »

it was a pain, 3 male doctors very hard to get them interested fob me of with lets wait 6 months, blood, urine etc test, even had a heart check ECG, anyway i then ask to see our female doctor, what a difference, very understanding gave me a full examination straight away you need to see urologist, within 2 weeks appointment at hospital, fantastic female urologist, full examination again, then came up first stage of your treatment would like you to try a Vacuum pump, wrote out prescription to take back to my doctor, she wrote me her perscription to hand in at chemist, week later it arrived, great using it for 6 weeks now and can see a change in my penis bend.
Logged
you've gotta ask yourself one question: "Do I feel lucky?" Well, do ya,

Gutted

  • Solid Contributor
  • ***
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 206
Re: UK Folks - What can the NHS do for me?
« Reply #14 on: December 26, 2017, 11:34:04 AM »

Monty, please post back in weeks/ months (at your convenience) your thoughts and experience with this VED, it looks a good device  :)

Paolo - the SomaCorrect is the Augusta device that this Forum have negotiated a deal on. It is probably the best and most recommended VED.

Monty has been very lucky to get one (or any VED) on the NHS as that is not the norm. I received many push-backs and was told the rules are that they are only handed out in certain cases of ED. Monty's Uro probably frigged the system in a way that allowed the GP to write the prescription. My guess is, his Uro knows a VED could help, has probably read / knows Dr Raheem's work at UCLH and therefore decided to sympathetically bend the system. She may even have written it was for ED in her note to Monty's GP. Unfortunately, there are very few NHS Doc's that will bend the rules .... luck of the draw.

I had 3 Uro's and ended up having to buy one. The UK importer and warranty support is iMedicare Ltd in Watford and they also supply the NHS. I bought direct from them.

I did have one bit of luck, I kept the pressure on for Pentox and one of the Uro's eventually did the same thing .... wrote to my GP, who wrote a prescription. It's the same with Pentox on the NHS .... it is not for Peyronies therefore you can't have it
Logged

Monty

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 69
  • Takes me back too 1967 Mod.
Re: UK Folks - What can the NHS do for me?
« Reply #15 on: December 26, 2017, 12:18:27 PM »

Think it was my good looks that won the day,lol.
Logged
you've gotta ask yourself one question: "Do I feel lucky?" Well, do ya,

Gutted

  • Solid Contributor
  • ***
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 206
Re: UK Folks - What can the NHS do for me?
« Reply #16 on: December 27, 2017, 08:55:53 AM »



 :D :D :D well, if you manage to get an unlimited NHS Pentox prescription AS WELL ....... then it must be true !!
Logged

Monty

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 69
  • Takes me back too 1967 Mod.
Re: UK Folks - What can the NHS do for me?
« Reply #17 on: December 27, 2017, 10:18:19 AM »

LOL, will try on my next visit due end of January.
Logged
you've gotta ask yourself one question: "Do I feel lucky?" Well, do ya,
Pages: [1]   Go Up