Hello from France!

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Aeterno

Hi all! I've been lurking around here for a month so I thought that joining and contributing would be nice since I've read and learnt so much here. I'm trying to follow the questions asked in the sticky post of this section as best I can.

I'm 21 years old. I've seed 2 uro so far. The first one said that it was nothing and that I didn't have to worry about scary things we read on the Internet such as Peyronie. He tried to find what I identified as a new hard lump inside of a painfull area of my penis but he identified it as a vein.
A week later after an indentation and a curve started to format it decided to get a second opinion because I've seen that the earlier you treat this the better. He found a plaque after searching a bit and told me it was indeed a plaque and that I had peyronie. He told me to.not worry, that he is used to this kind of condition and nd gave me Celebrex to fight the inflamation and told me to buy a VED.

I've stated having these symptoms mid September. There is an indentaction on the left side of my penis , and it curves at around 10-15 degrees to the left past this point. I also used to have painfull errections and slightly pointing my penis to the right was impossible because of pain. I also have a purple spot where the dent is,around 2 cm long. I'm not sure it's a bruise because it would have gone away by now wouldn't it?The uro said nothing about it.Lastly the plaque is better felt when hard and quite difficult to locate when flaccid.

So far pain has mostly gone away,maybe thanks for the Celebrex. I don't see any improvement or worsening, and I've been using my VED ( a vacurect,one cylinder) for around two weeks. I've been carefully not to over pump and I know where the limit is (found out when a tiny dot appeared over a thin blog vessel).

For the psychological aspects thus far... I was quite devastated at first because I often have body dysphoria especially down here, so when it started to get weird it only made it worse. Right now I'm a bit better. If it doesn't get worse it might be ok, if not I still have the option to remove it.

I'm currently in a relationship.or two. Everyone is accepting and helps. Sex changed a bit but since I don't use that often usually,it's ok. Starting to miss it though.

Lastly,I've got hormones within the normal female range. Had them like that for a long time. It doesn't prevent me from getting hard, I just don't have morning errections.
I keep reading that low testosterone could be a cause of Peyronies here and there. If that was the case I would've had it sooner and tons of people I know should have it too but they don't. Weird...

That should be all :) sorry if I didn't notice mistakes in that post. Typing from a phone who has a tendency to correct everything badly doesn't help.

kuaka

The fact that Low T can be a cause is not invalidated by the fact that many with Low T don't have Peyronie's.  In truth, there is no "single cause" of this disorder in ALL cases.  It is or can be a combination of factors including Low T, Magnesium deficiency, injury from rough sex or masturbation and a host of other potential contributing factors.

Your best approach is to treat yourself with VED therapy...carefully...don't add injury, but keep expanding your penis to its normal size as much as possible a few times a day so that any plaque which is developing won't bunch you up into an unusable mess.  Be cautious against injury from rough sex/masturbation and work on your overall health.  Most of what is "known" about nutrition is incorrect though, so seek out as whole food and natural food of a diet as possible, avoiding sugar and processed foods like the poisons they are.  

Consider researching the material over on gotmag.org about Magnesium Deficiency and the overall balance of enzymes which process Iron, Magnesium and Copper.  This is for overall health, which includes a body's proper response to perceived injury.  It is improper response to a perceived or real injury to the tunica which is the main factor in classic Peyronie's.

Good luck and welcome the club we would all rather not be in.

Aeterno

Thank you for your post and for the readily accessible data :)! I've read about Magnesium somewhere here but quickly forgot about it. I'll have a look at it after this post.I

try to keep a healthy lifestyle. I try do my sports every day and I try to buy good quality food whenever I can. For a student living on her own in Paris with limited resources can be challenging. Processed food will still have to be a part of what I eat since it's what's cheapest...

For the VED I can only do it once a day before night time because of the schedule, so I go at it for 20 minutes which is what my doc told me to do. I've also read the protocols here and a few posts from Old Man here and there too. For the rough masturbation it won't be a problem and I've avoided using my penis thus far while having sex to give it a rest. I'll see in the future if I feel comfortable starting to use it again, and I'll go slowly too. I think that now being extra careful will be a part of each lovemaking session I will have.

kuaka

Ok, now I'm confused.  Are you female?  Peyronie's is a male disorder, as it involved physical impairment of penile function.  I know in Francais that things are male or female even more so than in english, so I'm a bit confused.

Aeterno

To this I could say that I know female intersex people with predominant penises and functionnal :p There are always a fw exceptions.
But nah I'm just your regular transgender girl. This explains how I talk and my mention about hormones within the female range. My T is pretty much non existent, and even thought I was and still am a bit nervous about how people will behave because of that, I figured that my profile and knowledge could be usefull. For science.

kuaka

Ok, so you are born a girl transitioning into a guy?  Or born with ambiguous "equipment"?  This would make your equipment added surgically or enhanced hormonally and/or surgically?

I have no issues with anybody doing or being what they see as appropriate for themselves.  You have to live your own life.  I wish you happiness and success in becoming what you wish to be.  I don't have to understand it to do that.  :)

If added or enhanced surgically, of course ANY surgery is interpreted as an injury and can stimulate scarring.  If your metabolism...biological system...is not nourished properly, it can make such scarring run amok, which is the basic nature of the most common form of Peyronies.

Aeterno

Ha if I was transitioning to be a guy, I would reffer to me as a guy because that would be who I am. It's the other way around for me,assigned male at birth and transitioned into a woman. Even though without transition I was androgynous enough to be reffer to as a girl sometimes x)

So no surgery for me. If anything my penis would have shrunk with my current hormones instead of being enchanced,  but it didn't change at all over time. Using it must help a lot.

Thank you ^^ in fact you could say that I've already succeeded to appear to the world like what I am.it wasn't that hard for me, I was very lucky for that.
Just hoping that it gets better down here, I do have problems with it sometimes but I've mostly accepted it. So it doesn't help that it's starting to be uncomfortable and bent.

kuaka

Ah, please pardon my confusion.

I would think that if you are transitioning to female you would eventually go all the way including surgery.  

Nevertheless, the things I have said about nutrition and injury or perceived (by the tissues) injury stand.

The best approach I could recommend for now is to work on your nutrition...especially from magnesium deficiency and iron overload standpoint...VED to expand the tunica as much as you can without additional injury...and stay tuned for advances in the whole androgeny/gender sciences.

TonySa

Many trans folks never have bottom surgery.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

kuaka

Understood.  Then your concerns about how to keep it functioning are no different, with the exception perhaps of Testosterone.  Good luck.

Aeterno

Indeed Tsanchez :)! You said what I would have said. There can be many many reasons for that. And I do have many many reasons. The top one is that I can live with that,I even came to like it most days.

Gotcha about nutrition. Good thing that we have a cheap bottled water that's rich in magnesium over here. I'll start drinking that everyday for a start.

And oestrogen seem to do the job to keep it working for me it seems :) if anything it works better than when testosterone was the main hormone in my body. I'll keep using the VED and hopefully one day I'll be able to post a topic about improvement. I'll also keep in touch with Old Man,I may have some questions for him.


kuaka

The basics of VED therapy are very simple.  As you work on medications, supplements and nutrition improvements to help soften the plaque, exercising the tunica to help reshape and release what is being bound by the plaque without introducing additional injury is the objective.  Don't overdo the vacuum.  Let your body be the guide.  You should feel it pull with a tiny bit of discomfort but not pain, release and repeat for 10 to 20 minutes, 2 or 3 sessions per day.


james1947

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James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum