Intro and Advice Please

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NotsoHappy

Good afternoon everyone,

First of all, THANK YOU to everyone who participates in this forum and for the wealth of knowledge you provide this forum with.

So long story short, I had a penile injury approximately 10 months ago, didn't think much of it but after a few weeks/months I started to experience pain when I had an erection. Unfortunately, I was overseas and somewhere with VERY limited medical care. Once I returned to the US, approximately 4 months after the injury I saw a urologist who didn't seem too concerned when I explained the pain I was developing during an erection. 2 months later, I returned to the same urologist after I began to develop a mild curve in my penis (going up), the same urologist then referred me to a specialist after I suggested this could very well be peyronies disease after doing a little research.

Sure enough, the expert, said it was peyronies and that it looked like it was still in the early stages. He prescribed 5 mg of cialis every other day, pentox twice a day, stretching and VED therapy. I'm also taking argine and I just purchased Acetyl L-Carnitine after reading some articles on it.

I have no idea what I'm doing with the VED (I just received it today)...I'm personally freaking out because I'm also developing a significant indentation on the bottom right side of the frenulum which is causing an hourglass effect. It almost looks like a cliff (even when not erect) in the sense that it's all meaty and with  girth, and then it suddenly drops like cliff where the indentation is. My penis, especially the section after the indentation (mainly the head) is somewhat flacid during sex and it's difficult to maintain an erection. I've also lost some length and girth, not sure how much. The bend in itself isn't too bad but the indentation/hourglass effect is what's really freaking me out and in my opinion causing most of the problems.

Is anyone else dealing with an indentation, and partial hourglass effect?

Finally, can someone please provide me some advice on how to tackle this and more importantly on how to properly utilize the VED (manual pump)? I tried it today for the first time and I have no idea what I'm doing, even after reading the instruction. Please keep in mind that I'm once again serving overseas and somewhere with limited medical care so it's really up to me to fight this thing.

Thank you in advance, it's extremely difficult to stay positive when I can see my penis slowly withering away and transforming...I know that sounded dramatic but this thing is terrible.

M

QuackAttack

Not,

The reason your curve is not so extreme is because it sounds like you have an injury that is on the top and bottom, which is causing the hourglassing. Look at the VED protocol on this site that Old Man put together and maybe even PM OM. He is the expert with VED therapy. Watch out for headaches with the Pentox. Traction and VED are good first therapies and I have found helpful in combination with Xiaflex.

NotsoHappy

Thank you QuackAttack...I've reached out to the Godfather of VED and I'm hoping he will share his wisdom with me!

M

rich68

Hi NotsoHappy

Sounds a bit like my situation - hourglass/distal flaccidity due to an injury although I usually felt pain after ejaculation.

The Cialis and VED should definitely help (I haven't tried pentox). I didn't have much luck with the supplements such as Acetyl L-Carnitine myself.

I am about to start a series of shockwave therapy sessions so we'll see how that goes. My doctor thinks I have a smooth muscle problem. Shockwave therapy has been shown to promote regeneration of tissues and arteries although it won't fix any scarring present.

Cruelaprilfools

@notsohappy, none of us are! But we keep trying!  Sorry, have to keep my light spirit about this all. I have a curve upward pretty severe, but also an indentation at the base on the right side only. So no hourglass, but I think it's affecting the ability to stay hard for long. I am 6 months along (April 17), and still think I am having small changes. No pain any ore at least. Hang in there, try a few things, talk to a good uro and keep a positive attitude!