Peyronies after Fracture on Acid

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Varkala

Don't know if the acid part is relevant but maybe adds a new twist to yet another tragic Peyronie's tale. It certainly made it surreal.

Injured my penis in female superior position, did not hear a crack but immediately felt pain, reached down to feel immediate swelling. Did not immediately lose my erection as with full fracture, but fairly quickly soonafter. Small hematoma, disappeared within hours. Was able to kind of able to have sex later but penis was clearly swollen and injured. Went to emergency room, was not diagnosed as a fracture as the typical crack and eggplant deformity was not apparent. Followed up several days later to make sure they were going to rule out surgery, they did.

Now it is a month later. Fairly sure at this point it was a subclinical fracture. Certainly it would seem some damage to tunica. Possible deep dorsal vein rupture. Top half of penis is still still swollen and hard, pressing into it you can feel very its very tight and swollen somewhere under Buck's Fascia. I am able to get a very soft semi erection with great effort which I lose nearly immediately. Upward and leftward curvature, though it seems to change by the day (sometimes all left, sometimes all up, etc.) Erect penis ranges from about an inch to two shorter than before. Have been awake for several night "erections" and morning "wood", no doubt it is a result of the injury and not psychological. Seems to line up with what I've read about venous leak, which I believe can be caused by the Peyronie's scar tissue.

I am working with two urologists, on at Kaiser (who gave the initial evaluation) and also have an appointment to see Dr. Goldstein in San Diego to get a doppler ultrasound.

The sense I got initially was to let the penis rest and recover before starting any treatment for what is pretty clearly acute Peyronies. but after learning up on this forum, the sense I am getting is that I actually want to start treatment as soon as possible while the scar tissue is still malleable. Can anyone offer support or challenge to this specifically with regards to the fracture aspect?

I'd love any feedback on treatment for Peyronie's resulting from fracture. Like with traction vs VED, it seems clear that people have had success with both of these, and I've read several threads where they are compared, but any thoughts on which might be most appropriate after a fracture? Also, anyone know of any resources regarding how soon one can begin injecting post fracture? Have searched but haven't come up with anything on that. Any leads / tips / info very appreciated.

Thanks for this forum! Its a lifesaver.




Pfract

Hey dude. You have some confusing things there. But you are doing the right thing, going to see Dr Goldstein. I also fractured my penis in 2014,and was in California in 2016, March. The penile revascularization surgery was not for me though. Too much fibrosis.

When are you going to San Diego?  

Varkala

Hi pfract, thanks for the response. Yes confusing symptoms, Dr. Goldstein felt they were atypical, but did diagnose (as much as he could over the phone in 10 minutes) as likely a subclinical fracture.

How has your recovery been? Any tips for recovery after a fracture? Any opinion on receiving Interferon injections 6 weeks after injury?

Going to San Diego in 2 weeks.

Thanks

Pfract

Tips? It's either his surgery, or pills/injections or lastly implant. Some things you said where similar to what I had. You had a small fracture, super similar to mine. You should of had, at bare minimum 6 weeks rest. At best, repair surgery.

Now, there is no going back. ED is permanent, and the degree you have, you will only now when you do the exams. Spend those 1000 bucks on his office, fill your full questionnaire and you will be meeting as well with Dr rose Hartzell, the psychiatrist.

You will be given a full report. I also advise you take a USB pen with you,  to save the pictures for later.

Please keep me posted.

You are in the best hands possible, for now.  

Varkala

Thanks for the follow up response pfract. If you don't mind me clarifying some things -

By "bare minimum 6 weeks rest", is this in response to the idea of starting treatment with traction and such immediately? Related to that I see you don't list traction as an option for treatment. Is this because of something related to our situation of having had fractures?

When you say "ED is permanent", could you clarify exactly what you mean? I've gotten used to tough realities with all this but that sounds tougher than usual (though I appreciate it, no rose colored glasses over here.). Is that ED as relates to fractures/Peyronies? Is whatever it is that is causing the ED, ie. the scar, vein damage, tunica damage, should not be expected to heal in a way which restores function in this scenario?

Has anything worked for you? Is there a post on this site you could point me too that details your treatments and how they went?

Thanks

lessor

I think he means ED wont improve by itself. Have you tried pills?

Varkala

Viagra in the past enough to know that it works well for me, though I haven't tried yet since the injury.

Pfract

Hey varkala... I will write a post tonight explaining this the best I can. Bottom line is... Don't fall into false hopes here, and try to think as clear and logical as possible. It's one of the best things you can do.

Stay strong, and please do go to Dr Goldstein and do the ultrasound there and hear what he has to say. He also has some videos on his YouTube channel you should check out. ''sdsexualmed''. Search for penile fracture on his channel.

Report back  

Varkala

Hi pfract, thanks, would super appreciate that post with more detail.

I hear you on not latching onto false hopes. I know that the chances of me ever getting my previous erection back are slim to none, especially as I'm 44. At this point I've been through the initial dark emotional processing. I'm sure I'll be back there at some point but right now I just want to methodically eliminate variables. If I try something for 6 months and it doesn't do anything, I can cross it off my list. I'll probably give this 5 years then just go with an implant if I nothing works. Am planning extreme action - going paleo, crossfit level fitness, disciplined treatment routine. Worst case is nothing ever works and I know I did what I could.

The trick with Peyronies seems to me the mental gymnastics you have to do. Its like being a soldier deployed on a mission with 99% certainty of death. There are 50 different maps of where you are headed and they all contradict eachother, and you know you're probably gonna die but there's a chance you might make it, so you have to hold on to that hope and fight, with naive optimism, even while knowing that if you're lucky enough to make it home it'll probably be with your arms blown off.

QuackAttack

Varkala,

Traction (Penimaster Pro) VED (SOMA Correct) and Xiaflex are my personal opinions. I tried all of the supplements and nothing. I had pentox etc. and nothing. Since starting Xiaflex I have gone from 50 degrees to about 20 degrees.

Varkala

Thanks QuackAttack. Glad to hear that has been working for you thats great progress.

If you don't mond me asking:

How many hours of traction daily?
How to you integrate VED?
How long have you been working with these three approaches together?

Thanks again

Pfract

Dude..   What you had is a fracture. Quack, has peyronies. These are two different things. You have to focus on ED treatments, not peyronies! Have you checked his videos?

Search my posts by the way. I share his links here before.  

QuackAttack

Varkala,

I just passed one year on the Xiaflex My URO does four cycles then three months off, then four cycles, three months off and if further improvements another four cycles, if needed. I just finished my 7th cycle.

I have had traction since the start. However, I didn't get a Penimaster Pro until about 2 months ago. So, the first two traction devices I used either weren't comfortable or didn't provide enough stretch.

As for VED, I have a single cylinder, which is not ideal. I am planning to get the SOMA Correct shortly. I am using it sparingly. However, I try to get 3-4 hours a day of traction, except I wait four days after my Xiaflex injections.

Varkala

pfact: I wish it was just a fracture, but my penis is over an inch shorter since the accident and in the last week has developed a 30 degree upward bend when erect at the site of the injury. Given that Peyronies is a common outcome from fractures, and that what I have looks like Peyronies, I unfortunately have to assume its Peyronies. Dr. Goldstein was the one who tenatively diagnosed it (though only from discussing over the phone) and is recommending Interferon injections (am doing more research before committing.) Going to check those vids when I get back tonight. EDIT: watched the video on revascularization surgery after fracture, thanks awesome resource

QuackAttack: Awesome thanks for the info