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Author Topic: Help me...  (Read 1764 times)

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sonnyjim

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Help me...
« on: October 15, 2017, 07:44:21 PM »

Im sure you guys have read my other thread in which I wrote about my doppler ultrasound and how no scar tissue was found while flaccid (injection did not give me an erection). Well now I am looking for some answers and hoping you guys can help me get to the bottom of this problem that has taken over my life for the best part of a year.

I still have not been diagnosed with anything and I have no deformities but I can feel a couple of lumps on my shaft which I am not 100% sure but I think have grown in size over that time. My dick is straight but I have severe Erectile Dysfunction, cant get hard without Viagra, which still doesnt make me hard without touching myself, if I stop it goes down very quick.

My flaccid is turtled all of the time, I have hardly any sensation in my dick, I seem to have lost size possibly half an inch or more in length and some firther, I cant get rock solid hard ons anymore and I have white spots (lack of blood) on the glans.

I have been taking Viagra, Cialis (not at the same time), COQ10, L arginine, Vitamin D and applying DMSO, iodine and castor oil where the lumps are and even stretched manually for all of that time but have seen no improvements at all, it seems to just get worse and worse.

I am losing the will to live and cant see how this can ever get better or go away and let me have a proper sex life. Even with Erectile Dysfunction drugs I cant have sex so what are my options now, really?

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JohnWright

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Re: Help me...
« Reply #1 on: October 15, 2017, 10:21:54 PM »

Just one possibility: Have you had medical tests of your heart and circulatory system?

These tie directly to your dick. And, you state that you have symptoms of lack of circulation appearing on the glans.

Circulatory issues can be reversed. But, not overnight. I'm into my 16 month of altered lifestyle on this very journey. Sometime in the next six months I'll be tested as a checkpoint -- to see if we're making progress.

Thinking my dick will work better -- a hopeful sign which hasn't manifested yet. But, I am all in for the long haul to reverse decades of bad choices.
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sonnyjim

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Re: Help me...
« Reply #2 on: October 16, 2017, 01:52:57 AM »

No, I havent had any tests but I am only in my late 20s and I am relatively healthy.

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sonnyjim

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Re: Help me...
« Reply #3 on: October 16, 2017, 04:50:25 AM »

Yes I have, I still can only get an erection if I continually masturbate and any time I go to penetrate I lose my erection. before when I used to take it, I wouldnt even need to touch myself for it to work, my penis just went up but itself and now it doesnt.

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sonnyjim

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Re: Help me...
« Reply #4 on: October 16, 2017, 05:44:41 AM »

Also I NEVER get morning wood anymore, even if i have taken Viagra or Cialis before I go to sleep... I just stay completely flaccid.

I dont know what to do, im losing my girlfriend, im losing Everything around me...

What can be done?

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kuaka

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Re: Help me...
« Reply #5 on: October 16, 2017, 07:22:50 AM »

A question which needs to be asked.  Do you view/use porn much?  It can have a devastating effect on erection quality.
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sonnyjim

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Re: Help me...
« Reply #6 on: October 16, 2017, 08:03:47 AM »

No, i stopped watching it about 6 months ago...

Even if I dont masturbate or have sex for weeks now, I dont feel any hornier like I would usually (before the injury) it really is getting me down now, I dont feel like a man at all.

I also have a completely numb dick, I cant feel oral or sex and it isnt enjoyable any more.
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popopo

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Re: Help me...
« Reply #7 on: October 16, 2017, 08:45:41 AM »

Have you checked your hormones?
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Age: 24
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

sonnyjim

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Re: Help me...
« Reply #8 on: October 16, 2017, 08:59:33 AM »

I had them checked a month ago and all was fine...

Could diet play a part in this also?

I want to get morning wood, spontaneous erections and my libido back to how it was before this. I also want the sensation back as sex isnt very pleasurable any more for me.

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lessor

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Re: Help me...
« Reply #9 on: October 16, 2017, 09:22:29 AM »

Diet will do nothing believe me, Erectile Dysfunction wont improve by itself.
You said you tried pills and thay dont work, have you tried injections? The next step to pills are injections to get erections
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sonnyjim

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Re: Help me...
« Reply #10 on: October 16, 2017, 09:28:32 AM »

Diet will do nothing? Well I guess I am screwed then...

I havent tried injections but when I had one for my ultrasound it didnt work so I am not feeling positive about that working either.

So basically I am screwed?

This really depresses me... How can one injury to your dick mean the end of your sex life? This crap is like a neverending nightmare, I wouldnt even wish this on a murderer.
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lessor

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Re: Help me...
« Reply #11 on: October 16, 2017, 09:37:54 AM »

In the end if nothing works well the last step is an implant. I advise that if someday you want information about them look at franktalk

There is not much to do in the Erectile Dysfunction field really, when you physically injure your penis and you get Erectile Dysfunction the doctors will not be able to do anything because they really dont know what to do.
The only thing they will do is follow these steps. First you will get viagra cialis levitra, if this doesnt work injections and if this doesnt work the implant, and it is so, only there that, nothing heals really Erectile Dysfunction only treats it, and I know that this is very hard but it is so, as sad as it is
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Jack1909

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Re: Help me...
« Reply #12 on: October 16, 2017, 12:04:44 PM »

Better dead than taking the last step..if just a simple surgery can change how you feel your penis, what about an implant? Come on, better a belt with a dildo attached..
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sonnyjim

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Re: Help me...
« Reply #13 on: October 16, 2017, 12:34:19 PM »

I cant even kegel, it does nothing...

The scar tissue, or whatever it is, is on the bottom (cs) of my shaft. I have been stretching since it happened and I still havent seen any improvements (1 year)
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Paolo

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Re: Help me...
« Reply #14 on: October 16, 2017, 03:04:53 PM »

Wrong, diet will help a great deal, what is your typical daily diet????, that would be everything.

Erectile Dysfunction is (sometimes) a very early indication of heart disease, changing the diet can help both issues IMO. I am just throwing that out there, no need to panic/stress on this point.

If you feel more comfortable PM me with diet, by the way are you a healthy weight for your height???

Excessive weight (for example) decimates testosterone.
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sonnyjim

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Re: Help me...
« Reply #15 on: October 16, 2017, 06:45:36 PM »

I am a good weight, relatively fit, age 29...

I just have a bit of scar tissue or a lump or something, i dont know, and it seems to have a massive effect on my sex life, basically it feels like its over already...

Since this happened to me, i have been under eating, not eating at all some days... Would that have this big of an effect? Losing erections even on Cialis/Viagra, no morning wood, no spontaneous erections when I kiss or touch my girl, no libido... Or is it the scar tissue? I also have like, no sensation, oral and sex dont feel good anymore as i cant feel it...

So would diet help?
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lessor

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Re: Help me...
« Reply #16 on: October 16, 2017, 07:11:32 PM »

Try to improve your diet if its wrong, but IMO dont expect a big improvement, unless you are very overweight, your arteries are clogged by cholesterol and things like that. Trying it wont hurt you, so try it yes
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sonnyjim

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Re: Help me...
« Reply #17 on: October 16, 2017, 08:08:50 PM »

The lump/scar feels like its hard now, massaging it does nothing. Surely there is a way to reduce it or get it to soften and eventually get some function back in my dick?

Any suggestions on how to reduce scar tissue?
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LWillisjr

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Re: Help me...
« Reply #18 on: October 17, 2017, 07:56:04 AM »

Better dead than taking the last step..if just a simple surgery can change how you feel your penis, what about an implant? Come on, better a belt with a dildo attached..

Jack1909,
That is your opinion, and you discredit the forum members who have had implant surgery and are happy with it.
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sonnyjim

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Re: Help me...
« Reply #19 on: October 17, 2017, 09:38:30 AM »

Seeing as I probably wont be able to get Pentox, what are my options now, really?

I am currently taking:

COQ10
L arginine
Vitamin D
Pine Bark extract
L cartinine

I am stretching my penis daily, I have no bend or curvature just a smaller penis with severe Erectile Dysfunction.

Am I better off without a bend? I mean, is this a mild version of Peyronies where I could be treated easier? And if so, why the severe Erectile Dysfunction?

I have read about a lot of people with crazy bends who still have their function and it really confuses me. If the plaque/scar is bad enough to cause Erectile Dysfunction this severe, why dont I have a bend?

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Paolo

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Re: Help me...
« Reply #20 on: October 17, 2017, 10:26:58 AM »

This is very strange, over 94% of peyronie's results in a curve of some sort, you have no curve whatsoever?

When you have exhausted your L-Arginine take L-Citrulline (powder form cheapest) instead as it converts to L-Arginine more readily when consumed.

When you have exhausted your vitamin D take D3 with K2 combined in same pill. I would also be aware of pine bark extract, look for Pycnogenol next time you need some.

Stretch your penis daily (bath preferable) and consider epsom salts or magnesium salts at the same time, the magnesium will at the very least have a relaxing effect mentally, I do this once twice week between normal showering. Manual stretches need careful practice, presume you have no pain if your dick is numb?

How do you know you have a smaller penis, have you measured yourself? To measure yourself accurately you need to measure 'bone pressed erect length (BPEL), you may be surprised to find you are bigger than expected, don't get into that mindset of smallness, that will just F~@< up your head more.
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sonnyjim

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Re: Help me...
« Reply #21 on: October 17, 2017, 11:16:46 AM »

[Full quote removed, read the forum rules on quoting - ADMIN]

I can tell visually that my penis is smaller, Flaccid moreso... Never have morning wood or spontaneous erections anymore and Viagra and cialis have seemed to stop working.

IS it a good thing that I have no obvious curve? Or a sign that it could be something more serious?

Thanks for your advice I really do appreciate it, just want to get this sorted out, im losing Everything that matters to me.
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sonnyjim

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Re: Help me...
« Reply #22 on: October 17, 2017, 11:45:30 AM »

Also I do stretch manually every day and it hasn't changed anything at all. The size of the lump is the same, if not worse and my size hasn't increased at all...

I have two lumps that I can feel, the first one I started off with is like an inch from the base, runs horizontally like a like across my shaft and the second one is right before the glans and just feels like a rough patch.

Both are on the bottom side (cs?) of my shaft

Also on the glans I have white spots where there is a lack of blood going there, I presume.
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Paolo

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Re: Help me...
« Reply #23 on: October 17, 2017, 04:18:00 PM »

Well yes, having no curve is a good thing as if you do that will shorten erect length for sure. I meant to ask you if your dick feels cold, or is it the same body temperature?
The lumps could be causing nerve entrapment, not sure  :-\

I would refrain for stretching every day, a few days a week, maybe leave any dick stimulus for a week.

I try to refrain from offering supplement advice but I think in your case taking B6, B12 Methylcobalamin and folate may help, it takes about 3 days minimum for improvements to show. I take B12 and folate myself.

If I find anything else relating to your symptoms I will post back.
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DN

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Re: Help me...
« Reply #24 on: October 17, 2017, 06:26:15 PM »

Sonnyjim, so it sounds like you were diagnosed with venous leak? A big one probably if the injection didn't give you an erection. And you're not getting erections with PDE5 inhibitors (viagra/cialis). You're young, I don't think injections are a viable long term option, especially considering you already have scar tissue and injections will give you more scar tissue. My advice, which is just one man's advice who has been studying thoroughly the many resources online, here, Franktalk, and met with 4 different urologists (Lue, Gelbard, Rafjer, and another worthless one) is that, if you're still in the inflammation stage (acute), you can wait to see if when the inflammation goes down your erections will come back, after a year it is concerning, or you could go with an implant. I know an implant sounds crazy... But the truth is it is a common treatment for severe erectile dysfunction, especially when PDE5 inhibitors don't work. The satisfaction rate is high and success rate is very high if you go to a good surgeon. As an analogy, at this point it seems you are in a situation where the doctor tells you that you need a knee replacement and you continue to limp or hop around on one leg looking for other options that aren't really there. Can you live the rest of your life like that, probably, but why? Schedule an appointment with an implant urologist and see what they say. Also, read Franktalk to become more familiar. The truth is many men go years with an unsatisfactory sex life because they're afraid of an implant or don't know about it, meanwhile the implanted community is f~@
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lessor

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Re: Help me...
« Reply #25 on: October 17, 2017, 07:02:05 PM »

I agree with DN
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cheeznips

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Re: Help me...
« Reply #26 on: November 13, 2017, 05:43:54 AM »

Maybe you just need to heal? Im in the same boat reinjured my peyronies 5 months ago. Iv got e.d too and numbness
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