had peyronies for 4 months need advice

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pepporoni

i'm 29 and i've had peyronies since late may so i've had it around 4 months now. it started because of an injury caused by masturbation. 1st hospital visit 2 days later, doctors said it was fine just slight curve to left. doctors said sexual activity should be ok.

pain in penis would spike up and down sometimes no pain and erections were ok. later erections started to j curve to the left, started to freak out, made the mistake of masterbating to see if my dick still worked, not good was in a lot of pain went to hospital again 6th august got referred to urologist, got appointment with urologist on the 15th august. my dick now had a 15° curve to the left at all times and pain at all times, i didn't have any treatment till i saw the urologist

so it took me about 3 months for a diagnosis. from reading about peyronies online this seems to be how it usually is?

anyway aug 15 i start on trental 400 (pentox generic) twice a day. told not to touch my dick, any erections while watching game of thrones or something was ok just don't touch it. next appointment was for sep 4 for a penile duplex ultrasound. was still in pain (flaccid and erect) took painkillers almost every day and lying in bed or on a couch due to the pain and weakness from painkillers to stop the pain. isn't modern medicine just great. also in the meantime i feel a nerve or artery pop off from the right side of my dick (felt something pop off from one point at the top and 4 points at the bottom that's why i think it's a nerve or vein) also started to feel a bit numb on the right side of my dick during erections. one positive thing from this is at least the j curve went away but i'm pointed further to the left at all times now.

sep 4 appointment comes around, my dick is closer to 45° curve to left, urologist was surprised when i told him this. during duplex ultrasound they scan your dick when it is flaccid and erect, to get erect they inject your penis with something like viagra. i could only get 1/3 erect so scan wasn't accurate, the erection problem probably was due to pain from the injection and freaking out about the situation. when i got back that night my erection went past 100% whenever i was watching game of thrones type stuff, (not porn but you know what i mean), also half erect whenever i thought about stuff as if i was still in high school or something. erection was back to "peyronies  normal" a couple days later when i got them.

anyway on sep 4 the urologist put me on lengout (colchicine) 0.5mg twice a day.

so now i'm on  trental 400mg twice a day and lengout 0.5mg twice a day till i see him again on oct 31. the lengout seems to have helped with the pain and i haven't had to take painkillers while on them so far.

also noticed after this appointment that my erections are varying in quality and direction what's with that?

morning wood has not happened much either and at 1/4 to 1/2 at most when it does happen.

also haven't ejaculated (this is ok since i haven't touched it) or had a wet dream (this worries me because it hasn't happened once since i've stopped touching it) since aug 15, is this normal for peyronies? will this effect my balls/fertility? should i be freaked out? when i asked these questions to the urologist he said that i should not be concerned but has this happened to anyone here?

i asked my urologist about supplements (nattokinase, acetyl-l, etc), dmso, vitamin e, he said it was a waste of money.

he also said any injections (xiaflex, prp shot, etc) was not happening at this time, same with ultrasound shock and stem cells.

he also said no to traction therapy at the moment, i'm guessing it was because of my pain and rapid disease progression by sep 4???

what should i be doing to improve my condition???

i'm still finding it hard to do more than a 4km walk once a week due to weakness from the medicine and from lying down most of the day.

i used to go to the gym for an 1-1 1/2 hours 4 times a week before this, and i'm slowly building up the stamina and courage (i'm afraid of injuring my dick at the gym) by building up the number of times i walk during the week.


also i am single and i have no support from friends and family members regarding this, i've told them i have peyronies and where my injury is at and how scared and depressed i feel, but they just tell me to get over it and stop feeling sorry for myself.

so my next question is how do you deal with peyronies when nobody really cares?

QuackAttack

Pepporoni,


First of all. Unless you are either lifting weights with your penis or dropping weights on it, you should be fine. Go to the gym if you aren't in too much pain.

I agree with your URO, supplements and creams are worthless. I tried them all and they didn't do anything for me. Some people on the forum think they are beneficial. Personally, for me, it is a complete waste of time and money.

Your URO put you on Pentox and Colchicine. I took them both and they did nothing for me except give me massive head aches. Colchicine the headaches started immediately, Pentox at about 3 1/2 months.

What has worked for me is Xiaflex. The research out there shows better results the sooner you start because your plaque won't be calcified yet. Traction and VED too are effective. I have gone through 6 cycles of Xiaflex and went from 50 degrees to about 20 degrees. Get the Penimaster Pro for a traction device. Everything else out there pales in comparison and I have bought them all. So, I can speak very knowledgeably about what traction device to spend your hard-earned money on.

If you are having some ED issues, have your URO prescribe a VED (SOMAerect) and your insurance may cover it. Follow Old Man's protocol for using the VED. He eliminated his Peyronies using VED only after prostate surgery.

Finally, don't take no for an answer. I get the fact that Australia has a different medical system than in the US, but you are still the manager of your body and you need to direct your care within the context of your health insurance. Arm yourself with research, especially from the National Institutes of Health in the US and Dr. Lawrence Levine in Chicago. Dr Levine is a big proponent of traction and he also publishes his results with Xiaflex and Verapamil injections.

Paolo

Hi pepporoni, thanks for registering.

Firstly that sucks that friends and family don't seem to care, I would cease contact with those friends and let them make contact if they wish, at least you will know who are the 'true' friends or hangers on.

I would recommend you get a digital blood pressure monitor (whilst taking medications), they are quite cheap and I use one a couple of times a week, if you do then keep a diary so you know what's normal for you.

I have found some benefits from ALC and magnesium chloride oil (spray) for pain. If you try ALC get it with ALA (Alpha Lipoic Acid) included in same pill.
Vitamin E isn't a waste of time in my opinion, make sure it includes d-gamma. Most foods do not contain Vit E as it drastically shortens foods shelf life, at the very least it will benefit your cardiovascular health.

Below are some percentages on conditions of peyronie's;

Penile pain 20-70% cases

Curvature 94% cases

Erectile dysfunction ED 32% cases

Plaque calcification in 15-25% cases

I have no experience of traction and VED but it seems quite a few members have posted positives on both  :)

Gym work is good too, 2-3 times a week is plenty though with rest days inbetween, ensure electrolytes are topped up though.

Whenever you find yourself on the side of the majority, it is time to pause and reflect.