Congenital penile curvature

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Aa

Hi guys... i think i have a congenital curvature to the left side.. i think it is no more than 30 degrees but really annoys me and make me depressed.
I am 17 years old
My curvature degree isn't too big that's why i think surgery is not worth the risks.
Can i correct my penis curvature with traction? Or at least make it better ?
I know surgery is considered the only treatment but why can't i stretch the short side to equal the long one?
And if not shall i do the surgery? I am considering dr kuehhas
Really appreciate any help!

JohnWright

Aa --
- Congenital is a birth defect. Surgery is the correction.
- Your curve could be functional for penetrative sex. Mine was even approaching the 45-50 degree mark. You must exercise caution all the time, every time.
- If you want surgery, and if you have the means to pay, Kuehas is a popular resource.
- My advice: I would have been a lot less hung up about my dick and obsessive over it if I hadn't had the curve. In my teens and 20s the curved dick had all sorts of negative impact on my male thinking and self-perception. However, surgery wasn't an option then. Dick surgery has come into fullness with lots of expertise in the last decade. There are probably 10 surgeons on the planet who deliver knowledgeable, compassionate, supportive service to men with congenital curvature (and they also usually do Peyronie's therapies, too). If you're in Europe, Kuehas is one of those.
- If whatever you do includes talking to urologists, be extremely wary. 99% of these folks would love to 'practice medicine' on you. You're young, so you may want to involve an adult or two from your life to help you scope out, interview, and select a knowledgeable urologist -- if you choose not to go straight to Kuehas. Practicing on you may well involve causing injury to your dick during the exam. Your dick is very important to your well being.

Formerly congenitally curved myself, and you can PM me if you have specific questions.

John

TonySa

Hello AA, I'm sorry you find you're curve so distressful.  I hope you don't mind me saying there are many sex or life partners that find such a curve unique and sexy.  Please keep in mind that from reading here it seems almost certain that surgery will reduce overall length at least to that of  shortest side, not to mention possible side effects such as ED-however small a chance.  Good luck guy in whatever path you choose!
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Aa

Hello JohnW ..
Thank you for your help.. i am not considering going to any urologist right now.. cause next year i am going to live in europe. That's where i am gonna examine my curvature, and yes i am serious about surgery and willing to pay the cost (i think it is no more than 9000£ in london undrology).
My problem is although i am getting it by a very good doctor (dr kuehhas) in my 20 i think, i am worried about the risks and if it is worth it if i can have functional sex (i don't know i am still virgin :p i think it is because my penis shape)

So if i am considering surgery in let's say 3 years from now.. by an exellent doctor and clinic , would you recommend that? I am really sorry that I'm asking the same question but it really worries me even if it is after 3 years.. i just gotta know what to do (psycologically :/).
Really appreciate your help!
P.S: i do not have length loss problems as i explain in my second reply.

Aa

Hello Tsanchez12369 ..
Thank you for your help..
I know that there is size loss but i really don't have a problem cause i have an above average penis(7.5 inches or so) i am worried about the other risks.. the size is not that problem..
I appreciate your help!

DanP

@Aa
With congenital curvature it is not only about the curve. Congenital curvature of the penis also affects your confidence. I was very shy and had problem with talking to girls.
I had the same problem but dr kuehhas solve problem for me. He is great doc! Read forum and be sure he is good choice for the check up.

My advice to you and everybody with congenital penile curvature is to go and ask for help of professional doctor. Many do experiments on the penis because they are not familiar with this surgery. JohnW is very right in what he said
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

zoli1995

I subscribe what DanP has to say. Do not, I repeat, do not commit yourself to surgery with someone who does not have extended experience in this field. There are many members on this forum who have had a failed Nesbit and if you have a failed surgery which could lead to unwanted scarring, a second operation could become much more complicated, even impossible to correct.

We're all on the same ship and the real problem is not necessarily physical, but psychological. If it is possible for you in financial terms, I would suggest you do the surgery sooner rather than later - this in case it's something you can't live with. And of course, with a very experienced doctor.

On the other hand, it really depends on the curvature, the degree, etc. Many with curvatures can still lead a good sexual life, others not really. Either way, it can affect your confidence. That's something you can work on, but if the curvature hinders you to an extent where it's unacceptable for you, I think you should start planning something about it.

Don't rush things, consider the risks, financial and time costs and make sure you're as much documented as possible. Dr. Kuehhas is a popular solution amongst members, but there are others too. In his case, the cost is very high, so there's a compromise.

Hope you'll find a solution and wish you the best!

Aa

Thanks zoli1995 ...
I will never commit a surgery with unexperienced doctor.. but should i examine my penis with a very good urologist too? Or just a normal urologist? I don't know anyone right now but next year i will be living in europe (probably germany) so is it ok just to examine my penis over there? Without taking any medicines or ops of course.

As for the financial terms.. well it is really expensive actually espeacially for me as a i will be a freshman at college, but i think it is totally worth it and i am ready to pay for it.

I haven't seen during my search any other doctor better than dr kuehhas.. so if you give me names i would really be thankful.

And one last question, you mentioned failed nesbit op.. is nesbit still used?
If i have my op by dr kuehhas won't he use the STAGE technique and not nesbit?!

And thanks again..

Sitting Bull

The question becomes how do you know whether or not your doctor is qualified enough to operate ?

The urologist I talked to here in Milan showed confidence and kept reassuring me about the success that the Nesbit procedure would have been.

It is way too easy to make a mistake in this department.

Aa

Sitting Bull ~~
I will never get my op by someone who is not qualified enough..
I am just talking about the examination but i will not listen to any advices about the procedure from the urologist.
And i would never agree to go for nesbit op! It is full of risks and totally not worth it.
STAGE is always app-liable right??
I mean is there some congenital curvature that can be treated with nesbit only and not STAGE?
(I know they are similar but just to make sure)
And thanks alot..

Sitting Bull

Hi Aa,

first of all if you truly are Syrian I want you to know I pray my God (I am catholic) to free your country and your people from its western invaders.
May God incinerate all those who caused your people to suffer in the last 10 years.
I want to visit a free Syrian country inhabited by free Syrian people.

That being said, I agree with all of you statements.

I'll give you my 2 cents on STAGE vs Nesbitt but you had better ask those men who underwent either or both surgery types.
To me Nesbitt is a 50+ years old technique and is some sort of butchery plain and simple. It disrupts the nerve fibers and may cause the production of fibrotic mass.
STAGE may not resolve everyone's problem but at least it is less invasive and doesn't cause huge amounts of fibrotic tissue which worsens the problem instead of mitigating it.

I am 45 yo I always refused to have surgery because I feel like I already lost this battle (lost my 20s, my 40s and all the life that came with those years) but if I were you I would go for STAGE.
In any case read on the subject as much as you can and don't be afraid to ask questions to doctors or here.
There is no reason to be ashame, we are all curved here and we are an army.

How to know whether an urologist is a crook or not: visit one, talk to him, go to a second one and talk to him, go to the third and so on.
Pay attention if they omit talking about the risks and what they say when you bring up the risks (like fibrosis, the likely need for a second and a third operation and so forth).
Usually the stink of a lie is always the same, and you should have no difficulty in smelling it.

SB

nsbent

Hi Aa
If you go to Germany why would you bother seeing anybody else than dr kuehhas. He is based in Vienna. It's very near to Germany. Why would you have examinations from urologists that you don't want to perform the surgery on you? I have the same problem ... read a lot and thought about it. I think it will be best to see kuehhas and see what he tells me. Where in Germany will you live?

JohnWright

For those who read this thread in the future, and with all respect to the thread's members, let's revisit the facts:

STAGE surgery requires:
- Degloving the penis: Peeling back the skin to expose the internal tissue.
- Moving the neurovascular bundle.
After STAGE, some men still end up with significant curves of more than 25 degrees, and require second surgery, degloving the penis, etc.

The following statement was written earlier in the thread:
"Nesbitt...disrupts the nerve fibers." Fact: STAGE does the very same thing, and poses the same risk to the nerve bundle.

The following opinion was written earlier in the thread:
"STAGE may not resolve everyone's problem but at least it is less invasive and doesn't cause huge amounts of fibrotic tissue which worsens the problem instead of mitigating it." Fact: STAGE is precisely the same amount of invasive as Nesbitt. STAGE requires total degloving of the penis, and moving of the nerve bundle Then, regarding "fibrotic tissue" -- the statement is not based on data.

Fibrotic tissue: Peyronie's disease is characterized by the formation of hardened tissue (fibrosis): fibrotic tissue (plaque) forms in the tunica albuginea which leads to all sorts of the symptoms as illustrated by the actual stories of men on the Forum. Or, if you have congenital curvature, there is a cellular deformation in the penis which occurred during fetal development.

This thread is a GREAT example of emotional misinformation, rather than the facts, and readers should remember to do their own research before making any decisions about any therapy or treatment. You only get one body.

For reference, here is the link to Dr. Kuehas's published paper on STAGE: https://www.ncbi.nlm.nih.gov/pubmed/24165039

You can read the facts for yourself. Make informed, accurate decisions.

John

Aa

Hi nsbent ...
I think i'm gonna do that..
But as i know he operates in london right? So in both ways i have to go to london..
Do you know if he operates in vianna too?
I will live in berlin in the first couple of months and then i'm moving to munich for college.

Aa

JohnW ~~
Thank you for clearing things up!
I've already searched before i posted.. and STAGE seems to have less risks!
Why there is less risks if it have the same chance damaging the nurves as nesbit?!
I know it is based on geometry principals, but that doesn't explain the less risk with damaging nurves and erection disfunction, am i wrong?

Sitting Bull

"After STAGE, some men still end up with significant curves of more than 25 degrees"

If you are referring to the paper you linked that would be 2 cases out of 145.
If you type "some" it can mean anything.
Now look for a similar figure for Nesbitt and you won't find it because nesbitt's figures are simply much much worse.

"STAGE does the very same thing, and poses the same risk to the nerve bundle."
Not true. Not only is STAGE based on the preservation of those fibers but fact is Nesbit cuts through them.
Cases of men not feeling their glans after Nesbitt are quite common. So much for STAGE's nerve disruption.


JohnWright

SittingBull -- The point sailed right on by you.

I didn't advocate for Nesbitt. I was pointing out that your opinions of STAGE are uninformed, not based on fact.

STAGE carries the exact same invasive risk as Nesbitt. STAGE = full degloving of the penis. STAGE also requires moving of the nerve bundle -- per Dr. Kuehas's paper.

Seeing as I personally underwent plication surgery just 14 months ago, I can state that you are also uniformed about this surgery. The nerve bundle is not cut. I have full sensory reception in the glans, corona, shaft, etc. I experience mind blowing sex.

Have you had either surgery? If not, remember that visitors here will benefit the most from a) facts, and b) actual experience.

John

Sitting Bull

I know stage implies degloving, all I trying to say is that it tries at least to stay superficial and to preserve the nerve fibers.
And it's is true that STAGE incisions are made deep down in the shaft but after the nerves have been moved out of the way.

As oppsed to Nesbitt (and I know there are many variants of Nrsbitt ) where in the case of a serious curvature like mine (70 to 80 degrees), just cut a deep oval shape starting from the convex part because that's what Nesbitt does.

If degloving is invasive is beyond me I don't know that. But if it is, what about the Nesbitt's elliptic hole ?

Do you want to call it a tie ? OK I agree I am still not having either surgery.

No I will never have surgery because I tend not to trust doctors and because the entity of mu curvature looks to me like a world record, somthing nobody can top.
And there is no technique out there who can correct that record.
Unless something new comes like the Danes and their stem cell technology.

Plus when I try to straighten my erect penis I feel a very stiff concave side which strongly resists to the straightening: there is no straightening that with surgery, no hope.
And I cannot have plication done to me because the curvature is too severe.

Then it is also a matter of where you are from.
If you are American you can count on what are the best, more up to date and experienced surgeons in the world because investing in medical research and medical universities is one of the thing the US do best.
It's expensive but it's good.
Us Italians still have many surgeons out there who would have made outstanding butchers but happened to pick the wrong career.

I am new to the forum, if you have already typed about your plication experience I'll go out there and read about it.

SB

JohnWright

SB -- Hehe, I appreciate your communication effort and your own journey. No problems!

Where congenital curvature is concerned, it is a birth defect and surgery is the answer -- for guys who must have (for whatever reason) a hope for straightening their dick to some degree. After that, yes, there are a variety of surgery techniques to choose from -- IF a guys wants to pursue some kind of straightening.

Facts/clarifications: The act of promoting facts and clarifications within a thread does not equate to promoting some other approach to the problem, e.g. in this very thread I'm not promoting Nesbitt over another type of surgery. I was only injecting correct information so that on some future day, when a first-time visitor stumbles across this thread, there is accurate information.

Two additional things I'd like to respectfully react to in your post:

- You said, about Nesbitt, they "just cut a deep oval shape starting from the convex part." Do you have a source where you're getting this information from? That you're willing to share? Your description is not accurate, "deep oval cutting" does not occur. Nesbitt is about installing stitches that pull the long side. Here's a link to a picture and description: Nesbit plication - Mayo Clinic

- Surgeons in America: There are plenty of butchers in every country, and the U.S. has an abundance. Here, a particularly sneaky thing that happens is, even if you manage to find a specialist who knows anything about any condition, the surgeons who are "highly successful" start to think too highly of themselves and their worth. They talk to you as if they will be operating on you, when, in reality, they will merely be supervising young wannabe surgeons. Supervising means going from room to room while multiple patients are being operated on, and while the "supervisor" is out is when the young wannabe says, "Oooops!"

This has been going on for a long, long time. Just this year, in the Seattle, Washington area, a major hospital providing BRAIN SURGERY was caught doing this very thing. The surgeons smugly float around, observing one brain surgery and another, and the wannabe surgeons practicing on live patients, as opposed to something more suitable, like a cadaver!!!!! And, the surgeons let the patients believe that the specialist is the one "who did the procedure" -- knowing that it was a lie!
Swedish double-booked its surgeries, and the patients didn't know | The Seattle Times

Just one example. The medical practitioners in America have significant ethical challenges. How does one explain a culture that allows these kinds of things to occur? Lack of ethics.

The point is: All people, everywhere, must be careful to ask all the right questions of any prospective surgeon.

John

Sitting Bull

"I was only injecting correct information so that on some future day, when a first-time visitor stumbles across this thread, there is accurate information."

And thanks for doing that. Just be aware that parte of the misinformation out there is spread by doctors themselves.
Those who specialized in one procedure will always try to apply that procedure and accuse other urologists of malpractice.


"Do you have a source where you're getting this information from?"

The Italian urologist I went to for consultation told me that.
In fact I went to 2 different urologists, one of them told me this while the other one did not mention anything about what he was going to do just ask me to sign the papers to authorize the operation.

One side is convex and longer (i.e. also has more cavernous tissue in it) while one is concave and with less tissue underneath.
What he would have done was cut a geometrical shape (it could have been an ellipse but also a diamond/rhombus shape) on the convex part, remove the excess cavernous tissue,
and then (like you typed) apply stitches to pull the sides of the previously mentioned geometrical shape until they join.
In other words you pull the sides of the diamond 2 by 2 until the surface if the diamond is zero.
That way you make the longer side of the penis become shorter (hence the penile shortening but that's a different issue).

And let's not beleaguer the fact that what you come up with is a system which is balanced only because the two pulling forces annul each other.

Good to know that everyone country has its own share of butchers so you perfectly understand what my fears are.
Did not know about delegation to wannabe surgeons on the States. We should open up another topic and discuss what happens when you apply the logic of productivity and profit to people's health (be it private or public).

And John and everybody, yes sometimes my typing has a "pissed off" bias.
I have not yet accepted the idea that there is no solution to my case.
But sooner or later I'll have to accept it and do without because there is no solution.
I tell you, accepting this kind of pain as part of my life is hard even for a catholic who always believed pain is a normal part of everyone's life.

JohnWright

SB -- A couple of last thoughts:

The urologist you were speaking with may have been referencing one of these techniques:

Egydio: Some cuts are made into the appropriate place(s) in the shaft and material from tissue surrounding cow heart is installed   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3752552/

Grafting: Again, specific cuts are made, and material harvested from the man's own body, is installed. Dr. Gelman has the best explanation I've seen:  https://www.centerforreconstructiveurology.org/peyronies-disease/surgery-graft/#.WbW5DMiGPb0


Are you able to have penetrative sex? Your situation sounds pretty dire. But, in today's medical world there are some super specialists who only focus on male sexual health. It's a great time to be alive if one has to be afflicted with a curved dick.

John

Sitting Bull

John,

no, I am sure he mentioned Nesbitt and it's written in the paper I signed and because that's the procedure most of our urologist have been taught.
Like I said, in the medical department we (Italy) follow therefore new techniques take a while before they get absorbed by our buchers.

At this time Italian butchers don't know a thing about grafting or Egydio or plication (I didn't know about that myself but I am no urologist).

And for severe cases like mine there is are no grafting or Egydio options, the only tool you can use is the jackhammer.
Your posts have stimulated an interest in plication within myself I'll tell you that.

I agree, in this day and age it feels like things are moving again in the urology world so I am desperate but with a tiny little hope that maybe there will be hope for me too after all.

Penetrative sex: well as damaged my situation can be I'll tell you that in some positions I can penetrate quite nicely and have sex.
I cannot have the wild energetic in and out piston sex you folks probably had when you were young but I have a huge thing down there and she can tell it's inside when it's inside.

The biggest problem is that I am ashame of my deformity, it looks bad and I cannot even think of the effect it does to women.
That prevents relations.

JohnWright

SB -- I know well that feeling of shame. Been there, done that. I used to only make love with they lights OFF. Which meant no daytime frolicking. I didn't want to see the thing, and I didn't want my wife to see it either.

When I was young, piston sex wasn't a possibility with my curve.

But, since I had surgery 14 months ago, daytime sex has become a thing. I've even been motivated to drop some weight and exercise a bit -- to refine the rest of me!!

I think one of the things that continues to surprise me the most are the sensations on my shaft: When I was curved, most of the impact of sexual friction was at the glans. Besides banging into my wife's ovaries (which meant I could never go fast, not to mention the risks of bending the curve worse from going fast), sensations on my glans were 99% responsible for me achieving orgasm -- all because of the nature of my curve.

Now that my dick is essentially straight, my shaft is 99% engaged in the process and it delivers an entirely different set of mind blowing sensations. I just had no idea on what I was missing out on for the prior four decades.

I'm glad you can at least have sex. Keep looking at options.

John

Sitting Bull

As regards the sensation: I confirm that I too sense it comes 99% from the glans.
What I feel from the shaft is not a pain but the kind of sensation I feel when I stretch my muscles beyond the point they are used to stretch: it's not painful, it's such some sort of discomfort.
And I have always thought of whether or not a more rewarding kind of sex existed in terms of sensation.

I never thought of the "banging against the ovaries thing" thanks for the hint, that's not good I'll pay attention.

Like I said I gave up already on this one, sex will never be for me again because even if I can do some of it, I don't dare show it to some woman, it would freak her out.
But what bugs me most is not that, it's that sometimes seeing ordinary people with their ordinary lives and then thinking of what I had to go through .... it makes me want to bang my head against the wall.
That is the moment when I risk to loose mental clearness and I hate it more than giving up sex.

cheers

Sitting Bull

John,

I have a question.
One of my fears is that, even if the operation fixed my exterior problem (i.e. the curvature) might no be able to fix what's on the inside.
You see, I am even more broken in the soul than I am on the outside which pretty much traslates into: low self esteem, giving up actions and enterprises and career, show no interest in others, sociopathy, radical pessimism, .

So my question to you would be: how much can I expect to change inside ?
The way I see it not much which is one of the things that prevents me from undergoing surgery.
If it doesn't fix the soul it's useless.

Thanks for taking the time to type

JohnWright

SB -- I can totally relate to being broken on the inside. There is hope.

I'll PM you.

John

katy

Sitting Bull, do you mind if I contact you with some questions?