Very bad situation

[suicidecomingsoon]

The problem of the glans is venous leak..

[sonnyjim]

Venous leak? I hope not but it does sound possible. Surely they would of figured that out on one of the tests?

And also I can't get a prescription for pentox or buy it online (don't know where to get it).

Will any of this resolve over time ? Will abstinence help at all now?

[JS1991]

Abstinence will definitely help, along with daily cialis at night for nighttime erections. mexmeds4u.com has Pentox available at the moment, and it is possible that you have a venous leak. And I also know that nerve damage can take ~2 years to begin healing up so yes it should get better over time.

[sonnyjim]

What about scar tissue? Does that clear up or shrink because I have a few hard patches on my penis that I think is the reason I have shrinkage especially when I'm flaccid (one inch smaller) ?

I've abstained for 5 days already and I'm taking daily cialis, haven't had any spontaneous erections or anything yet and basically feel nothing down there. I do sometimes get morning woods but they are more like what my old semi erections were like.

[sonnyjim]

Also if I have a venous leak, would that not have showed up on an ultrasound?

Would the daily Cialis I have been taking ruin the results of an ultrasound checking for venous leak?

This crap is too much...

[cheeznips]

i really hope it doesn't take that long for my nerves to heal. it's hard to stay afloat man. i cant feel my underside or my urethra and it just drives me crazy. I've injured it once before and now that i re-injured it in the same spot i feel like i may never get my nerves back. i really need to hurry up and see that urologist. I've noticed that when i urinate now i have to push my urine out. i see my urologist in October but it's so far away.

[suicidecomingsoon]

I've noticed that when i urinate now i have to push my urine out. i see my urologist in October but it's so far away.

The same thing happens to me from my injury

[JS1991]

Pentox will help with the plaques. And no the Cialis should not have ruined the test results. I actually have essentially the same injury as you guys (I think) just a minor form of it. My spongiosum/urethra and glans only fill about 50-75% with blood, and I have slightly reduced sensation there, as well as slightly reduced sex drive. I believe it's due to a small tear at the base of my spongiosum that interferes with blood flow and did some nerve damage. It could just be a more severe case of something the same in both of your cases, but I'm just speculating.

[suicidecomingsoon]

Quote deleted by moderator! Read the forum rules!
How is the situation of your glans? It fill with erections?

[JS1991]

It fills about 75% while standing. If I sit down and l lean forward, it fills to 100%. If I lean back in a seat it gets down to about 50%. At the worst, I'm at about 25% while laying down on my back. While lying on my side, it jumps up to 50%+. The glans and spongiosum are equally affected, and I can physically feel a thin line of a scar at the very base of my penis running laterally on the underside, roughly 1/2 inch in length. The part of my spongiosum that goes down into my pelvic floor beneath that line scar does not have any issues and is rock hard when erect, whereas the spongiosum leading up to the glans above that line scar is a bit more squishy and less filled with blood, as described above. This applies equally to both erect and flaccid state by the way.

I suspect I had some sort of scar there to begin with at the start of my Peyronie's, as it was a point of impact for me during masturbation, and a main point of pain and inflammation once I developed Peyronie's and before my spongiosum partially deflated. I think the scar opened up and caused the leakage (which improved over time) before partially sealing itself after about a week; the underside of my penis was flat immediately after injury (which occured about a month after my Peyronie's). Probably because of either stretching too hard or manually trying to bend my semi-erect curve straight like an idiot. I'm not sure exactly how it occured. Regardless, my sex drive is still at about 90% of what it was and I have just enough bloodflow to not chafe my urethra during sex or masturbation even whily lying down so until I get treatment I'm pretty content, although annoyed. All of this on top of my plaques. I'm seeing a specialist May 2nd for an ultrasound, so hopefully all of my plaques and blood flow issues will be assessed.

[sonnyjim]

Thanks for your posts...

I can't actually get Pentox because nothing showed up on the ultrasound or MRI which is, as I have heard, unusual but then again I can actually feel lumps that are very deep inside my penis...

I have heard that most serious injuries would show up on the tests... Maybe mine doesn't cover enough area for it to show ? I don't know.

I have spent thousands already trying to get this sorted out and still I know nothing.

[cheeznips]

I tried pentox but it really hurts your heart because it thins the blood ao you heart has to work harder. I threw up when i was boxing because my hear was beating too fast. I think cialis is better.

[cheeznips]

Js1991

How did you injure it and how long ago was it?

[sonnyjim]

I tried pentox but it really hurts your heart because it thins the blood ao you heart has to work harder. I threw up when i was boxing because my hear was beating too fast. I think cialis is better.

What do you mean Cialis is better? For what? 5mg daily is not even giving me erections and I have been taking it for 2-3 months already...

What is it good for if not giving you erections? Healing? :S

Doesn't pentox work differently to Cialis ? Doesn't really matter anyway as I can't get prescribed it but nevermind.

I hope the Cialis is actually doing anything to improve my ED.

[suicidecomingsoon]

If Cialis does not improve your ED when you take it, Pentox will not do it either, Pentox will do less

try cialis 20

[JS1991]

cheeznips, it occured in the beginning of February and I'm not sure how it happened; I was applying traction as well as manually correcting the curvature in my semi-erect penis (never do this ever) and I also applied heat. The night it occurred I didn't notice anything until I removed the heat pad from my penis, after which I noticed it wast turtled up and had greatly reduced sensation as well as difficulty achieving erection. The symptoms mostly resolved after about a week.

sonnyjim, The purpose of the Pentox is to address the suspected plaques in your penis that aren't being treated because of your severe ED. The purpose of the Cialis is to increase frequency of nighttime erections (as you stated you occasionally get); these are a healthy necessity for good penis health, especially if you aren't getting erections while awake.

[sonnyjim]

sonnyjim, The purpose of the Pentox is to address the suspected plaques in your penis that aren't being treated because of your severe ED. The purpose of the Cialis is to increase frequency of nighttime erections (as you stated you occasionally get); these are a healthy necessity for good penis health, especially if you aren't getting erections while awake.

But I mean, if I had plaques or scar tissue why didn't they show on the ultrasound? That is what I don't know...

I can feel a big lump going across the bottom of my penis, and lots of little hard bits up my shaft but this didn't show on the ultrasound or MRI and I was told there was nothing wrong.

Any chance of this improving over time do you know? It has been about 18 months and even with the Cialis I'm basically 100 percent impotent.

[JS1991]

As I'm not a doctor, I can't give you a definitive answer, but it seems to be a nerve issue and from what I've read those seem to resolve (at least partially) over time.

The lack of evidence on the ultrasound and MRI is very odd to me; I'm going to assume you are correct and you do have plaques. If we assume this is correct, then I'd say Pentox is the best you can do to combat it. It can't hurt to try taking Pentox (you can buy it online). Even if you only get one or two boxes and see how it affects the plaques, it's better than nothing. Did you point these hard lumps in your penis out to your urologist so he or she could manually feel them? I'm assuming you did, but if you didn't you should definitely point them out in a physical examination; if you can feel them, your doctor should be able to as well. And if they feel them, they should be able to give you some sort of assessment, no?

I feel invested in your case and I want to see you succeed in this my friend. Keep us updated!

[sonnyjim]

Nobody seems to be able to feel them, Raheem did but he said they could be blood vessels or something and just played it down. I doubt they are blood vessels as I can feel where they are without even feeling my penis just from where the sensation is that I can feel even when im not touching anything...

Maybe I should get a second opinion, another ultrasound or something? Will Cialis help this issue on its own?

I have been looking to buy some pentox but it's too expensive to buy it on that website.

I'm abstaining now hoping it will help... I just want the ED to improve, the lumps to go away and my flaccid size to go back to how it was... Also the sensations and the white spots on my glans. It's driving me crazy...

Also mexmeds4u.com doesn't seem to be working anyway...

[Werther]

Did you manage to book an appointment for a cavernosography or a cavernosometry?

[sonnyjim]

I guess that is my last option that I have it is just finding somebody who does this test in London and spending more money on it. Is this test more reliable than the ultrasound & the MRI ? If so why is it so hard to find someone to do it? Or could anyone recommend me somewhere to go for it ?

I'm honestly so tired of being told that this is in my head now and the ridiculous things I've heard from psychiatrists. It is unbelievable that it has taken me this long and I'm still looking for answers to something that could of been resolved by now if id of just been taken seriously.

Almost a week of abstinence now and not even a tingle, just numbness.

[kusher]

Continue the abstinence. It will certainly pay off if u continue like this till August. Masturbation harms the internal tissues and nerves and prevent them from recovering properly. Continue cialis and maybe penile traction traction to avoid shrinkage. Run everyday and eat healthy. Do squats to strengthen ur pelvic muscles.  

[JS1991]

I agree with everything that kusher said to do.

As for the Cialis, the only reason is to take it at night for increased nighttime erections. This is very important for your penis health since you're not gaining erections on your own; that's why we get nighttime erections in the first place. It's like our body performing maintenance on itself.

And as far as the website for Pentox, it's actually spelled mexmeds4you.com and I think buying two boxes (60, 400mg pills) divided into 1200mg per day will help address the plaque issues that are currently being neglected due to your specific case of ED. You want to control the plaques as best you can so that when your ED settles down, you're already ahead of the game. Hopefully it helps your penis loosen up a bit.

[sonnyjim]

What currency does that website use, so I can work out how much it will be in pounds.

[ed2018]

US Dollars
https://www.xe.com/currencyconverter/convert/?Amount=38&From=USD&To=GBP
Plus whatever for shipping
And paying with Visa or Mastercard i think they charge something like 2% or 3% for converting pounds to usd

[sonnyjim]

38 dollars for 20 pills how long will they last? Not even a week.

[sonnyjim]

In theory if the pentox clears or softens the scar tissue a little bit, will my old flaccid size come back to how it was ?

Can pentox do that? The Cialis doesn't seem to really be doing much and this sensation I have even when I am not touching my penis is like someone squeezing it exactly where the lump is, if I take pentox and it works could I get rid of this sensation ? It's driving me crazy.

[JS1991]

Pentox Effectiveness - Peyronies Society Forums there is my experience with Pentox if you want to read the effects I felt, but in short, yes it should help. And on the website it says 20 pills, but on the box it says 30 and when I received it, I got 30. Came out to exactly $85.00 dollars all fees included for two boxes (60 pills total). Each box is essentially a 10-day supply if you take 1200mg per day, but I took 800mg/day half the time so it stretched a bit more.

[sonnyjim]

So it's pretty much without Pentox these lumps and hard cord around my shaft will not go away? Not even with daily Cialis ?

It seems like my case is worse than most people here who can still get erections and use traction to regain what they lost. Pumping doesn't even make my flaccid size bigger I come out flaccid the same as I went in... Wtf.

All I want is my size and function back, or even some of it.  

[JS1991]

Well, those lumps and hard cord on your shaft are suspected Peyronie's plaques. At the moment, they are being untreated because you are focusing on the issue of erectile dysfunction. Cialis helps with the ED. Pentox, on the other hand, is meant strictly to help the plaques soften up, or at the least contain it from progressing. Get on L-Citrulline (1500mg/day), Acetyl L-Carnitine (2000mg/day) and CoQ10 (300mg/day) too (all relatively cheap natural supplements), if you aren't already on them, as they help with both ED and plaques.

Hopefully I have a good experience with my stem cell treatment and can fully endorse that to you in the future as well, we shall see.

[sonnyjim]

I'm on all of those supplements and more but they are still not softening yet. No improvement in function either.

[JS1991]

Get on Pentox!

[sonnyjim]

If i do have a venous leak too, is that basically incurable?

I never had these white spots from lack of circulation on my glans when the initial injury happened so I don't know whether it has just progressed (obviously made things much worse) or if something else is causing it.

Also has coq10 and all the other stuff actually ever helped anyone soften or get rid of scar tissue ?

[james1947]

Venous leak may be incurable or not I don't now, I have also.
From 3 urologists I see in the past, no one proposed me cure, just surgery or an implant.
Surgery can help, but is a very complicate surgery, if I had the finances I was making an implant

James

[sonnyjim]

I mean I don't know if I do even have a venous leak but I never get spontaneous erections, ever, even on 20mg Cialis. ..
Is it wishful thinking for me to believe pentox will help me with this? I think that's the only thing left to try before I just accept that this isnt going to get better or go away...

[cheeznips]

you could try it. the only thing pentox does is thin your blood. when your blood is circulating through your penis the blood can travel through narrow smaller blood vessels, cialis kinda does the same thing but it forces or pushes the blood into your penis. all these medications just force blood into your penis so your penis can heal itself. It's not like the meds actually heal you.

[sonnyjim]

I just don't feel like the Cialis is really doing much by itself I NEVER and I mean never get spontaneous erections or anything at all my penis stays in its smallest turtled state permanently.

I dunno how to get past this...

[JS1991]

The Pentox is only to soften up the plaques since they aren't being addressed at the moment; it will not help at all with producing erections, that is a (mostly) separate issue. If I recall correctly you do actually get spontaneous erections on Cialis at night occasionally (if only 75% strength). These are crucial to maintaining the health of your penis and are a very good sign; the Cialis is doing it's job so keep taking it! The human body gives us men nocturnal erections for two reasons: to literally prevent us from peeing the bed, and to give us the minimum blood flow requirements for a healthy penis, assuming we get no erections during the day. These 75% erections you speak of at night are precisely that, and I suspect they would be weaker or non-existent without the Cialis you're currently on.

[sonnyjim]

So where will the improvement come from? I mean, how so I get back to being normal (i.e. my penis actually getting fully hard for sex and being able to maintain it)

[suicidecomingsoon]

Guy everything sounds like venous leak, there is no easy solution, surgery with few possibilities or implant and it is like that. Another  option try njections and/or cock ring

[sonnyjim]

That's what I mean though, I had an ultrasound and they are telling me that nothing is wrong with me... I can't get the help that I need because I'm just being told that it's in my head all the time.

I've been referred to about 20 different psychiatrists who all refuse to believe I have a problem and that it must be psychological because nothing is showing on the tests.

It literally feels like something is pinching my dick ALL DAY long almost like there is a blockage somewhere it's driving me crazy. I didn't have these symptoms after the initial injury pills were giving me very strong erections but gradually over the space of a year it has progressed to this.

I can't understand how nothing showed up on the tests with all of these symptoms... My flaccid used to even get engorged when I was lying down before this happened to me but now it's just completely flaccid and even my flaccid size is smaller than it ever was... Wtf.

How do I find out if this is venous leak and if I can somehow reverse the scar tissue with pentox and other things could my erections come back or is that just wishful thinking? I literally feel nothing down there.

Any ideas would be helpful ...

[JS1991]

Realistically if I were thrust into your situation right now, I would get on Pentox immediately to soften up the plaques, stop them from progressing, and let my flaccid penis hang looser. I would then go get stem cells shot into my dick immediately from either Landers (California) or Zahalsky (Florida). Their opinions should definitely help more than any of the other urologists you've seen who outright ignored your issue, and I would then give it about 6-12 months, hoping time helped with everything else. At that point if I didn't go for another round of stem cells I would consider surgery or tissue engineering. Also, start working out if you don't already. Lifting weights + cardio.

[sonnyjim]

Can pentox reverse this ?

[kusher]

If cialis and Viagra are not doing anything to ur erection then pentox will not help u much with erection. If u had injury more than  1 year ago and u still don't have curvature then it's unlikely that u have scar tissue. U might have micro trauma that needs good amount of resting. Get a detailed MRI testing in ur pelvic and penile area. Also blood inflow and outflow. If nothing showing up then it is psychogenic or maybe hormones diabetes blood pressure. U have to do all the tests to rule out mental aspect. Did u do night time erection stamp test? Do this test to know if it is physical or psychological  

[sonnyjim]

This is what confuses me because from what I have read I should have curvature but I dont. Then again I have been stretching manually since the injury happened because I heard that could help me, would I still have curvature ?

I can physically feel the lump it goes straight across the middle of the underside of my penis (corpus spongonosium) if it isn't scar tissue then I don't know what it could be...

I have had no gains at all from the stretching I have been doing for 1 year and a half and my ED is now at the stage where even pills do nothing at all not even engorge my flaccid.

Is there a chance that this could be something other than peyronies or scar tissue ?  

[Paolo]

Did you discuss low dose alpha blockers for ED with you GP?
Correct me if I am wrong but isn't ED your priority??
Paul

[sonnyjim]

Yeah it is my priority but will alpha blockers do anything if Cialis and Viagra don't ?

I also want to try and reverse or heal some of the damage as I would like my penis size to return to somewhere near where it was at least...

I don't know where to begin.

[Paolo]

Have a read of this link below;

Doxazosin and Erectile Dysfunction

You will need to discuss this with your GP to see what he thinks, what works for one guy may not work for another.

[sonnyjim]

Iwill try that Paulo, thanks... This really is a hopeless situation for me.

Feels like I'm never gonna have my penis back

Does pentox reverse any of the scar tissue at all?

[Hrvat21]

Guys with penile fracture, i had a penile fracture on three spots, and all of them now created hourglasses 1/3 of original size, some of them being in perineal part of penis, and my whole penis is covered in scar tissue, my injury happened 7 years ago and i lost 2 inches of length and 1.5 of girth. Is it even possible i get that back? I will have to do an implant surely, i sometimes doubt even traction and ved can help. I am taking pentox three times a day and lost around a centimetar last year, and seems like my penis is getting smaller every time i see it. I really don't want to live with penis of that size even if i get implant and am actually considering lifetime abstinence or perhaps trying to save money for a transplant, which would take me lot of time, more then 10 years probably. Anyone in similar "very bad situation"?