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sonnyjim

How long have you been dealing with this if you don't mind me asking? Also, have you tried abstinence ?

What else have you tried and are you considering an implant?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

About five years. In the beggining I did not want to believe what was happening to me and I said to myself that it would recover, but he has not done it and I do not have any hope that it will.


I did abstinence for months, several times, I would not touch or see porn in months, in many months, but it did not help. Yes, the first or second erection after that time of abstinence is easier to get but it is a deception, it will only provoke me more premature ejaculation, since of the excitement of having been months without masturbating you cum in a very few seconds and besides I was still not able to maintain erections.
After that first two masturbation everything was just as bad as before.

Also spend a lot of money on supplements that did nothing for my erections such as maca, vitamin E, vitamin B, garlic, nitric oxide, high protein diet, ginko biloba, etc ... Besides that I spent a good amount of money on Viagra Cialis and Levitra that would only help me to hold the erection for 10 seconds more and give me erections somewhat firmer but insufficient, neither morning woods nor spontaneous, also tried injections (alpostradil) in maximum amounts It gave me a bigger flaccid but not an erection, sometimes I would get a semi erection but not so good
About the implant I don't know. It is a big decission I think about it sometimes. I wish I could fix this without needing it but I can not be living in this way all my life

sonnyjim

This is possibly the worst thing that could happen to a guy I think, apart from death, but even that isn't so bad in comparison.

Did you have an ultrasound or an MRI ?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

kusher

Why would u guys even do the jelqing thing? It's boring and stupid. Want a bigger penis? Engage in penile traction and let the device does its job instead of ur hands. If u have been dealing with ed problems for 5 years then it's unlikely u will ever recover. Get implant and put the past behind u. Nothing else will benefit u. Did u try the highest dose of Viagra? Unless u wanna wait for the so called regenerative medicine which will appear when ur probably a grandfather  
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suicidecomingsoon

I had several ultrasounds with injection, everything was fine according to them even if I never got an erection with the injection. WTF
Finally I had a cavernosography that doctors detected venous leak

kuzher: yes I have tried the highest doses of viagra and even 100 of viagra and 20 of cialis together. They do not help almost anything
The decision of the implant is not so easy, it is a very important and difficult decision, I am certainly considering it but I think I am not ready yet, sometimes I have the hope that something new will come though I do not trust much in that
Of course if when I spend my 20s everything remains the same I will probably do it

cheeznips

people try jelqing exercises because in the media and especially with american porn it displays that longer = better, but that's so far from the truth its actually ridiculous. the truth is more blood in the penis = better sex and the longer you can hold that blood is even better.

the thought of stretching and causing micro trauma to the tissue to make your penis bigger is ridiculous, but i understand why you guys have done it. people go to great lengths because of insecurities. i hope everyone can get better here. sure it wont be as big anymore because blood wont be able to completely fill it up but i'm sure even with a implant you will be able to keep your significant other happy with the fact that you can get erect anytime and wont have to worry about losing your erections.

its tough man, mentally dealing with this numbness. it's literally crippling me. i feel like life would be so much easier if i didn't make that stupid mistake.


cheeznips

suicidecomingsoon

imo, i too think you should go for the implant. no point of waiting 40 years for some new miraculous drug to come out. If your in your 20's or 30's go for it. It will be harder to find a women when your in your 40's. i say get the implant and don't lose anymore time. You youth should not be wasted.

can you hold an erection long enough to orgasm? what is your erection quality without any meds? how long can you hold an erection for? have to spoke with your doctor about an implant?

im not against suicide but im pretty sure your girl will be happy with your sexual performance with an implant.

suicidecomingsoon

I did jelqing because they said that it was a natural and totally safe method. They never said that it could cause venous leak (ED)and internal fibrosis, if they pointed that out, I never would have done and they continue without saying it and deceiving more people and people who say they have been injured by jelqing and ask for help they are banned.

I was 19 or 20 years old, I was young and idiot, I did it a couple of times and it destroys my life for being naive

About my erection my quality erection is very bad,  I can hold the erection only for a few seconds (15-20) Yes I have spoken to some doctors about implant. Some doctors say that I am too young for the implant, others say that I do the surgery

Jack1909

Look at me, two surgeries made me impotent. Surgeries make scar tissue which might lead to impotence. That being said, I never heard about surgeons capable of removing scar tissue. It's techincally impossible and the simple act of removing would mean a new scar itself.  
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

sonnyjim

So basically there is nothing we can do just accept that our dicks are going to shrink till there's nothing left, sex life is over before were even 30...

I'm using ved and taking so many supplements but it is all basically for nothing as we're all fighting a losing battle might as well accept i am going to be lonely and have no future.  
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

kusher

Ppl get their penis amputated then they do a very long and risky surgery and they end up with an intact penis that can get aroused. And u just do jelqing and end up with an unusable penis???!!!! There is something fishy and missing in this equation..... suicide with pills or without, do u get spontaneous erection or morning wood? Just asking to rule out the mental aspect.. what about u sonny? Any sign of spontaneous erection or morning wood with or without pills?  
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kusher

I started to think that these studies and literature are all BS that are based on lies. Authors just publish it to boost their ego and reputation.  
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suicidecomingsoon

kusher jelqing injuries are very real just doing a search in google you will get hundreds of cases, even in FT there are dozens of guys injured by these exercises now looking for an implant, some already implanted, there is a man (injuried from jelqing)  who was implanted by kramer and others implanted by Dr Eid.There is nothing psychological there, when the ED lasts for years, when you are just quiet in your house and put some porn and you can not get it, when you do not have morning woods or nocturnal erections ... it is purely physical

I have venous leakage detected by cavernosography, something that for me was obvious since my glans only gets some blood before cumming. If at that moment I get some blood I put my finger against my dorsal vein, my glans will remain with blood, but immediately after removing the finger the glans will be emptied (but this is just the problem of the glans). My cavernous bodies also work badly.

I have not had spontaneous erections or morning woods in years, with or without pills I will not get anything, zero
Before doing these exercises I would get an erection in a second, if I saw something erotic, the erection would come in a second and it would stand by itself for several minutes. Now I can not get it without a lot of physical stimulation and even with constant physical stimulation I can not keep it

Werther

Hey Kusher, what's your point with this penis amputation thing you keep talking about? Should it represent that, in your opinion, all penile damages heal by themselves and ED can pass away just by abstaining and let the healing do its job? If so, it looks like you put your foot on the wrong board, since we're mainly talking about Peyronie's disease here and it should be evident to everybody here that it's a F^@$!ng healing disorder, i.e. your penis is actually healing, but with fibrosis. In fact the issue in Peyronies Disease (and any other fibrotic disease) is the healing itself and what people do is trying to stop asap and as much as possible whatever scars could develop from healing. You're deceiving people by talking the way you do. Besides, just for clarifications, it's plenty of surgeries where amputated body parts were then reattached where they belonged to (e.g. https://edition.cnn.com/2015/07/24/health/severed-hand/index.html), but these injuries have nothing to do with penile ones and I don't see how they connect with the principle, you're so proud to believe in, that abstinence solves all kinds of ED.

Now, if you wanna try it, nobody can tell you not. But be careful when you advice other guys here, since there are a lot that should do everything, except for abstaining.  

kusher

Whether you like it or not, abstaining has the capacity to heal ed for some ppl and this depends on the severity and degree of ED and the injury itself. If u tried this method and u found urself not in this category then it's not my problem my friend. At least I don't manipulate ppl and tell them that vein ligation's surgery does work while in the realty it's just some snake stuff and skilled surgeons abandoned it long time ago. If abstaining didn't work for u, then try inserting a mechanic device into ur penis and pump ur balls to get erection. This might work for my friend. But vein ligation's surgery is a big lie and u should never open a thread talking about it. Some ppl did this surgery and ended up commuting suicide like gollam so u better watch what u write and check the validity before posting  
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sonnyjim

Quote from: kusher on May 11, 2018, 03:56:51 PM
Ppl get their penis amputated then they do a very long and risky surgery and they end up with an intact penis that can get aroused. And u just do jelqing and end up with an unusable penis???!!!! There is something fishy and missing in this equation..... suicide with pills or without, do u get spontaneous erection or morning wood? Just asking to rule out the mental aspect.. what about u sonny? Any sign of spontaneous erection or morning wood with or without pills?

No spontaneous erections in the last 6 months and morning wood now (taking Cialis 5mg daily) is just basically a larger flaccid.

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

kusher

Keep taking the cialis. Don't stop it. Just because ur not getting spontaneous or morning wood it does not mean that ur not get erection while ur asleep. If u stop pills, this might cause more scarring or potentially fibrosis. I don't get the hard flaccid term? Like ur penis feels solid while flaccid?  
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sonnyjim

No, just slightly more engorged than my turtled flaccid that I have for like 99% of the day.

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Werther

Quote from: kusher on May 11, 2018, 11:03:27 PM
Whether you like it or not, abstaining has the capacity to heal ed for some ppl and this depends on the severity and degree of ED and the injury itself.

What kind of injuries are you referring to? Do penile fractures heal on their own just by abstaining and without causing ED? Sounds strange to me, since I've always read the contrary...

I'm not saying that abstinence won't ever help recover from ED: my point is that it doesn't help recovering from organic ED; if it's psychogenic, then it could be the solution, but there's no tissue to heal in this case. Healing's process after blood's spill in the erectile tissue only leads to scarring and if scarring has already occurred and has already messed up with circulation, abstaining for months won't do anything to turn things back to how they were before the injury. I'd be very happy if you could prove me wrong: can you provide us with some scientific papers to back up what you claim?

Then, I've never recommended anyone to undergo veins surgery, just opened a thread to ask for information for myself. You're actually the one who's raving about sexual abstinence curing organic ED and recommending it to people. And to make things clear, the fact that gollam committed suicide after sclerotherapy and that in the majority of cases veins surgeries don't seem to work, doesn't mean that they don't work ever: it looks like they can be beneficial in very few selected cases and that's what I've said (you know you can find some guys' positive reports on the web).

By the way, I don't want to flame, just set things straight with regards to the abstinence thing and your Bobbitt's case reference (I really can't understand what penis amputation and reattachement has to do with erectile tissue damages' recovery; even an avulsed tooth can be reattached in one's mouth, but this doesn't mean that caries heal on their own only because they're both traumatic events and avulsion is obviously more traumatic than caries).

Have a nice day.

sonnyjim

So there's basically nothing that can be done about this at all? It's hopeless? Why are we all still here then, waiting around like penguins?

With these severe ED problems I am finding it so hard to believe that it's ever going to improve no matter what I do or what I take...

I can't imagine my life being like this from now on, or possibly getting worse, if it even can now.

My only hope is that pentox might work but people have already said that won't work either so... May as well save money for my own funeral I guess.

How can this crap not show up on an MRI or an ultrasound ?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

NeoV

Sonny, the physical therapies / diet modification and supplements or drugs should help over the years. Try shifting your mitochondria through diet as I have suggested. Mutated mitochondria are there in your penile plaque, and it's because they are mutated from glucose toxicity. Are you doing everything you can? Otherwise it's just a matter of time.

sonnyjim

A matter of time? For the ED or the scar tissue?

Everyone just keeps saying that it gets worse over time, not better.  
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

NeoV

Almost every long-timer here has had their symptoms improve over time. As for the ED, how healthy are you? what is your body fat %? Do you exercise and have you had your insulin or blood glucose tested by a professional? Testosterone, vitamin D etc?

So many of us have gotten much much better over time.

sonnyjim

I'm fairly healthy, physically fit... I am not overweight I have very little body fat actually it's just this ED I can't understand, it came on gradually and I'm pretty sure it has something to do with the lumps on my penis as there's nothing else that's happened. I have two or three rough patches on my penis...

Will my ED improve over time or will I need an implant eventually, I would rather not at the age I'm at (29)
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

Guy sonnyjim do you want us to tell you the truth or what you want to hear?
You've been asking this question since the beginning and everyone has answered you. ED does not improve over time, ED does not improve on its own.

To treat ED there are several steps: pills, cock rings, injections, implant (or other surgeries with little success like venous or arterial surgery) There is also the option to wait for something to come help with ED or fibrosis

But good if you want false hopes .. you can be waiting for a decade and then see if it is healthy by itself, I've been several years and it has not done

sonnyjim

I guess I just want to know what else I could be doing to get rid of these fkn lumps. I feel like if they softened I might be able to get erections again. I feel like they are blocking blood flow or something.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

coq10 might get soften up that plaque. just keep taking coq10 and cialis, be gentle with your penis, use lube. I use silicon lube by navy something you can buy it on amazon and keep a healthy heart by jogging. A healthy heart promotes better blood flow. i feel like ED does improve over time. just be patient and don't forget to live your life.

i think my ed is improving not sure. I cant really feel my urethra or underside but im waiting till oct 4th for that uro appointment

Jack1909

From my own experience:

ED doesn't improve over years. It rather gets worse.

Nerves improve over years but the sensation won't come back as it was before the injury.

31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

sonnyjim

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

sonnyjim

Will coq10 do anything for the scar tissue? At least stop it from getting worse? I'm taking Cialis 5mg daily, coq10, l citrulline, l cartinine. If those won't stop it from getting worse I'm just going to save my money.

I have read about people's plaques disappearing or decreasing but mine have only worsened in 18 months, not gotten better.

What else can I be doing to stop it getting worse and possibly make it better ?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

Im not too sure but i think my ed is getting better its just the numbness man before my second injury i was taking coq10 and it was really softening up my plaque. Ive tried taking ot again but nothing really has changed.

kusher

For plaques, the way to go is cialis and penile traction daily. U want the penis to be as elastic as possible to prevent atrophy. U need penile physiotherapy to get the pump going. I don't recommend VED, personally heard alot of horrifying stories about it including irreversible damages. Try the cialis and physiotherapy method till end of summer then reevaluate. Phalson forte is a good option cuz u can wear it for long hours without feeling uncomfortable. Whether u gna restore ur erection or not is unknown... I read stories on the internet of ppl regaining natural erection after injury or trauma within 12-24 months. Also try to modify ur daily lifestyle and see how it goes  
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sonnyjim

Also what is causing my penis to hang so turtled and lifeless? I swear I've gone from like 4.5 inches pretty thick to like barely 3.5 inches and thin and lifeless.

What the F~@< ?

Has anyone ever got somewhat back to normal?  
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

JS1991

Do any of you guys (cheeznips, sonnyjim) have any pelvic floor dysfunction, pain or tightness? Do you have pain after orgasm or after urination? Hard flaccid, soft or cold glans? Reduced bloodflow to spongiosum/urethra?
Do your homework before attempting a prolonged fast. JS1991 Timeline - Peyronies Society Forums (updated)

sonnyjim

I don't think I have pelvic pain and can't believe this could cause this many problems on its own but if it was causing this severe ED and shrinkage even with pills I would die of happiness if it could be fixed.

My initial injury (first lump I found) was actually on the underside of my dick, CS. It caused shrinkage immediately and pain and that shrinkage has never returned to my normal size I am much smaller especially when flaccid it doesn't hang like it used to at all.

Sometimes when I am driving I feel tightening in my lower body but I've tried reverse kegels and all of that has made no difference at all.

I just feel like my dick is useless, numb and lifeless.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

Js1991

Yes im getting reduced blood flow to cs along with numbness to cs and urethra. Im really thinking i have a stricture like i had a microtear in my urethra from the injury. Im forcing my urination in the mornings. Sperm dosent shoot anymore. I really need to see that uro but these damn hospital bills are catching up to me. Maybe the uro can see if i have a stricture or something

sonnyjim

I have also recently noticed that I have what feels like a string, but it is deeper inside my penis and harder to feel (maybe why I haven't noticed it before) it is near the base and runs to the middle of my penis...

When I feel my penis it feels like I have quite a few lumps and rough patches so I am not sure why they told me the MRI and ultrasound were both normal, how can they be? I don't get it...

There is no other way to prove that this is physical and not on my head as they have been telling me for the last year and a half.

"I have pain" - "oh, erm... That could be you imagining it"

"My penis has got smaller" - "speak to our psychosexual counsellor" (thinking I just have size issues, I DIDNT BEFORE THIS)

"I feel lumps everywhere" - "everyone has lumps in certain places"

What the F~@
I can't believe this is going to improve even with everything I'm trying to do. It's not just gonna go away or improve if pills don't even do crap is it?

Unless they can amputate my broken and shrunken dick and attach a new one I'm not sure what else can be done. Kind of makes me wonder why I'm holding on to any hope, if they would of helped me and took me seriously to begin with I wouldn't now have 4 different lumps and might only have 1 and a somewhat functional dick.

I can't even get pentox so I have to settle for COQ10, L carnitine, Vit E and Cialis. Is this a good enough treatment to actually improve things? I'm willing to take these pills forever if this crap will just go away.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

JS1991

Do you think you might have CPPS? Symptoms are hard flaccid (shriveled, turtled), difficulty achieving and maintaining erection, soft/cold glans and deflated spongiosum, tight pelvic floor, loss of sensation in penis , and pain after orgasm or urination, occasionally centered in the urethra. It could be a combination of CPPS and Peyronie's (the lumps) which is what I have been diagnosed with (although I do have a 15 degree curve). Maybe it's hard to see these lumps (which have progressed since your last test) when you can't maintain a full erection during testing? You weren't able to get Pentox through mexmeds4you? I just ordered from them last week.
Do your homework before attempting a prolonged fast. JS1991 Timeline - Peyronies Society Forums (updated)

Christopher1

Mexmeds4you is your pentox source?
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

cheeznips

i don't think i have cpps. maybe i did, but probably not anymore. Right now, i probably have a stricture. when i ejaculate i no longer shoot. numbness in urethra and underside of penis is making it harder and harder to hold erections. I miss the days where i could feel me sperm flow through and out my urethra. what a pleasant feeling. sigh... well i'm gonna call the urologist to see if i can expedite my appointment. i must have damaged the nerves along with causing the stricture. idk...

sonnyjim

I don't think it's CPPS I think it's scar tissue that has just progressed and got worse. I have been taking Cialis, Arginine, Coq10, L carnitine and Gingko since day one and nothing has improved. What confuses me is people on here saying their situation has improved by taking these pills and supplements because I haven't. Only got worse...

I'm wondering whether I can actually recover from this or not and if it isn't peyronies (MRI and ultrasound nothing shown) then what are the lumps and rough bits on my dick ?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Afeb1996

How much L Carnitine are you taking?

And is it ACETYL L carnithine? That's the one from the study. They are different?

Also coQ10.. is the main ingredient UBIQUINOL?

How many milligrams are you taking of each?  
03/06/2018: Forceful-downwards [from the penile base] injury) > Affected PSL (Penile Suspensory Ligament) > Pelvic Floor Dysfunction > ED (tentatively assumed venogenic) > Peyronies (07/01/2018)

Afeb1996

How much L Carnitine are you taking?

And is it ACETYL L carnithine? That's the one from the study. They are different?

Also coQ10.. is the main ingredient UBIQUINOL?

How many milligrams are you taking of each?  
03/06/2018: Forceful-downwards [from the penile base] injury) > Affected PSL (Penile Suspensory Ligament) > Pelvic Floor Dysfunction > ED (tentatively assumed venogenic) > Peyronies (07/01/2018)

sonnyjim

500mg COQ10 and 2g Acetyl l Carnitine
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

has anyone know how spongiofibrosis associates to a urethral stricture?

i need to know if i remove this stricture if it will give me back my nerves to the underside of my penis and stop causing this hard flaccid. and stop causing my penis to be uncomfortable all the time.

im pretty sure i have a stricture because whereas i used to shoot sperm pre last injury i dont shoot anymore. also it feels like my urine is being blocked when i pee.

and it feels like my urethra isn't dialating properly

cheeznips

Sonnyjim have you gotten better?

sonnyjim

No... Not at all.

I have been taking Pentox for 4 days, no difference yet but people have said it takes a long time to work.

My thinking is if I can soften the scar tissue somehow that my penis will hang more normally and maybe erections can happen but maybe that is wishful thinking.

If not, I will eventually kill myself and I've accepted that fact already.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

Sigh... atleast you didnt just have a kid. I have a new born coming and im still f'~c<+d up from the injury and its been mentally F^@$!ng me up. Im so worried that i wont be able to hold a job because of how anxious i am because my penis is so numb. I still cant feel my urethra and my entire cs is numb and im supposed to help take care of a newborn?
Im really trying to keep it together man.

sonnyjim

Yeah but at least you can still have sex I guess...

I can't even get an erection with 100mg and 20mg Cialis combined...

What hope is there that this will improve even if pentox does work for me ?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

If you want to talk on discord then let me know.