Very bad situation

[Paolo]

Does pentox reverse any of the scar tissue at all?

I don't think scar reduction is possible with Pentox, isn't Pentox for microcirculatory blood flow and increasing oxygen in the tissues?, and possibly pain??

Wouldn't Pentox really only be useful in the acute stage of peyronie's, therefore long term use therefore pointless?  
Paul

[sonnyjim]

So the chances of my situation improving is that low?

I was hoping that pentox would help me regain some of my size and function that I had. My thinking was that if I could reduce some of the scar tissue, I would have more function...

So it's basically pointless?

What good are the other supplements then really? Should I stop taking everything and just wait for things to get worse (don't think they can anymore)  

[suicidecomingsoon]

the supplements are BS and a waste of money

[sonnyjim]

The pentox might work though ?

[sonnyjim]

This website looks like a scam website so much, I'm surprised you guys received anything at all...

[sonnyjim]

I'm not taking it out on anyone where are you getting that from?

And for your information I would rather have a curved penis than one that doesn't work at all.

[Paolo]

This website looks like a scam website so much, I'm surprised you guys received anything at all...

Sonnyjim, I think your above quote needs clarification, what was meant by it?
Paul

[kusher]

Man ur case precisely requires nocturnal penile tumescence (NPT) test. This test is rarely performed. But it's usually performed for ( hard to diagnose cases ) and especially for young men. U can buy a device and do the test on ur own or preferably u can go to a clinic and spend 2 nights doing it. I think u should go for it. Nothing to lose  

[sonnyjim]

I meant that mexmeds4you looks like a scam website and I'm surprised that they sent you any orders.

[Paolo]

Yeah, I was pretty sure your comment related to that supplier, thanks anyhow for clearing that up Bud  

[sonnyjim]

Well I will trust you guys judgement and order from there because I really have no other choice. I am hoping that the pentox can improve my situation because at this stage I have no other hope...

[Paolo]

An NPT test is going to be hugely inconvenient, probably need two days in a sleep laboratory, and at what cost?

Why wont your GP prescribe Pentoxifylline?
Ask your GP about low dose Alpha blockers
Insist on a full blood hormonal test even

Why not ask for another GP or specialist opinion as I feel you are 'circling the drain' with this f'^+'ed up situation, let's face it your f'^+'ed up situation is more for someone my age, I have (touch wood) never had ED but for someone so young it is totally f'^+'ed up.

Sex for any guy is hugely important, you are going to have to badger your GP until he/she gets you a second opinion, hell even a third opinion.

I know this isn't much help, but there you go  

[sonnyjim]

It's almost impossible to get prescribed pentox here and because nothing showed on either test they assume there's nothing wrong with me. I can only get erect with manual stimulation (a lot of concentration) and even then I don't reach full erection even on Viagra and it feels very weak especially at the base...

Hoping Pentox will make a difference if I can order it online from that dodgy website.

[TonySa]

A cheap NTP test if you arebunaware if having nocturnal erections.  Place scotch tape around dick.  If broken in morning, you've gotten an erection while sleeping.

[sonnyjim]

I was thinking this the other day, does it really matter whether or not I get nocturnal erections (I don't) but if I did I'd still be in a bad situation so would it make a difference anyway ?

Do damaged tissues in the penis heal after time or not? Like if I abstained for like 4 months, would anything heal or change in that time ? Just wondering because I feel like this is never going to get better.

[kusher]

Ofc damaged tissues in the penis do heal over time. U have to read studies about completely amputated penis. Ppl who have mental issues and amputate their penis or get into a fight and lose their penis due to slashing can still have 100%100 erection. But it depends on the surgery outcome and recovery period. I read the other day, a guy who had mental episode amputated his penis completely then was repaired successfully. After 10 years, the same guy had another mental episode and he cut his penis again. He then had another successful surgery and his erection returned after 1 year and sensation after 2 years. So yes penis tissues do heal given proper care and time. U should do something unconventional and very effective like acupuncture for ed, shockwave therapy for penis and engage in Chinese medicine. These options are risk free and impactful. But it also depends on how ur body reacts to them. Try it nothing to lose  

[kusher]

Also if u want to know if any website is legit or scam. Simply type the website name on ( scamsdviser ). Scamsdviser will tell u whether a website is trustworthy or scam  

[sonnyjim]

If people can still get erections after amputating their penises why can't I get an erection when what happened to me was much less severe? It doesn't make sense...

I have been told to do shockwave therapy but I don't know how it could work it seems like too good to be true plus apparently it does nothing for scar tissue which is what I'm assuming I have although it didn't show in the tests because the only other thing it could be is cancer.

[sonnyjim]

Still waiting for a response from mexmeds4you so I can pay for the pentox but I have been waiting for 2 days... Wtf.

Why is it so difficult to get something that could potentially help us ?

[JS1991]

sonnyjim, from what I've read the male penis needs to be erect from time to time in order to stay healthy. Nocturnal erections are something our body's do for us just in case we don't or can't get an erection during the day. This is why I say your nocturnal erections (although not 100%) are a good sign and definitely helpful.

Regarding mexmeds4you, yes it is definitely a sketchy looking website. But for lack of a better option, I have been using them for Pentox myself. I've seen three urologists plus my GP and none would prescribe it to me. In this situation I felt it was best to take the chance, and mexmeds4you came through for me. I'm actually ordering more as we speak; the process is aggravating as you mentioned. After sending your purchase through the website, they have to manually contact you through email for payment via Paypal (at least that's how it worked for me). The person who responded with the invoice is named "rubystar" lol. Very sketchy, but I haven't had any problems with them though, for what it's worth (except for the process taking a long time). If anyone has a different website, I'd love to hear of it. Until then, I'm sticking with mexmeds.

Pentox, as other users have noted, works by thinning the blood and allowing it to penetrate into the smallest of blood vessels. This resulted in a reduction of "hard flaccid" symptoms in myself and generally loosened my penis up. This is what I'm hoping it will do for you: get the blood flowing into every part of the penis possible, allowing it to hang looser and more naturally.

Regarding shockwave therapy, it works by actually breaking up the plaques and opening up new capillaries in the penis. In my opinion, it would be best to couple this with a stem cell + PRP injection (this three-step treatment is used a by some practioners; I wouldn't get the shockwave therapy by itself). But again, just my opinion; we will worry about that down the road.

Edit: Just wanted to add that the invoice on Paypal describes the package I'm receiving as "Mexican Folk Art Oaxaca Wood Dragon" lol.

[sonnyjim]

I'm actually hoping that pentox can get rid of some of the scarring or at least make it softer because I think that is whats causing the problems. I never had ed problems until the scars got harder I don't know whether it's wishful thinking or not but other people have said that it has helped with ed.

I believe I do have scar tissue from the first injury and also some sort of tissue damage which I am hoping can still heal and give me some sensation back...

[Werther]

You've got it right: yours is wishful thinking.

[sonnyjim]

If it is tell me what else I can try because there surely are other things to consider trying before an implant?

[suicidecomingsoon]

Don't think that pentox is the big thing

[JS1991]

I'm actually hoping that pentox can get rid of some of the scarring or at least make it softer because I think that is whats causing the problems. I never had ed problems until the scars got harder I don't know whether it's wishful thinking or not but other people have said that it has helped with ed.

That is not wishful thinking my friend, Pentox can help to soften up your penis. At least it helped me out with the issue. Is it going to "get rid of" your scarring? No, but hopefully we can loosen that penis up a bit, and help manage the symptoms as well as prevent any further progression of plaques. There is no "the big thing" when it comes to our issues, but we do have a few tools at our disposal, and I consider Pentox to be one of them. I say take 1200mg/day for a month and assess from there. You can check the oral medications subforum on this website if you want to see how Pentox has helped other members of this community.

[Paolo]

I am going to be extremely left field here but why not give Lion's Mane a try, quite cheap and can boost NGF, that may/could help increase sensitivity, it is also great for mood enhancement.

[Werther]

@JS1991: you probably didn't read all of his story. It's highly improbable that sonnyjim has peyronie's disease and that's the first reason why pentox would be completely useless for him. By the way, even if he really had scar tissue, pentox would still be useless for him, since he said that he's been feeling lumps for more than a year: this drug is only useful - maybe - in the acute phase and it won't do anything if you have already developed scarring (obviously it could maybe prevent further scarring, but after more than one year, you'll more likely be out of the acute phase and scarring won't worsen on its own, so that drugs like pentox will basically do nothing). It's pretty clear that sonnyjim's words, based on what he asked, are wishful thinking; he asked if pentox can eliminate or reduce scar tissue or if it can cure ED: it obvioulsy doesn't work this way. If it could eliminate penile scarring, it'd be the cure for Peyronie's and this forum wouldn't even exist and it's clearly not a PDE5i or something like bimix or trimix, so I don't see what can it ever do for erections...

@sonnyjim: your last urologist suggested you to try shockwave therapy, so why don't you give it a shot? It's not surgery and its use is designed mainly for ED. Maybe it could work for you.

[sonnyjim]

I am going to try shockwave therapy but if this does nothing to improve things what are my options then? Implant? Or is there any sort of surgery they could do?

Pills don't really help anymore and I'm only 29

[Werther]

Dude, it makes no sense to think about what to do if shockwave therapy won't work. Try it first, then, if you see no improvement, you can wonder about what else you can do.

You already know what's left if your ED is organic and nothing helps: there's vein surgery (not very successful, based on people's reports and you have to actually make sure that you suffer from venous leakage) or the implant. If you don't feel comfortable with any of these procedures, you can always wait and hope for future options.

I know it F^@$!ng sucks, but there's nothing you, I or whoever can do about it.

[kusher]

What are your symptoms? Difficulty in achieving erection or difficulty in maintaining? Did u try the highest dose of Viagra? Did it help at all?  

[sonnyjim]

If I took 100mg Viagra I'd still have to manually stimulate myself and it would be hard to maintain.

Could this be caused by whatever damage I have done to myself a year and 6 months ago?

If I take 5mg Cialis daily I sometimes wake up with a semi at best, never ever a full erection like I used to get. This is usually when I wake up needing a piss.

I never seem to get fully erect like I used to before this even while manually stimulating to porn etc it happens but how do I explain it, there's no pleasure behind it, no desire to be with a woman etc. Whenever I'm not manually stimulating myself I am in the fully flaccid turtled state all day long, I can't really feel anything in my penis even when I do masturbate and ejaculating is difficult and never feels like I have fully ejaculated like I used to. There's no real pleasure from mastuebation or sex.

My glans also has white spots from what I guess is a lack of blood flow.

[sonnyjim]

Also if a nice girl kissed me and I knew that we would be getting down to business, I can feel literally nothing downstairs and i stay flaccis. Whereas before I would get erect and be ready to go I would now have to bring myself to erection.

[cheeznips]

yeah i know exactly what you mean dude. Try shockwave therapy I've heard a lot of good stuff about it.

When i have sex there isn't a lot of pleasure behind it either. I orgasm but the process of sex isn't that fun. Im 100% sure its because i cant feel my corpus spongiosum or urethra though. Though kinda makes sense.

with most men the underside and the head of the penis is the most sensitive and those nerves are actually connected. your just gonna have to realize that you've damaged those nerves in the injury/fracture and it will take time for them to come back in the meanwhile you can do electro shock therapy. which iv heard good things about.

obviously its a good sign that your getting somewhat of night time erections, which is really good news. It means that your nerves are kinda working... damaged but still working. the real question for you and i is will our nerves completely return to normal? or, did we completely disrupt the nerves that it cant recover, or will we have partial recovery.

to me its pretty obvious that we injured or tore corpus spongiosum or urethra since those 2 parts can cause erectile dysfunction due to the injury to the nerves.

yesterday while having sex i went flaccid because my gf got really wet and i literally couldn't feel anything at all. I still got it back up and finished, but that never happened to me pre injury. the absence of my the feeling to my urethra and corpus spongiosum is pretty obvious.

i've noticed without the feeling to the nerves to the spongiosum or urethra i cant control my penis. i cant flex or give my penis strength. I lose erections because that part of my penis feels dead.

[suicidecomingsoon]

It's not the nerves. Feels less because there is less blood in the CS and in the glans, simply because of that.

I have not heard so many good things about shockwave, but it will not hurt you either.
I doubt it works and it will cost you a few thousand though

[sonnyjim]

Once again tried VED and I'm getting pain again in those lumps I guess I just thought it might of helped with my ED but I just don't feel like anything is going to help at this point in time.

If there is no way to reduce the scarring or pain and improve ED then I don't feel like I really have a future like this.

Man I miss how my life was a year and a half ago, how could all of this crap be so hopeless and incurable?

I don't really want an implant but it seems like the only real thing that can fix this and the thing is, I would rather die than live like that, especially at such a young age, it wouldn't be so bad if I was 50+.

I don't know what else there is to try if shockwave therapy is pointless and a waste of money...

Would total abstinence make things better or worse ?

[kusher]

Dunno if u should continue with ved or not. I heard alot of bad things about it and some ppl got severe ed from it cuz of misuse. Go nofap for 4 months and see how it goes. It might give ur organ the rest it needs. I tried it before and it was a game changer. I'm now on it and I'll continue like this till August. But u need ur nighttime erections to provide oxygen to the tissues. Just take 5mg cialis before u sleep. I can't stress how important it is for u to jog or run everyday. U need to circulate ur blood all over  

[sonnyjim]

Ok then, well i'll return here in September and let you guys know if anything has changed I guess.

Thanks for all the advice.

[cheeznips]

Does anyone have pain in penis during masturbation or sex? Maybe im still healing from my injury from july 4th 2017. Im guessing my corpus spongiosum or urethra is still healing from that injury but im not sure my urologist appointment is in october so its a while away. Im afraid ive been avoiding sex sibconaciously because of the pain. It just aches while i have sex, maybe i have a stricture or maybe its still healing idk.

[kusher]

For urethra issues, I highly recommend joel gelman. Treating urethra issues is not the only difficult part. Diagnosis is also hard and u need a urologist who works on urethra every week to maximize the outcome. Good luck. A general urologist will not benefit u. U need a reconstructive and male genital urologist. A general one will just BS u. Straight up.  

[Jack1909]

Does anyone have pain in penis during masturbation or sex? Maybe im still healing from my injury from july 4th 2017. Im guessing my corpus spongiosum or urethra is still healing from that injury but im not sure my urologist appointment is in october so its a while away. Im afraid ive been avoiding sex sibconaciously because of the pain. It just aches while i have sex, maybe i have a stricture or maybe its still healing idk.

I have since 2012 and got worse since 2014 but mine coming from surgery. Basically I have pain everything I do. But I repeat the cause is different.  

[sonnyjim]

What does coq10 actually do for this condition or is it basically another waste of money supplement?

Nothing seems to work for my severe ED and I'm doing everything to try and help myself including masturbation which, frustratingly, is not even difficult being that I never even think about sex anymore it's like that part of me is blocked or permanently changed. It's hard to explain my problem when even scans don't show lumps I can feel with my fingers.

I wish I never jelqed now as I had a good size and could go 3,4 or even 5 times a day and now I get no spontaneous erections at all, very weak morning woods which are about 3/4 of an inch smaller than they used to be and no girth since my penis feels soft when squeezed even when I'm "erect".

I hope abstinence can heal whatever it is that is wrong with me.

[Paolo]

Hi, CoQ10 is in every cell in the body, generally taken for its antioxidant properties for peyronie's;

https://www.everydayhealth.com/diet-nutrition/coq10-miracle-vitamin-or-waste-of-money.aspx

Unfortunately I don't think its going to vastly improve your situation with erectile dysfunction but by all means if you feel like trying it then the only negative will be on your wallet.
As with many supplements don't overpay thinking if it's more expensive = better, generally price is not an indicator of quality.  

[sonnyjim]

It looks like I'm probably going to need some type of surgery at least and as many people have said, probably an implant.

I have read a lot of things about the penis healing itself during abstinence and a few people who were told they had venous leak apparently started getting erections again after not masturbating for 4-6 months so I'm going to try this I guess I have nothing to lose.

I don't believe this is a pelvic floor issue I feel like something is blocked as I have what feels like a squeezing sensation like 24 hours a day. The worst is the shrunken flaccid that it is causing me and obviously the fact that pills no longer work.

I don't really want an implant because from what I have read I will lose more size..  I want to ideally gain my size back but I need my dick to heal first if it's possible after a year and a half of these problems.

Wish me luck guys and obviously any advice would be appreciated...

[kusher]

Yeah me too. I heard some stories of ppl restoring their erection and sensation after 6--8 months abstinence. If that's does not work and u want an implant. U only have one guy which will give u an implant without complications ( andrew kramer ) he is number one in the world. He had done more than 2000 successful implants including salvage. If u go to someone else then u might end up with complications that will drive u more crazy than ur current situation. U can check his YouTube channel. He uploads 5 new cases every week. Each one is more complex than the other. But don't rush!!!! Penis does heal given proper care and recovery time... evidence? Check John Wayne Bobbitt, his wife amputated his penis and threw it in the street. He got his package reattached and 1 year later became number 1 porn star in the world with best sales and numerous awards. If there is a will there is a way!

[sonnyjim]

I doubt I'll ever able to become a porn star now my size is 6.5 at best and after an implant I don't know what I will end up with.

Does scar tissue actually go away? I mean I know it will always be there but can it shrink etc? Because I doubt I will ever have an erection with it like this...

Very upset because I did used to have a good size but tried to be greedy and did jelqing which I think was what caused all of this crap...

Wish I could go back in time...

[suicidecomingsoon]

Jelqing destroys lives.
I understand what you feel to me the same thing happened, those sites should be closed and their owners punished for lying and giving dangerous advice

[sonnyjim]

Yeah and then when I made a post about it they told me that jelqing would correct it and get rid of the lumps... Those people are retarded.

Also, in the case of that guy getting his penis amputated and recovering, how can whatever issue I have be worse than that :S I mean, I guess he probably had a lot of money and so he could basically perform miracles. I don't have a lot of money to get this sorted out but even these lumps are scar tissue, how can that be harder to fix than having your penis amputated? It makes no sense...

Can't they just cut out the scar tissue without having to go straight for an implant?

[cheeznips]

Sonnyjim i thought you injured yourself from sex not jelqing.

I cant even sleep because im so anxious of my numb urethra it feels so different that im having panic attacks

[sonnyjim]

I am not sure which one it was to be honest as I was jelqing but the pain happened after a night of sex with my girlfriend. If it was the jelqing there was no pain at that time but I do feel like it could have contributed somehow making my dick weaker of over engorged or whatever.

[suicidecomingsoon]

It is not worth asking in such forums, they will deny that jelqing can cause any harm, they will say that it is a pelvic floor problem or that you are a troll and they will make fun of you among them. Their solution will be more jelqing..stupids

The problem is that although your problem was scar tissue (which I think is venous leak mainly from glans with minor scar tissue because I have the same) if you already have ED surgeons will not want to operate since they probably do not believe that you will improve your ED by removing the scar tissue but rather worse, since these operations carry the risk of causing ED.