Very bad situation

[PeetyPeet]

Purely based on my own experience, I believe even with Pentox, improvement is difficult. I think supplements may help you to stop getting any worse, but they may not cure you.

[sonnyjim]

So why are we all here man? I know I don't want to live like this forever.  

[TonySa]

Other than this thread, lots of improvement stories, slow and steady...

[sonnyjim]

The lack of posts about improvement is worrying I'm not gonna lie...

Everyone says throw all you can at this thing but really does it ever go away? Even with pentox etc everyone here still has peyronies, it doesn't go away... Things are never the same and that for me, is the hardest thing to get my head around.

Nobody will ever want me in that way again, sexually.

If I stop posting here it is safe to assume that I finally had the balls to do what I have been obsessing over for the last year+

[cheeznips]

Well before my last injury I was healing and gained allot of my sexual function back. It does take allot of f'^+'ing time, but idk if it will come back this time. If your not getting erections at all or if it's really hard to hold them just get the implant dude talk to your doctor. Use your money on things that will make you happy.

[sonnyjim]

If I had a billion pounds I wouldn't be happy right now.

And an implant is probably my only option it would be a good idea if I wasn't just going to lose more size than I already have.

[cheeznips]

Imo cials is probably the best medication. It increases bloodflow to penis to help break down plaque which helps erections. Over time this is probably the best medication.  

[TonySa]

With high volume implant docs you shouldn't lose size and with time can regain most lost before surgery if inflating daily.

[sonnyjim]

[Full quote removed - USE REPLY] PM sent

Even after 1 year? Is it likely the plaque will go away or shrink after that long, allowing my dick to actually work again?

An implant is my very last option if this cannot get better but honestly I don't know where I would get the money from to pay for it and I have read that not all outcomes are good concerning loss of size etc.

I just don't know how I have no curve or bend and severe ED while others with major bends still have no problem with ED. Something internal must be seriously wrong.

[cheeznips]

something is probably wrong with your nerves, just like mine. Or you have a severe venous leak which i probably doubt because ultrasound would have caught that. I'm like you my underside and urethra are completely numb. i lost all my sexual appetite.i'm really sad dude.i can masturbate and ejaculate but the process isn't fun so the only reason im doing it is to orgasm and try to get blood flowing through my penis.

insurance would probably help with implant. i mean you'll probably lose size but at least youl be able to have erections and orgasm. i don't even have enough money to see a different urologist to get my urethra checked.

[sonnyjim]

Not only do I have severe ED i cannot ejaculate and I have very little sensation in my penis compared to before this. No spontaneous erections, no morning wood, no change of state of the penis (i.e. semis) unless I touch.

Pretty much useless unless I take a lot of Viagra and manually stimulate myself.

[sonnyjim]

I am using VED even though it doesn't seem to do much for me and taking Cialis 5mg daily along with:

Coq10
L citrulline
Acetyl l carnitine

Will this still improve my situation without Pentox? Is Cialis the number one treatment or is Pentox and why is it impossible to get hold of it if it is actually helpful.

[TonySa]

Sounds like a good plan.  Without identified plaque you're probably good w/o pentox.  CoQ10 has similar effects so that's good.  Maybe also consider adding any of these: regular exercise, low carb diet, manual stretching and reverse kegels.  

[cheeznips]

so you just woke up the morning after sex and just had pain in the area? you didn't hear a crack or have sharp pain during sex? no hemotoma in the area in the morning any bruising or anything? were u drunk or high?

[sonnyjim]

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I did have a hemotoma it was too painful to touch or sit down or anything for about 3-4 months when I woke up in the morning it just felt painful and cold that's the best way I can describe it.

[sonnyjim]

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I do have lumps my penis feels like a snakeskin when I run my fingers over it for some reason the urologists I have seen cannot feel it though but I know exactly where it is because I can feel it even when I'm not touching it.

I don't have any pain anymore though it's just numbness. My penis basically is lifeless now  

[Jack1909]

You are young and your nerves must heal. Give them time it can be a long process. Don't rush into an implant please. I know it's hard even one more day dealing with this crap.  

[Pfract]

It still amazes me how people can't understand that ED won't improve on it's own no matter what you do, and normally, it's Quite the opposite. Why can't people face the truth?  

[Sadguy]

Most likely, you are right Pfract

[sonnyjim]

[Full quote removed - USE REPLY] PM sent

So what is your advice then?

Implant ?

[cheeznips]

So you probably fractured it. Do you think you damaged the urethra?

I disagree I believe ed can fix it's self many thing cause ed so depending on the cause. If someone has a really bad venous leak or if they have permanent nerve damage then probably not but plaque can break away over time and nerves do heal themselves.

[TonySa]

If you're treatment regimen doesn't work after whatever time you're willing to do then it's ED drugs, if that fails VED or injections then implant.  But all require us to take control and act. If we're immobilized it's probably the hopelessness of depression kicking in. ☹️

[sonnyjim]

I'm already using ED drugs (Cialis 5mg) + VED.

And a shitload of supplements.

Still do not get morning wood or spontaneous erections. Only get erections with a lot of manual stimulation.

Will taking Cialis daily do anything to improve my ED over a long period of time or should I resign myself to the fact that I will probably need an implant ?

[Sadguy]

Try with cialis for a period of time daily

Do not spend money on supplements that will not do anything, because if cialis or viagra do not do anything, the supplements will do less for your ED. You will be spending money for nothing, and if finally your only option is an implant you will regret having spent money on unnecessary supplements, because an implant is not cheap

[sonnyjim]

If this doesn't improve I doubt I will be alive long enough to worry about getting an implant to be honest.

This isn't how I saw my life going and I'm still praying every day I will wake up and things will be different.

[sonnyjim]

If I am still getting erect by lots of manual stimulation (no morning woods or spontaneous erections) is this a good sign that things might improve?

[TonySa]

Seems like it.  Did they do an ultrasound for venous leak?

[sonnyjim]

I have had an ultrasound and an MRI which they said came back normal. Does that rule out venous leak?

The scariest part for me is that my dick feels like a snakeskin and they tell me they can't find any lumps and it's all in my head when I know it isn't.

I have a lump right at the base of my penis which I guess is why I have flaccid shrinkage too, what are the chances that this will eventually improve or do I have to live with my dick progressively shrinking even more?

I hate this crap...

[TonySa]

If erect for ultrasound they prob checked for venous leak.  I'd say you may need to listen to them re lumps being veins or such and keep working on decreasing ED with supplements and traction or VED.

[sonnyjim]

I don't see how they can be veins though that's the problem. They don't move and they are solid.

Maybe I don't have typical peyronies, but there must have been some trauma for there to have been so much pain when it first happened. My sex life before this was great I don't lie, now it is non existent.

Is there a chance scar tissue can still decrease or soften and my ED improve with supplements, daily Cialis and living healthy? I want spontaneous erections to come back and my size back to where it was - or even close.

[Werther]

Dude, everybody already told you what you should do. It's been 6 pages of posts and you still keep whining over the same things. No offence, but you won't find a solution this way.

And for the last time, from what you told, you don't have any peyronie/scar/fibrosis and - trust me - it's better like this, because nowadays there's NO WAY to get rid of fibrosis (a part from surgery or maybe Xiaflex, but I don't know how much this last one could help with erectile problems caused by the scarring).

[sonnyjim]

I would like to believe that I don't have any scar tissue but nobody can seem to explain what the lumps are if they aren't scar tissue.

Nobodies sex life goes from being great to being absolute crap gradually over the space of a year for no reason. This is why I keep asking the same questions as you've said because I keep getting different answers. I won't improve, I will improve, get an implant that is your only option, see if it gets better over time.

Nobody knows anything, urologists don't even know much about this because nobody can give me any answers as to how my dick has shrunk about an inch in length and girth in its flaccid state and I have severe ED but there's no cause for that.

[Werther]

No internet user could ever tell you what your lumps are. Even if there were docs beetwen this forum's users, they couldn't tell you neither, cause they can't see and feel your dick. You just have to use your logic and we've also spoken about this via PM: it's impossible that you have fibrosis, because two ultrasounds didn't detect anything (and when there actually is, they spot it even when the penis is flaccid) and you don't have any degree of curvature and/or deformity (you would still show no curvature only if you have scar tissue exclusively in the tunica's septum, but you said that this isn't your case).

Then, you should be grateful if you don't have any scar tissue, because the sad truth is that today there are no drugs capable of eliminating it (if there were, this forum wouldn't probably even exist, since everybody would be able to completely get rid of peyronie's damages), but still you keep insisting that you must have it.

I read that severaly guys adviced you since the beginning of this topic to get your hormones checked and get a cavernosography (because, based on what you say, venous leakage looks like the most probable cause of your Erectile Dysfunction), but you simply kept ignoring what they told you.

You keep receveing different answers related to improvement because you haven't even discovered your Erectile Dysfunction's cause. Obviously it can improve and you can even actually heal if your cause is merely psychological or depending on a hormonal's imbalance (e.g. low testosterone). But if it's due to fibrosis (and most probably it would be venouse leakage in a case like this), it's not going to improve, ever (I totally second Pfract on this point). Who tells you that you can break up scar tissue by taking supplements or cialis or whatever is just spreading a whole bunch of BS (so, coming back to what I was saying before, you should actually hope to have NOT scar tissue).

So, in my opinion - I'll repeat myself for the last time - get a cavernosography and check your hormones. Only then you could report back to the forum on these tests' resulsts.

In the end you could probably even realize that your Erectile Dysfunction is just due to clinical depression (it sounds crazy, but I've read a lot of cases of people whose dick didn't work just for this reason and you said that you have no libido and you've seen psychiatrists); if it was like this, there would be options far better than the ones used to treat organic Erectile Dysfunction.

[sonnyjim]

I don't think UCLH do any other tests other than MRI or ultrasound for this sort of thing otherwise I would of had it by now surely?

Also can venous leak be checked on ultrasounds? I guess they would of told me if they saw anything unusual on the test.

I would love to believe this is all in my head but the thing is, I am not even depressed about it anymore it's been so long.

[cheeznips]

When I took my Doppler ultrasound the tech said Doppler ultrasound isn't used for seeing scar tissue it's meant for checking blood flow and arteries.

[Jack1909]

Sonny I feel for you but try to be a little realistic. It's just been one year and some months you cannot say it's been so long. Come on...
People in here have been around these issues for decades..
you cannot give up just after one year..

[Werther]

Sonny, you keep proving that you don't even read what people write to you: I told you both on this thread and via PM that ultrasound done while erect checks for ED problems (both arterial and venogenic); for venous leakage you have to see EDV and RI values (I swear this is the last time I'm going to say this). Anyway, doppler can't tell you what and where the incontinent veins are, even if it spots leakage (and that's because it just checks how fast blood comes in the penis and how fast it comes out, suggesting veno-occlusive dysfunction when end diastolic velocity is too high). A cavernosography is more precise than a doppler when it comes to spotting and defining the degree of venous leakage, because its aim is to show detailed penile venous anatomy. Ask for this at UCLH and if they deny it to you, go privately (I don't know how you can't undestand such obviousness).

@cheeznips: please, stop telling BS. "ultrasound isn't used for seeing scar tissue"? Are you serious? That's the first exam you get to diagnose peyronie's and even newbies know this! No wonder that the OP is confused with people like you that don't even know what they have in the first place and claim to advice others.

[TonySa]

Sonnyjim, it's great everyone's rallied here for you. Now it's up to you to: 1) get your hormone levels checked, 2.) get a cavernosography to check for causes of ED, 3.) stop focusing on having fibrosis/plaque, and 4.) treat depression.  Let us know how that goes once you've taken action on these.  A counselor/therapist/Health coach can help you w taking action.

[NeoV]

My lumps took two whole years to go away, and I had to abstain for long periods of time. In my case they were lymphatic vessels, but I think lumps can be scarring as well. In that case, simply do the treatments, the physical therapies. Do what you can, and that's about it. Luckily girls don't really care about what your penis looks like, they just want to feel sexy themselves.

[sonnyjim]

I just want a working penis again that's all I want; how am I supposed to make a girl feel sexy with this?

[cheeznips]

Idk this is my opinion but id wait another year and if there are no improvements I would just go for implant dude. Let's face reality it's obvious you can't live like this. It's hard enough for me too. The numbness is pretty killer. Like I can't feel crap when I'm having sex which forces me to be really rough just so I can orgasm. It's really depressing. My urethra and cs are 97% numb.  

[sonnyjim]

Apparently Cialis improves things like this over time but I can't see it. I have been taking it for three months and still wake up without morning wood and can't get spontaneous erections still but I guess I keep taking it, hoping.

I don't want an implant especially if that means losing more size.

If I can still get erections with a lot of manual stimulation should I keep masturbating or should I just leave it alone. Will that make things worse ? I.e use it or lose it.

[Paolo]

I am going to play Devil's advocate here, get off Cialis!

I for one do not think that these drugs should be taken by guys of such a young age, it seems to me that some guys are taking these like smarties?MM's and just treating the symptom and not the cause, see;

Viagra Resistance
Cialis Dependency
Cialis - Dangers

Heh, I would try it for a week or so, what do you have to lose at this stage. I would seriously consider after you stop PDE-5 inhibitors is to get a hormone check, on the NHS it will be a total hassle, I would even consider an electrocardiogram - or ECG, just precautionary of course, I have had several over the decades just to ensure I am okay, and I am  

You are getting performance anxiety all the time, it's killing your erection and probably your libido, you automatically think 'can't perform, need Cialis'  

Do not masturbate for at least 7-10 days then check your response to stimulus, be very strict on porn use meantime.

[sonnyjim]

Thing is that Cialis doesn't work either so it can't just be performance anxiety or anything.

I don't even have a girlfriend anymore, she left me in the most brutal way she could.

[Paolo]

So stop taking it then, and your girlfriend left you because of your dick, ridiculous, she left you because you (probably) stopped being the guy she was first attracted too, funny, caring, self confident etcetera.
And are you equating having a girlfriend with YOUR self worth, again ridiculous.

I am honestly being kind here in saying take a good hard look at yourself in the mirror, lift yourself up, exercise, eat well and think of all the positives you have in life, yes, I know sex is very important, so do a lot of research on ED and post back on any benefits you experience.

The fact that you have taken less than 10 minutes to respond to my post proves that you are clinically depressed, for sure you are.

Every member who is responding to your posts cares for you, otherwise why would we post??

I have in the past been clinically depressed (was prescribed Prozac)and yes, for the period I was on it life was good, but I was a zombie, so I know and recognise depression symptoms. I was in the darkest, darkest place with depression and was ordered by a family member to get a diagnosis, it honestly saved my life, get to a Doctor who can refer you to a specialist in depression please  

[suicidecomingsoon]

Your ED is not psychological, that is BS. You have been more than a year like that, believe me that is not psychological. If it were psychological, injections would work

Many people are exactly the same as you for doing jelqing. They have the same problems as you do now  

[sonnyjim]

I know it's not psychological just by running my fingers along my dick, the thing that upsets me is that I know it will never be smooth and normal again.

And yeah, to be honest I do think she left me because of my dick because before, everything was perfect and after this happened to me we gradually drifted apart no matter how much I tried to hold on it was never the same...

I am pretty convinced that this is scar tissue what else could it be? I don't care if nothing came back on the ultrasound or the MRI there are hard lumps so maybe they aren't typical peyronies plaques but there is definitely something there and they aren't veins or anything like that.

Also yes it is hard to be confident when your dick doesn't work but not only that, I was confident before but now my flaccid size has shrunk to a pathetic size. How am I supposed to be confident with that?

I wasn't ever a porn star size but I was happy and confident and knew I was good in bed. Now i can't do crap.

[Werther]

I am pretty convinced that this is scar tissue what else could it be? I don't care if nothing came back on the ultrasound or the MRI there are hard lumps so maybe they aren't typical peyronies plaques but there is definitely something there and they aren't veins or anything like that.

Well man, at this point I must definitely think that you are a troll.

According to the way you think, why don't you take chemotherapeutic drugs? Because, *I don't give a F~@< if an MRI and an ultrasound didn't find crap, I'm sure that these lumps are solid tumors*. What the F~@< do you have in your head?

And it's completely useless that you keep bragging about this story, because even if it was true that yours is scar tissue's Erectile Dysfunction you would find yourself in a sea of deep crap and nothing could solve the problem (nor PDE5i, neither injections); in a case like that, you would only have two options: getting an implant or keeping your problem, while waiting for newcoming options (i.e. regenerative medicine and/or drugs capable of reversing fibrosis) that are yet to come and nobody know when (and if) it will happen.

People have been giving you advice over and over but nonetheless you keep asking and writing the same things in an infinite loop.

[suicidecomingsoon]

I don't think he is a troll, he has the same symptoms that I and other injured people have for having done jelqing. But I don't know why he insists on saying that he has peyronie.
Sonnyjim your symptoms are much more likely venous leak, especially because of the soft glans

Check venous leak if you can with a cavernosography or cavernosometry. But certainly these tests are almost not done

[sonnyjim]

Yes I am a troll, I love to spend thousands of pounds trying to figure out what these lumps are on my cock if they are not scar tissue. Maybe it's cancer? I doubt that as I would probably be dead by now. And those two things are the only two things that can lead to having lumps on your dick so, I guess I must be lying.  

You are starting to sound like the people on PEGYM who encourage others to break their dicks and then tell them jelqing is perfectly safe.

PS I am planning on having those tests done I just don't know where I am going to find the money at the moment. There is a hard lump at the base where your dick connects to your body, I guess that's probably just in my head as well though.

When I press my tunica it feels like sandpaper.

Also, if scar tissue ALWAYS shows on an ultrasound why are so many other people having the same problems as me? I have not said it was typical peyronies as I do not have a bend, just shrinkage and severe ED.