Very bad situation

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

sonnyjim

Hi guys just looking for a bit of advice.

I had a Doppler ultrasound last week and the urologist said he sees no problem and everything seems normal except I have had severe ED since last November and all of the following symptoms:

Smaller flaccid/weak erections
Lump like a cord on bottom of penis (CS)?
Smaller erections/low EQ
Need Viagra to get erect and even that doesn't make me fully hard
White spots on head of penis (lack of circulation?)
Little sensation (sex doesn't feel half as good as before)
No pain (had pain erect and flaccid initially that lasted 6 months)
Cannot ejaculate during sex (lose erection before that or when I do ejaculate nothing 'comes out
Penis doesn't seem to expand like before and even after taking Viagra (nothing happens without it) that only gives me a longer flaccid and it takes a lot of manual stimulation to get erect (70-80% at best) and if I stop I will lose it in seconds.


I am not sure why nothing could be found on the Doppler but does this rule out Peyronies?

I know there is something seriously wrong with me but I'm not sure what it is, do these symptoms sound like Peyronies? I have no bend or curve while erect but my flaccid is constantly turtled and my erections are a lot weaker even with 200mg Viagra.

Any help would be appreciated, my relationship is really suffering and I can't do anything about it.

I am 28 years old, I smoke too but I always have and it hasn't affected me THIS much, ever.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

Man the injuries from jelqing are serious, there are a lot of people injured, I have your same symptoms.
Soft glans is very common in injured from jelquing, and it is a venous leak, there is cases here like your and in FT too. I do not want to scare you but implant seems the only solution if it does not improve with pills or injections
Was your doppler with injection?  

sonnyjim

Yeah I had an injection and that didn't even give me a proper erection only a longer flaccid which was still soft.

Is this Peyronies? because the guy who did it said he saw no problem with it which is strange because I swear 99% of men would get an erection with one of those injections
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

Probably is not peyronie or at least not peyronie as it is commonly known, I think it is more like diffuse fibrosis,  some doctors say it is because to the increase of collagen by the exercises which causes tiny breaks in the tissue which makes its expansion is more difficult, many doctors dont see the problem with a doppler, maybe you should try a cavernosography. I had a doppler and it did show nothing, but like you I did not get an erection, only a bigger flaccid, then I got a cavernosography and it showed venous leak.

But you should have this in your mind, doctors know nothing about the problems in penis, unless you have a big curve or big plaque or many fibrosis they will not know that say , and probably they will tell you that it is in your head because you are young but you like me, you know it is due to an injury, so do not trust in urologists, they know nothing about problems in penis really and they can only offer temporary cures like pills or injections that in some cases do not work or as a solution implant if pills or injections do not work. They really do not know how to do anything else

And yes maybe not 99% but 80% get a very good erection with injections

sonnyjim

Is there any hope in this getting better or my erections coming back? I mean, other than pills which don't do much anymore?

I have tried most things that people have recommended and I'm still seeing no signs of improvement.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

In my case and in many other cases it does not improve by itself, in my opinion it will not improve by itself, kegels and other things with venous leak is BS. Maybe some surgery helps, but it alone will not improve. I tried many things too (no porn, no fap, kegels,eat, exercise.. all BS)

It is an organic problem, and if pills and especially injections do not work(because injections is the last wall before implant) it is very difficult another thing like eat or kegels can help much

sonnyjim

I just want my dick back to how it was this is ridiculous I'd rather have one leg than have this problem...

Before it was all fine and now I can't get a decent erection no matter what I do or try, what kind of crap cards have I been dealt here.



33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Christopher1

Start with VED and nocturnal viagra.

This will bring blood back into the penis.
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

suicidecomingsoon

I would not use VED, it is very similar to jelqing, if you are not very careful, it will only make it worse.

sonnyjim

I have started taking (today):

coq10
l arginine
pine bark extract
vitamin d2+d3

I am also going to use gentle traction. I dunno what to expect really, but my performance is suffering greatly with this problem and doing nothing hasn't changed much.

Could a poor diet make matters worse? Would better diet help me get stronger erections?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

JayGould

Sounds like you have CPPS (Chronic pelvis pain syndrome). I have the same thing, but I have a curvature as well. It's basically cramped muscles in your pelvis. You should visit a physical therapist who specializes in the pelvis and get an evaluation.

sonnyjim

So is it possible that I don't have Peyronies or Venous leak? Would these have showed up on a Doppler ultrasound? because they told me everything was fine, its not and hasn't been for 10 months.  
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Paolo

sonnyjim, I would add to your supplements L-Citrulline, I use it myself and can be bought quite cheaply in powder form
Citrulline Benefits

or
https://examine.com/supplements/citrulline/

Yes, a poor diet will make things worse for sure, changing diet habits is a big commitment however.
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

sonnyjim

I will try and add L citrulline but I already seem to be spending a lot of money on things that haven't worked at all for me.

Any one know if peyronies can be identified on an ultrasound? because being told you are fine when you have had a cord like lump for 10 months and lack of morning woods or spontaneous erections you do kind of wonder if you are going mad or not.

My problem is sustaining erections, during sex I go soft and can't get hard again. Will traction help with this at all? diet? or am I stuck with this crap?

Urologists seem clueless.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

JayGould

sonnyjim - Yes, it is possible everything is fine and that it's simply a muscle contraction that happened during the injury. If you were very stressed about it immediately afterwards the muscle may have cramped permanently.

sonnyjim

That doesn't explain the cord like lump that will not go away no matter what I do.

I don't even feel like I actually have a penis right now. Could there be another reason for this other than scar tissue/peyronies? I thought I would find out from a Doppler ultrasound but obviously not.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

JayGould

It could still explain the cord like lump. I have a cord like lump as well. Do you have any of these symptoms too?

- Hard in flaccid state (not erect, just hard while still flaccid)
- More visible veins
- Change of color (more red?)
- Less blood flow to the glans

sonnyjim

I had hard flaccid when I first started getting the pains 10 months ago but sometimes it goes away and comes back now and again.

My flaccid size has changed greatly and unless there is pain then I could pretty much frget I even have a dick.

No libido
No erections without Viagra (which even then is a struggle)

Had Doppler and apparently I'm normal and fine. wtf?

The cord doesn't change or move but I can feel it there.

Numbness and less sensation in penis
Losing erections before ejaculation during sex
Need a lot of stimulation to stay hard (70% of my previous erection quality/size)
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

Soft glans is a clear example of venous leak, it is not less blood flow to glans, it is bad out flow, the veins which keep the blood in glans are f'^+'ed (because you continue with soft glans even with viagra or injection?, because if it was arterial problems your soft glans with injection would be fixed)

In my opinion CPPS is BS, looking for jelqing injured on the internet, there are many cases (search ukguy for example) and they spend years trying things that do nothing, including exercises for the pelvic floor and nothing works for them and all with soft glans (some fixed their soft glans with surgery) but several still having problems maintaining an erection. But listen if you want to spend your money on supplements that will do very little or nothing, ok, it is your money

sonnyjim

I actually have white spots from bad circulation on the head of my penis.

it's frustrating watching your whole life fall apart for something you took for granted before and now.you wish you could have it back but it's gone, it seems like a nightmare.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

sonnyjim

Does the Doppler being 'normal' rule out Peyronies or venous leak? or does it actually mean nothing?

I did it when flaccid, had an injection (which gave me a slightly longer flaccid) and apparently everything looks fine.

Why does my dick feel smaller then and how is it almost impossible to get erect?

Would a better diet help me at all?  
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

No, doppler is not a very precise tool to detect venous leak, it fails many times to detect venous leak and fibrosis if your fibrosis is little or it is not a big noticeable plaque (diffuse fibrosis), doppler wont catch it, it is better to detect arterial problems
If you had an injection and you did not get an erection, it is impossible that everything is well, it is more like something is bad for sure

You penis feels smaller due to you have problems with blood flow, probably bad out flow

I would try with viagra or cialis for a time, or maybe you can try with a higher dose of injection or bimix or trimix or a ring with them

sonnyjim

What are the chances of this getting better?

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon


how long have you been dealing with this?

Tychy

CPPS is actually not BS. But you can diminish blood flow to the glans by either having problems in the pelvic floor, jelquing induced artery bursting or arteriosclerosis. So the argumentation "it didn't help for dick stranglers" does not mean it's not working for people with a hyperactive pelvic floor.

And you will know if you have a hypertonic floor once you connect with down there and feel it drop the first time in months or years.

I also have a small white spot on the left side, which is usually "the good one" and I'm on Cialis. Didn't find a solution but also don't care at the moment. Reverse kegels usually expand my glans, so it's a blood pressure problem.  

suicidecomingsoon

Well, you can think what you want, but I have been investigating and talking with injured from jelqing people (like me) for several years, and almost all have the same symptoms, these are difficult to get an erection, since they need a lot of physical stimulation to get it, and when they get it they are on the edge of orgasm, in addition if they stop stimulating, the erection will fall in seconds, also they almost all have soft glans, it only swells before orgasm, they did reverse kegels and helps them very minimally, is not a cure or an approaching to be a cure.

Some of them did venous surgery and helped them, several fixed their soft glans although some still had problems with the corpora cavernosa.
That I know arterial problems did not have, some did dopplers and some did not get an erection with 20 alpostradil, others got erection but with the glans and soft cs. Pills did not work in them

As I said some were under venous surgery and fixed their soft glans, but many continued to have problems with the corpus Cavernosum
I think all this makes it quite clear that the soft glans problem when it comes from jelqing is a venous leak, and it also seems to indicate that while the soft glans might be fixable with surgery in some cases, the corpora cavernosa seems not to be possible in the majority


sonnyjim

Quote from: suicidecomingsoon on August 29, 2017, 02:06:23 PM
how long have you been dealing with this?

Since last November mate...

Urologists are even clueless it seems.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Jack1909

I've been dealing with it for a decade... don't rush, keep calm  
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

sonnyjim

A decade? if I have to deal with this for much longer I think I'm gonna go crazy.

I can't even get Pentox which has helped everyone the most from what I've read. I'm 28 years old and I feel like my life is over before it ever really started to be honest.

What would of been the best years of my life are spent looking for solutions to a seemingly impossible situation and what's worse is I didn't even know this much damage could be done to a dick.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Jack1909

I know you are upset but you cannot say that, just don't leap to conclusions. It might upset you even more, but from the outside it's pretty clear you are emotionally involved right now..I'm pretty sure things will improve over time. Pentox is helpful if you have Peyronies Disease and plaques, it's useless in my case too..don't worry if you can't take it's not really a game changing for people like us. On the other hand, cialis might be useful..
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

Jack1909

31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

sonnyjim

It's not that I can't take it, I haven't had a diagnosis yet and I'm being told I'm perfectly fine because nothing was seen on the Doppler.

I've tried Cialis and Viagra which sometimes seem to work and other times don't work at all which confuses me like is this getting worse now? not sure.

No morning wood, no spontaneous erections, nothing. To think, before this I could have sex two or three times a day and now this, its depressing.

There must be something I can do to get my dick working again? My diet has been pretty bad, sometimes I don't eat at all with the stress of this, could that be a factor?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Tychy

@sonnyjim:
Did you do jelqing? I can't find anything in this thread about you doing this. But suicidecomingsoon is talking all the time about it?

I think the not ejaculating part is important. Does it dribble out afterwards or does nothing come out and your pee is cloudy afterwards?
Even when your penis is completely limp, ejaculation will lead to semen coming out (just not high velocity streams). If it does not, but urination is fine, means something is obstructing the flow while you are having an orgasm. This is either a problem with the prostate or with muscles. There isn't so much plumbing that's not shared with urination.  

Jack1909

It could be, it might be the quality of the sleep as well..there are tons of things capable of altering such a delicate balance. My suggestion is to give yourself a break..if you are doing stop evaluating your erections, don't take each of them as a test, it's just harmful. Take cialis before going to bed for some months not just when you need and see what's going.
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

suicidecomingsoon

Quote from: Tychy on August 30, 2017, 03:04:01 AM
@sonnyjim:
Did you do jelqing? I can't find anything in this thread about you doing this. But suicidecomingsoon is talking all the time about it?

Man he is not the first time he writes here, if you are interested you would read his story a little before doubting what I say
He said "I would not recommend penis enlargement to anyone if you are talking about jelqing or stretching etc... This is what I believe caused the formation of scar tissue on my penis and I've lost length and girth. Had I of not read up on penis enlargement I wouldn't be here now. suffering."

suicidecomingsoon

Quote from: sonnyjim on August 29, 2017, 03:22:36 PM
Since last November mate...

Urologists are even clueless it seems.
Wait until one year, if it does not improve, I think it wont improve by itself after one year IMHO

sonnyjim

If it doesn't improve after one year is it ever really likely to?

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

[Full quote remove - Admin]

I have this crap since some years ago and it never get better, It is more like it gets worse
The jelqs forums should be forbidden, banned, and their admins  they should pay for all the young people they cheated advertising their exercises as without risk.

In a just world they would be dead after being tortured

sonnyjim

Would diet play any part in this as well or doesn't it really matter what I eat? My diet has been pretty bad and I've been starving myself some days because the stress makes me have no appetite.

Funnily enough on helping forums there are still people promoting jelqing to people with scar tissue and peyronies, its really like a sick joke.

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

Yes, eat healthier will help, but the improvement will be light, not a cure or a come back to before injury. Another thing you could try is hot baths, it will do nothing for venous leak but it could help with hard flaccid and it is good for blood circulation

Yeah those forums are BS, their advice harms people, and they are destroying the lives of many, I can not understand how they remain open, I know dozens of injured by these exercises

sonnyjim

Would traction help at all? Something like the Phallosan?

I don't have a curve or bend at all but it could stretch the scar tissue (if thats what it is) in theory?

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

Maybe I am not sure, I do not know, but for testing you lose nothing

Paolo

sonnyjim, I would think a VED would be of more benefit than traction, if you don't have a curve or bend then I think a VED would 'stretch' the scar tissue.

I don't have any experience with VED however but if you search member 'Old Man' then you can read his many posts, he is the expert on VED usage. If used safely then VED can probably assist getting your erections back.

Get your diet in order also, eat more fruit and vegetables, vegetables especially.
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

sonnyjim

This is absolute hell, I swear to God, I would not even wish this on my worst enemy.

Not having a proper erection for 10 months and being told everything is alright after having an injection in your dick which may or may not even make things more worse than  they were to begin with and still not knowing what is wrong with you.

Not only am I losing the will to live, I lost all enjoyment in my life and now all I do is come home from work and lie in bed all day, looking for miracle cures on the internet.

I have a girlfriend that i am trying my hardest to keep with me although my dick keeps shrinking and the ED getting worse and all the while I feel like my life is on hold because even urologists won't show me enough concern to figure out what this problem is.

To think, 10 months ago I was loving my life and never even though that much about my dick is a bitter pill to swallow.

I know it's selfish but I really have felt like I want to die for so long because there is nowhere to turn and I can't see the point I  anything any more.

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Jack1909

In the coming years more treatments will be available, hopefully..don't give up.
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

sonnyjim

In this case would anything at all help me get harder erections? And what does an ultrasound rule out, if anything? Is it basically pointless to have a doppler ultrasound then if scar tissue or venous leak cannot be found? And if it isn't that, what could it be causing these problems?

I hear about other people seeing improvements but I'm not seeing any no matter what I do. I have also tried VED but I don't feel as though I can even maintain an erection long enough and it goes down as soon as I have the VED on, it's like blood isn't moving through my penis even half as much as it used to.

I doubt traction would even work as I've been stretching manually since last November and it hasn't helped me one bit, I still have the turtled flaccid this crap caused me back then, it's like it doesn't stretch and blood doesn't circulate well enough so it's always in it's tiniest state, no semi, no erections etc. Before it would vary and I would get a semi just with a thought of seeing my girlfriend and now, the only state I see is turtled flaccid.

Kegels don't seem to push blood into my penis like they used to either, I can hardly feel a pull. Reverse kegels are the same.

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

LWillisjr

Quote from: sonnyjim on August 31, 2017, 02:05:34 AM
Not having a proper erection for 10 months and being told everything is alright after having an injection in your dick which may or may not even make things more worse than  they were to begin with and still not knowing what is wrong with you.


I am trying to understand your point here.....  Did they give you an injection and you did achieve an erection??
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

sonnyjim

Yes I had an injection and no, I didn't get an erection.

But somehow that's ok and everything is normal, nothing unusual found despite my symptoms and obvious (to me) lumps.

Feel like I'm going crazy.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

PeetyPeet

My heart goes out to you Sonnyjim - you remind me so much of my younger self. My ED started when I was a few years younger than you are now and like you my life went from blissful to horrible in the space of a few months. I had a frustrating time with pretty much all the medical pros and in the absence of answers I would spend hours, normally until the early hours, reading anything and everything online in the hope of helping myself. Alas, this forum wasn't as visible back then as it is now so I never came across it.

Almost 14 years on I'm sad to say I'm just as impotent. Severely so, in fact....but I've had all the tests, ultrasound, caversonography, penile-MRI (injections never worked) and the Nocturnal Penile Tumenesence test and despite a lengthy history of consistent (worsening, actually) symptoms, as far as the medical pros are concerned, I'm completely normal and it's all in my head.  

That someone as severely impotent as myself can be considered normal says to me that current methods for assessing ED are inadequate, and I would take any results with a pinch of salt....especially as your injection did not induce a full erection. Let me guess they explained to you that you would need an erection for best results, but after the injection failed to work they said an erection didn't matter...?

So then here's some practical advice for you based on my experiences:


1. Use a VED regularly. I know you've not had much luck with it yet, but trust me, in the absence of nocturnal erections, a VED will allow you maintain bloodflow and oxygenate the penis. Regular good quality nocturnal erections maintain the integrity of the erectile tissue. Without them your ED can get worse steadily over time. VED can help counteract this effect and I'm confident if I had started using it earlier my ED would not have become as severe as it is now. There is a VED protocol on the forum or by all means PM me for technique advice.
2. Are you taking any regular medications? if so, read up on them and make sure none of them contain steroids / hormones. If they do, I would suggest coming off them immediately - even if it's 'harmless' stuff like hydrocortisone cream for eczema.
3.  L-arginine is a good supplement in the short term, but your body can develop a tolerance to it. I would suggest taking it just a few hours before sex....or if you want to take it regularly then have a few weeks on then a few weeks off to let your body reset. You could also try pycnogenol and pomegranate supplements which can work well with L-arginine.

Alas, I have to leave the forum now and rejoin the real world, but by all means PM me anytime. Our situations are very similar.

Best

Peety




suicidecomingsoon

Have a clear thing, if you had an injection and did not get an erection is impossible that everything is normal and it is impossible to be psychological, do not listen to the urologists if they tell you that everything is in your head after that, because that is simply lie