Age - 29
Age at onset of Peyronies Disease / or I have had Peyronies Disease for X Years - 13 years
Very First Symptoms - When I was 15 I distinctly remember an occasion, which I can describe as over enthusiastic / rough masturbation. Afterwards I noticed that there was a swelling on the left side of my penis. There wasn't much pain and the swelling went down after a few days. I didn't think much more about it but in the following months a curve to the left started to develop. This was quite alarming to me. The curve reached maybe 30 degrees and pretty much stayed in that position.
My Peyronies Disease progression, Treatments (in order), Doctors, Psychological Stages, observable changes - Years later, I noticed what I saw to be a slight progression of this curve that was hard for me to pinpoint timewise. It reached around 40 degrees and I finally decided to get it checked out. I was diagnosed with peyronie's and basically told that there was very little that could be done for me. This was all extremely disheartening because it happened at such an age that relationships have always difficult for me... and that has pretty much remained the case. It's hard to explain peyronie's to people because there is little understanding or appreciation of it in a wide sense.
Website:
Peyronie's Disease UK.
I found this forum about 3 years ago and decided to have another stab at improving my situation. Over the past 2-3 years I've slowley added components to what was first just a basic vitamin E and general multi Vit regime. I began using the VED, ALC and so on, and after a few months noticed what I deemed to be an improvement of maybe 5 degrees. That's not life changing of course, but it's something. Over time, I noticed a further improvement to perhaps 25-30 degrees. This was very encouraging, and almost at a point that I was deem to be acceptable or feel less bad about... but unfortunately the start of a rather worrying chapter that I'm currently in the midst of.
In (
April 2008) I decided to add a traction device to my regime because of the positive things I'd heard. It was going well for a few weeks, but I think that with a combination of rushing head first into it (too many hours, too much tension) and continued use of the VED, I believe that I simply pushed myself too far, too soon, and a weakness was exposed. All was going well, but one day after ten minutes after traction I experienced a throbbing pain in the lower third of the left side of my penis (pretty much where the previous peyronies is). I struggled to gain erections for a couple of days (uh oh), and the knowledge that something was certainly wrong, led me to start back on pentox days later, as well as arginine, viagra etc.
Where I am today, future plans - Right now, FIFTEEN MONTHS on, I'm still in limbo, not sure whether I'm on the verge of moving beyond this dark cloud, or about to find myself in a situation worse than I've ever experienced. The pain persisted, though lessened over a period of several months (7-8). It then appears to go away for a while, or rather felt 90% back to normal. However, a month or so back it flared up....
On the positive side my penis has not changed shape in any way since a year back, an with viagra I can gain very strong erections. The hope that the regime I'm taking (especially pentox and vitamin d+k) is reducing the pain and hopefully the chances of serious scarring.
Effectively right now this could go either way. My situation from a visual point of view, is certainly better than it was before I came here, and i'm quite pleased with that. However, this potential black cloud, could reverse all of that, and that is of great concern to me. If scar tissue is going to develop, I want to make sure that I'm on top of it from the get go, so that I can remould it somewhat, and/or unsure that as much blood gets through to the area as possible...
24th Jan 2010 - Not much change from above really, over 20 mnths on. There have been what I can identify as two slight changes to my penis. A slight indentation which isn't really an idea, and a few months back a small hard lump in one part of my penis. This has since disappeared. I'm not sure if that's due to part of an ongoing process, or pssibly the regimen I take gets to work on these abnormalities as such as they appear. There is still slight pain, which comes and goes, but is basically always in the same area. It's hard to move beyond this issue because its ongoing, but I'm still doing all I can. I'll keep you updated.
