Sex/Masturbation Good or Bad?

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Nervous

I know there has been stuff written about this but from everything I've read here and on other websites, the advice seems a bit contradictory.
The initial Survivors' Guide advocates getting erections to promote blood-flow; I'm hoping this is what the general consensus is.

Can I get erections/have sex/masturbate (all sensibly) and be confident that I won't worsen my plaque/flaccid pain?

Any advice would be great!

Hope you're all OK.

JayGould

Mine just gets worse if I masturbate. Erections doesn't cause any worsening though, it's the ejaculation that does it.

scottslcut

I have sex and masturbate with great regularity, I don't see it effects one way or the other.  I like the blood flow idea...

Nervous

Thank you for the replies. I masturbated this morning and didn't have any discomfort. JayGould, what's your Peyronie's like? Equally, Scott, how does your Peyronie's manifest itself? I wonder who I'm more similar to! I've got this cord like structure and indentations..  

JayGould

I have curvature, loss of size, swollen veins, hard flaccid, low blood flow to the glans.

I might not even have Peyronie's though, who knows.

Never Ending Saga

Nervous:  I've read all your posts, and feel compelled to respond to you.  I too can be a bit of a rambler, but also try to be very thorough.

I've had Peyronies since 2010.  Had surgery on it (grafting procedure) 2 years ago.....(had a 65 degree "curve").  Everything was great until 4 months ago, and more plaque developed, resulting in another "curve/indentation".  It's not as bad as it was before the surgery, but I saw the doctor about it, and was approved for Xiaflex shots.  I just received my first two shots last week.

I'm certainly not a doctor, but from my experience with this rotten disease/syndrome, and from everything I've read and researched about it, I can tell you that getting an erection is usually a good thing (the more often, the better).  I've always heard that it's a good thing to keep the blood flow going.  Like you said, getting an erection promotes blood flow.  Erections may hurt during the initial (acute) stage of getting Peyronies, (mind did), but I've always heard that it's important to keep the blood flow going on a regular basis.

As far as having sex and masturbating, the key word here is "Sensibly".  As some of the other responses you've already received stated, I don't think it effects it one way or the other, and erections don't cause any worsening.  I would be careful, however, when having sex or masturbating, not to do anything wild and crazy, or anything that would cause further harm to your penis.  I think common sense prevails.

The only thing I'm not sure about is whether ejaculating has an effect on it or not.  Perhaps it affects different men in different ways.  I know in my case, when I was in the initial (acute) stage, I did have pain with or without an erection, and I also had pain when I ejaculated, and for maybe an hour or so afterwards.  I was pretty much in pain 24/7, no matter what I did or didn't do.  My acute stage lasted about a year, and then it stabilized (the plaque became calcified, and stayed in the same place).  After that acute stage, I no longer had any pain at all (not when I was flaccid, erect, OR when I ejaculated), BUT, the degree of the curve DID continue to get worse.

Not sure what "stage" you're in, but that could have an impact on what you're experiencing.  You state in your post that you have flaccid pain.  If you're getting erections and having sex/masturbating with no pain, I would think that's a good thing, but the fact that you have the pain when flaccid, and with all your posts being recent, I would guess that you are probably in the acute stage, and eventually it will stabilize and the pain will go away.

My biggest recommendation at this point would be to continue follow-up appointments with the Peyronie's Specialist to stay on top of this and monitor it.  Hopefully it will get better, and you'll never need any further treatment.  If not, there are treatments and options available (Xiaflex shots, surgery, etc.) that can correct it.  Just remember, you are young, and have a long and bright future ahead of you.  Just try to keep a positive attitude and continue being proactive in your treatment, like you have already done so far.

Sorry I've rambled, but I hope I have been of some help.  If you have any other questions or comments, let me know.


JayGould

My philosophy is that if your body isn't producing natural erections during sleep, then it probably doesn't want to have erections. If you do get nocturnal erections, then all is good and you probably don't need to masturbate just to get more blood flow.

But the best thing is to just see for yourself. We are all different. If you notice that masturbation and sex doesn't make anything worse (like more pain, curvature, inflammation etc), then by all means keep doing it. If it does however, I can't see a good reason to continue with it. Let it rest and let your body do its thing.

Nervous

All of you, especially Never Ending Saga, getting responses to my panic and ramblings is absolutely priceless. Thank you.

Everything considered about erections and blood flow etc., I'm going to try to persuade my brain over the next few days that it's going to be fine to have sex. I'll try to get positive and start showing my wife that I'm up for it and get on with having a sex life again. We've never been particularly acrobatic so we should stay within the 'sensible' boundaries. I know I'm fortunate that I don't get pain during erections and it's only really a dent so far so I should really count my blessings. The pain when flaccid is weird/uncomfortable/occasionally sharp but certainly not debilitating. Previously, I've been sent into panic attacks from mild chest pain/hot weather/food I've never eaten before etc. so persuading my brain to deal with this in a positive way is tricky! By the time I have properly come to terms with whatever's going on it might put all the other things I've worried about into perspective and solve my GAD! << This IS a ramble... This is making me even more self-involved...

NES, I'm really sorry to hear about your further development. You've got through worse in the past by the sounds of it and I really hope the Xiaflex goes well. I've been doing a lot of reading obviously and the clinics that offer that sort of thing over here sound really positive about the outcome of the injections. If you feel like it, let me know how your treatment is going.

I've just received confirmation of an appointment with the NHS for 4th October with a well respected urologist (previous forecast had been December/January so I'm happy). He's a colleague of the person I went to see privately. I'm happy that I'll have a second opinion rather than just another appointment with the same person. This might sound ridiculous to some people in here but I'm going to hold off pretty much everything (I'm still not drinking alcohol/caffeine and I'm going to eat a ludicrously healthy diet and start taking CoQ10) until I've seen him. I've been in touch with a lot of private clinics and I'm confident that, if he says "yep, you've got it and it's in the acute stage" or something similar/more vague, rather than waiting through the NHS's stretched resources, I'm going to take the financial hit and go to a clinic in London (International Andrology). They say they'd prescribe Pentox straightaway and talk to me about VED recommendations etc. If that does sound insane to people that read this, please let me know and I'll talk to my GP about pushing on with Pentox etc. from Monday. I really have acknowledged the recommendation but I guess I'm scared to start on something before I've got some sort of confirmation/forecast of what exactly is going on and what stage I'm in. I'd love to just see IA tomorrow, as I'm sure they're more confident with diagnosis etc., but we don't really have loads of disposable income. I'm lucky that we had enough for me to get on and see the private urologist initially... After finishing this paragraph, I'm not sure if it is sensible to wait!

Anyway, thank you for that last paragraph NES. I'm really trying to get into the habit of positivity and your response has helped a lot.

JayGould, I am getting night-time erections. Nothing to go wild about but there's definitely something going on. The only thing I'm bothered about is inflammation as the area (cord) does seem to get bigger after an erection, but it gets bigger just when I'm anxious or randomly anyway... I'm going to aim for what a few others have written about in the forum: good masturbation/sex but far between so I get decent erections whilst also fitting in time for recuperation/acknowledgement of any reactions I have.
Also, I have this hard flaccid and weird veins but I really think they're to do with nervousness. I've ALWAYS had hard flaccid (before exams, sports fixtures, watching a horror movie...). When I'm relaxed or feeling more confident, it disappears fairly quickly. Good luck with everything. How much confirmation have you sought? I think you're in Britain. Whereabouts in Britain are you? The Birmingham Prostate Clinic and Royal Hallamshire responded to my emails very promptly and I could get an NHS referral to them. For me, an option is to get a referral to either Mr David Ralph or Giulio Garaffa at, I think UCLH, even though they both also work privately. As I have this 4th October appointment, I don't want to usurp that but if I'm not happy after that I'll either pay to see Giulio Garaffa at International Andrology or get straight onto my GP with a referral to more of a Peyronie's specialist... Once again, as I type, I'm considering getting on with this with my GP on Monday but I just don't want to have to cancel the 4th October date! Anyway. Let me know if you want to talk about any problems you're having with the NHS and proper diagnosis.

Have a good weekend.

Thanks again.

Nervous

Sorry JayGould. I've just read some of your posts and recognise that you have a lot more experience of these processes than I do. My consideration of different doctors etc. might have seemed patronising. Hope you're doing alright at the minute!

JayGould

Not at all.

I think your strategy is sound. Just go with the flow and listen to your body. If sex/masturbation feels fine, continue doing it. If it doesn't, cut it down. Pain, increase in inflammation etc is never a good thing.

scottslcut

So can we use masturbation as more of a stretching exercise?  I have a week left from my last shot before sex or masturbation.  Using lube, what would be the thinking of masturbating with an emphasis on straitening my shaft as I masturbate?  At that point it will be 2 weeks since my last shot but would I be risking a fracture at that point by getting a bit more aggressive?  Thoughts?