Grunt - Major Problems

[despise]

Grunt - I just wanted to say I have the utmost respect for you =] You are a inspiration to me just like most of all the guys in this forum are. You kept strong and are dealing with your issues as smartly and calmly as you can. I'm really glad you have a gf to help you along with all of this. I know how helpful a understanding gf can be =D Hang in there Grunt! I'm sure with these guys help and your determination things will be looking up for ya.

[Grunt]

Well my gf talked to the folks in Chico i was referred to and sounds like something i can do and will try. I set an appointment up  for the local VA. Feels good to be able to do that. So now instead of these county doc's running me in circles I will have a much better chance. I will see if i can get to a URL in San Fran, I will call anyone i can to get what i need and get seen. They are gonna be starting me from fresh at the VA though, but i was assured that my records from the county doc's would be read and  took into consideration for meds and such. So right now its the grand ole hurry up and wait game. Thought when i left the army them days would be behind me lol.

Mentally, I am relived, but still depressed and stressed. theses county folks ran me threw the ringer

[George999]

Grunt,  The Low Dose Naltrexone is a really good drug that has helped a lot of people, but it is no substitute for following up with a good urologist as soon as possible to either rule out the possibility of prostate cancer or get it adequately treated.  So I am glad that you now have the VA issue squared away and can begin dealing with that issue.  You might be ahead to try to make an appointment with a urologist at the VA hospital in San Francisco if you now have coverage for that.  They have a lot better resources there than you will find in your area and are a lot more likely to follow through for you.  I wish you the very best on this.  We all owe you a debt of gratitude for your service to our country and as far as I am concerned now that you are ailing you deserve the best of care.  - George

[Hawk]

Hawk- Sorry about the typing I hate these computers and I don't type very well. Also I don't know what ya mean about "running exchange" or forum format you speak of. Really new to computer's

Grunt the PS: comment was meant for others.  I was comparing the way our forum used to be setup (before you ever arrived) to how it is setup now.  Also do not be sorry about the typing.  I am a terrible typist.  That is why I wanted you to know about the spell check.  it helps other to understand us better and to respond to our posts.

Grunt, I am VERY interested in what your doctor says about prostate cancer.  keep us posted.  We want to help all we can.

[Grunt]

Well first wanna say thanks. I am so lost and tired running in circles. I'm a fairly passive guy and have been just listening to these Dr's, but I'm sick of it now. Today i did contact a few people and one was a VA rep here i been dealing with. Since i now have all my medical records and this new diagnosis the gentleman said i can get service connected. better then what i had, and frankly as long as i get something for medical I'm very happy with this. My girlfriend is calling around to  some cancer laces in town  after sh read what i posted and you all posted shes very eager to help.

George- Ty for the advice and those where the links we used to started  somemore outside help from this circle i been in. I'm  also gonna call down to Chico and get some info on that drug. I will try anything at this point.

Hawk- Sorry about the typing I hate these computers and I don't type very well. Also I don't know what ya mean about "running exchange" or forum format you speak of. Really new to computer's

[Old Man]

grunt:

One other suggestion: By all means contact your Congressman or Senator from your district. Mine have helped me immensely for things in the past I could not get help for otherwise.

They are supposed to be the servants of the people they represent and should be able to take your case and get something done for you.

BTW, I am a retired Master Chief Petty Officer (E-9) from the U.S. Navy with over 37 years active and reserve time.

Regards, Old Man

[George999]

Grunt,  Here are some ideas for you to consider, some of which you may not have thought of yet.

1)  I would contact Congressman Wally Herger's office regarding your VA problems if you haven't already.  Congressman Herger represents most of northern California's central valley.  You never know where you might be able to find somebody to help you out.

Contact information is:

Chico Office • 2635 Forest Ave, Ste. 100 • Chico, CA 95928 • phone: (530) 893-8363 • fax: (530) 893-8619
Redding Office • 410 Hemsted Drive, Suite 115 • Redding, CA 96002 • phone: (530) 223-5898 • fax: (530) 223-5897

2)  I would check out the following web pages and try to contact every veteran assistance organization listed that might potentially be helpful:

http://www.csuchico.edu/veterans/updates/index.shtml

http://www.newsreview.com/chico/content?oid=43463

3)  I would look into finding someone who might be willing to prescribe "low dose naltrexone" for you and follow you up with it.  Low dose naltrexone is an off label drug that is being used to help people with a number of problems including autoimmune problems, cancer AND emotional problems.  It also has very few side effects, none serious, AND it is very inexpensive.  Your local compounding pharmacy might be able to provide you with more information on this drug AND with the names of doctors that prescribe it.  There is a pharmacy in Chico where the pharmacists are Low Dose Naltrexone experts.  There contact info is:

Apothecary Options
3006 Esplanade, Suite I
Chico CA, 95973
Toll Free: 1-866-586-4633
Phone: 530-345-7979
Fax: 530-345-9797

These are just a few ideas, I am sure that other members here will have more.  But you have start trying some things.  Eventually you will find help and just the process will help you to deal with this emotionally.  Obviously the path you are on now is just leading you in circles so you have to try to break out of that and make some new contacts with people who can potentially help and be an advocate for you.  I wish you the best and if I think of something else, I will post it.  -George

[Hawk]

Am am rushing out the door but will respond soon. 

Grunt, one quick note.  You type like I do so it will help if before you click the "Save" button on a post, you click the "Spell Check" button.  It will help all that read your posts.  I am sorry for your many difficulties and hope we can offer some helpful information and support. 

PS to all on the forum:  Before setting up the new forum format, this kind of running exchange from Grunt or anyone else would have been next to impossible for any of us to follow including the person that started the post.

[Grunt]

Ok I should clear a few things up. When I posted it was so long I was trying to be brief but to the point.

Va services: I wasn't discharged for disabilities.  To be honest I was discharged due to a  mental break down. I watched my brother die in front of me and I lost it. This was after I was sent home and repaired. About 1month  almost 2 my unit went back. This is when I met up with my brother ( he was in the unit I was attached to) about a week later he was killed. I saw it and I lost it mentally. And so since I was a out of control child growing up and had to get a waiver because I saw a shrink to understand me they put out on a pre-existing condition. I am fighting this, seems only thing I can get is a service connected injury so I can get benefits. I was sent to a tbi dr and they say I have it.

Biopsy on prostate: It was done prior to my Dr leaving and  as of right now I don't know what is or happened with that.But i specifically  remember it happening. And the brown stuff started happening a lot after this time I  do recall.I did do several blood tests.  This place I go is county and they keep passing me around. I know that the biopsy was done long ago and I am  told they want to do a new one at least that's what this last urologist says. But, all these visits are coming out my pocket which are very shallow since I'm not working. I cant leave house by myself for to long Or i forget where I'm going and  sometimes how to get back home.  As far as treatments its been a long yr all I have had are shot, after shot, I didn't qualify for advanced treatment as i was told, i couldn't afford it.  Lots pills, some antibiotics, some pain  and some for swelling. With my Dr leaving this place and with me not being able to afford anything I'm stuck right now.  I am fighting  for my va rights you can believe that. Since  I was tested and  Clearly stated i Have Tbi I will be getting service connected benefits, at least that's what the gentleman helping me said.


Hawk, that's awesome you survived.

Right now i want my dang penis to stop hurting  so badly  i can live with this cancer  stuff. I really don't notice it to much not like this pain i have its horrible. I know pain I been shot, stabbed,  blown up against a wall hit with shrapnel and had my testicles slammed in a car door. But this is worse then any of those experiences.

Also forgot to mention I'm in northern California, 2 hrs north of Sacramento


Edited with spell check - Hawk

[Mick]

Grunt:

I am a retired Marine.  I never heard of any veteran who has gotten into the VA system who lost his benefits.  Once you're in the system you are in it for life.  Besides, you were wounded in action and have disability from your service.  You are surely covered.  If someone in VA says different, they are wrong.  Stand up for your rights. 

Mick

[George999]

Grunt,  It might also help if you tell us what general geographical area you are located in.  - George

[Hawk]

If there is anything I know more about than Peyronies Disease it is prostate cancer.  I am a prostate cancer survivor as are several others here.

As soon as you said you ejaculate brown, it seemed likely that that may be old blood from the prostate.  There are only so many places in the body where blood can get into ejaculate.  What you describe is what every man sees after a prostate biopsy.

It sounds like you may well have Peyronies Disease but it is time to forget about Peyronies Disease because your other issues (blood from penis, brown ejaculate, prostate cancer diagnosis are your first priority.  DID YOU HAVE A PROSTATE BIOPSY?  If so you need to know your:
Gleason Score
Your PSA
How many biopsy cores were positive
persentage of cancer in each core

I also missed what treatment if any you had for prostate cancer.  All prostate cancer treatment is followed by a PSA blood test at least every 6 months for 5 years or more than test every year for life.

If you are suggesting you no longer qualify for veterans medical care you have to start phoning every agency in your state and also call the American Cancer Society.  They man phones 24/7.  If you truly have a prostate cancer diagnosis you are in the wrong forum for now. 

Please respond to my questions then we will continue.  I will then likely refer you to a prostate cancer forum and introduce you there to help get your background posted.

Hawk

[Grunt]

Howdy

     First I wanna say very informative website. Awesome knowledge. OK been lurking awhile read  so much.But still need advice. OK here's my deal. I'm 32 born with noonans syndrome ( male version of turners) When i was a little boy my testicles didn't drop, so had surgery for that. At age 14 I jumped over the  car door of my moms mustang convertible with very loose shorts on ,door wasn't shut all the way  so when i hit it ( hard to explain but i think you get the picture) somehow i shut my testicles in the door along with tip of my penis. needless to say was in hospital for a week.  Had to get sewed back up. Well went home, 2 days later I had testicles the sized of  cantaloupe. Went back and one was infected and had to be fixed, i dint recall what was wrong with it, after a month they were still huge but every url i went to said they would be fine just enlarged. Then i joined the army served 10yrs, well my Humvee I was ran over a roadside bomb, I was blown about 25 ft, crushing my skull and Again took a hit to my testicle's, this time a piece of metal  split my scrotum in half and  severing one and I lost it. So know i have only 1 testicle and allot of scars. OK so ( sorry for long  history but i think it may be important) about 4 yrs ago i start having extreme pain when i pee, when i have erection, when i walk anything to do with the area. I was also starting to curve allot to the left, by now id say its at 45 % almost  90 deg to the left mostly when erect. I also have weird indentations on both sides of my penis at the base, along with a hard   ball about the size of a grape in my scrotum sack. The worst thing though is intercourse with my soon to be wife ( or ex gf if this dint get fixed   ) when its my time for release um it feels like my indsides are coming out of my penis, starting at my scrotum and going all the way out. Also if i discharge anything its dark brown and very, very minimal. But the pain is crippling and for days. I cant walk, my scrotum is swollen twice its size and i fear urinating because it hurts so badly.OK now for what i have done for this.OK i am ex military and was honorably discharged but lost my benefit's 4yrs ago and To this day am struggling to get them back another long story for another day i guess.So i went to er, first time about this issue 3 yrs ago, they said i had a urinary tract infection, sent me home with antibiotics. I went to a Dr whom gave me a complete physical and in the prostate exam said i had prostatitus. OK so i took antibiotics for about 6months trusting this guy. Went back to er same issues but this time was leaking blood out of tip of penis that's why i went. Dr there said i pulled something inside my bladder? I was lost, that didn't make since to me but i took the pills went home. Saw my reg Dr the next day. Now I'm send out for every xray, sonogram, anything to look into this.  A week later she tells me i have prostate cancer. OK fine, I got for rad and other shots and pills and tests and last yr  she says I'm healed. In meantime nothing has changed. So then she leaves here practice. I set up appointments with several url and i pay allot to find out nothing. I'm giving flow max and  something else i cant recall at this point. So now this last url says prostate cancer is stage 2 and not going away. In between all this every visit is out of pocket cuz i have no insurance. and nothing is getting better. I'm getting jerked around by the Dr's here and no i have no Dr cuz she quit her practice and the fill in one  doesn't know why I'm coming to see her.  Wed i went to er, i have immense pain in my scrotum  its swollen, leaking blood out of tip penis, curve still there, marble, and lumps. Er Dr tells me I'm to sexually active. I lol at him because i have had only 2 partners in my life my first wife whom was killed 4 yrs ago. And my current gf. I told him id been tested for every  std known and I'm clean. He looks at me and send me home with Advil, tells me to call my normal Dr.  These ppl dint get I'm in extreme pain here. If this cancer dint kill me  then this penis thing will...I cant take this pain anymore.

I read everywhere on this site, but couldn't find what fit my condition, and i really hope i didn't post this in wrong spot , I didn't see a new members posting area  I am just hoping for a Lil advice or something. I cant live like this anylonger.  Ty for reading and any suggestions you may have, and sorry for long post but its a lot to take in