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Cactus

Hello all. 23 years old here and I've had what is believed to be peyronies for about 3 years. It began after having sex for a year with tight condoms. Basically I would clench my penis to engorged it with blood and make it feel better for her but I was doing (probably) irreversible damage in the process. I have two indentations on the underside, one about halfway up and one at the base of my erect penis that retract into my scrotum when flaccid. There were also a couple times when she came down and it bent sharply which may have contributed. My penis is almost entirely numb, like it's made of rubber, except for a small area from my circumcision scar up. Despite the numbness, I have pain constantly, a burning feeling around both indents. It burns worse when I pee, ejaculate (for hours), or touch it at all. This has destroyed my will to live. My mom tells me there is more to life than sex and I understand that but being effectively impotent is only half of it. The pain and numbness are driving me to consider extreme measures like chopping it off or suicide. I haven't found a way to cope, no matter what I do the pain is always with me: a constant reminder of how I believe it happened and how easily it could have been prevented. No amount of painkillers can stop the burning and it seems unlikely I can get the pleasurable sensation back. I have 60+ years left in my life but if this doesn't get better I won't make it that long.  

Tychy

Hey Cactus,

I know from experience that burning sensations inside the shaft may be because of chronic pelvic pain syndrome. Do you also have problems starting to pee? Is your pelvic floor (the area between your scrotum and anus) tight? The clencing to engorge part sounds like you have overworked the pelvic floor muscles. I did the same.
I had burning and stinging pain inside the penis, that would totally go away for a week or longer when releasing the pelvic floor muscles manually.

"Despite the numbness I have pain constantly" - I know this from the so-called hard flaccid syndrome, which also causes retraction of the penis. This is also a pelvic floor condition.

Indentations sound more like actual Peyronie's. So what you need to do:
- Get an examination by an urologist that knows Peyronie's! Most of them don't know much about this! Get a doppler ultrasound.
- Do you have any curvature? Three years should bring you well into the chronic phase, which is known to have less pain overall. The pain part sounds really more like pelvic floor dysfunction. If it is, you can counter it! Look on youtube for the channel "Wise Anderson Protocol" or read their book "A headache in the pelvis".
- Read about supplements in the subforum. ALCAR helped greatly with daily pain for me.
- Don't have sex with a not fully erect penis! It will damage the tissue even more!
- VED may help with erection problems and indentation, talk to the doc about taking Cialis!

Last of all, you're not alone here and we will listen :) There is really no need to think about suicide right now. First of all, you are still young. Imagine all the future medical tech that is going to be developed! Pain can be also countered by pain specialist doctors. If all fails (and there is a lot you can do before that), you still have the option of getting surgery! So there are still many ways to go and methods to try before you have to think about only accepting the current state.

beentheredonethat

i have literally lived with this now for 13 years. if i stop drinking my thoughts and feelings come bsck to me and i feel like killing myself or someone else. its fukn relentless and i csnt envision a magic cure before i die

popopo

I knoq that feeling, except I don't drink but smoke weed. I think it's literally impossible to truly "accept" this. Just lile you I live for a cure.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

beentheredonethat

i drink, smoke weed, snort coke, smoke ciggerettes. iv excercised, got in fights, you name it. nothing makes it go away and no one can possibly unserstand the physcological impact unless they have got it. it has literally ruined my life. destroyed my confidence with women. made me disconnect with a lot of people. fiven me anxiety and depression. my head is all f'~c<+d up. id love to go speak to someone but seriously are they gonna be able to fix it...? no!

suicidecomingsoon

And why not? Because we are men when is a woman's problem doctors put all in to resolve, but as we are men they say live with it..

[Admin moderated - They say "live with it" because that is what they were told in medical school. Doctors who don't specialize in this don't know how to treat it. It isn't a male vs. female issue. Women also have issues where the doctor says "live with it".]

NeoV

My penis has been numb for years, and the feeling is finally coming back now that I'm eating nearly nothing.

I feel your pain. I lived with my mom when this was bad when I was 23. I'm 30 now and things are MUCH better. The burning pain around the indentations is gone, my penis is more elastic, and the curve is greatly reduced. I highly recommend traction, CoQ10, and fasting or ketogenic diet, as strict as possible within safe limits. Have hope man, I wish I had more hope back when I was your age, because all that pain wasn't worth crap. Things work out, you can achieve pornographic sex even with a bent dick, you can do anything. I mean it literally has no effect on your ability to attract hot girls and do pornographic things with them, even if it seems impossible to you. Hold on!

Cactus

I don't have a bent dick at all. My erections are as straight as they have always been and appear healthy from the top. It makes me question whether this is truly "peyronie's disease" and not scarred and deteriorated tissue causing indentation and numbness. From what I understand, peyronie's is when scar tissue forms in the cavernosa and causes curvature. When I say the indentation retracts into my scrotum, I am talking about what the base of the erect penis naturally does when it goes down. I very rarely have hard flaccid if ever. At any rate, I'm starting weekly pelvic floor therapy on the 9th.

The burning has gone down since I started taking alcar, l-Arginine, coq-10 and neurontin but the majority of my shaft is less sensitive than my elbow. It's very distressing. Women smile at me and I feel a sickening mixture of joy and sadness. I'm going to Chicago at the end of the month to get an expert opinion.

beentheredonethat

joy and sadness when recieving smile from women. xouldnt have said it better! id love to engage them but this has held me back for years. wasted opportunities and ya cant help but regret it. regret being the main word. i used to pull real hot chicks before i got this then it shattered my confidence. i think its worse coz i know i used ti be able to do that.