PEYRONIE'S TREATMENTS - Questions, Plans & Remarks

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Old Man

parajack:

You should definitely respect pain or discomfort while using the VED. If you have any pain with VED use, you must go slowly and carefully with the amount of pressure. You do not, repeat do not, want to cause any further trauma by overpumping the pressure. Let your feelings about that be the guide as to the amount vacuum you apply. Caution is the watchword in VED therapy.

When you first start the protocol, you have to use your best judgment about what your penis will take and how to use the VED to help instead of causing further problems. VED therapy is not a quick fix, but rather an extended "therapy/treatment" that should help rather than harm.

Feel free to address any questions you have about VED therapy to the forum so that you can get good advice, etc.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

LWillisjr

Quote from: parajack on November 07, 2009, 10:43:43 PM
I feel fortunate to have started the PAV (minus the V) early on in the evolution of my Peronies.  I've been taking Pycnogenol since it was first imported into the US back in the late 80s, but have upped my dosage to a full body weight dossage (1 mg per pound).  Although I've launched into treatment early, I'm still, however, subject to painful erections and things seem to be getting progressively worse.

Are there others browsing the forum here who are in the early stages as I am? ... If I have pain during all erections these days, how should I approach use of the VED?

parajack,
I know there are several now on the forum who are in the early stages, also referred to as the "acute" stage of Peyronies Disease. You are doing exactly the best approach with the PA(-V) meds along with VED usage. Pain during the first months is common and seems to go away shortly thereafter. The best thing to do at this point is to try to halt any futher progression.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

skunkworks

Parajack - The P in PAV usually refers to Pentoxifylline (Trental). Are you on Pentox?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

parajack

Quote from: skunkworks on November 08, 2009, 10:32:19 PM
Parajack - The P in PAV usually refers to Pentoxifylline (Trental). Are you on Pentox?

Yes, taking the Pentoxifylline 3 times a day, and have been for about 3 weeks or so.  

parajack

Quote from: lwillisjr on November 08, 2009, 09:40:09 PM
Quote from: parajack on November 07, 2009, 10:43:43 PM
I feel fortunate to have started the PAV (minus the V) early on in the evolution of my Peronies.  I've been taking Pycnogenol since it was first imported into the US back in the late 80s, but have upped my dosage to a full body weight dossage (1 mg per pound).  Although I've launched into treatment early, I'm still, however, subject to painful erections and things seem to be getting progressively worse.

Are there others browsing the forum here who are in the early stages as I am? ... If I have pain during all erections these days, how should I approach use of the VED?

parajack,
I know there are several now on the forum who are in the early stages, also referred to as the "acute" stage of Peyronies Disease. You are doing exactly the best approach with the PA(-V) meds along with VED usage. Pain during the first months is common and seems to go away shortly thereafter. The best thing to do at this point is to try to halt any futher progression.

Les

Thanks Les.  I'm assuming that the reduction in pain is the natural progression as the scarring and calcification begin and advance after the 'acute' stage is passed.  I don't believe at this point that any measures will stop the evolution of my Peyronies Disease.  My symptoms are clearly advancing with even a slight upward bend noticeable now with a hard erection along with a fair amount of pain.  My hope is that if I already have measures in place when the scarring and calcification begin (if they haven't already), that I can minimize the long term effects, curvature, reduced size, performance, etc.... or perhaps even give eventual surgury, if required, a greater chance of success....
Jack

parajack

I'd like to ask those experienced with Peyronies Disease:
Do you think I should add the "V" to my regime to treat my acute stages of Peyronies Disease?  I only have very occasional erections at night (that I'm aware of anyway) and I'm starting to wonder if I may be ignoring a potentially critical component of dealing with the early stages of this disease.  A strong erection provides blood flow, which is critical to pretty much any healing... I'm assuming this is part of the benefit of the VED therapy as well?  The more I read the more I think I might be screwing up by not using Viagra or it's equivilant.... (never used it)..
thanks!
Jack

skunkworks

I personally think some kind of erection booster is vital. Simply put, the more erections you have the more you will get.

Also in theory it should work synergistically with the l-arginine to keep your NO levels high, which discourages fibrosis.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

parajack

Do the Pentox or l-arginine cause intestinal gas?  Something in the regime I've started to combat Peyronies Disease is giving me unnatural nasty gas which in normal circumstances, would be manageable.... however, I work as a pilot and this particular situation is something which must be addressed  ::)  Anyone have any experience with this?
Jack

Skjaldborg

Parajack,

Yes, I also tend to get gas from pentox. I work alone so it's not much of a problem (I guess maybe the dog has rough time of it  ;D ). For me, avoiding acidic foods like red pasta sauce, tomatoes and orange juice at lunch time has helped reduce any stomach upset and kept things, err, quiet. Everyone's intestinal chemistry is a bit different so try out different foods to see if that helps. In general, high protein diets and dairy can cause gas so maybe ease up a bit on those.

Gas notwithstanding, I still think pentox is worth it. My first 2 months on pentox were tough because of the GI symptoms but those have since passed. Hopefully yours will too.

Best,

-Skjald

LWillisjr

Quote from: parajack on November 09, 2009, 02:29:16 PM
Thanks Les.  I'm assuming that the reduction in pain is the natural progression as the scarring and calcification begin and advance after the 'acute' stage is passed.  I don't believe at this point that any measures will stop the evolution of my Peyronies Disease.  My symptoms are clearly advancing with even a slight upward bend noticeable now with a hard erection along with a fair amount of pain.  My hope is that if I already have measures in place when the scarring and calcification begin (if they haven't already), that I can minimize the long term effects, curvature, reduced size, performance, etc.... or perhaps even give eventual surgery, if required, a greater chance of success....
Jack

Jack,
You're right on target. You have described what I would refer to as "typical" text book Peyronies Disease (if there is such a thing). The acute phase, some pain, slow progression.... then progressing into stable phase with lessening of pain and potential for calcification. So yes you want to take what measures you can during the acute phase and hopefully can reverse or at least lessen the process.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

parajack

My Uro also recommended that I take Colchicine .6 mg twice a day, which I started along with the Pentox.  He said that he wouldn't suggest this if I were in the latter stages of Peyronies Disease, but because I was in the acute phase, he thought it might be helpful.   I think at that point my eyes had kind of glossed over and I didn't get or understand the explanation.  Does the rec. make sense to others here?  Is there a link on the forum which someone could refer me to where I could educate myself more on Colchicine?
Thanks,
Jack

Old Man

Jack:

Colchicine has been prescribed for Peyronies Disease symptoms many times in the past. Some have had gastro problems with it and others tolerate it very well. If you are not having any problems with the med, would suggest that you follow your uro's recommendation at least long enough to see if it works for you. In my case, I took it for over 6 months with no noticeable results. It simply just did nothing for me.

In the acute stage or Peyronies Disease, you just have to keep trying things until you find something that works. If I had known about the VED therapy in my early stages, it would have given me better results.

Anyway, stay with your uro's schedule of meds for you would be my suggestion.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

newguy

Parajack - Some studies have suggested colchicine to be no better than placebo, whereas others have shown it to be quite effective. In the positive study I saw it was used alongside vitamin E, so perhaps the combination is best. One small study suggested that smoking may impede the success of treatment. However, perhaps it is the case the smoking may have scope to worsen peyronie's disease regardless of treatments taken, rather than being something specific to colchicine.

I agree with Oldman, that at this stage, it's not a bad strategy to try various treatments and hope that you hit on something that works. With the pentox and VED as the mainstays I think you're in good stead!

parajack

Thanks for the replies.
I've been experimenting with the VED.  Messy and time consuming but not painful as I thought it might be.  I'm sure I'll get it dialed in pretty quickly.  Challenging seeing as how I'm on the road all the time.....
Jack

ComeBacKid

Be advised that some believe trimix can cause or lead to peyronies disease.  Any natural way to get an erection, with the hand, with a woman, or with the VED is probably better.  

Comebackid

skunkworks

Quote from: cowboyfood on October 05, 2009, 08:22:41 PM
Quote from: hb on October 05, 2009, 06:46:55 PM
... At first Viagra worked fine for me, but your body seems to get used to it after awhile and it doesn't work anymore. ...

I don't think there is any research to support this assertion.

CF

In fact there is a reasonable amount of research out there showing that Viagra works better if you take it regularly, even daily.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

parajack

Discontinuing the Colchicine... Still waiting on the Uro to get a Viagra prescription.
Seems as though I've been a bit "off " for the past 5-6 weeks or so, which is when I started the PAV without the V.  My Uro also put me on the Colchicine, thinking that because I was in the acute phases, it might be helpful.  I just browsed casually on it's side affects, etc, and didn't pay much attention in the beginning.  I focused more on the Pentox.  I've noticed over the past 4-6 weeks that I've been off and not as healthy as I normallly am.  I rarely get sick with no colds or flu for a year or two being common with me.   Over this past month I've had to fight off a cold on two different occasions, and I seem to frequently have a runny nose without being really sick, etc....  I've been much more lethargic and something just doesn't seem right.  I started reading again everything I could on the meds and more indebth research on the Colchicine has turned up several references to bone marrow production and white blood cell count decline...  As I clearly don't suffer from gout, and the risk / reward scenario of the Colchicine is completely sketchy at best as it relates to Peyronies Disease, I have decided to quit the Colchicine.

Anyone have any strong opinion on this one way or the other?

At the same time, I'm a bit frustrated that I didn't immediatly get going on the V portion of the cocktail, and I'm still trying to get it started.  After more reading on how exactly the Pentox helps with blood flow and circulation, I'm clearly screwing up by not doing whatever it takes to increase the frequency of erection for it's healing blood flow benefits, especially during the acute phases..... I've turned up the heat on the Uro office this morning and hope to get resolution sooner than later.

Jack

George999

Jack,  Don't worry too much about the V part.  Its Pentox that is really the primary effective agent.  So just keep going with the Pentox.  - George

parajack

I'm still struggling with side effects which I'm assuming are from the Pentox but don't want to jump to any conclusions....  I've read everything I can find on the Pentox side effects and things seem somewhat inconclusive for what I'm experiencing.

Here's what I've been dealing with for the past few months....

itchy runny eyes
sneezing and sometimes runny nose....
vision that seems more blurry than usual...
general tiredness and lethargy...

I don't ever have any allergies and I don't have a cold or flu or anything, just cold like symtpoms sometimes.  The itchy eyes are getting bothersome as well as the occasional sneezing followed by runny nose...  It just seems as though I've been "off" since I started the meds...  I stopped the Colchicine so all I've been taking is the Pentox....  I know the blurred vision is a commonly listed side affect of the Pentox.  Another side affect listed a few times was "red eyes".

To throw a wrench in things I'm also dealing with a failed root canal which is causing some pain and inflamation.  My dentist suggested that this could be wreaking havoc on my immune system and perhaps could be causing the cold like symptoms.  I'm scheduled to have the root canal re-done (oh boy!) next week so I guess time will tell.....

Is there a good thread which discusses Pentox side affects which someone could link me too?

The VED therapy is good although I've only managed sporadic use thus far.  My symptoms have progressed aggressively as I now have a 20 deg or so upward bend with moderate pain during erections...  seeing URO in a couple of weeks..

Jack

joecancer

I just had my 12-month visit to the uro (12 months since peyronies started).  I have been on Pentox for about 10 months, and also take cialis (and occasionally l-arginine). I also have been using a VED.  Still, no improvement at all to my 50 to 60 degree curve.  At my visit, the doc said that at this point, it is what it is.  Meaning, it's not going to get better without surgery.  This was news to me, but after perusing this site for the past year, it doesn't seem like very many of us ever get better, even just a little bit, without surgery.  I know there's all sorts of evidence about pentox, etc., but there aren't very many posts in the improvement section or anywhere else here really about people getting better (aside from the lucky few). I dont want to be Mr. Negativity, but based on my doc's advice, I'm thinking of stopping all the pills and VED (he said there's no harm to continuing - just that they won't do anything) rather than continuing to pretend like I'm doing something beneficial.  If there's a chance of improvement, I will continue, but I'm starting to doubt it.  The plaque seems like it is pretty hard, and even the doc said it isn't going anywhere on its own. I guess I would consider surgery in the future, but I don't think I'll be going that route for some time.

Does anyone have any advice? I sure could use some.  Sure I keep taking these pills and doing the VED?  Thanks.  

skunkworks

Well I guess you have to ask yourself which source of information holds more credibility to you, a properly run, peer reviewed study or the single opinion of your doctor (is he even a peyronies specialist)?

People on these forums have have seen results after the 12 month mark.

Personally I think if you can afford pentox, you should be using it. It is THE single most important Peyronie's treatment available. With VED even more so.

Why would you stop using either of them? Even if they do nothing to treat the Peyronie's curvature, they will almost certainly increase your erection quality, which is a huge step toward putting Peyronie's behind you.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Old Man

joecancer:

I echo skunkworks comments. You must keep trying things. I know, having had this mess for over 56 years now, there can be light at the end of the tunnel. I found several treatments/therapies that worked for me over those years. The VED therapy was the single most thing that worked for me.

You should keep the faith and use the VED on a daily basis if possible. The daily therapy gives the most results. BTW, which VED model are you using?

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

LWillisjr

I echo everyone's comments about not giving up. I would always keeping trying something until I decided a dew course of action. Is ay that meaning until you choose to do surgery then I would keep on trying the VED and meds.

I would add that we have said time and time again that there isn't that one thing that works for everyone. So I think it is important to point out that we need to keep trying, need to be diligent, but at some point we each have to make a decision wheter a particular therapy is working. Whether it is meds, VED, traction, hot baths, etc. If you feel a particular therapy is leading to a dead end, then one must decide if it is time to do something different.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

George999

Joe,  One has to remember that part of the reason for treating Peyronie's is that without treatment it can get worse.  And in that regard, even surgery is no guarantee.  Not all surgeries are successful, though, granted, nowadays most are.  Also, in many cases of successful surgery there is at least some regression afterwards.  And, in any case, surgery is certainly not going to restore you to your pre-Peyronie's condition.  But the only hope of rapid improvement IS SURGERY.  On the other hand, Pentox will usually prevent any progression and traction and VED can provide significant improvement.  Few people post these improvements in the improvements thread because few people consider stretching to be a cure.  But in a functional sense it is.  So I think the "whats the point of trying" attitude has little basis in reality.  If you want a quick fix, see a surgeon, and find a good one who has done a lot of these and has a sound track record, but don't knock the treatments that are popular around here, because  (in spite of what your doctor might think) a lot of us are using them and are very satisfied with the results we are seeing.  - George

joecancer

thanks guys, I will take your advice and keep plugging away.  I think there is much more knowledge on this board than my doctor has, so I will ignore him and hope for the best.  Old Man - I have the Fitz 3-cylindar VED.

ComeBacKid

Joe,

You heard it from me, pentox helped my peyronies, I improved significantly!  I'm currently on a three week break from the drug, planning to go back on it again.  I was on it for 9 months this last time.  Its def worth it!

Keep in mind not everyone updates progress under that board, unfortunately, many people have been helped by pentox and in our resource library you can see the studies that show its effective.

Keep in mind, it could have kept you from getting worse, you just don't know.  I'd stay on it and tell the doc you don't want surgery at this point, but thats just me.  VED has helped many men to, other than pentox and the VED I know of no effective treatments that I've actually heard men tell me worked for their peyronies.

Comebackid

chiguy

I just started Pentox and I can barely feel the scar tissue. I am also starting fastsize traction next week. I am wondering about the difference between fastsize and VED in terms of what it will help (i.e. curvature, hour glass, etc.).

Old Man

joecancer:

OK, you do have one of the best medical quality VEDs available at a good price. Are you using or plan to use the 26 week protocol posted in the VED board?

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

jackp

Joe

The VED therapy is the best thing you can do to help keep your penis healthy. Peyronies and ED together are a real bummer.

When all else fails you then surgery is the only answer. I know I tried everything legal and some not.

Now after 12 months of trying everythine else you have to make a decision and that is not an easy one. The best surgery for peyronies with ED is a penile implant. I had mine October 2008 and today I have a straight erection and have recovered about 1" lost to peyronies and all the complications that followed. The only implant that will help recover lost length is the AMS 700 LGX, www.amslgx.com. See My History for more details.

Good Luck

Jackp

brend

Hi.
I have been diagnosed with pyronies and my urologist is suggesting surgery. From my own research it seems that surgery is not always successful and has side efffects. I have a double bend in my penis, it is nearly "S" shaped. Intercourse is impossible although I do get erection which is much smaller than before Peyronies Disease.  (Typically male. I am embarressed even writing about this). This started about six months ago.
I have a theory that pyronies must be related to other medical issues that I have. I have had fibromyalgia for many years. In the past two years I have also been diagnosed with dupitrons contracture. This is a build up of fibrous tissue in the hands resulting in my hands bending in like a claw, with fibrous nodules on the hand. Unfortunately I am attending three different consultants for fibromyalgia, pyronies and dupitrons. Each consultant looks after their own area of speciality and dismisses any connections betwwen symptoms. My GP agrees that the connections should be explored but unfortunately there is no way to do this.
Can I ask any of you who have had Peyronies Disease and have more experience and knowledge to reply to me. I need advice on whether to have surgery and also are there other treatments I can try first. What is the longer term prognosis.
Please I need help with this.
Brend

Old Man

brend:

Sorry to hear that you have joined the ranks of the "anointed" with Peyronies Disease. It is a very terrible and devastating disorder of our most prized possessions, the ability to have sex and reproduce.

Now, let me add my 2 cents to your equation. Surgery is considered by most all on this forum as the last resort in treatment for Peyronies Disease. However, under certain circumstances it is a very viable solution to the Peyronies Disease problem. JackP can step in when he reads this post and add his situation and how he coped with it by getting a penile implant. His success story is posted elsewhere on this forum, so locate it and read his history.

First, my recommendation is to get started on some sort of therapy as soon as possible. There are many histories of how guys have been helped with the various treatment/therapies for their Peyronies Disease symptoms. Since you have a double bend and penetration seems impossible, you have a different situation than most, so you need some special attention to that. I have had great success using the Vacuum Erection Device (VED) therapy. Today, I have little if any, symptoms of Peyronies Disease which I attribute to the VED therapy that I used about 15 years ago.

At this point, you need to get a definite diagnosis of Peyronies Disease from a qualified urologist, if you have not already done this. Then select some form of therapy whether it be oral, traction or VED. Get started on whatever method you choose as soon as possible.

I am sure that others will jump in and relate their idea of what and how you should proceed with some form of treatment/therapy. Feel free to just ask any and all questions and I am sure that someone will give you an answer quickly. Good luck to you and again, get started on getting help soon.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

neidz

I am 54. I had a radical prostetectomy (prostate cancer Gleason 6) July of 2007.  My wife has depression and had a very difficult time dealing with it; which cause performance anxiety for me.  Consequently a lack of firmness during our physical relationship caused buckling on several occasions (I knew at the time I was injuring myself--never dreamed I could damage that part of the body).

Bottom line:
-I have Peyronies--curvature went from about 30% to 60% (first noticed it about 9-12 mos ago)
-I have taken Neprinol for 2months--not seeing results (they say it can take 6 mos. w/100% results --Dr. Levine
   supported device
-I have worn the FastSize extener for over 3 mos (have had to alter it--upside-down, various ways of wearing)
-My curvature is towards the tip (thinking FastSize has increased the curvature)
-Frustrated w/current approach.
-Been to (3) docs that supposedly specialize in Peyronies Disease treatment (felt I knew as much as them --none of them gave me any hope
-In good physical shape.  
-I believe and have great desires for improvement and coerection

Considerations for improvement:
-Continue Neprinol ($150 for 2 mos!! wow!)
-Continue FastSize or return it?
-Download Bill Bodri's book on how to get rid of the disease
-2nd Meeting with Peyronies specialist (has treated over 1,000 cases)on Feb 1st
-Haven't tried Vitamin E, D, Verafamil, Pump,
-Bend against the curve exercise
-dig into the forum and facts on this website

Can anyone help me?  I have wrestled with this on my own--no one to discuss it with.  My wife is finally on board.  I'm not into spending countless hours researching.  I would like to get to the point with what appears to be an effective approach starting asap.............looking for a little input.

Thanks,
Neidz


Old Man

neidz:

Sorry to hear that you have joined the ranks fo the Peyronies Disease family! There is some light at the end of the tunnel for you. You state you are into research on the forum, but you must force yourself to do at some. There are valuable posts all over the different topics that pertain to your particular case. You are not alone with this, so stay the course, get into some form of therapy as soon as possible.

The traction device has in some cases caused further injury. So has the VED when used improperly, but in the end success has been achieved with its use by many. So, do some research in the VED board where there are many topics relating to the use of the VED, how it has helped guys and the results of its use.

Based on what you tell us in your post, you do have a problem. Since your wife is now on board with help for you, enlist her into researching the boards on the forum for you. She probably will learn more than you about Peyronies Disease and be able to guide you into the right direction. Peyronies Disease is a mutual admiration society, if you will, so your wife is a very essential part of any resulting success you gain from any treatment/therapy.

Before you decide on any course of action, get all the facts and information you can about Peyronies Disease and how it relates to your particular situation. Sorry that the Fastsize has most likely caused your further damage. Your curve appears to be quite a bit, so you need to work on getting it straightened. The VED therapy has worked for many of us by getting some return to a basically normal size and straightness.

Let us all know if there is anything we can do to help. Feel free to ask any and all questions that come to mind. All here will be glad to assist you in any way.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

chiguy

Neidz,

Sorry to hear you have this condition. During the first 12 months, known as the active phase, the curvature can worsen. The curvature may not be attributed to the fastsize device. Dr. Levine says that the traction device may be limited during the active phase. For maximum results, have much have you worn the device? Have you tilted the device away from the curve?

GS

Neidz,

I feel for you too.  One other thing you should think about immediately is not having sex again with anything close to a soft erection.  Your penis will incur more damage and it is easier to buckle with the Peyronies curvature.  I use a small dose of Viagra for intercourse just to make sure I'm as erect and hard as I can be.

My Doctor prescribes 100m and I just bite off about a fourth of it each time.  It's cheaper that way.

Also, I wouldn't have sex again until your penis has had time to heal and you feel no tenderness.

GS

ComeBacKid

One thing caught my eye about your post.  You said you think fastsize made your curve worse.  I used the VED, it def helped me gain girth and length but appear to worsen my curve or aggravate it.  Mainly my curve is when semi erect, and then it straightens out when fully erect, but I have venous leakage problems and loss of size problems.  I think sometimes the plaque needs to be softened before being stretched, or the stretching has to be done extremely lightly as not to tear the plaque more.  The science of this is complex, and looking at cells on a microscopic level to figure out the exact right amount of tension to get the best result.  With that being said have you tried pentox? Or the VED? You may want to ditch the fastsize for now, I was on pentox for nine months, now am breaking and doing VED daily, like a hybrid treatment series, soon I will start the VED again.

Comebackid

zeppo

Hello all!  I'm a new member, as of January 30,  and having a bit of trouble  navigating around the forum.   Would I be correct in saying that the forum consists of multiple boards?  
I was diagnosed as having Peyronies in October, 2009.  The doctor said it would improve  over time.  Since I am not currently in a relationship, the only time I have an erection these days is sometimes in the middle of the night, which causes me to wake up.  The only thing I have tried so far is  800mg per day of vitamin E, and for a while I was using   vitamin E oil  topically as well.    I Also started taking PABA recently.  I have quite a bit of curvature, and  I'm not seeing any progress so far.
I'd appreciate any suggestions.
Thanks,
Zeppo            
Zeppo

Old Man

Zeppo:

Yes, the forum consists of many "boards" with subject titles for the many areas of Peyronies Disease that it covers. You simply log in to the forum which will bring up the home page. Scroll down the page and it lists all the boards that are on the forum. You can select one by simply placing your mouse pointer on the subject title and then clicking it to open that board. There are sub topics and titles under these boards for the various subject matter pertaining to that board.

Feel free to ask any and all questions you might have. There is always some member of the forum that will help with an answer to your questions.

Sorry to hear that you have joined the "Peyronies Disease family". It is very devastating to learn that one has the disorder.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

zeppo

Old Man,
Thanks for your reply to my post.  I have read about Dr. Herazy's manual stretching method.  Is there any way to find out if, (or how well), it works?  I'm guessing that some
of the forum members have tried it.
Thanks,
Zeppo
Zeppo

Old Man

Zeppo:

The jury is still out for me on the Herazy thing. I do not adhere to the method that he is touting on his web site and later on this forum.

I have stated that I will not address him or his method in any way further on this forum. So, maybe someone else can help you with your question.

Old Man  
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

zeppo

Zeppo

neidz

I feel good and hopeful from reading your comments and begining my research on this forum.  My curvature is possible different than most.  If you were to compare it to your finger; the center joint of the finger (I'm thinking) is the area that most people have the curve.  For me, my curvature would be at the joint closest to the fingernail--also the area where the plaque is--which I think is an area that is difficult to straighten with a device like I have used.  If you bend the middle joint of a finger and pull on it to straighten it--that seems to work well.  If you bend the joint close to the fingernail and then pull on the finger to straighten it, it is a more difficult angle, so I am not certain how to address it.  My curvature seems to be almost straight upward at possibly 60+ degrees when erect, with approximately pencil width by about 1.5 inch length of plaque--which starts at about the tip/hood of the penis.

Old Man

neidz:

From your description of your curve looks like you would be a candidate for the three cylinder VED therapy rather than the traction. As you state where your symptom is might interfere with attaching the mechanical portions of the traction device.

Read up on the VED boards about how it is used, some success stories and the 26 week protocol for using the various VED models.

If you have further questions then about VED usage, just let us know.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

LWillisjr

neidz,
Be aware that a 60 degree bend is close to what most doctors would consider "severe". And that whether you use either VED or traction therapy that there are few cases where a 60 degree curvature was fully corrected. But it is worth trying to see if you are able to achieve some or any improvement with these techniques.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

CP

Does it stand to reason that a gentle massage in the opposite direction of the curvature will help?    It seems to me that the vitamin E will soften the placque over time and the mechanical motion of the massage sould begin to break down the scar tissue?   Any comments from those who know?

chiguy

Vitamin e's effectiveness is doubted by many doctors, though some report success. Pentox is the medication you want. It breaks down scar tissue and increases bloodflow. Also, l-arginine supplements increase bloodflow.

Rather than gentle massage which could cause damage, you should use either a VED or traction device.

These are the standard conservative treatments. There is a lot of information on all these treatments on this message board. Let us know if you have further questions or PM me with anything specific.

Gerg

Hello all,

Let me start by saying that I'm not sure that I have peyronie's disease.  I'm 22 years old; I don't drink, but I smoke cigarettes and use marijuana recreationally.  A little over three months ago, I was having sex with my girlfriend, and my penis was pushed laterally very abruptly, causing a loud pop.  There was no pain, and my girlfriend and I continued to have intercourse, but, since the incident, ejaculating has been...uncomfortable.  I wish that was the only symptom, however, I've also noticed a considerable loss of length and girth (both flaccid and erect), almost as if something is missing in there--leading me to think there is some sort of obstruction.  In addition to the loss of size, there is a small indent (for lack of a better term) just below the glans that is most apparent while semi-erect.  

When I feel around, I feel the firm, rubbery, chord-like tube that has been described by a few contributors on this forum running the length of my shaft.  However, with a little massaging, my penis becomes soft and spongy once again, although my size hasn't returned for a moment since the pop.  When semi-erect, my penis will curve slightly to the left but straighten with a full erection (which I am still able to get with relative ease).  The erections aren't painful, but there is a feeling of soreness, almost like an overworked muscle.  My right testicle has also started to hang in a very strange way, making it painful to wear certain pants.  I also find it difficult to urinate standing up, or to empty my bladder when I do so.  I have good days and bad, but, generally speaking, since the injury(?) the condition has only worsened.

I've seen a doctor about this, but he only stuck his finger in my butt to check my prostate.  He didn't seem very interested in what was going on with my penis, but referred me to a urologist.  I don't know if I should go to just any urologist, but I'm unsure where to turn.  I don't live very far from a world-class university hospital at a major research institution; would this be the best place to go for help?  Do my symptoms sound like a form of peyronie's disease?  If not, could whatever this is lead to peyronie's at some point in the near future?

Any answers would be greatly appreciated.  Thank you all in advance.  

P.S.  I started taking a whole lot of supplements a couple of weeks ago when I feared that I may have peyronie's.  I'm taking things like l-arginine, vitamins c & e, acetyl l-carnitine, omega-3 fish oil, and gingko.  I'm also taking a men's multivitamin, as well as 5-htp and GABA for the depression and anxiety (which seems to make my condition worse).  

GS

Gerg,

By all means, go to a urologist ASAP.  It's always better to be safe than sorry.  And knowing is better than worrying.

GS

LWillisjr

Gerg,
I find it interesting the number of guys who post here who describe a "pop" during intercourse and then wait to have it checked out. By all means get to a specialist. What you have might not be or even lead to Peyronies, but you may have torn, ruptured or torn a ligament. My personal experience is that university hospitals tend to be more leading edge on symptoms and treatments. You should be able to look up the urology department on the university's website and see what they specialize in.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Gerg

Believe me, if the pop was accompanied by some sort of pain, or there was visible bruising or swelling I would have taken an immediate trip to the emergency room.  However, I've heard this same "pop" during intercourse a couple of times before and it was always painless--like cracking your knuckles--and did not lead to complications.  Like I said, I have seen a doctor about this and he seemed uninterested.  Also, after reading many of the posts on this forum, it seems that a lot of specialists don't know what they're talking about.  As more time passes, I'm becoming increasingly convinced that I have peyronie's.  I was merely asking if it sounded like peyronie's to anyone else so that I could seek out a qualified, competent urologist.  

I know, I know, I'm supposed to seek out the urologist first and he is supposed to tell me whether or not I have peyronie's.  I guess I just don't want to hastily make an appointment and pay out the a$$ just to be told to "take vitamin e and come back in six months."