INJURY & penile FRACTURE - Main Peyronie's factor

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kambiz

i had erectic sever pain and down ward bend in my penise about a year ago. pain stopped after 6 months but bend remian which make difficult intercourse. then i decided to order X4 traction device and i receiving it in next week.
but 3 nights ago between  sex i felt a noise like breaking in my penis and very bad pain. after that my erection is so painfull and i can feel a hard section like plug in top side of middle of penis.
i dont know is it Peyronies or what? what shall i do since i dont know any expert in Peyronies in Iran where i live, shall i stop sex? can i use traction device while i have pain? please guide me what are my options?
i am 42 yrs male.  

newguy


Kambiz - I'm very sorry to hear about the recent incident during intercourse. Those with existing peyronie's probably stand a greater chance of experiencing similiar problems in future (just my view), in part due to whatever made them susceptible in the first place, and also due to shape of the penis causing problems. It sounds to me like you may have fractured your penis (the noise etc), but I think it's best to get this checked out ASAP. I definitely think that you should stop sex for a while, until the pain has diminished and you know where you stand. I almost thought about suggesting that you should go to the hospital, with the posibility of surgery for penile fractures, but first off I can't be 100% that has occured, secondly I'm not sure it surgery is a valid option after 3 days, and thirdly I don't know if such operations are performed where you live.

Doctor Levines view of traction appears to be that it can be used as long as it doesn't worsen pain. I think it'd be a good idea to let your body recover a little first, and then when the pain starts to reduce a little, maybe introduce it. You could maybe decide to use it if/when the curve worsens. That way it might minimise the chance of aggravting the condition, and be a good compromise. There are no firm right or wrong answers really. Get on some oral treatments too. Trental and so on.

RichB

Quote from: kambiz on July 23, 2009, 04:26:15 AM
i had erectic sever pain and down ward bend in my penise about a year ago. pain stopped after 6 months but bend remian which make difficult intercourse. then i decided to order X4 traction device and i receiving it in next week.
but 3 nights ago between  sex i felt a noise like breaking in my penise and very bad pain. after that my erection is so painfull and i can feel a hard section like plug in top side of middle of penise.
i dont know is it Peyronies or what? what shall i do since i dont know any expert in Peyronies in Iran where i live, shall i stop sex? can i use traction device while i have pain? please guide me what are my options?
i am 42 yrs male.  

Kam you need to go to a hospital quickly. You may have suffered a penile fracture, which is a medical emergency.

kambiz

what is the symptoms of penile fracture? i dont have pain if not erected, also no darken skin etc..
kambiz  

LWillisjr

Quote from: kambiz on July 27, 2009, 05:10:36 AM
what is the symptoms of penile fracture? i dont have pain if not erected, also no darken skin etc..
kambiz

kambiz,
I don't know a lot about penile fracture, but my understanding is that there would be pain and loss of erection. I also found the following in a medical report.

"Penile fracture is defined as a rupture of the tunica albuginea of the corpus cavernosa when the penis is in a fully erect state. The age of patients with penile fracture discussed in the literature ranges from 26 to 41 years. Fractures to the penis, although uncommon, do occur when an abnormal force is applied to the erect penis. The 'fracture' is actually a tear in the tunica albuginea, the thick fibrous coat surrounding the corpora cavernosum tissue that produces an erection."
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

iantho

No doubt that Levitra and some other herbal medicines can work wonders for some but there is something which over the time has proved to be beneficial for those who want the effect in couple of minutes is Viagra and I got to know about it from LINK DELETED USER BANNED . There is a lot of fake selling of such medicines on internet, so before you can order it online, just make sure it is a real pharmacy.  Such medicines should only be used in accordance with the instruction of physician, as results and side effects may vary from person to person. For me Viagra has worked best, for you it can be something else.  

Sad

I was first diagnosed with Peyronies Disease in Summer 2008. That was when I first noticed a lump in my penis and went to my urologist and he diagnosed it. But I wonder if maybe I've had Peyronies Disease for a lot longer than that. I've been sexually abstinent for 7 years, so maybe I didn't notice the curvature right away. If I did develop it before Summer 2008, I have a couple theories as to what might have caused it. Seven years ago I had a fiance, and she had a 7-year-old daughter who just hated me, and this little brat punched me in the privates on three different occasions. I wonder if she could have damaged my member then and caused the Peyronies? Also, around that same time, I had to go to my urologist and he had to snake a fiber optic cable through my urethra, and at one point I felt excruciating pain. I wonder if that could have damaged my penis and caused my Peyronies? Also, about 10 years ago, I started passing a lot of blood in my semen. I also discharged these little yellow stones in my semen (but not in my urine). To this day I still sometimes pass these little stones in my semen. I wonder if these little yellow stones I pass could have accumulated into this plaque I now have on my penis? I feel like it's my own fault that I got Peyronies, and that makes me feel sick. I could have prevented it. And also, around the same time I developed Peyronies I started having epileptic seizures. I had never had a seizure in my life, and then I started having them. Now it doesn't seem these two conditions (the Peyronies and epilepsy) could be related, but it's funny how I developed both of them at almost the exact same time. And of course with the epilepsy I can't take anti-depressants, which might have helped me with my severe depression caused by Peyronies. As they say, when it rains, it pours.

slowandsteady

I don't know what causes the yellow clumps. It seems to be some sort of denatured protein and might be related to epididymitis or prostatitis.

My theory-du-jour is that E. coli might be involved with Peyronies Disease.

newguy

Any injury can potentially result in peyronie's, depending on the individual, so there could be some truth in your analysis on the situation.

dslokes

About a week ago I engaged in rough sexual activity which resulted in a large bruise of my inner thigh. In addition, my penis was extremely sore the next morning, and since has been sore during times of erection. Also, it seems that there is a thin band leading from the base of my shaft almost to the head is "harder" than I remember it (corpora cavernosa?). Does this sound like Peyronies? (I am a 39 year old...)..

cowboyfood

May be just an injury, but some Peyronies Disease is triggered by a traumatic event.  Best advice, IMO, is to tell the forum where you are located so that we could possibly suggest a urologist who has experience dealing with Peyronies Disease-type symptoms.  
Currently:  L-Arginine (2g), Vit D3)

mike67

Hello all. This is my first view of this web site and I am happy to see that it has very recent posts.
I am newly diagnosed. I saw my Urologist yesterday. He is in Oakville and a very prominent Urologist in Canada. I have been seeing him for many years for Prostate checks. I am not sure if I am authorized to post his name - so I won't.
I brought him a few good photos of my crooked penis . He more of less pin pointed the area of plaque and told me how he would wait 1 year before performing any surgeries , or for that matter , any invasive treatment at all.
I wanted to share his initial treatment for me with any one interested.
He has , over many years , prescribed many of the things that I see posted.  FYI - he put me on a daily low dose ( 5 mg) CIALIS which he said will help to soften the plaque. He also told me to get a vacuum pump and use it nightly for 5 or 10 minutes . This is supposed to help slowly reduce the curvature. I am worried about the CIALIS as being a heart patient , I carry a vial of Nitro with me , but have never yet had to use it. Seeing my Cardiologist today to discuss and then get back to my Urologist.
I have every faith in him as he is the Peronies Guru in this entire S. Ontario region , if not more.
I have to stick to his plan as I have no choice at this , the beginning of my Peronies affliction. How I got it - I'll never know.
I am suffering mentally with all of you and will try anything he suggests as time goes by. Hopefully I'll be one of the 60% who get better after the first year.
Sorry for the long message , but I needed to get my points through this initial post.
Thanks for your time and interested in any and all comments.

Mike  
Mikey

cowboyfood

I think most veteran members of this forum would consider his advise wise, the VED is a highly recommended treatment by many of our most knowledgeable members and has apparently provided many of us an effective weapon in controlling and reversing deformities.  

While your here, I suggest you read up on the prescription drug Pentox and discuss it with your Doctor.  From what you've described, he would be open to prescribing this for you.

CF
Currently:  L-Arginine (2g), Vit D3)

hb

Mike67

As long as you don't use the Nitro and Cialis at the same time, you are safe. I had by-pass surgery in 2005 with 5 grafts. Carry Nitro all the time and never have had to use it. I also take Levitra or Cialis on a daily basis.

The guys that get into trouble with Nitro and the ED drugs, are those that take a max dose of Viagra or Cialis. Then take the Nitro pills. That will drop your blood pressure to really low levels like 50 over 30.  

Sheldon

What is meant by 'traumatic event'? Something emotional as opposed to a physical injury?
Is this proven? Or just a theory?

Briden


I was 34 when my first symptoms of Peyronie's began....that was almost 18 months ago...as like many of you I do not recall a specific act, event  or injury that may have begun the peyronie's process for me..

so my questions is...

Is it believed that the penis sustains wear and tear and or trauma for a number of years and has the ability to heal itself untill a certain point and then breaks down and develops Peyronie's?  

Do we think it is a case of the penis cannot withstand anymore?  or is it a biological change in our bodies that enables the Peyronie's disease to take hold..

Thoughts?

thx,
Briden

 

BrooksBro

I believe some genetic and physiologic conditions pre-dispose some men to poor healing after an injury, and it is that inappropriate response to an injury that shows up as the plaque formation.


Quote from: Briden on August 18, 2010, 05:04:41 AM

Is it believed that the penis sustains wear and tear and or trauma for a number of years and has the ability to heal itself untill a certain point and then breaks down and develops Peyronie's?  

Do we think it is a case of the penis cannot withstand anymore?  or is it a biological change in our bodies that enables the Peyronie's disease to take hold..


boomerang

Although many people report injury as the cause of the start of their peyronie's mine started on its own however it was exacerbated by taking Bisoprolol, a Beta Blocker.

There is much evidence that peyronie's is linked to dupuytren's and ledderhose.  I have all of these and my dupuytren's and ledderhose both started after injuries.

However we only have one penis but two hands and two feet.  

The interesting thing is that I only injured one hand but the dupuytren's occurred after a year or two in the other hand on exactly the same matching finger without any injury.

I injured my foot 4 years ago (stamping on firewood to break it) but the ledderhose started in my other foot 3 years later and on exactly the same matching toe without any associated injury.


From this I conclude that injury looks like it could be a trigger but not an absolute cause.

skunkworks

Some people scar easier than others.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Briden


I Understand that some men are "pre-disposed" to the scarring or Peyronie's condition....I get that...we all do...

My frustration and confusion with this condition is that I know I must have been injuring my penis since I began masterbating and having sex both of which were over 20 years ago for me...why at this age (34) did "my" penis say enough is enough and begin the scarring response to typical trauma?

I can say for me...My sex & masterbation technique has not changed so why did the healing response change...

Not sure if any of you can relate to this...

There is alot of talk here of poor circulation...inflamation...TGF beta issues...testosterone deficiency...poor vitamin balance...lack of certain amino acids etc...so does this mean that the general consensus is that none of us had any of these types of issues when we were teenagers, 20s etc...and now in our older years a typical trauma will no longer heal correctly?


Brightdog

I have had trouble with scar tissue forming - very slowly - in other parts of my body. I have had to have it removed from my nose twice (my nose was injured when I was a kid). I have scar tissue in a few other sites - and I fully expect I will eventually have a completely screwed up hand because I broke it 2 years ago and I expect I will continue to build up scar tissue.

So for me the propensity for scar tissue is nothing new. And Peyronies Disease followed trauma that was different from the usual masturbation/sexual intercourse routine for me.

Brightdog

A friend of mine with Dpuytrens was told it was largely a genetic predisposition. I don't have it, but my father sustained a frostbite injury to one hand and ended up with similar symptoms - I have no idea exactly how it worked. My Peyronies Disease was definitely triggered by injury.

boomerang

Quote from: Brightdog on August 20, 2010, 02:59:04 AM
A friend of mine with Dpuytrens was told it was largely a genetic predisposition. I don't have it, but my father sustained a frostbite injury to one hand and ended up with similar symptoms - I have no idea exactly how it worked. My Peyronies Disease was definitely triggered by injury.

Yes it looks like injury is one of the triggers for peyronies and other related diseases but not necessarily, drugs can trigger it too it seems.  The fact that an injury can occur to one hand and later the other hand gets the same disease leads me to think that the cause could be an underlying infection of the cardiovascular system by a very "clever" parasite.  This could explain why the injury triggers the disease because the parasite could already be in the blood stream waiting for an opportunity to infect more body tissue.

Parasites are known to be "clever" and able to target parts of the body. One such common parasite, toxoplasma gondii, which is related to malaria can target the brain of a rat to make it sexually attracted to cats urine.  The rat seeks out the urine and finds the cat. The cat eats the rat and the parasite is now inside the cat. The cat can then pass on the parasite to humans and change human behaviour.   The parasite is known to increase "Risk Taking" hence the large proportion of dead motorcyclists who have been shown to have been infected.

MUSICMAN

If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.

newguy

Quote from: MUSICMAN on September 01, 2010, 05:49:13 PM
If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.

I've said something along similiar lines before. Maybe the way in which the injury heals is important. Incorrect healing of a small open wound, versus an injury that is stitched together?  

Brightdog

Quote from: MUSICMAN on September 01, 2010, 05:49:13 PM
If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.
This is one of the things they tell you when you go in for  the surgery - there is a risk it will make things worse. And it's why they recommend traction/VED - to keep the tissues stretched so new scar tissue won't form lumps in the same way.

The surgery is a huge risk, but if nothing else has worked - you take the gamble. At least you get the satisfaction of knowing you tried everything!

angelinadiaz

Penile disease and penile bleeding causes peyronie disease.

LWillisjr

Quote from: angelinadiaz on September 21, 2010, 04:39:57 AM
Penile disease and penile bleeding causes peyronie disease.

Could you elaborate on what you mean by penile disease and penile bleeding and what studies support this being related to Peyronies Disease?
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

fubar

I'm with you brother could you please give us a list of penis diseases and your source of information. Yes bleeding and healing is a part of it but disease is new.Please enlighten us.For. this is ambiguous and obscure to us.I and the rest of us? Have never heard of penile disease I almost want to laugh.

Fubar

boomerang


Good point.  Surgery could restart the disease but to have surgery, the disease would have have had to be at an advanced stage and may well have already run its course in that part of the body. I also have dupuytren's and this ran its course several years ago and I have had no further trouble.

Many "autoimmune" diseases seem to have injury as one of the triggers and it is one of the things that is often noted as
almost a trademark of the autoimmune diseases.

Peyronies thus seems to have this as a trait.  Hypoxia caused by poor blood flow will also cause cell damage which could trigger the injury.

I have strong suspicions that "Autoimmune diseases" are actually caused by internal infections.
I have a friend with Sarcoidosis, a disease which affects the lungs, who has been told it is related to Tuberculosis and is being treated with antibiotics.
So could infection be the cause for all autoimmune diseases?  It seems also that each autoimmune disease affects specific parts of the body.

Treating Peyronie's as a disease of the penis I think is probably the wrong way to look at it.

Really Peyronie's appears to me to be a symptom of a systemic "Autoimmune disease".

I am treating myself with Neprinol (which is claimed to thin the blood and I cannot find fault with this claim)
and I have had no further advancement of the disease and a miriad of other unlpeasant symptoms around my body have receeded.
I don't see Neprinol as a cure but it is certainly holding the fort for the time being.

I  am however looking at the Marshall Protocol with caution.
It does seem like a good theory.  It could lead to some useful pointers.
There is some criticism of this theory but I only take note of the responses with an accurate scientific argument.

Interestingly Olmesartan Medoxomil (Benicar), the main Marshall Protocol drug, is mainly used to reduce blood pressure by
counteracting "angiotensin II".  This treatment allows the blood vessels to expand thus helping blood flow.  
One thing I noted when my peyronies started was a feeling of cramp around my body and cold exremities I also had a heart attack soon afterwards.

As far as I can see, every positive report of treatment for Peyronie's seems to involve something that improves blood flow
in one way or another so Olmesartan Medoxomil would seem to fit the bill to me.




Quote from: MUSICMAN on September 01, 2010, 05:49:13 PM
If injury is the cause of peyronies then undergoing surgery and having scar tissue removed and a graft put in place sounds like injury. I would think the surgery would restart the disease.

Alba66peach

Can anyone tell how scar tissue is damaged?

George999

The metabolic processes of the human body are complex.  They involve a lot of hormones and other substances that either tend to drop off over the years or can be negatively affected by diet or drugs, presciption or otherwise.  Ubiquinol is a key substance that is naturally produced within the human body.  It is been shown in a research study to be effective against Peyronie's.  BUT, Ubiquinol is greatly reduced in the body by multiple drugs.  Its levels in the body also decline with age.  What does that tell you?  And Ubiquinol is just one example.  Testosterone is VERY likely protective against Peyronie's, but if you are overweight or obese, you are going to have issues with Testosterone.  Also if as you get older your Testosterone levels will drop.  Then there are Vitamin D, DHEA, PQQ, etc, etc.  I could go on and on citing other key substances in the body that either promote or protect against scarring, most if not all of which decline with age and/or are affected by the surrounding environment.  On the other side of the coin we have toxins.  Heavy metals contribute to inflammation and all sorts of metabolic problems.  Over the years we all accumulate some degree of heavy metal load in our bodies, not to mention other non-metalic organic toxins.  To me, this explains a whole lot and opens a huge door for effective holistic treatment of Peyronie's.

skunkworks

What are the names of all the tests used to diagnose Peyronie's and determine the extent of the injury?

I remember a cavernosogram is to test for venous leakage.

I've heard of a Doppler before, what is it for?

Are there any other tests?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

LWillisjr

"Doppler" is in reference to a Color Doppler Ultrasound. This does two things.
1. Ultrasound - Shows areas of calcification. I don't recall if scarring (plaque) that has not calcified is detectable with the ultrasound or not.

2. Color Doppler - Shows rate of blood flow into and out of the penis.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Woodman

Yes, the doppler can detect the scar tissue in both states just scar tissue or calcifed scar tissue.

restore

I'm a newly first time married guy, two years now this March.  I was just recently diagnosed.  My experience is this:  I was practically a virgin before I got married.  Very few relationships, and even fewer sexual experiences.  Masterburation, probably as much as the average guy, and nothing strenuous there.  So, at 49, and after having regular sex with my wife (3 to 5 times a week) for almost two years now.  The thing is, we like the woman on top position a lot.  Straight up with her looking down at my face, laying on my chest, then reverse cowgirl, we do it all.  With missionary, she pulsates her pelvic area front and back vigorously, so my penis gets a workout with multiple bending in different angles from all this.  This is how she can best reach climax for herself.  I just love to watch her under me, pulling my penis back and forth with her pelvic thrusting, but my penis is bending in mid shaft somewhat.

Briden may have a point here on his post.  I hadn't thought of it before, but maybe the penis is very resilient to all this activity while we're young (especially the bending at erection), but at mid-life (or close to it), it just takes a toll after awhile.  We have since adjusted our lovemaking positions since this has occurred, when we do have sex which is rare right now.  It just hurts too much still.  But I do think it's getting better.  Taking Pentox, ALC, and Ubiquinol, and vitamin C.  If I had only known, I would have been more careful, and control things better in bed.

 

snowydreams

What would be considered the gold-standard test to determine the extent of structural problems in the penis and erectile function?  Aren't ultrasounds limited in this area?

ShadesOfBlue

I doubt anyone has heard this before ..... it's bizarre and I have never - and will never - tell anyone else.

When I was young (I'm thinking this was around fifth, sixth, and maybe seventh grade) I had friends who were a little older. They would always make jokes about masterbating and talk about it, as can be expected from boys who are going through puberty and just discovered a new toy in their pants.

I felt left out and curious because I did not masterbate, even though I was starting to get more frequent spontaneous erections. So i decided to try it out. The traditional motion of moving my hand up and down the shaft did not seem to work - it didn't give me adequate pleasure/stimulation to achieve ejaculation. After some experimenting i found a method that did. Basically, I would bend my own penis shaft backwards until a I felt a little click as it went back then i would hold it there. the blood pressure made the top of my penis even harder ... then I would rub the most sensitive area at the top until I came. It was not really painful and I rarely noticed a very slight aching when I finished.

My penis became very pliable at the area where I would always bend it. I started to wonder if maybe this would have a long term impact, so eventually I stopped. Obviously my memory of these young years is not perfect, so I have mo idea how long i did this. It may have been a year or even two years. That could mean hundreds of traumas!

So for as long as I can remember since then, I have had a slight bend mid-shaft where I used to bend it back. I started noticing ED about 4 years ago. For the last one or two years it has been impossible for me to achieve an erection adequate for penetration without drugs. However, using pde5 inhibitors I am able to have a very satisfying, fantastic sex life. My girlfriend of six months has no idea I am using them.

This is something i worry about constantly. It's actually ruining my life. I am young - only 26 years old. I have no problem with taking drugs for the rest of my life, but I am absolutely terrified that this problem will continue to degenerate, and at this rate, I will soon be rendered completely impotent with or without drugs. How can I live with no sex life? How can I explain to my friends and others why I never date women? How can I live knowing I will never be able to marry? Or if I am married how could I explain to my wife that we will never be able to have sex? This could easily become a truly life-altering problem.

Some more info: I recently went to a mens clinic, where they injected me with a drug to give me an erection. I had a "very vigorous" response to the drugs - a hard erection that lasted over an hour and had to be put down using a second injection. This is a slight ray of hope as it indicates my viens and such are still healthy and intact. That is when the doctor noticed the bending and told me I had peyronies.

The worries that consumes me are - will I ever be rendered completely impotent? How long will it take? Will it get worse?

So there you go - there's my bizarre story of how I got peyronies disease.

Any advice or comments are welcome.

ShadesOfBlue

I know that in peyronies the ED is caused by scarring. Can anybody tell me - since my peyronies was due to trauma, will my scars stay more or less the same over time? Or will they get worse as I age?

Keep in mind that I have not seen any noticeable increase in bending or plaque on my penis for many years.

I think I know they answer to this question and it scares the crap out of me. But I'm just asking because you guys seem to be the experts.

George999

This actually does not sound like Peyronie's to me.  For Peyronie's to occur requires an underlying metabolic problem in addition to trauma.  I think that is doubtful in adolescence.  Some doctors assume that any bending of the penis results from Peyronie's.  That is just not the case.  Some penises are bent "naturally".  Thats called congenital curve.  It occurs more frequently than you might believe.  I also believe that it IS possible for penises to be bent purely by stretching.  That does not mean Peyronie's.  Peyronie's is an inflammatory disease involving plaque buildup.  So to diagnose your situation with certainty would probably require an ultrasound UNLESS the examining doctor can actually feel plaque in the penis.  Peyronie's CANNOT be accurately diagnosed by the doctor just looking at your penis.  If that is what the doctor did in your case, he or she is just guessing.  A Peyronie's diagnosis takes much more than just that.  What you DO have is ED, and that can be caused by a whole range of things.  If you REALLY want answers to this problem, you REALLY need to get a referral to a male sexual funtion specialist.  That is the kind of doctor who can sort all of this out for you and help you get your health issues resolved.  Many of us here have much more serious deformity issues than what you are experiencing and yet have no ED issues.  So I really suspect your problem is mostly, if not completely, about ED, not Peyronie's.  But get are referral to the right specialist and they will sort it all out for you.  - George

George999

To my knowledge, ultrasound IS the gold standard.

ShadesOfBlue

Quote from: George999 on January 08, 2011, 10:52:27 AM
This actually does not sound like Peyronie's to me.  For Peyronie's to occur requires an underlying metabolic problem in addition to trauma.  I think that is doubtful in adolescence.  Some doctors assume that any bending of the penis results from Peyronie's.  That is just not the case.  Some penises are bent "naturally".  Thats called congenital curve.  It occurs more frequently than you might believe.  I also believe that it IS possible for penises to be bent purely by stretching.  That does not mean Peyronie's.  Peyronie's is an inflammatory disease involving plaque buildup.  So to diagnose your situation with certainty would probably require an ultrasound UNLESS the examining doctor can actually feel plaque in the penis.  Peyronie's CANNOT be accurately diagnosed by the doctor just looking at your penis.  If that is what the doctor did in your case, he or she is just guessing.  A Peyronie's diagnosis takes much more than just that.  What you DO have is ED, and that can be caused by a whole range of things.  If you REALLY want answers to this problem, you REALLY need to get a referral to a male sexual funtion specialist.  That is the kind of doctor who can sort all of this out for you and help you get your health issues resolved.  Many of us here have much more serious deformity issues than what you are experiencing and yet have no ED issues.  So I really suspect your problem is mostly, if not completely, about ED, not Peyronie's.  But get are referral to the right specialist and they will sort it all out for you.  - George

Well, that's good to know, I guess. However, the doctor I went to see - who works at a mens clinic specializing in ED - told me it was peyronies. He also felt  hard area mid-shaft in my non-erect penis and said that just from feeling it, it feels like scar tissue. So .... it does look like peyronies.

Also, are you sure that an underlying metabolic condition is neccessary. I'm no expert, but I've heard that trauma can cause scarring and therefore peyronies. Since I potentially had hundreds of traumas ... this would seem a likely cause.  

George999

If the doc felt scar tissue, its Peyronie's for sure.  Trauma is not a cause of Peyronie's, its a trigger.  Normally when tissue is damaged it is able to repair itself.  That is why a lot of people have surgeries and after a few years they don't leave a trace.  Other people get nasty scar tissue.  The difference?  Underlying metabolic issues.  But you don't know that you have issues with healing processes until there is an injury that necessitates a healing process.  When that process goes amock for whatever reason, you have a reminder of the event that can last forever.  - George

ShadesOfBlue

Quote from: George999 on January 08, 2011, 09:51:34 PM
If the doc felt scar tissue, its Peyronie's for sure.  Trauma is not a cause of Peyronie's, its a trigger.  Normally when tissue is damaged it is able to repair itself.  That is why a lot of people have surgeries and after a few years they don't leave a trace.  Other people get nasty scar tissue.  The difference?  Underlying metabolic issues.  But you don't know that you have issues with healing processes until there is an injury that necessitates a healing process.  When that process goes amock for whatever reason, you have a reminder of the event that can last forever.  - George

Interesting. After spending hours perusing this board, I have decided to be as agressive as possible in these early stages. I NEED to know what is wrong with me - is it ED, is it Peyronies, or what? And, what can I expect in the long term?

Maybe this is foolish, but I have some hope that the scarring I do have will remain constant. After all, it hasn't changed shape very much since the trauma occured and that was over 10 years ago. Instead, I am hoping that I simply have ED due to some other issue, and the scar tissue will remain stabilized and is NOT the source of my ED. As was mentioned earlier, it seems that other people have much, much more sever bends than me and no ED. My bend is not very noticeable .... i doubt my girfriend even thought it was anything out of the ordinary.

But I NEED to know these answers .... it consumes my thoughts day and night. I live in toronto, but I'm calling Dr. Levine tomorrow to try to set up an appointment. I'm not wealthy at all, but if I have to hustle up a thousand dollars cash just for the consultation, I will do it.

So far the only action I have taken is 3 X 100 ubiquinol daily.

ShadesOfBlue

Quote from: mike67 on January 18, 2011, 07:44:49 AM
Shades of blue
George999 has just informed me of this post. I am in Mississauga . I will get back to you via a PM later this morning with info on my Peyronies Disease Urologist at Mt. Sinai. He is reputed one of the top 5 in Canada.
Mike 67

Awesome  :)

George999

Just trying to help out a new forum member.  Sorry to disrupt the thread.  - George

Tim468

Given that new members can create their own topic threads (and this one has a unique title), I do not see helping someone find a doctor as thread drift.

Tim
52, Peyronies Disease for 30 years, upward curve and some new lesions.

mike67

Mikey

tevans

I definitley experienced an injury during intercourse about two years ago, and my condition has appeared suddenly in the past few months or so. Is that odd, I don't know; I haven't seen a doctor as it's symptoms are unmistakable and my deformity is of a low order. I have Sarcoidodsis in my lungs and as it's currently viewed as an immune miss response to injury, I can't help but ponder a link that imaybe both conditions are the result of a total immune miss response. My Sarcoid specialist here in Australia has researched it in the UK and as he cannot find and has ruled out a genetic or rather a hereditary link, he believes it is a genetic adaption to airborn abrasives in the air during the Industrial revolution, an attractive idea given the Darwinian connotations. I would really appreciate anyone's thoughts as I have family members with sarcoid too that could be forewarned  

boomerang

Quote from: tevans on January 26, 2011, 06:23:38 AM
I definitley experienced an injury during intercourse about two years ago, and my condition has appeared suddenly in the past few months or so. Is that odd, I don't know; I haven't seen a doctor as it's symptoms are unmistakable and my deformity is of a low order. I have Sarcoidodsis in my lungs and as it's currently viewed as an immune miss response to injury, I can't help but ponder a link that imaybe both conditions are the result of a total immune miss response. My Sarcoid specialist here in Australia has researched it in the UK and as he cannot find and has ruled out a genetic or rather a hereditary link, he believes it is a genetic adaption to airborn abrasives in the air during the Industrial revolution, an attractive idea given the Darwinian connotations. I would really appreciate anyone's thoughts as I have family members with sarcoid too that could be forewarned  

A friend of mine has been told by a top UK specialist that Sarcoidosis seems to be linked to TB.

He is now being treated with antibiotics.

Dr Marshall of the Marshall Protocol (Australia)  Also thinks that Sarcoidosis is an infection.  Several people seem to have reported that they responded well to his protocol.

I think his protocol is worth a look.  Part of the treatment involves wearing silly looking dark glasses but Tetracyline antiibiotics are known to cause photosinsitivity so the use of sunglasses is not so wierd after all!