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Author Topic: Don't be shy_sign up  (Read 5602 times)

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Paolo

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Don't be shy_sign up
« on: June 29, 2017, 11:17:52 AM »

Can I urge guests to take a few moments and register.

This IMO is the only serious site for us guys suffering Peyronie's to be in, so please consider joining in, the more we discuss this the better informed we all become and not (so to speak) suffer in silence.

Peyronie's disease is a connective tissue disorder of the penis that can be likened to arthritis. It is characterized by the triad of bent erections, pain in the penis with erections and palpable penile plaque. Peyronie's disease is quite common, affecting as much as 1 in 11 men despite the lack of public awareness.
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scottslcut

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Re: Don't be shy_sign up
« Reply #1 on: August 30, 2017, 11:06:45 AM »

Agreed!  Its such a personal situation and this is a great place to support each other.  Its not something you can just chat with buds about so here's the best forum to get info on what's working, how are others coping, what to expect from treatments and what our expectations should be.
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FVP

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Re: Don't be shy_sign up
« Reply #2 on: April 12, 2018, 10:51:06 PM »

Correct, it's not a disease. I dropped the word"disease" and explain it's a condition from trauma, via acrobatic sex, masturbation, injury etc. it should just be called Peyronie's. sometimes I just say arthritis of the penis. I usually tell the crooked man joke. I have to see the humor behind it.
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TonySa

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Re: Don't be shy_sign up
« Reply #3 on: April 13, 2018, 09:19:59 AM »

I use disease as folks seem to get it better as a medical condition.  Not sure why to avoid the term.
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james1947

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Re: Don't be shy_sign up
« Reply #4 on: April 17, 2018, 05:37:07 AM »

In my opinion, Peyronies is a disease. Not a contagious one, but disease that is disfiguring part of your body.
But everyone can call it as he wish :) it will still be there.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

drw56

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Re: Don't be shy_sign up
« Reply #5 on: June 02, 2018, 06:28:12 AM »

can anyone give me good solid evidence on what is best .traction or suction for  peyronies .i am just so confused been reading for hours and still dont know what one to use ?????
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LWillisjr

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Re: Don't be shy_sign up
« Reply #6 on: June 02, 2018, 11:12:31 AM »


Guys, this is not a disease or virus, you cannot catch Peyronie's, it's simply
scar tissue!!!



Mixed feelings on this one. You do catch a virus, but there are other diseases that you don't catch. You can be genetically disposed. An example would be diabetes. Definitely considered a disease in the medical community, but you don't catch it.
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Les - 10 yrs Peyronies Disease free
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Paolo

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Re: Don't be shy_sign up
« Reply #7 on: June 02, 2018, 02:33:14 PM »

Okay Les, I will delete that particular line, always respect your comments  :)
Paul.
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LWillisjr

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Re: Don't be shy_sign up
« Reply #8 on: June 07, 2018, 06:56:35 PM »

Was just expressing my opinion   :-)
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Les - 10 yrs Peyronies Disease free
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TonySa

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Re: Don't be shy_sign up
« Reply #9 on: June 07, 2018, 08:39:48 PM »

Dra56, more medical reports on progress w traction but at least one on VED and many shared experiences of success w both.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

tiagofil

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Re: Don't be shy_sign up
« Reply #10 on: June 09, 2018, 06:01:41 PM »

.
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Werther

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Re: Don't be shy_sign up
« Reply #11 on: June 09, 2018, 08:45:57 PM »

I don't know if the real incidence is actually up to 10% of men, but I'm likely to believe it. Consider that this is the one that is most reported in most recent studies and that peyronie's most known specialists, who deal with larger numbers of patients (e.g. Levine or Lue), usually report this percentage. Besides, if you take a look at older papers, it was generally reported a percentage of spontaneous remission beetwen 8-13%, but I've never read anywhere on the web of this occurence (and there are even older papers where it was claimed that spontaneous remission was up to 50% of the patients!).

I read that OP don't consider Peyronie's to be a disease, but I feel to disagree. I think that this argument is biased by a common misconception: peyronie's disease is not the plaque; it's rather a localized inflammation that can lead or not to the developement of fibrosis. In Europe this condition is more generally called with the latin term "induratio penis plastica" (that means "plastic hardening of the penis") and this can lead to misunderstandings, because it refers to the most likely result of TA's chronic inflammation and not to the inflammation itself, which is fibrosis' cause and, ultimately, the actual disease.
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