New member. Have Peyronies.

[Eximio]

Hi everyone - I am new here.  I have Peyronies and found this forum while trying to research solutions.  I'm currently pretty discouraged because it does not seem the medical community has much to offer.

To answer the questions suggested:

Age?  54
[bWhat did your medical doctor conclude?[/b  Peyronies
How long have you had symptoms? 2 years, progressively worse
What are your symptoms? I have the hour-glass shape erection, but very profoundly indented on one side of erection, less so on the other side.  Actually, it's sort of like there is a constricting ring about one third of the way up my erection, but much tighter on side than they other.  Total size of erection has shrunk from a little over 6" to a little over 5".  Thankfully, currently I do not have painful erections.  I also do not currently have curvature, only the deformity in shape.  When aroused, I do seem to be able to achieve erection very normally.  But I don't have much enthusiasm for getting an erection and looking at the deformed shape.  It used to be so straight and normal!
What treatments have you tried and what were the results?  I have had one visit with urologist that shows up on various sites as a specialist in Peyronies in my area.  He did not do as thorough an exam as I was expecting (no ultrasound to look for plaque, etc).  He suggested the PDLabs Transdermal Verapamil 15% Gel, though was clear that the evidence for it working is flimsy.  Anyway, I have been applying it for the past few days.  I find it very unpleasant to have the sticky gunk on my penis all day.  But I will stick with it for a while.  He mentioned injections that cost $8,000 USD per cycle (can't remember the name), said his office will check into whether I can get any coverage from my medical insurance.  He also mentioned that he can perform a surgery to help with the deformity.
Do you have insurance or means to get medical treatment? I do not yet know what my medical insurance will cover, if anything.
Where are you in dealing with the psychological aspects of Peyronies Disease?  I am not in a state of depression, but I am distressed.
Are you in a relationship?  Not currently.  This is why I am distressed.  I am worried about beginning sexual relations with the next girl friend I have.  Of course, I have not met her yet, but I am sure I will - I usually eventually find myself in another relationship.  But I am really worried about how my deformed erection will be perceived by a new girl friend.

I have already read here that few people in this forum have much belief in the Verapamil treatment.  I'm not enthusiastic or optimistic about it - just using it until I find an option that looks more promising.

I do have a few questions for anyone that can provide some insight:

1)  Has anyone tried these super expensive $8,000 USD per cycle injections?  I can't remember what it is called.  I'm just wondering if it works.  (For that price, it should not only cure Peyronies, but make your erection 5" longer!).

2)  Has anyone tried the PShot?  There is a lot of info about that on the Internet, but I can't find any information about efficacy.  The pricing seems to be in the $2,500 USD per cycle range.  The providers seem to recommend between 3 and 6 cycles.  Anyone with positive results from the PShot?  

3)  Has anyone had good results using a vacuum pump for the type of Peyronies (as described above) I exhibit?  Does vacuum help smooth out the deformity over time?

4)  Does anyone else have the same symptom - e.g., an erection that looks like there is an invisible constriction ring around the penis?

I'm glad this forum is here.  I appreciate any feedback and insights any of your are willing to provide.

Let's all work together to push for better treatment options.  This should be a treatable disease!

[Jonbinspain]

The injections that you are speaking of are Xiaflex. Yes, it's expensive, and results are mixed. I would suggest you read that section on the site, and possibly ask questions of those who have been treated. If you decide to go ahead, check the credentials of this Urologist very carefully. How many people has he treated?  Success rate, etc?

After 2 years you may well be through the active phase. Nevertheless VED may well help to maintain healthy blood flow to the penis.

Surgery is considered the last resort here, if all else has failed.

[LWillisjr]

I am sure the injections your doctor is referring to are Xiaflex injections. Statistics are not exact but I think I recall that maybe 30-40% of men you tried this saw 'some' improvement, but I think most of the data is based on curvature improvement and not deformity improvement.