newbie, 20's, Peyronies for around 2 years.

[radiantblue]

Greetings!

I have finally decided to take the time to introduce myself and engage with the community.

I am 25 years old and from Melbourne, Australia.

I have been lurking this forum since my days of being paranoid of having Peyronies, until now having been diagnosed with Peyronies around a year ago and having had symptoms for around a year leading up to diagnosis. My symptoms started as generalized pain upon erection (My penis felt as if I had been having sex for hours on end). This lasted for around 6 months without any other symptoms. After this 6 month period I developed a thick plaque on the right side of my penis about the size of a finger nail and a slightly smaller but still thick plaque on the left side of my penis. Both of these plaques were actually "behind" my glans and protruded out a little bit to sit slightly "below" my glans. These plaques were connected via thinner, flatter and less consistent scar tissue which ran "behind my glans". At this point I had developed a minor bend just below the glans at around 20 degrees. All of this scar tissue gradually grew and moved down my penis over the next 6 months. I also developed another Plaque at left side base of my penis. This plaque gradually moved up my penis and merged with the top plaques.

Currently I have one thick plaque on the right of my penis and one on my left, they are almost symmetrical and sit about 2 thirds of the way up my shaft. They are connected across the top of my penis by thinner and flatter scar tissue. all of this plaque is causing an upward bend of probably around 40 degrees. I can still have sex but I just have to be a bit more careful.

I have lost no more than 1 or 2cm of erect length but only because of the curve. I have lost approx .5cm of girth on the portion of my shaft that's above/under my plaque. I also have a minor dent near the base of my shaft caused by another small plaque.

As far as treatments go I am currently using the phallosan forte but that is pretty much all I have tried. After 3 months of using the Phallosan for 4 hours a day I have seen no improvement, my bend and narrowing has grown slightly worse and my plaque has grown and shifted lower in my penis since starting with the phallosan. I am not sure if I should continue or not.        

I have no insurance but I live in Australia so if I need surgery it will be free under our public healthcare system. Unfortunately xiaflex is not covered under our drug subsidies program for peyronies so that would be full cost. My urologists advice is that the the benefit from xiaflex would probably not be worth the cost of the drug, as I have a lot of plaque and other deformities as well as the bend. My Urologist recommends grafting surgery as the best option for me and that because of my age and the fact that I can achieve perfect erections i would be a low risk of any ED issues post surgery.  

I look forward to engaging with this wonderful community. I have many questions but I will save those for another time and topic, but I will ask this, is anyone here from Melbourne and can recommend a good urologist or clinic or whatever?

Thanks for your time.

[NeoV]

Welcome to the forums!

I'm sorry to hear about your symptoms. Traction with no results so far does seem discouraging. I never used a device, only my hands, and had a lot of improvement, but am still trying to beat a new bend which is much more difficult to target.

You may want to try VED therapy (with at least the Augusta, since it's cheap). Be extremely careful of course. Pentox and cialis aren't a bad idea either, are you taking any supplements such as CoQ10? How is your diet, and do you exercise? Strange question, but do you drink coffee?

Peyronie's in your 20's is so damn isolating. It kept me in a very dark place for years. Finally I decided to live as if it did not matter and pushed myself with women to meet many good women and finally my wife. Having such a challenge to your manhood can be quite enlightening. Do not stop yourself from being social or meeting women and telling them about it. A lot of people may need you. Never give up on either aspect of your life, the physical, and the mental.

I do not think grafting is a good idea

if you do go that route, research the hell out of it first and get a very good idea of what you're getting into. A lot of surgeries have resulted in horror stories with some very seriously psychological consequences. No matter what, we are all here for you.