Just Started Xiaflex

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Kenlon

Hello all,

I've been following this forum for about four or five years.  I'm now 28 w/ 30 degree curve up and left.  I've had this Peyronie's for as long as I can remember.  First I found the posts about congenital curvature and how that's basically not fixable.  I figured this was me because I could not (still cannot) remember when my guy was straight.  It always curved up, it was the 30 degree curve to the left that has caused me so much self-consciousness, depression, etc etc you know the rest.  I am lucky in the sense that I've never not been able to have sex or anything, I just adjust myself or my partner to accommodate.  

I found a local urologist, asked him, and he says yep you have it.  (OK?) Six treatments of verapamil, no change.  I gave up trying, wasn't excited about any more needles, and hated to be so consumed with my junk when there's so much else going on in my life.  Fast-forward a few years...wife's pregnant with the third.  After he's born, vasectomy time.  While I'm there, hey let's set up an appointment for Xiaflex.  I'll be honest, I've learned 10x more on this forum than from this uro.  I'm already planning to go tomorrow for injection #2 but not before confronting him about the extreme lack of information sharing a doctor is supposed to live by.  Also, no ultrasound.  Does everyone get an ultrasound?  He literally asked me to point out where he should inject the stuff.  

Anyways, first injection was yesterday.  I was so excited and took advantage of my numb member and started the modeling.  A few hours later, numbing agent wears off, swelling and discoloration begins, it hurts, and I'm panicking.  I read about the coflex, ran to CVS, put it on when I got home.  Took it off maybe 6 hours later...swelling down 75%. Insane.  Today, sore but still able to do some light modeling.  I've read so many things on here about when to start this.  I'm going with the philosophy of just listening to my body; if it's causing real pain, stop.  So far there's an obvious change in elasticity, curvature maybe a tiny bit improved but this is fresh so probably can't count on where it's at right now.  Also, I haven't had an erection, so that's the real measurement.  The thought of having one seems ridiculous to me...I cannot seem to erase the thought of "penile fracture" every time my mind is taken to the XXXland.  Thoughts of "big sexy..." interrupted by "broken dick," is quite the mind-changer.  I'll have to keep updating this to let anyone else looking into this treatment know how it goes.


Kertmccarty

Had first treatment April 24 going to do second the 26 and molding on the 28 I'm not doing any molding just some light stretches I don't think but I'm not a Dr it's good to mold the day of injections wait until the Dr says to mold but listen to your body and don't stretch to much I'm 47 and just got Peyronie's about a year ago and I'm at 65d up not sure on the slight bend to the left Dr said we all go one way or the other but some curve more with Peyronie's I'm hoping I can get to 40d or better Dr already said I'll probably need a 2nd cycle in 60 days and I didn't get an ultrasound or any numbing agent just straight up stuck me in at least 8 different places at least that's what it felt like hope he numbs it tomorrow but if not I'll just hold the table tight in my hand and go somewhere in my mind I was scuba diving Good Luck and hope you get better  

james1947

Kertmccarty

Some dots, commas will help understand your posts :)

James  
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Kenlon

Went to bed last night with little swelling and rising remaining.  Slight soreness.  Woke up this morning with an erection and it was probably the worst pain I've felt...Like knives slicing my dick like a carrot.  The pain came mostly from the involuntary squeezing/tightening of my PC muscle...Thank God I was sleeping on the couch because the obscenities I woke up yelling out were intense.   All was fine once the erection went away.

Had shot #2 at 8:30am...Immediate swelling and bruising by the time I got home 15 minutes later.  The swelling increased bigger and bigger. Now my dick looks angry and feels angrier.  I wrapped with coflex but had to redo several times because it seemed like the drug was just being squeezed into different areas.  Anyone else have this problem?  

scottslcut

Hey your about a month ahead of me.  I'm going in for shot number 2 tomorrow.  I haven't started and remodeling, doc said to wait until after next shot.  I wonder if that's procedure?  Anyway I turned a nice shade of purple and some good swelling. The swellings mostly gone down. (its Thursday, got my first on Monday)  I haven't had any pain, soft or with an erection thank goodness.  soft my penis feels like it made of jelly lol.  As I said I haven't done any remodeling yet so I got an erection this morning just to check things out.  No difference in my angle but id think that's to be expected.

How long before your bursing went away?  Did the shots help?  Any difference?

Scott