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Wladyslaw

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Wladyslaw - my story...
« on: April 12, 2017, 11:02:09 AM »

Hello,

I am 39 years old and very advanced Peyronies Disease.

Some time ago I noticed that my penis changed shape a bit (he was down). From about 6-10 months I stopped having morning erections (night probably too) and decreased my desire for sex. I explained to myself that it was the result of fatigue and stress.

I have to add that I went 3 times a week to the gym and helped at least 2500 mg of L-arginine. I suspect my problems are justified by this supplement. I think the long-term intake (coding) of L-Arginine is dangerous to health. Too bad it's only now ...
I went to the doctor only a month ago because during sex with my wife I felt a strong pain in the area around the head of my penis. The doctor interviewed me and stated (he fingered me) that it was Peyronies Disease. He said that I have to read on the internet about this disease and how do I decide on steroid injections then I have to go back to it.

I will add that after visiting the doctor I set off L-Aignina and almost immediately I feel that something is wrong. I made myself weak - I quickly began to get tired, and after a week I got a sciatica attack. Hence, my belief that long-term use of L-Arginine is dangerous. If I'm wrong, please take your comments.

1. Has any of you been taking this supplements for a long time (at least 12 months)?

I checked on the internet what kind of illness and of course I was scared. So I went to another urologist (also private, because in my country to visit a specialist specialist with insurance waiting for a minimum of 2 months). He made me an ultrasound and with suspicion Peyronies Disease commissioned a magnetic resonance imaging study.
Resonance study confirmed Peyronies Disease. The pathological changes located between the cavernous bodies and the spongy body just below the penis head and two relatively new lesions on the back of the penis less than halfway.

I went back to the second urologist and he also recommended steroid injections. On the Polish Urological Society website, I found that the results of the 1997 treatment showed that Dexamethasone injections were helpful in treating Peyronies Disease (43% of pancreatitis cured, 23% significantly improved, and everyone who had ED experienced improvement). So I decided on the injections. Now I think that was a mistake. There is information in the foreign internet that this is an old high risk method.

2. Did any of you also have steroid injections and did they help?

When L-Arignin was discontinued immediately, severe ED problems appeared.
My current state is very difficult. At first I do not trust doctors in Poland because they use old methods of treatment and can hardly offer me more. Second, I do not know what to do. If my condition is caused by L-arginine, drugs such as Sildenafil and Cialis (PDE5) and PENTOX can only hurt me. I know from this forum that the penis health is very important erections, but I do not have them and I do not know whether to urge the doctor to give me PENTOX and Cialis. I also bought a VED (one cylinder), but after a few times I began to feel pain - I followed the procedure and low pressure.

When L-Arignin was discontinued immediately, severe ED problems appeared.
My current state is very difficult. At first I do not trust doctors in Poland because they use old methods of treatment and can hardly offer me more. Second, I do not know what to do. If my condition is caused by L-arginine, drugs such as Sildenafil and Cialis (PDE5) and PENTOX can only hurt me. I know from this forum that the penis health is very important erections, but I do not have them and I do not know whether to urge the doctor to give me PENTOX and Cialis. I also bought a VED (one cylinder), but after a few times I began to feel pain - I followed the procedure and low pressure.

I am after two injections (tomorrow I have a third) and I do not know what to do. In my opinion it is worse than it was. I have a bigger hourglass (and it looks like a bottleneck) and if I even get an erection (manual stimulation), my penis's head is soft. It looks as if it did not get as much blood as it should. A month ago it was not. I think it's from the injections.

I do not know what to do. I'm obsessive about it. I can not sleep, work and live. I'm trying to prove myself that I'm a man, trying to make an erection and masturbate all the time. This obviously does not bother me because my erections are soft.

I do not know whether to continue taking the injections or to beg the doctor to give me a prescription for PENTOX and Cialis - I found in forums that Pentox (3 x 400mg) and small doses of Cialis (1 x 2,5-5mg per day) help. But I think my Peyronies Disease is from L-arignine so?

3. Did any of you have advanced Peyronies Disease (I mean bottleneck / hourglass + 2 new changes of lumps) + ED (including no night and morning erections for more than six months) and managed to improve his condition?

4. In my situation, I have already begun to put money on the prosthesis?

Thank you in advance for your advice.

Regards

Wladyslaw
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melting

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Re: Wladyslaw - my story...
« Reply #1 on: April 13, 2017, 06:25:55 PM »

I dont think its Arginin in itself. It might have in some way contributed like creating more blood in erection then your tissue could take? 
What you say stopping using it makes you feel worse. So I dont see why you wouldnt reintroduce(maybe not as high dose?)
Most probably you broke some part of your tunica during intercourse and it healed badly.(trapped inflammation, scar tissue)

Overall you have to stop any action that aggrevates the tissue. So no hard masturbating etc.
If ved cause pain then dont do it anymore at this point(maybe later again)
Make sure you eat healthy etc. and have healthy blood. This is basics.

Steroids and Injections doesnt sound good but Im no expert on this. Obviously further injections into the tunica could cause further scar tissue. You say it feels bad etc. then dont do it.. right?

Whatever you do right now you have to focus on solutions. There is a lot on these forums that might help you.
In my opinion Peyronies Disease needs a multi layered approach.
Healthy System/body/mind.
Localized treatment(dmso+x-supplement). Oral supplements. Physical therapy(heat/pump/stretch all while avoiding further injury). Relaxed pelvic floor. Relaxed mind(pause).

I had hourglass and due to bad health and an injury I got more or less dead dick. Today Im healthy doing above approach. Over time I created stronger tissue around my plagues minimizing them. They are still there but dont effect me that much anymore. Of course every situation is different.

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Wladyslaw

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Re: Wladyslaw - my story...
« Reply #2 on: April 22, 2017, 03:40:13 PM »

Hello,

And you had ED? I have and it's serious. I do not have any night and morning erections. To have sex I have to take PDE5. Probably my organism will soon build tolerance for PDE5. Then what?
By what procedures (except PDE5) can I minimize ED?
DMSO would rather not help it.


Regards

Wladyslaw
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melting

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Re: Wladyslaw - my story...
« Reply #3 on: April 23, 2017, 10:20:10 AM »

I was in bad health situation during the onset and you could say I also had ED as I didnt have any erections.
The plaques then got hard and my health situation improved. My ED was gone but the plaques were troubling my erection.

So if you take PDE5 you get an erection. Would mean your tissue/veins etc is basicaly working. Do you have pain with these PDE5 induced erections?


So ED can have many reasons... I guess several coming together for you here.
If you are stressed your pelvic floor will cramp up and don't allow easy erection. Smooth muscle cells in the penis by definition only fill up if they relax.

You have to relax. Im sorry that sounds very basic. But its the #1 key to erection. You know imagine a nervous teenager worrying all day about sex and then not getting it up. Why? Cause too tense and stressed nervous system.
Same can happen to us older guys if we worry all day, are stressed etc. even if it cause of job or whatever you know.

TRY THIS for relaxation of pelvic floor:
With your inbreath try to "fill in" the whole pelvic floor first. You can imagine that by breathing into your balls. The area between your balls and anus should "balloon" stretch out. Might take some tries to get it if area is under tension. different positions work, like squatting is good.

Im sorry there is no easy solution to this with one medication or one step.
How old are you and how is your health otherwise?
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Wladyslaw

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Re: Wladyslaw - my story...
« Reply #4 on: April 23, 2017, 02:52:12 PM »

Hey,

Thank you for your message. I'm 39 years old and I thought I was good.
Unfortunately, the latest research results deny this. I have high LDL cholesterol - I do not know my dad because my diet is good and I am rather athletic. Maybe cholesterol has increased from Dexamethasone (corticosteroid to Peyronies Disease). In addition, one week after Peyronies Disease diagnosis (06.03.2017), I stopped taking L-Arginine and on 10.03.2017 I got a sciatica attack. A week ago I made a x-ray of the spine and found that I had a cervical and lumbar discopathy.
I am convinced that it's all through L-Arginine, because I have been taking it every day for over 12 months. My body is destroyed by this crap.
I myself am guilty. Now I lose my senses and I destroy my life (I have a wife and children). I do not want to live because I have no hope. Implant is very expensive and risky. Peyronies Disease makes my penis look worse and the doctors do not help but hurt - 3 steroid injections are even worse. How do I get PDE5 is the head of my penis is soft because it does not fill up with blood. A month ago (before the injections) was not so.
As I took PDE5 I had a very hard erection. Doctors take only money and they have me somewhere.
I asked them if the steroid injections are safe then they said yes. I read a little about this therapy and it turned out that steroids have long been used in Peyronies Disease treatment because they destroy healthy tissue.
Doctors are beasts !!!

Wladyslaw
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skunkworks

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Re: Wladyslaw - my story...
« Reply #5 on: April 24, 2017, 12:41:38 AM »

Probably my organism will soon build tolerance for PDE5. Then what?

No study has shown that one builds up a tolerance to pde5 inhibitors. Quite the opposite in fact, chronic use of pde5 inhibitors can lead to the person being able to get an erection without using them at all.

Where did you read about steroids destroying healthy tissue? That does not sound correct.

james1947

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Re: Wladyslaw - my story...
« Reply #6 on: April 24, 2017, 04:50:35 AM »

Wladyslaw wrote:
Quote
Doctors are beasts !!!
Wrong!!! They are same as any other people. Some excellent people, some bad/negative people, everywhere in the world

James
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NeoV

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Re: Wladyslaw - my story...
« Reply #7 on: April 24, 2017, 08:50:01 AM »

Forcing masturbation will cause your Peyronies to worsen. There is nothing more damaging than masturbating a soft penis. Let your penis heal. I had to ignore my dick for weeks before it became much better. Consider traction and VED and even heat therapy. Supplements aren't a bad idea either!
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Wladyslaw

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Re: Wladyslaw - my story...
« Reply #8 on: April 24, 2017, 02:28:14 PM »

Hello Skunkworks,

Recent Advances in Pharmacotherapy for Peyronie's Disease Luan Y, Liu J - J Integr Nephrol Androl

"Steroids

Corticosteroids were reported as the earliest agents for Peyronies Disease intralesional therapy in 1952 due to their well-known anti-inflammatory properties. [42] However, the inconsistent results from existed studies limit their use in the clinic. For instance, a small retrospective study showed their abilities to improve plaque size and penile pain, [43] but a further single-blind, placebo-controlled study got a negative conclusion that injection therapy with betamethasone had no significant changes in penile curvature, pain, and plaque volume. [44] Immunosuppression, tissue atrophy, and thinning of penile skin are relatively common side effects. [43] "

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melting

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Re: Wladyslaw - my story...
« Reply #9 on: April 26, 2017, 04:25:44 PM »

Ok,you have to focus on now and future, working towards a positive solution. Beating yourself up wont be enough to solve this. We all were there but we have to focus on a good solution cause negative makes you do more bad decisions or even injure further.

There is a lot of possibilities on what to do, many detailed on this forum. An implant is one but in my opinion one of the last. Its rather easy to just schedule an operation of course but it has risks.
The other way with some of the things we found that helps us, you might need to combine them and have a big effort into it. Improvement takes time with most of them.

I used extender and pumps and supplement applications that cost me sometimes hours daily but Im OK now.
Check the forums and make a list on what you might consider to apply? We are all here to answer questions and help :)
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Wladyslaw

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Re: Wladyslaw - my story...
« Reply #10 on: April 27, 2017, 09:47:54 AM »

Hello
And what can help me as I have an ED, and my dick for two months grimaced like a banana? I can not afford Cialis, and after Sildenafil the next day I'm tired and sleepy.
My penis is devastated and I am under 40. I'm scared and I do not want to live.
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skunkworks

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Re: Wladyslaw - my story...
« Reply #11 on: April 27, 2017, 10:59:17 AM »

Hey Wladyslaw, ahh ok I see what you are talking about now but I think that tends to be with regards to fat, not smooth muscle or blood vessels etc. Still, not worthwhile for Peyronie's.

Wladyslaw

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Re: Wladyslaw - my story...
« Reply #12 on: April 27, 2017, 11:33:00 AM »

Skunkworks,
I do not understand - what fat, what do you mean? Cholesterol and atherosclerosis? If so, does this change my situation?
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melting

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Re: Wladyslaw - my story...
« Reply #13 on: April 27, 2017, 04:26:16 PM »

Wladyslaw, most of the options that are out you can find here in the forum. I made some ideas no response by you...
Lots of possibilities. Read about and choose some of them.

I believe in daily DMSO+Vitamin C/vitamin E/iodine/magnesium topical solution coupled with castor oil pack application overnight. Then extending and pumping coupled with relaxation of the pelvic floor.
The forum is full of ideas and experiences.

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kuaka

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Re: Wladyslaw - my story...
« Reply #14 on: April 27, 2017, 05:07:10 PM »

The problem we have is that there are almost as many variations in this disease are there are sufferers.  You have to take everything into consideration, and develop a treatment plan tailored to YOU.  There are many people here who have been dealing with this for a while, myself included, and our experience can be used if for nothing else, for a "don't try this" or "be very observant of that".

Basically, what Peyronie's is is scar tissue in the penis, normally associated with the tunica, which interferes with erection.  There are other factors sometimes involved such as circulation issues and vein leakage as well.

Basically, overall health of the penis is the primary concern.  Secondarily by a very close margin is softening/expanding of the scar tissue...or plaque...so that a usable erection can be had.

Everything we try and everything we do is geared with these objectives in mind.  Anything we can do which will soften the plaque is accompanied by attempted remodeling...VED, traction, manual stretching/manipulation etc.

Of the causes of any ED component, there are many.  Over use of pornography combined with old injuries was my issue from the ED standpoint.  These old injuries contributed to scarring as well.
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