My Peyronies Disease!!!

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Wladyslaw

Hello,
First apologies for my English. I think I have Peyronies Disease for at least 12 months. Unfortunately I have not noticed the signals from my body. I took non-stop L-aryginine (about 3g per day) and walked 3 times a week to the gym. I have taken many supplements that increase the level of nitric oxide - I think I'm addicted. It seemed to me that I was indestructible.
I have noticed from around 6 months that I do not have morning erections, but that also did not make me feel uncomfortable. Total mindlessness! I went to UR only on March 6, as I had a very strong pain during intercourse. The doctor stated Peyronies Disease, made an ultrasound and commissioned the resonance - I have a calcification of about 2.5 cm and two new foci. I also have total ED! UR has ordered vitamin E + POTABA (after which I have to go to Germany because my country is not there) and tomorrow will do me injections from Dexaven (). I've been reading posts in this forum for a week and am more and more frustrated. I think I've done more harm than good because I was massaging the beard and now I feel pain. I hourglass, further outbreaks, lack of erection and zero hope. Probably late I turned to the doctor. I think that is all through the long-term use of L-Arginine.
Do you think there is still a chance for me?
Did any of you have similar experiences and his condition improved?
What treatments do you recommend?
In my country there are no specialists for this disease. What should I do?

Thank you in advance for your response.

Wladek


Wladyslaw

Hello everybody,

Please answer me.

Wladyslaw

Do I still have a chance or can I put money on a prosthesis?

Toronto34

Hi Wladyslaw,

I am new to Peyronies and this forum and I've found a lot of people here quite helpfulm, but that does not necessarily mean they will always respond to you quickly. To start you might want to check out this discussion topic: Peyronies Survival Guide - Information for New Members - Peyronies Society Forums

I am not an expert, but a couple of other things I will say:

-   Seeing a good, knowledgeable Urologist is advised. Maybe look at the urologist discussion forums to see if there are any qualified urologist in countries near Poland if you can't find one near you.

-   Document your symptoms and take measurements of your penis (length and girth, erect and flaccid) so you can track any changes over time, including an increase in curvature.

-   I am not knowledgeable about Dexaven, but you should do a search for it on this forum to see if others have any experience with it.

-   Finally, I don't believe L-Arginine is your problem. A lot of guys on here have had success treating their Peyronies with L-Arginine and my doctor recommended I go on it after diagnosing me. It may not be right for you, but L-Arginine almost certainly did not cause your Peyronies. Unless you had a traumatic sexual injury, it's often difficult to determine the cause.

Best of luck,

Toronto34

Wladyslaw

Hi Toronto34,

Thank you for your message.
Perhaps L-arginine did not contribute directly, but it suppressed the symptoms until after its withdrawal it all increased. Now I have strong Peyronies Disease and ED. After 2 weeks ago I had a sciatica attack - I just feel I'm getting old (I'm 39)! I have always tried to live healthy, I thought what I eat, lots of sport and unfortunately too many supplements.
What is the VED. Should I buy a penis pump in SEX-SHOP?
Which model to choose and how to practice? Do injections of steroids and POTABA someone help? I do not have any erections - also at night!
Do I have any chance to improve the health of my penis?

james1947

Wladyslaw

Have a lot of information on the forum, you just need to spend time to read.
I understand English is not your mother language, not mine either, but you need to make an effort if you want help.
Regarding VED, if you don't have medical grade around or it is too expensive, a sex toy shop VED will do also. I am using one with success. Buy one that have manual pump and release button.
Just be careful not to over-pump, we have a full board dealing with VED.
Also advising you to write a PM to Old Man, he is out guru in the VED subject.
It is OK to ask about Potaba, you can find a good answer by making a search on the forum main page.
What helped me is VED, Pentox and low dose Cialis
You asked:
QuoteDo I have any chance to improve the health of my penis?
The answer is YES, just be proactive and start doing something.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Wladyslaw

Hi James,

Thank you for your message. Today I had the first injection - there was fear, uncertainty and pain. Now I do not feel my penis as if he was dead. I'm afraid I will never have an erection again. I asked my UR to treat my ED and Peyronies Disease with pentoxifylline but he does not know anything about it. The second UR, which I was also unaware of, was Sildenafil. I think they have no experience in Peyronies Disease and they treat it like they did in their studies 20-30 years ago. I think I have a lot of trouble ... I do not really know how to navigate the forum so please ask for a short tutorial (in a few points 1,2,3 ...) how to use VED one cylinder - i think it is something like: https: / /medshop.pl/active-system-erection.html

I will just add that I have taken L-Arginine for over a year in the amount of about 3-4g daily.
I exercised at the gym 3 times a week - 1 workout about 2 hours.
For about six months I have noticed a lack of morning erections, and weaker erections during sex. 2-3 piss at night, swollen legs.

To the doctor I went only as I felt strong pain during sex.
I put down all the supplements (including L-arginine) and it started:

- no erection,
- Joint pain and sciatica,
- dry skin,
- tired at work,
- somnolence.

I wonder if this is due to the long-term use of L-arginine (I read that nitric oxide is great at first, but with long-term use of L-arginine, nitric oxide begins to be toxic to the body). If it did not harm it covered the symptoms. And when I stopped taking health I suddenly broke down.
I'm afraid this is irreversible. Please confirm whether such a VED device is like my link. I also ask for a brief and (readable for foreigners) instructions.

Thanks in advance for all help.

Regards

Wladyslaw


james1947

Wladyslaw

The VED you are talking about is with electrical pump, I prefer the manual for safety reasons
At the bottom of the page have a manual one also. At the price of $US 253 (999 PLN) it is a ripoff!!!
You can find much cheaper medical grade VED's
I bought mine at $US 35 and it works fine.

Regarding VED instruction, you have here:
Updated:PROTOCOL THERAPY WITH THE VITALITY OTC ONE CYLINDER VED - Peyronies Society Forums
Updated:PROTOCOL THERAPY WITH THE VITALITY OTC ONE CYLINDER VED - Peyronies Society Forums
Highlights of VED's Board - A must read for new members interested in learning. - Peyronies Society Forums
Simply said, you pump up to the level that have no pain and it is comfortable.
You hold for let's say 30 second, release for 30 seconds. I am making it 30 minutes per day.
You will need to shave or at least trim down there to have good sealing.
Use some lubricant, cream or oil.
As I wrote you, send a PM to old man. He is the best man to get an advice

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Wladyslaw

Hi James,
Thank you for help. This information is very important to me - I feel better mentally.
I have to look for a cheaper VED device, because the 253 $ is really hard and I have no money this month.
For over 3 weeks doctors, diagnostics and medicines spent over 500 $, which is just the beginning of the expenditure.
Once again thank you very much for your help.

Regards

Wladyslaw

Wladyslaw

Hello,

I'm after a second injection with Dexamethasone and I would like to have sex with my wife. My URO said I could have sex and saved me VIAGRA because I have ED. I have a question - can I take VIAGRA and have sex, or better for some time?
Thank you in advance for your answer.

Wladyslaw

james1947

Wladyslaw

I suppose a moderator will lock the topic as on this introductory board just 10 posts per topic are allowed
You may continue posting/opening topics on the relevant boards


Regarding Viagra, yes you can use for sex especially if the doctor prescribed it to you
Proposing you to start with 25 mg (I cut the 100 mg in 4 to reduce cost).
If 25 mg don't help, try 50 mg. Don't try more than 100 mg!!!

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum