Hello all. I am a sufferer of this Peyronies disease chronically, and did not know I had it until this week.
I have to start by sharing something deeply personal that occurred to me -- I was molested when I was somewhere around age 9.. and I believe this happened during those years, and I still have it, and my whole life while thinking my penis was a bit different (things like hourglass shape occurring while flaccid
, some hypersensitivity, upward bend while erect, and a bend maybe 5-10 degrees to the left), I still thought it was just how my penis was naturally my entire life! I had always thought everyones leaned a bit in some direction.. I had no idea what I had gotten myself into and grew up thinking I was perfectly "healthy" physiologically.
I have struggled with ED
and every so often slight pain when I orgasm, and it has been a psychological nightmare. I thought my ED was purely psychological my entire life, having horrible relationships because the people I would involve myself with felt I wasn't attracted to them due to my ED issues --
So now, nearly 15 years later (I'm 26 now), I'm in shock, horrified, terrified, depressed, and feel like I am castrated and immasculated now that I know what is going on -- that it wasn't purely psychological, that I have a physical condition, and that if it didn't clear up years ago, then my outlook for improvement is drastically lowered.
After exploring some of the popular options for treatment -- almost all being for fresh scar tissue and plaque
that are non-invasive, I discovered the shocking surgery that is, I suppose, one of the only options with real hope. The thought of that option is tormenting my mind, especially since most other options are unlikely to help in my chronic
form of the "disease"..
What would you guys recommend for someone in my position? Right now I am just getting as much Vitamin E in me as I can find, and haven't tried anything else. Does ED medication help you? How unusual are things like this to a partner? I really had to believe that my penis was as naturally as anyone elses my whole life, but have always had massive insecurity, do people think any of these minor curvature issues (like a potential girlfriend, etc) are normal to some degree? Or are they mostly shocked to see it? No one but my roommate who saw me naked ever said a thing like it to me, and I wish they had, maybe would have found out about this earlier.
Is there any non-surgical treatments for long-term conditions of Peyronies? I am desperate enough to run to the doctor and get surgery now that I know the source of all my years of dealing with this unknowingly, I just want this nightmare to be over, but I have not found many personal experiences of post-operation satisfaction that seemed, well, worth the risks.
I would also like to note that I have seen the doctor many times for physicals, I do not understand why the doctor would not have pointed this out himself? Do they not know about the condition either, or do they not tell you unless you are having issues that you express due to it? Makes no sense to me.