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Author Topic: Newly Diagnosed and Interested in VED  (Read 736 times)

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Toronto34

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Newly Diagnosed and Interested in VED
« on: March 08, 2017, 12:01:29 PM »

Hello,

I was diagnosed with Peyronies last week and I am interested in trying VED, but I’d like to hear from more experienced guys first. I’ll give you my background.

My symptoms, which I noticed about a week-and-a-half ago are as follows:
-   An upward, dorsal curve of about 10-15 degrees when erect, more noticeable the fuller my erection (I am finding it hard to measure the exact curvature).
-   A firm, rubbery flaccid; length and girth seem mostly normal
-   Some mild stinging pain on the right/underside of my penis during an erection, but more noticeable after masturbating.
-   I had an hourglass shape one time with a partial erection, but have not seen it in almost 2 weeks (that was when I really noticed something was wrong).
-   I’ve had some ED issues, but I think this might be psychological. Erections are still normal length/girth as far as I can tell, but they kind of go away quickly without stimulation of some kind. Still getting decent morning wood most days (even before Cialis).
-   The pain may pre-date the other symptoms, but it’s mild so I can’t say for sure. My guess is I am still fairly early in the acute phase.
-   Strangely my symptoms all seemed to appear soon after a very strenuous lower body workout, including squats (my only hourglass erection was an hour after this workout).

I have been comparatively lucky as my GP was actually familiar with Peyronies, said he’s treated it successfully before and diagnosed me within a week of my first noticeable symptoms. He even got me on the “right” meds, as far as I can tell (I had been going through this forum with a near religious devotion before I saw him so I kinda knew what I was looking for).

My GP prescribed:
-   Pentox (800 mg, 3x a day)…I am only at 2x a day now, as I wean myself onto it, but side-effects are minimal at this point.
-   Cialis (5mg 1x a day)
-   And he recommended L-Arginine (1000 2x a day) so I am on that.
I am also taking:
-   1000mg of ACL 2x a day (started before I even went to doc)
-   300 mg of CO Enzyme Q10 (actually starting this next week, trying to go on all these new supplements slowly)

I am also cutting way down on masturbation (I was almost once-a-day before and I am 34) and already changing my diet to a more anti-inflammatory one. I do have CPPS as well, which was mostly mild and under control but seems to flaring up a bit now (I have had some non-peyronies symptoms: shooting pains in rectum – fun! – and sore/tender testicles).

I could write more, but I think that’s a good overview. Assuming my meds/supplements are alright, would you recommend VED? If so, how should I start? What devices are best? Are there any risks? Should I wait to see how the meds work before trying it? I want to be aggressive with this, but my symptoms are mild so far and I don’t want to make it worse by misusing VED.

Thanks in advance.
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Jonbinspain

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Re: Newly Diagnosed and Interested in VED
« Reply #1 on: March 09, 2017, 02:34:01 AM »

IMO, yes. I would start with VED therapy. Used correctly it will help ensure healthy blood flow to the penis.

Read the section on the site. Personally, I'd suggest a manual version as it gives you better control.

If you send a PM to Old Man, I'm sure he'll be able to help you. He's our resident VED expert.
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daybyday

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Re: Newly Diagnosed and Interested in VED
« Reply #2 on: March 11, 2017, 09:07:50 AM »

Not going to say you don't have PDS because the curve is indicative of that, but I would seriously seriously consider going to see a pelvic floor therapist. The hourglassing occurring and symptoms worsening after a workout are definitely related to tension in your pelvic floor. There's so much about pelvic floor dysfunction we don't know but penis problems and pain etc are certainly worsened by it. Something to consider

Edit: re read your post and that confirms my thoughts, the fact that this started with pain. When my PDS started it was painful and my PT told me that when you experience pain you may respond (unknowingly) by tightening your pelvic floor thus creating a compounding issue
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Toronto34

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Re: Newly Diagnosed and Interested in VED
« Reply #3 on: March 11, 2017, 03:11:39 PM »

Hi Daybyday,

You actually read my mind. Last week I booked an appointment with a pelvic floor physiotherapist for Monday. I've had mild prostate issues before and they have flared up kind of bad at the same time as my Peyronies/going to the gym so I think it's all connected. Even if it's separate issues I want to address the prostrate stuff.

Have you had any success treating Prostatitis/CPPS (esp. hourglass shape) with physiotherapy?

Thanks
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daybyday

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Re: Newly Diagnosed and Interested in VED
« Reply #4 on: March 15, 2017, 06:28:07 PM »

Toronto:

I honestly have only been to one session thus far but I have a second one coming up. I bet you a lot of people who experience the narrowed base might find that it's related to pelvic floor issues caused by pain, rather than actual scar tissue itself but that's just a theory. I don't have prostate problems or "cpps" (at least not diagnosed) but again I think that CPPS is a broad label thrown on a lot of stuff, which PFD likely falls under. Give it a go and see what comes of it, they'll assess you on your first visit so they can confirm whether or not they think you may have some sort of pelvic floor dysfunction. Good luck, keep us posted
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Toronto34

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Re: Newly Diagnosed and Interested in VED
« Reply #5 on: March 17, 2017, 09:34:53 AM »

daybyday,

I went to the Physio on Monday and she confirmed that I do have tight pelvic floor muscles that appear to be constantly in a state of contraction, which leads to weaker pelvic floor muscles. This could definitely result in the mild urological problems and pain I've experienced in the pelvic region. It could also contribute to hard flaccid and hourglassing in the flaccid state, but she said she was not sure could help resolve those issues because they might be related directly to Peyronies and not the pelvic floor muscles, which is fair enough.

She put me on a regimen of 20 “reverse kegels” 5 times a day. This is mostly to gain awareness of where the kegel muscles are and learn how to relax them, not a cure in itself. It’s not too bad, but doing them at work is not the easiest (it’s best to be lying on your back, but you can do them sitting). Are you on something similar?

It’s seems this is going to a long term plan that will involve learning to relax the kegel muscles and then building up strength later on (probably through regular kegels at some point). Thankfully Physio is covered by my insurance.

I should say I have not been formally diagnosed with CPPS. I've had bouts of Prostatitis over the last 5 years that I mostly manage with diet/lifestyle because doctors only seem to treat with antibiotics (the first time they worked, after that antibiotics proved useless). They physio option appeals to me because it's addressing my problem as a chronic condition.

I'll keep you updated, hope you'll do the same!
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Paolo

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Re: Newly Diagnosed and Interested in VED
« Reply #6 on: March 17, 2017, 09:43:57 AM »

Toronto34, reverse kegels are great, nearly every time I pass urine I force it out, it is almost now second nature for me, it has helped with flaccid hang for sure and my PC muscle feels looser  :)
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Toronto34

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Re: Newly Diagnosed and Interested in VED
« Reply #7 on: March 17, 2017, 03:37:57 PM »

Hi Paolo,

Yes, today I really felt like the exercises are already helping a bit with the hard flaccid. It's still very early, but I am going to keep doing it and report back with my progress.

Thanks
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melting

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Re: Newly Diagnosed and Interested in VED
« Reply #8 on: March 18, 2017, 08:01:49 PM »

Very good!
That is the way on how to approach this problem. Reading up and making educated guesses to move towards a positive outcome! 

Make sure to avoid any new inflammation. So doing VED must be done very carefully.(use heat while doing it)
If you go beyond your normal size you are possibly creating micro tears that might create more inflammation. Having some light VED to get the blood moving in your penis is good. 

IMO Peyronies disease is so bad cause its trapped inflammation at a place that is not so easy reached by the bodys self healing properties. Doing VED to flush healthy nutrients into your penis makes sense.

Doign pumping or stretching of course can trigger your pelvic floor to tighten up. So be aware of that and try to ease/relax into any VED therapy.(doing reverse kegels during VED can be a good idea)

Also I always recommend to check out the whole DMSO topic which Im confident woudl have contained my peyronies better if I had done that early on.(the dmso can get anti inflammatory and pro healthy tissue nutrients directly into the penis where the injury/inflamamtion sits)
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